{"id":29256,"date":"2017-05-04T19:09:05","date_gmt":"2017-05-04T17:09:05","guid":{"rendered":"https:\/\/new.togetherforlife.org.al\/?p=29256"},"modified":"2021-10-04T15:59:40","modified_gmt":"2021-10-04T13:59:40","slug":"shoqata-together-for-life-ne-bruksel-per-te-drejtat-e-pacienteve","status":"publish","type":"post","link":"https:\/\/www.togetherforlife.org.al\/en\/shoqata-together-for-life-ne-bruksel-per-te-drejtat-e-pacienteve\/","title":{"rendered":"Shoqata \u201cTogether for Life\u201d n\u00eb Bruksel p\u00ebr t\u00eb drejtat e pacient\u00ebve"},"content":{"rendered":"

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Sfidat p\u00ebr aksesin e barabart\u00eb, n\u00eb koh\u00eb dhe t\u00eb p\u00ebrshtatsh\u00ebm n\u00eb inovacion. Kjo ishte tema e konferenc\u00ebs s\u00eb zhvilluar me rastin e 11-vjetorit t\u00eb Dit\u00ebs Evropiane t\u00eb t\u00eb Drejtave t\u00eb Pacient\u00ebve, e cila p\u00ebrfshin pik\u00ebn 10, e drejta p\u00ebr t\u00eb p\u00ebrfituar inovacionet dhe arritjet shkencore e bashk\u00ebkohore mjek\u00ebsore. Konferenca u zhvillua n\u00eb Bruksel me pjes\u00ebmarrje t\u00eb p\u00ebrfaq\u00ebsuesve t\u00eb Parlamentit Evropian, institucioneve evropiane dhe shoqatave p\u00ebr mbrojtjen e t\u00eb drejtave t\u00eb pacient\u00ebve.<\/p>\n

N\u00eb t\u00eb ishin t\u00eb ftuar p\u00ebrfaq\u00ebsues nga 17 shtete evropiane, nd\u00ebrsa nga Shqip\u00ebria mori pjes\u00eb Arlinda Gjypi, menaxhere e programeve tek shoqata \u201cTogether for Life\u201d dhe nj\u00ebkoh\u00ebsisht kryeredaktore e gazet\u00ebs \u201cSh\u00ebndet+\u201d. T\u00eb pranishmit fol\u00ebn dhe ndan\u00eb p\u00ebrvojat lidhur me sfidat me t\u00eb cilat p\u00ebrballen vendet evropiane dhe vendet e BE-s\u00eb kur b\u00ebhet fjal\u00eb p\u00ebr inovacionin n[ mjek\u00ebsi, nd\u00ebrsa t\u00eb gjith\u00eb theksuan r\u00ebnd\u00ebsin\u00eb e pjes\u00ebmarrjes s\u00eb pacient\u00ebve n\u00eb institucionet vendimmarr\u00ebse p\u00ebr mjekimet inovative. Rob Camp, p\u00ebrfaq\u00ebsues i EUPATI (Akademia Evropiane e Pacient\u00ebve) \u00a0u shpreh se vet\u00ebm pacient\u00ebt mund t\u00eb sjellin ndryshimin dhe p\u00ebr k\u00ebt\u00eb \u00ebsht\u00eb e nevojshme q\u00eb ata t\u00eb ken\u00eb informacion dhe edukimin e duhur, n\u00eb m\u00ebnyr\u00eb q\u00eb z\u00ebri i tyre t\u00eb d\u00ebgjohet.<\/p>\n

Emanuela Evi, an\u00ebtare e Parlamentit Evropian, tha se p\u00ebr p\u00ebrmir\u00ebsimin e situat\u00ebs n\u00eb eksesin n\u00eb inovacion shpresohet heqja e monopolit t\u00eb disa kompanive farmaceutike, si dhe futjen e sa m\u00eb shum\u00eb ila\u00e7eve gjenerike.<\/p>\n

P\u00ebrfaq\u00ebsuesi i \u201cEurordis\u201d deklaroi se kur b\u00ebhet fjal\u00eb p\u00ebr ila\u00e7et, \u00ebsht\u00eb shum\u00eb e r\u00ebnd\u00ebsishme q\u00eb t\u00eb merren parasysh \u00e7mimet, por edhe efektshm\u00ebria, siguria dhe cil\u00ebsia e tyre.<\/p>\n

Lidhur me k\u00ebt\u00eb \u00e7\u00ebshtje, p\u00ebrfaq\u00ebsuesja e \u201cTogether for Life\u201d, Arlinda Gjyi, ngriti problemin se aktualisht n\u00eb Shqip\u00ebri prokurorimet p\u00ebr ila\u00e7et e rimbursuara nga shteti marrin parasysh vet\u00ebm \u00e7mimin m\u00eb t\u00eb lir\u00eb, duke mos b\u00ebr\u00eb nj\u00eb ekuilib\u00ebr mes \u00e7mimeve dhe cil\u00ebsis\u00eb, e si rrjedhoj\u00eb duke b\u00ebr\u00eb q\u00eb shum\u00eb shtetas shqiptar\u00eb t\u00eb detyrohen t\u2019i blejn\u00eb ila\u00e7et jasht\u00eb vendit.<\/p>\n

Joop van Griesven, p\u00ebrfaq\u00ebsues holandez i Shoqat\u00ebs s\u00eb Fibromialgjis\u00eb tha se pjes\u00ebmarrja e pacient\u00ebve n\u00eb vendimmarrje \u00ebsht\u00eb e kufizuar dhe se fatkeq\u00ebsisht institucionet vendimmarr\u00ebse nuk kan\u00eb pacient\u00ebt n\u00eb qend\u00ebr t\u00eb tyre dhe se nuk e marrin parasysh mendimin e tyre.<\/p>\n

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Nd\u00ebrkoh\u00eb, p\u00ebrfaq\u00ebsuesja shtet\u00ebrore e pacient\u00ebve n\u00eb Holand\u00eb tha se tashm\u00eb ka filluar t\u00eb pakt\u00ebn informimi i pacient\u00ebve p\u00ebr \u00e7do hap q\u00eb b\u00ebhet lidhur me medikamentet e reja q\u00eb futen n\u00eb qarkullim.<\/p>\n

Nd\u00ebrsa p\u00ebrfaq\u00ebsuesi i Komisionit Evropian, Martin Seychell, si p\u00ebrgjigje p\u00ebr Shqip\u00ebrin\u00eb tha se duke qen\u00eb se ky vend po p\u00ebrpiqet t\u00eb futet n\u00eb BE, \u00ebsht\u00eb e r\u00ebnd\u00ebsishme q\u00eb t\u00eb shoh\u00eb mir\u00eb edhe an\u00ebn ligjore kur b\u00ebhet fjal\u00eb p\u00ebr sh\u00ebndetin.<\/p>\n

\u201cKemi nevoj\u00eb p\u00ebr t\u00eb bashk\u00ebpunuar n\u00eb m\u00ebnyr\u00eb t\u00eb efektshme me pacient\u00ebt p\u00ebr t\u00eb par\u00eb se si mund t\u00eb leht\u00ebsojn\u00eb aksesin n\u00eb inovacion\u201d, u shpreh Seychell -Duhet barazi n\u00eb sh\u00ebndet, pasi sh\u00ebndeti \u00ebsht\u00eb \u00e7\u00ebshtje sociale\u201d.<\/p>\n

Temat q\u00eb u trajtuan n\u00eb k\u00ebt\u00eb konferenc\u00eb ishin:<\/p>\n