{"id":30120,"date":"2019-09-04T14:58:33","date_gmt":"2019-09-04T12:58:33","guid":{"rendered":"https:\/\/new.togetherforlife.org.al\/?p=30120"},"modified":"2021-10-04T15:09:47","modified_gmt":"2021-10-04T13:09:47","slug":"gjykata-demshperblen-pacientin-me-hemofili-together-for-life-perfaqesoi-ligjerisht-ceshtjen","status":"publish","type":"post","link":"https:\/\/www.togetherforlife.org.al\/en\/gjykata-demshperblen-pacientin-me-hemofili-together-for-life-perfaqesoi-ligjerisht-ceshtjen\/","title":{"rendered":"Gjykata d\u00ebmshp\u00ebrblen pacientin me hemofili, Together for Life p\u00ebrfaq\u00ebsoi ligj\u00ebrisht \u00e7\u00ebshtjen"},"content":{"rendered":"

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M\u00eb dat\u00eb 31 korrik 2019, Gjykata Administrative e Shkall\u00ebs s\u00eb Par\u00eb Tiran\u00eb vendosi pranimin e Padis\u00eb dhe shp\u00ebrblimin e d\u00ebmit pasuror dhe jopasuror n\u00eb mas\u00ebn 2 133 330 lek\u00eb t\u00eb shkaktuar pacientit B. Nezaj, si rezultat i mohimit t\u00eb trajtimit t\u00eb duhur mjek\u00ebsor. Hemofilia \u00ebsht\u00eb nj\u00eb \u00e7rregullim i trash\u00ebguar i gjakut i shkaktuar nga mungesa faktor\u00ebve t\u00eb koagulimit dhe godet n\u00eb m\u00ebnyr\u00eb t\u00eb ve\u00e7ant\u00eb aparatin kockor-artikular-muskular por mund t\u00eb shkaktoj\u00eb edhe hemoragji interne. Pacienti u p\u00ebrfaq\u00ebsua n\u00eb procesin gjyq\u00ebsor nga Shoqata \u201cTogether for Life\u201d.<\/p>\n

M\u00eb par\u00eb, Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi kishte konstatuar diskriminimin e pacientit p\u00ebr shkak se:<\/p>\n

    \n
  1. Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale nuk kishte miratuar Protokollin Klinik p\u00ebr trajtimin e s\u00ebmundjes s\u00eb Hemofilis\u00eb;<\/li>\n
  2. Qendra Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d Tiran\u00eb nuk siguron profilaksin\u00eb p\u00ebr ndjekjen mjek\u00ebsore t\u00eb pacient\u00ebve me Hemofili;<\/li>\n
  3. Pacientit B. Nezaj, nuk i \u00ebsht\u00eb siguruar medikamenti Faktor IX n\u00eb sasin\u00eb e rekomanduar nga mjeku specialist Hematolog;<\/li>\n
  4. Qendra Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d Tiran\u00eb dhe Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale nuk mund t\u00eb justifikohen se, mang\u00ebsit\u00eb n\u00eb ilace vijn\u00eb p\u00ebr shkak t\u00eb buxhetit t\u00eb kufizuar p\u00ebr blerjen e ilaceve;<\/li>\n
  5. Analiza Betehsda\/Nijmegen p\u00ebr matjen sasiore t\u00eb titrit t\u00eb Inhibitorit p\u00ebr pacient\u00ebt me Hemofili nuk mund t\u00eb zhvillohet n\u00eb Qendr\u00ebn Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d Tiran\u00eb p\u00ebr shkak t\u00eb nevoj\u00ebs p\u00ebr trajnim t\u00eb ve\u00e7ant\u00eb t\u00eb personelit dhe kostos s\u00eb lart\u00eb;<\/li>\n
  6. Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mbrojtjes Sociale dhe Qendra Spitalore Universitare \u201cN\u00ebn\u00eb Tereza\u201d Tiran\u00eb nuk kan\u00eb d\u00ebrguar Komisionerit informacionin e detajuar lidhur me m\u00ebnyr\u00ebn se si \u00ebsht\u00eb p\u00ebrllogaritur n\u00eb buxhet, fondi p\u00ebr medikamente p\u00ebr t\u00eb s\u00ebmur\u00ebt me Hemofili, t\u00eb dh\u00ebnat teknike dhe sasiore p\u00ebr nevojat p\u00ebr ilace, etj., p\u00ebr t\u00eb vler\u00ebsuar rregullsin\u00eb e sigurimit t\u00eb Faktorit IX.<\/li>\n<\/ol>\n

    P\u00ebr k\u00ebto shkaqe dhe mohimit s\u00eb trajtimit t\u00eb duhur mjek\u00ebsor nga institucionet p\u00ebrgjegj\u00ebse shtet\u00ebrore, pacienti B. Nezaj kishte p\u00ebsuar paaft\u00ebsi p\u00ebr pun\u00eb dhe paaft\u00ebsi t\u00eb pjesshme t\u00eb p\u00ebrhershme n\u00eb mas\u00ebn 30 %.<\/p>\n

    Ndjekja e k\u00ebsaj \u00e7\u00ebshtje \u00ebsht\u00eb mund\u00ebsuar me mb\u00ebshtetjen e\u00a0Fondacionit Shoq\u00ebria e Hapur p\u00ebr Shqip\u00ebrine<\/a>\u00a0\u2013 OSFA.<\/p>\n

    Shoqata \u201cTogether for Life\u201d do t\u00eb vijoj\u00eb ndjekjen e rrug\u00ebve ligjore q\u00eb t\u00eb gjith\u00eb pacient\u00ebve t\u2019u garantohet e drejta p\u00ebr kujdes sh\u00ebndet\u00ebsor efektiv dhe efikas, n\u00eb p\u00ebrputhje me standardet mjek\u00ebsore.<\/p>\n

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    M\u00eb dat\u00eb 31 korrik 2019, Gjykata Administrative e Shkall\u00ebs s\u00eb Par\u00eb Tiran\u00eb vendosi pranimin e Padis\u00eb dhe shp\u00ebrblimin e d\u00ebmit pasuror dhe jopasuror n\u00eb mas\u00ebn 2 133 330 lek\u00eb t\u00eb […]<\/p>","protected":false},"author":1,"featured_media":30123,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[88],"tags":[],"class_list":["post-30120","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-litigime"],"yoast_head":"\nGjykata d\u00ebmshp\u00ebrblen pacientin me hemofili, Together for Life p\u00ebrfaq\u00ebsoi ligj\u00ebrisht \u00e7\u00ebshtjen - TogetherForLife<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.togetherforlife.org.al\/en\/gjykata-demshperblen-pacientin-me-hemofili-together-for-life-perfaqesoi-ligjerisht-ceshtjen\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Gjykata d\u00ebmshp\u00ebrblen pacientin me hemofili, Together for Life p\u00ebrfaq\u00ebsoi ligj\u00ebrisht \u00e7\u00ebshtjen - 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