Ndihma e Par\u00eb fillon nga ne: Komunitetet n\u00eb Veprim p\u00ebr t\u00eb shp\u00ebtuar jet\u00eb<\/h2><\/div><\/div>Ndihma e par\u00eb fillon nga komuniteti!\r\n\r\nMe rastin e Dit\u00ebs Bot\u00ebrore t\u00eb Ndihm\u00ebs s\u00eb Par\u00eb, n\u00eb kuad\u00ebr t\u00eb projektit\u00a0SOLIDAR, i zbatuar nga GFA Consulting Group GmbH n\u00eb partneritet me Together for Life, u zhvilluan nj\u00eb seri aktivitetesh informuese dhe praktike n\u00eb 7 bashki:\u00a0P\u00ebrmet, Gramsh, C\u00ebrrik, Vor\u00eb, Fush\u00eb-Kruj\u00eb, Shkod\u00ebr dhe Puk\u00eb.\u00a0Aktivitetet u organizuan n\u00eb bashk\u00ebpunim me bashkit\u00eb, Operatorin e Sh\u00ebrbimeve t\u00eb Kujdesit Sh\u00ebndet\u00ebsor (OSHKSH), Kryqin e Kuq Shqiptar, qendrat sh\u00ebndet\u00ebsore dhe aktor\u00eb t\u00eb tjer\u00eb vendor\u00eb.\r\n\r\n\r\n\r\nNga sheshet e qyteteve te qendrat komunitare dhe nj\u00ebsit\u00eb administrative, aktivitetet soll\u00ebn informacionin mbi ndihm\u00ebn e par\u00eb m\u00eb pran\u00eb qytetar\u00ebve dhe krijuan hap\u00ebsira p\u00ebr informim, bashk\u00ebbisedim dhe demonstrime praktike. Instruktor\u00ebt e Kryqit t\u00eb Kuq Shqiptar demonstruan m\u00ebnyr\u00ebn se si qytetar\u00ebt mund t\u00eb reagojn\u00eb n\u00eb minutat e para t\u00eb nj\u00eb situate emergjente, duke p\u00ebrfshir\u00eb raste si mbytja, t\u00eb fik\u00ebtit, konvulsionet dhe situata t\u00eb tjera q\u00eb k\u00ebrkojn\u00eb reagim t\u00eb shpejt\u00eb dhe t\u00eb p\u00ebrshtatsh\u00ebm.\r\n\r\nN\u00eb aktivitete u angazhuan p\u00ebrfaq\u00ebsues t\u00eb zyrave t\u00eb OSHKSH-s\u00eb, bashkive, qendrave sh\u00ebndet\u00ebsore, organizatave vendore, an\u00ebtar\u00eb t\u00eb Rrjeteve t\u00eb Aft\u00ebsive Rip\u00ebrt\u00ebrit\u00ebse n\u00eb Komunitet (CRN) dhe qytetar\u00eb t\u00eb shumt\u00eb nga komunitetet lokale.\r\n\r\n\r\n\r\nP\u00ebrtej informimit, k\u00ebto aktivitete sh\u00ebrbyen si nj\u00eb mund\u00ebsi p\u00ebr t\u00eb forcuar lidhjen mes komuniteteve dhe institucioneve q\u00eb kan\u00eb rol n\u00eb p\u00ebrgatitjen dhe reagimin ndaj emergjencave. Sepse gjat\u00eb nj\u00eb emergjence, komuniteti \u00ebsht\u00eb aty. Njohurit\u00eb baz\u00eb t\u00eb ndihm\u00ebs s\u00eb par\u00eb mund t\u00eb b\u00ebjn\u00eb nj\u00eb ndryshim t\u00eb madh n\u00eb minutat e para dhe \u00e7do qytetar mund t\u00eb jet\u00eb nj\u00eb hallk\u00eb e r\u00ebnd\u00ebsishme n\u00eb zinxhirin e shp\u00ebtimit.\r\n\r\nP\u00ebrmes k\u00ebtyre aktiviteteve, SOLIDAR vijon t\u00eb investoj\u00eb n\u00eb komunitete m\u00eb t\u00eb informuara, m\u00eb t\u00eb p\u00ebrgatitura dhe m\u00eb t\u00eb afta p\u00ebr t'u p\u00ebrballur me situata emergjente, duke nxitur bashk\u00ebpunimin, solidaritetin dhe vullnetarizmin n\u00eb nivel vendor.\r\n\r\nNdihma e par\u00eb nuk \u00ebsht\u00eb vet\u00ebm nj\u00eb aft\u00ebsi. \u00cbsht\u00eb nj\u00eb p\u00ebrgjegj\u00ebsi q\u00eb mund t\u00eb shp\u00ebtoj\u00eb jet\u00eb.\r\n\r\n\r\n\r\nKy aktivitet \u00ebsht\u00eb realizuar n\u00eb kuad\u00ebr t\u00eb projektit \u201cSOLIDAR \u2013 Bashk\u00eb n\u00eb emergjencat sh\u00ebndet\u00ebsore, nj\u00eb projekt i Agjensis\u00eb Zvicerane p\u00ebr Zhvillim dhe Bashk\u00ebpunim, q\u00eb implementohet nga GFA Consulting Group GmbH n\u00eb partneritet me Together for Life.\r\n\r\n***\r\n\r\nFirst aid starts with the community!\r\n\r\nOn the occasion of World First Aid Day, in frame of the SOLIDAR project, implemented by GFA Consulting Group GmbH in partnership with Together for Life, a series of awareness-raising and practical activities were held across 7 municipalities: P\u00ebrmet, Gramsh, C\u00ebrrik, Vor\u00eb, Fush\u00eb-Kruj\u00eb, Shkod\u00ebr, and Puk\u00eb. These activities were organized in cooperation with the municipalities, the Operator of Health Care Services (OSHKSH), the Albanian Red Cross, health centers, and other local stakeholders.\r\n\r\nFrom city squares to community centers and administrative units, the activities brought first aid information closer to citizens and created spaces for awareness, dialogue, and practical demonstrations. Instructors from the Albanian Red Cross demonstrated how citizens can respond in the first minutes of an emergency, including situations such as choking, fainting, seizures and other circumstances that require a rapid and appropriate response.\r\n\r\nActivities brought together representatives from OSHKSH offices, municipalities, health centers, local organizations, members of Community Resilience Networks (CRN), and many citizens from local communities.\r\n\r\nBeyond raising awareness, these activities provided an opportunity to strengthen the connection between communities and institutions involved in emergency preparedness and response. Because when an emergency happens, the community is there. Basic first aid knowledge can make a significant difference in the first few minutes, and every citizen can be an important link in the chain of survival.\r\n\r\nThrough these activities, SOLIDAR continues to invest in communities that are better informed, better prepared, and better equipped to respond to emergency situations, while promoting cooperation, solidarity, and volunteering at the local level.\r\n\r\nFirst aid is not just a skill. It is a responsibility that can save lives.\r\n\r\nThis activity was organized in frame of the Project \u201cSOLIDAR \u2013 Together in health emergencies\u201d, a project of the Swiss Agency for Development and Cooperation, implemented by GFA Consulting Group GmbH in partnership with Together for Life.\r\n\r\n <\/div><\/article>Combatting Corruption of Public Spending in the Health Sector<\/h2><\/div><\/div>Project Title\r\n\r\nCombatting Corruption of Public Spending in the Health Sector\r\n\r\nDonor\r\n\r\nNational Endowment for Democracy (NED)\r\n\r\nImplementation Period\r\n\r\n2026\u20132028\r\n\r\nPROJECT OBJECTIVE\r\n\r\nTo promote accountability and transparency in Albania's health sector through the systematic monitoring of public spending and public procurement procedures, the identification and exposure of corrupt practices, the strengthening of investigative journalism and civil society oversight, and the promotion of dialogue and advocacy with public institutions. The project aims to enhance institutional transparency, increase the accountability of public authorities, and empower citizens to actively monitor and demand greater accountability in the management of public resources in the health sector.\r\n\r\nActivities\r\n\r\n \tMonitor and analyze public spending and public procurement procedures in Albania's health sector during 2026 and 2027.\r\n \tPrepare and publish two annual reports on the health sector budget, focusing on spending patterns, allocation of public funds, and compliance with public procurement procedures.\r\n \tProduce a monitoring report on the regulation and oversight of public procurement and procurement practices in the pharmaceutical sector.\r\n \tDevelop a comparative analysis of the Public-Private Partnership (PPP) model and the state-owned enterprise model for the provision of hospital sterilization services.\r\n \tOrganize four regional information meetings on the right to information and institutional transparency in cooperation with the Office of the Commissioner for the Right to Information and Personal Data Protection.\r\n \tCollaborate with BIRN Albania to produce four investigative reports on corruption and mismanagement in the health sector and provide support to investigative journalists throughout the process.\r\n \tMaintain and regularly update the Transparency.com.al platform, including its online corruption reporting mechanism, and publish reports, analyses, and investigative articles.\r\n \tOrganize a public hearing with the Parliamentary Committee on Labour, Social Affairs and Health to present the project's findings and policy recommendations.\r\n \tHold at least two consultative roundtables with the Ministry of Health and Social Welfare to advocate for the implementation of the project's recommendations and improvements in the health sector budget.\r\n \tOrganize at least four roundtable discussions with key institutions, including the Office of the Commissioner for the Right to Information, the Prime Minister's Office, the Supreme State Audit, and other relevant institutions, to present the project's findings.\r\n \tStrengthen the network of civil society organizations engaged in monitoring transparency and accountability in public spending within the health sector.\r\n \tPrepare and disseminate six press releases per year to raise public awareness of transparency, accountability, and anti-corruption issues in Albania's health sector.\r\n\r\n <\/div><\/article>Skema e re e furnizimit me barna dhe fondet publike: Ministria \u201crefuzon\u201d t\u2019i p\u00ebrgjigjet TFL-s\u00eb p\u00ebr projektligjin<\/h2><\/div><\/div>Nd\u00ebrsa n\u00eb media raportohet se nj\u00eb projektligj i ri p\u00ebr krijimin e nj\u00eb shoq\u00ebrie shtet\u00ebrore p\u00ebr administrimin e barnave dhe pajisjeve mjek\u00ebsore \u00ebsht\u00eb pran\u00eb miratimit, Ministria e Sh\u00ebndet\u00ebsis\u00eb nuk i \u00ebsht\u00eb p\u00ebrgjigjur k\u00ebrkes\u00ebs p\u00ebr informacion t\u00eb Together for Life. P\u00ebr nj\u00eb reform\u00eb q\u00eb prek fondet publike, prokurimet dhe tregun farmaceutik, mungesa e transparenc\u00ebs ngre pik\u00ebpyetje serioze.\r\n\r\n \r\n\r\nMuajt e fundit, nisma p\u00ebr krijimin e nj\u00eb shoq\u00ebrie shtet\u00ebrore q\u00eb do t\u00eb administroj\u00eb furnizimin e institucioneve publike sh\u00ebndet\u00ebsore me barna dhe pajisje mjek\u00ebsore ka qen\u00eb n\u00eb qend\u00ebr t\u00eb raportimeve mediatike dhe t\u00eb debatit publik e politik. Megjithat\u00eb, pavar\u00ebsisht r\u00ebnd\u00ebsis\u00eb s\u00eb saj, p\u00ebrmbajtja e projektligjit, argumentet mbi t\u00eb cilat mb\u00ebshtetet kjo nism\u00eb, kostot e parashikuara dhe pasojat e mundshme p\u00ebr konkurrenc\u00ebn dhe menaxhimin e fondeve publike nuk jan\u00eb b\u00ebr\u00eb ende publike zyrtarisht.\r\n\r\n \r\n\r\nP\u00ebr t\u00eb hedhur drit\u00eb mbi k\u00ebt\u00eb nism\u00eb, Together for Life iu drejtua m\u00eb 5 gusht 2026 Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale, duke k\u00ebrkuar dokumentet kryesore dhe analizat mbi t\u00eb cilat \u00ebsht\u00eb mb\u00ebshtetur hartimi i projektligjit. Por, deri m\u00eb tani, TFL nuk ka marr\u00eb asnj\u00eb p\u00ebrgjigje nga Ministria.\r\n\r\n \r\n\r\nKjo munges\u00eb transparence b\u00ebhet shqet\u00ebsuese n\u00eb nj\u00eb koh\u00eb kur dor\u00ebheqja e ministres Evis Sala, n\u00eb dit\u00ebt e para t\u00eb shtatorit, u lidhur gjer\u00ebsisht n\u00eb raportimet mediatike me refuzimin e saj p\u00ebr t\u00eb firmosur draftligjin. Nd\u00ebrkoh\u00eb, n\u00eb media sot jan\u00eb raportuar zhvillime t\u00eb reja dhe sinjale se nisma mund t\u00eb jet\u00eb pran\u00eb miratimit nga ministrja e sapoem\u00ebruar, deputetja Klodiana Spahiu[1].\r\n\r\n \r\n\r\nN\u00eb k\u00ebt\u00eb situat\u00eb, b\u00ebrja publike e dokumentave dhe informacionit t\u00eb k\u00ebrkuar nga TFL m\u00eb shum\u00eb se nj\u00eb muaj m\u00eb par\u00eb do t\u2019i mund\u00ebsonin publikut dhe aktor\u00ebve t\u00eb interesuar t\u00eb kuptonin arsyet, q\u00ebllimin dhe pasojat e mundshme t\u00eb k\u00ebsaj nisme. Por, i gjith\u00eb procesi deri tani \u00ebsht\u00eb veshur me hijen e di\u00e7kaje t\u00eb fsheht\u00eb dhe sekrete.\r\n\r\n \r\n\r\nKjo situat\u00eb ngre nj\u00eb shqet\u00ebsim t\u00eb drejtp\u00ebrdrejt\u00eb mbi arsyet e munges\u00ebs s\u00eb transparenc\u00ebs p\u00ebr nj\u00eb nism\u00eb t\u00eb till\u00eb me ndikim t\u00eb drejt\u00ebp\u00ebrdrejt\u00eb n\u00eb jet\u00ebn dhe sh\u00ebndetin e pacient\u00ebve si dhe n\u00eb e financat publike. Si mund t\u00eb shqyrtohet dhe vler\u00ebsohet nj\u00eb reform\u00eb me ndikim potencial n\u00eb prokurimet publike, tregun farmaceutik dhe p\u00ebrdorimin e fondeve publike, kur dokumentet dhe analizat mbi t\u00eb cilat ajo mb\u00ebshtetet nuk b\u00ebhen publike?\r\n\r\n \r\n\r\nK\u00ebrkesa e TFL p\u00ebr transparenc\u00eb t\u00eb procesit\r\n\r\n \r\n\r\nN\u00eb k\u00ebrkes\u00ebn e saj p\u00ebr informacion, TFL nuk ka k\u00ebrkuar nj\u00eb q\u00ebndrim politik t\u00eb Ministris\u00eb mbi nism\u00ebn, por dokumentet dhe t\u00eb dh\u00ebnat q\u00eb do t\u00eb mund\u00ebsonin t\u00eb kuptohej mbi \u00e7far\u00eb baze \u00ebsht\u00eb hartuar projekt-ligji. N\u00eb k\u00ebrkes\u00ebn drejtuar Ministris\u00eb, organizata ka k\u00ebrkuar, nd\u00ebr t\u00eb tjera, draftin e projektligjit, relacionin shoq\u00ebrues, raportin e vler\u00ebsimit t\u00eb ndikimit, relacionin financiar dhe analiz\u00ebn e kostove e p\u00ebrfitimeve, si edhe studimin e fizibilitetit dhe dokumentet teknike q\u00eb kan\u00eb mb\u00ebshtetur nism\u00ebn.\r\n\r\n \r\n\r\nK\u00ebrkesa nuk ndalet te dokumentacioni formal. TFL k\u00ebrkon t\u00eb dij\u00eb si \u00ebsht\u00eb hartuar projektligji, cilat institucione apo organizata jan\u00eb p\u00ebrfshir\u00eb n\u00eb proces, n\u00ebse \u00ebsht\u00eb zhvilluar konsultim publik dhe si do t\u00eb garantohet mbik\u00ebqyrja administrative, financiare dhe operacionale e shoq\u00ebris\u00eb s\u00eb propozuar.\r\n\r\n \r\n\r\nTFL ngre shqet\u00ebsimin mbi ndikimin q\u00eb kjo nism\u00eb mund t\u00eb ket\u00eb n\u00eb konkurrenc\u00ebn n\u00eb tregun e barnave dhe pajisjeve mjek\u00ebsore, aksesin e operator\u00ebve ekonomik\u00eb n\u00eb procedurat e prokurimit, kostot p\u00ebr buxhetin e shtetit dhe efikasitetin e sistemit t\u00eb furnizimit.\r\n\r\n \r\n\r\nPa informacion t\u00eb plot\u00eb zyrtar, debati do t\u00eb zhvillohet mb\u00ebshtetur kryesisht n\u00eb deklarata publike dhe raportime mediatike, nd\u00ebrsa publiku dhe grupet e interesit do t\u00eb vazhdojn\u00eb t\u00eb hamend\u00ebsojn\u00eb mbi p\u00ebrmbajtjen, q\u00ebllimin dhe pasojat e mundshme t\u00eb k\u00ebsaj nisme.\r\n\r\n \r\n\r\nN\u00ebse modeli i ri synon t\u00eb ul\u00eb kostot, t\u00eb rris\u00eb efikasitetin dhe t\u00eb p\u00ebrmir\u00ebsoj\u00eb furnizimin e sistemit sh\u00ebndet\u00ebsor, k\u00ebto p\u00ebrfitime duhet t\u00eb mb\u00ebshteten me analiza t\u00eb b\u00ebra publike. Po k\u00ebshtu, \u00e7do rrezik p\u00ebr konkurrenc\u00ebn, menaxhimin e fondeve publike apo funksionimin e tregut duhet t\u00eb jet\u00eb pjes\u00eb e debatit p\u00ebrpara miratimit t\u00eb reform\u00ebs dhe jo pasi ajo t\u00eb ket\u00eb hyr\u00eb n\u00eb fuqi.\r\n\r\n \r\n\r\nN\u00eb fund t\u00eb fundit, pyetja q\u00eb mbetet \u00ebsht\u00eb e thjesht\u00eb: mbi \u00e7far\u00eb dokumentesh dhe analizash po merret nj\u00eb vendim q\u00eb mund t\u00eb ndryshoj\u00eb m\u00ebnyr\u00ebn e furnizimit t\u00eb sistemit publik sh\u00ebndet\u00ebsor?\r\n\r\n \r\n\r\nPik\u00ebrisht, p\u00ebr k\u00ebt\u00eb arsye, p\u00ebrgjigjja e Ministris\u00eb ndaj k\u00ebrkes\u00ebs s\u00eb TFL-s\u00eb nuk \u00ebsht\u00eb thjesht nj\u00eb \u00e7\u00ebshtje administrative. \u00cbsht\u00eb nj\u00eb test i transparenc\u00ebs s\u00eb nj\u00eb reforme q\u00eb prek drejtp\u00ebrdrejt parat\u00eb publike, prokurimet dhe funksionimin e tregut t\u00eb barnave dhe pajisjeve mjek\u00ebsore.\r\n\r\n \r\n\r\n[1] https:\/\/kapitali.al\/lajme-nga-vendi\/ekskluzive-klodiana-spahiu-konfirmon-se-do-te-firmose-ligjin-qe--i36873?fbclid=I\u00ebY2xja\u00ebUQ2LJ\u00ebZG9mB\u00cbV4dG4DY\u00cbVtAjExAGJya\u00cbQRMXB6S2VHU1BQaG1\u00ebbVV4YmRzcnRjBmF\u00ebcF9pZBAyMjI\u00ebMzkxNzg4MjA\u00ebODkyAAEev3\u00cbiBZ8MeHDec4czlBlkzUGxmP966blfLeqsJ\u00cbdUehMOStTxFYoi2eQU\u00ebSY_aem_pfhlnuGslgbNgkJ_i8\u00cbOXQ<\/div><\/article>Projektligji i ri p\u00ebr PAK: parashikohet rritja e aksesueshm\u00ebris\u00eb, por si do garantohet zbatimi?<\/h2><\/div><\/div>Gjasht\u00eb vite pas reform\u00ebs s\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, Shqip\u00ebria p\u00ebrgatit nj\u00eb tjet\u00ebr reform\u00eb ligjore. Projektligji i ri \u201cP\u00ebr p\u00ebrfshirjen dhe aksesueshm\u00ebrin\u00eb e personave me aft\u00ebsi t\u00eb kufizuara\u201d[1], i hedhur p\u00ebr konsultim publik m\u00eb 28 gusht 2026, premton nj\u00eb qasje m\u00eb t\u00eb gjer\u00eb ndaj aksesueshm\u00ebris\u00eb, autonomis\u00eb dhe jetes\u00ebs s\u00eb pavarur. Por p\u00ebrvoja e zbatimit t\u00eb modelit bio-psiko-social, ashtu si edhe e kuadrit ligjor t\u00eb m\u00ebparsh\u00ebm p\u00ebr personat me aft\u00ebsi t\u00eb kufizuara, ngre nj\u00eb pyetje thelb\u00ebsore: p\u00ebrtej t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, kur do t\u00eb mund t\u2019i g\u00ebzojn\u00eb ato realisht personat me aft\u00ebsi t\u00eb kufizuara?\r\n\r\nIshte viti 2019 kur Shqip\u00ebria ndryshoi m\u00ebnyr\u00ebn e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, duke kaluar nga nj\u00eb qasje kryesisht mjek\u00ebsore drejt modelit bio-psiko-social. Sipas institucioneve p\u00ebrgjegj\u00ebse, reforma synonte ta vendoste personin n\u00eb qend\u00ebr t\u00eb procesit, duke mos u ndalur vet\u00ebm te diagnoza apo d\u00ebmtimi sh\u00ebndet\u00ebsor, por duke marr\u00eb n\u00eb konsiderat\u00eb funksionalitetin e individit, pjes\u00ebmarrjen e tij n\u00eb shoq\u00ebri dhe barrierat sociale e mjedisore me t\u00eb cilat p\u00ebrballet.\r\n\r\nN\u00eb parim, ndryshimi ishte thelb\u00ebsor. Ai n\u00ebnkuptonte nj\u00eb zhvendosje nga nj\u00eb sistem q\u00eb fokusohej kryesisht te gjendja mjek\u00ebsore e individit, drejt nj\u00eb qasjeje q\u00eb k\u00ebrkon t\u00eb kuptoj\u00eb \u00e7far\u00eb mund t\u00eb b\u00ebj\u00eb personi, cilat pengesa kufizojn\u00eb pjes\u00ebmarrjen e tij dhe \u00e7far\u00eb mb\u00ebshtetjeje i nevojitet p\u00ebr t\u00eb jetuar n\u00eb m\u00ebnyr\u00eb sa m\u00eb t\u00eb pavarur.\r\n\r\nPor gjasht\u00eb vite m\u00eb pas, pyetja \u00ebsht\u00eb n\u00ebse kjo qasje ka arritur t\u00eb ndryshoj\u00eb realisht jet\u00ebn e personave me aft\u00ebsi t\u00eb kufizuara. Gjetjet e raportit \u201cMbi efektet e zbatimit t\u00eb skem\u00ebs s\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar bazuar n\u00eb modelin bio-psiko-social\u201d tregojn\u00eb se, pavar\u00ebsisht ndryshimit t\u00eb modelit, n\u00eb praktik\u00eb vazhdojn\u00eb t\u00eb ekzistojn\u00eb barriera t\u00eb r\u00ebnd\u00ebsishme n\u00eb procesin e vler\u00ebsimit dhe n\u00eb aksesin n\u00eb mb\u00ebshtetje e sh\u00ebrbime. Mungesa e kapaciteteve t\u00eb specializuara, problemet e infrastruktur\u00ebs, v\u00ebshtir\u00ebsit\u00eb e koordinimit nd\u00ebrmjet profesionist\u00ebve dhe k\u00ebrkesa p\u00ebr paraqitje fizike edhe n\u00eb raste kur personi e ka t\u00eb pamundur t\u00eb udh\u00ebtoj\u00eb, d\u00ebshmojn\u00eb hendekun mes parimit t\u00eb reform\u00ebs dhe zbatimit t\u00eb saj n\u00eb terren.\r\n\r\nDhe pik\u00ebrisht n\u00eb k\u00ebt\u00eb realitet shfaqet projektligji i ri. Ai premton t\u00eb shkoj\u00eb nj\u00eb hap m\u00eb tej: nga vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar te vler\u00ebsimi i nevojave, nga mb\u00ebshtetja financiare te sh\u00ebrbimet dhe jetesa e pavarur, dhe nga koncepti i aksesit fizik te aksesueshm\u00ebria n\u00eb informacion, sh\u00ebrbime, transport, teknologji dhe komunikim.\r\n\r\nPor p\u00ebrvoja e reform\u00ebs s\u00eb vitit 2019 ngre nj\u00eb pik\u00ebpyetje q\u00eb nuk mund t\u00eb anashkalohet: a do t\u00eb sjell\u00eb projektligji nj\u00eb ndryshim real n\u00eb jet\u00ebn e personave me aft\u00ebsi t\u00eb kufizuara, apo do t\u00eb shtoj\u00eb nj\u00eb tjet\u00ebr shtres\u00eb t\u00eb drejtash t\u00eb garantuara n\u00eb let\u00ebr, por t\u00eb v\u00ebshtira p\u00ebr t\u2019u realizuar n\u00eb praktik\u00eb?\r\nAksesueshm\u00ebria dhe testi i zbatimit\r\nNj\u00eb nga risit\u00eb m\u00eb t\u00eb r\u00ebnd\u00ebsishme t\u00eb projektligjit \u00ebsht\u00eb zhvendosja e fokusit nga statusi i aft\u00ebsis\u00eb s\u00eb kufizuar te nevojat konkrete t\u00eb personit. Neni 37 parashikon q\u00eb komisionet multidisiplinare t\u00eb vler\u00ebsojn\u00eb jo vet\u00ebm aft\u00ebsin\u00eb e kufizuar, por edhe nevojat p\u00ebr sh\u00ebrbime, mjete ndihm\u00ebse dhe p\u00ebrkujdesje, bazuar n\u00eb Klasifikimin Nd\u00ebrkomb\u00ebtar t\u00eb Funksionimit, Aft\u00ebsive t\u00eb Kufizuara dhe Sh\u00ebndetit (ICF) dhe duke marr\u00eb n\u00eb konsiderat\u00eb faktor\u00ebt social\u00eb. N\u00ebse kjo qasje zbatohet realisht, ajo do t\u00eb sh\u00ebnonte nj\u00eb ndryshim t\u00eb r\u00ebnd\u00ebsish\u00ebm: personi nuk do t\u00eb trajtohej thjesht si p\u00ebrfitues i nj\u00eb statusi apo pagese, por si subjekt i t\u00eb drejtave, me nevoja konkrete q\u00eb sistemi duhet t\u2019i identifikoj\u00eb dhe t\u2019u p\u00ebrgjigjet.\r\n\r\nPor pik\u00ebrisht k\u00ebtu p\u00ebrvoja e gjasht\u00eb viteve t\u00eb zbatimit t\u00eb modelit bio-psiko-social ngre pik\u00ebpyetje serioze. Raporti i Together for Life evidenton munges\u00eb t\u00eb profesionist\u00ebve dhe kapaciteteve p\u00ebr nj\u00eb vler\u00ebsim realisht multidimensional: 50% e t\u00eb anketuarve raportuan probleme me komponentin psikologjik, nd\u00ebrsa 20% evidentuan munges\u00eb koherence dhe koordinimi brenda komisioneve multidisiplinare. Kjo e zhvendos debatin nga ajo q\u00eb premton ligji te ajo q\u00eb mund t\u00eb zbatoj\u00eb sistemi: a \u00ebsht\u00eb p\u00ebrgatitur stafi, a jan\u00eb siguruar burimet dhe a ekzistojn\u00eb sh\u00ebrbimet q\u00eb duhet t\u2019u p\u00ebrgjigjen nevojave t\u00eb identifikuara?\r\n\r\nE nj\u00ebjta sfid\u00eb shfaqet edhe te koncepti i aksesueshm\u00ebris\u00eb. Projektligji e zgjeron at\u00eb p\u00ebrtej barrierave fizike, duke p\u00ebrfshir\u00eb transportin, informacionin dhe komunikimin, sh\u00ebrbimet bankare, tregtin\u00eb elektronike, librat elektronik\u00eb dhe sh\u00ebrbimet e urgjenc\u00ebs. Por raporti evidenton se edhe n\u00eb aksesin n\u00eb informacion dhe sh\u00ebrbimet digjitale, p\u00ebrfshir\u00eb e-Albania, masa t\u00eb planifikuara p\u00ebr p\u00ebrmir\u00ebsimin e aksesueshm\u00ebris\u00eb nuk ishin realizuar ende.\r\n\r\nKjo e b\u00ebn zbatimin pik\u00ebn m\u00eb kritike t\u00eb reform\u00ebs s\u00eb re. Projektligji \u00ebsht\u00eb m\u00eb ambicioz n\u00eb njohjen e t\u00eb drejtave, por nj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e mekanizmave t\u00eb zbatimit do t\u00eb p\u00ebrcaktohet m\u00eb tej me akte n\u00ebnligjore, p\u00ebrfshir\u00eb kriteret dhe procedurat e aksesueshm\u00ebris\u00eb s\u00eb sh\u00ebrbimeve dhe organizimin e asistenc\u00ebs personale, t\u00eb parashikuara t\u00eb rregullohen brenda 18 muajve nga hyrja n\u00eb fuqi e ligjit.\r\n\r\nN\u00eb k\u00ebt\u00eb kuptim, miratimi i ligjit nuk \u00ebsht\u00eb fundi i reform\u00ebs, por fillimi i testit t\u00eb saj real. Sepse suksesi nuk do t\u00eb matet me numrin e t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, por me sa prej tyre do t\u00eb mund t\u00eb ushtrohen realisht nga personat me aft\u00ebsi t\u00eb kufizuara.\r\nTesti i v\u00ebrtet\u00eb \u00ebsht\u00eb zbatimi\r\nN\u00eb fund, suksesi i projektligjit t\u00eb ri nuk do t\u00eb matet me numrin e t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, fondet e parashikuara apo aktet n\u00ebnligjore t\u00eb miratuara. Ai do t\u00eb matet me barrierat q\u00eb arrin t\u00eb heq\u00eb nga jeta e personave me aft\u00ebsi t\u00eb kufizuara.\r\n\r\nReforma e vitit 2019 synoi t\u00eb ndryshonte m\u00ebnyr\u00ebn se si shteti e vler\u00ebson aft\u00ebsin\u00eb e kufizuar. Projektligji i ri synon t\u00eb ndryshoj\u00eb m\u00ebnyr\u00ebn se si garantohen aksesi, autonomia dhe p\u00ebrfshirja. Por t\u00eb dyja kan\u00eb nj\u00eb pik\u00eb t\u00eb p\u00ebrbashk\u00ebt: vlera e nj\u00eb reforme p\u00ebrcaktohet jo nga ajo q\u00eb premton n\u00eb let\u00ebr, por nga ajo q\u00eb ndryshon n\u00eb jet\u00ebn e njer\u00ebzve.\r\n\r\nPrandaj, sfida e v\u00ebrtet\u00eb fillon me zbatimin. Nj\u00eb e drejt\u00eb q\u00eb nuk mund t\u00eb ushtrohet, nj\u00eb sh\u00ebrbim q\u00eb nuk mund t\u00eb aksesohet apo nj\u00eb mb\u00ebshtetje q\u00eb nuk mb\u00ebrrin te personi q\u00eb ka nevoj\u00eb p\u00ebr t\u00eb, mbetet vet\u00ebm nj\u00eb e drejt\u00eb formale.\r\n\r\nPyetja q\u00eb duhet t\u00eb shoq\u00ebroj\u00eb k\u00ebt\u00eb reform\u00eb \u00ebsht\u00eb, ndaj, e thjesht\u00eb, por thelb\u00ebsore: a do t\u00eb mundet nj\u00eb person me aft\u00ebsi t\u00eb kufizuara, fal\u00eb k\u00ebtij ligji, t\u00eb l\u00ebviz\u00eb m\u00eb lirsh\u00ebm, t\u00eb marr\u00eb sh\u00ebrbimet p\u00ebr t\u00eb cilat ka nevoj\u00eb, t\u00eb vendos\u00eb p\u00ebr jet\u00ebn e vet dhe t\u00eb marr\u00eb pjes\u00eb n\u00eb shoq\u00ebri pa u p\u00ebrballur me t\u00eb nj\u00ebjtat barriera?\r\n\r\nN\u00ebse p\u00ebrgjigjja \u00ebsht\u00eb po, at\u00ebher\u00eb Shqip\u00ebria do t\u00eb ket\u00eb b\u00ebr\u00eb kalimin nga statusi te e drejta, nga pagesa te mb\u00ebshtetja dhe nga letra te jeta reale.\r\n\r\nN\u00ebse jo, rreziku \u00ebsht\u00eb q\u00eb t\u00eb kemi s\u00ebrish nj\u00eb reform\u00eb progresive n\u00eb let\u00ebr, nd\u00ebrsa barrierat vazhdojn\u00eb t\u00eb mbeten aty ku kan\u00eb qen\u00eb: n\u00eb jet\u00ebn e p\u00ebrditshme t\u00eb njer\u00ebzve.\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.\r\n[1] https:\/\/konsultimipublik.gov.al\/Konsultime\/Detaje\/1044<\/div><\/article>Zjarret n\u00eb Shkod\u00ebr: Nga reagimi n\u00eb terren te gatishm\u00ebria e komunitetit<\/h2><\/div><\/div>Pas nj\u00eb situate t\u00eb v\u00ebshtir\u00eb gjat\u00eb djeshme (8 shtator 2026), ku n\u00eb territorin e Bashkis\u00eb Shkod\u00ebr u evidentuan disa vatra zjarri, sot (9 shtator 2026) situata paraqitet e qet\u00eb dhe pa vatra aktive.\r\n\r\n\r\nGjat\u00eb dit\u00ebs s\u00eb djeshme, u b\u00eb i mundur menaxhimi dhe shuarja e vatrave n\u00eb Oblik\u00eb, Muriqan dhe B\u00ebrdic\u00eb, nd\u00ebrsa vatra n\u00eb Bardhaj, mbi rezervuar, vijoi p\u00ebr nj\u00eb periudh\u00eb t\u00eb ishte aktive, pa paraqitur rrezik p\u00ebr banesat. Fal\u00eb nd\u00ebrhyrjes n\u00eb terren, u shp\u00ebtuan edhe gjasht\u00eb banesa t\u00eb rrezikuara nga zjarri n\u00eb Bardhaj.\r\n\r\n\r\nMir\u00ebnjohje zjarrfik\u00ebsve, Emergjencave Civile, Forcave t\u00eb Armatosura, punonj\u00ebsve t\u00eb Bashkis\u00eb, vullnetar\u00ebve dhe banor\u00ebve q\u00eb kontribuuan gjat\u00eb gjith\u00eb k\u00ebsaj situate.\r\n\r\n\r\nEdhe pse sot situata \u00ebsht\u00eb e qet\u00eb, zona vijon t\u00eb monitorohet p\u00ebr t\u00eb parandaluar \u00e7do riaktivizim t\u00eb mundsh\u00ebm. Kjo situat\u00eb na kujton se gatishm\u00ebria p\u00ebr emergjencat nuk fillon vet\u00ebm n\u00eb momentin kur shfaqet rreziku. Ajo nd\u00ebrtohet \u00e7do dit\u00eb, edhe n\u00eb nivel komunitar.\r\n\r\n\r\nN\u00eb k\u00ebt\u00eb kuad\u00ebr, Rrjeti i Q\u00ebndrueshm\u00ebris\u00eb s\u00eb Komunitetit (Community Resilience Network \u2013 CRN) Daj\u00e7, i mb\u00ebshtetur dhe fuqizuar p\u00ebrmes pun\u00ebs s\u00eb Together for Life, \u00ebsht\u00eb nj\u00eb mekaniz\u00ebm komunitar q\u00eb kontribuon n\u00eb forcimin e komunikimit, informimit dhe gatishm\u00ebris\u00eb n\u00eb nivel lokal.\r\n\r\n\r\nRrjeti \u00ebsht\u00eb vigjilent dhe aktiv n\u00eb komunikim dhe k\u00ebshillim me komunitetin n\u00eb Daj\u00e7, n\u00eb m\u00ebnyr\u00eb q\u00eb, n\u00eb rast t\u00eb nj\u00eb emergjence, informacioni i sakt\u00eb dhe nevojat e komunitetit t\u00eb p\u00ebrcillen dhe t\u00eb adresohen sa m\u00eb shpejt.\r\n\r\n\r\nCRN Daj\u00e7 sh\u00ebrben si nj\u00eb ur\u00eb lidh\u00ebse mes komunitetit, institucioneve dhe strukturave t\u00eb emergjencave, duke ndihmuar n\u00eb:\r\n\r\n\r\n\r\n \tp\u00ebrcjelljen e informacionit t\u00eb sakt\u00eb dhe n\u00eb koh\u00eb;\r\n \tidentifikimin e personave dhe familjeve q\u00eb mund t\u00eb ken\u00eb nevoj\u00eb p\u00ebr mb\u00ebshtetje t\u00eb ve\u00e7ant\u00eb;\r\n \tevidentimin e nevojave dhe problematikave n\u00eb komunitet;\r\n \tforcimin e komunikimit dhe koordinimit n\u00eb rast emergjence;\r\n \trritjen e nd\u00ebrgjegj\u00ebsimit p\u00ebr parandalimin dhe gatishm\u00ebrin\u00eb ndaj emergjencave.\r\n \t\r\n\r\n\r\nNj\u00eb komunitet i p\u00ebrgatitur nuk z\u00ebvend\u00ebson strukturat e emergjenc\u00ebs. P\u00ebrkundrazi, ai i ndihmon ato t\u00eb reagojn\u00eb m\u00eb mir\u00eb dhe m\u00eb shpejt aty ku nevojitet.\r\n\r\n\r\nP\u00ebr t\u00eb gjitha komunitetet n\u00eb zonat e prekura nga zjarret apo n\u00eb zona q\u00eb mund t\u00eb p\u00ebrballen me rrezik, apelojm\u00eb p\u00ebr qet\u00ebsi, kujdes dhe p\u00ebrgjegjshm\u00ebri:\r\n\r\n\r\n\u2022 T\u00eb ndiqen vet\u00ebm informacionet nga burimet zyrtare.\r\n\u2022 T\u00eb mos shp\u00ebrndahen lajme apo pamje t\u00eb pakonfirmuara q\u00eb mund t\u00eb krijojn\u00eb panik.\r\n\u2022 T\u00eb respektohen udh\u00ebzimet e autoriteteve.\r\n\u2022 T\u00eb mos afrohemi n\u00eb zonat e zjarrit p\u00ebr t\u00eb filmuar apo fotografuar.\r\n\u2022 T\u00eb tregohet kujdes i ve\u00e7ant\u00eb p\u00ebr t\u00eb moshuarit, personat me aft\u00ebsi t\u00eb kufizuara, f\u00ebmij\u00ebt dhe personat e tjer\u00eb q\u00eb mund t\u00eb ken\u00eb nevoj\u00eb p\u00ebr mb\u00ebshtetje.\r\n\r\n\r\nSot situata \u00ebsht\u00eb e qet\u00eb. Por gatishm\u00ebria duhet t\u00eb vazhdoj\u00eb.\r\n\r\n\r\nQet\u00ebsi. Informim. Solidaritet. Gatishm\u00ebri.\r\n\r\n\r\nTogether for Life | Rrjeti i Q\u00ebndrueshm\u00ebris\u00eb s\u00eb Komunitetit (Community Resilience Network \u2013 CRN) Daj\u00e7<\/div><\/article>Lufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb<\/h2><\/div><\/div>Titulli i Projektit:\r\n\r\nLufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb\r\n\r\nDonatori\r\n\r\nNational Endowment for Democracy (NED)\r\n\r\nPeriudha e zbatimit\r\n\r\n1 Korrik 2024 \u2013 30 Qershor 2026 (24 muaj)\r\n\r\nQ\u00cbLLIMI I PROJEKTIT\r\n\r\nT\u00eb promovoj\u00eb llogaridh\u00ebnien dhe transparenc\u00ebn n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri, p\u00ebrmes monitorimit t\u00eb shpenzimeve publike dhe prokurimeve, evidentimit t\u00eb rasteve t\u00eb mundshme t\u00eb korrupsionit, fuqizimit t\u00eb rolit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile, medias dhe qytetar\u00ebve, si dhe nxitjes s\u00eb institucioneve publike p\u00ebr t\u00eb nd\u00ebrmarr\u00eb masa konkrete p\u00ebr p\u00ebrmir\u00ebsimin e integritetit dhe p\u00ebrdorimit t\u00eb fondeve publike.\r\n\r\nAktivitetet\r\n\r\n \tMonitorimi dhe analiza e shpenzimeve publike dhe procedurave t\u00eb prokurimit n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri.\r\n \tHartimi i dy raporteve vjetore t\u00eb monitorimit mbi shpenzimet publike, prokurimet dhe shp\u00ebrndarjen e fondeve p\u00ebr grupet vulnerab\u00ebl.\r\n \tP\u00ebrgatitja e nj\u00eb raporti t\u00eb thelluar mbi zbatimin e ligjit p\u00ebr autonomin\u00eb spitalore dhe rekomandimeve p\u00ebr p\u00ebrmir\u00ebsimin e menaxhimit t\u00eb fondeve publike.\r\n \tP\u00ebrgatitja e nj\u00eb raporti gjith\u00ebp\u00ebrfshir\u00ebs mbi hetimet dhe gjetjet e SPAK lidhur me abuzimet financiare n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tBashk\u00ebpunimi me BIRN p\u00ebr realizimin e pes\u00eb artikujve investigativ\u00eb mbi korrupsionin n\u00eb shpenzimet publike n\u00eb sh\u00ebndet\u00ebsi.\r\n \tOrganizimi i t\u00eb pakt\u00ebn kat\u00ebr workshopeve me organizata t\u00eb shoq\u00ebris\u00eb civile dhe gazetar\u00eb p\u00ebr identifikimin dhe raportimin e rasteve t\u00eb munges\u00ebs s\u00eb transparenc\u00ebs dhe llogaridh\u00ebnies.\r\n \tPjes\u00ebmarrja n\u00eb seancat d\u00ebgjimore parlamentare p\u00ebr prezantimin e gjetjeve t\u00eb monitorimit.\r\n \tMbajtja dhe zgjerimi i rrjetit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile q\u00eb punojn\u00eb p\u00ebr transparenc\u00ebn dhe llogaridh\u00ebnien n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tOrganizimi i tet\u00eb takimeve rajonale n\u00eb Shkod\u00ebr, Vlor\u00eb, Elbasan dhe Dib\u00ebr me deputet\u00eb, organizata lokale dhe qytetar\u00eb p\u00ebr diskutimin e \u00e7\u00ebshtjeve t\u00eb sh\u00ebndet\u00ebsis\u00eb.\r\n \tOrganizimi i kat\u00ebr tryezave komb\u00ebtare me institucionet p\u00ebrgjegj\u00ebse (Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi, Avokati i Popullit, ILDKPKI dhe Komisioneri p\u00ebr t\u00eb Drejt\u00ebn e Informimit) p\u00ebr prezantimin e gjetjeve t\u00eb projektit.\r\n \tMir\u00ebmbajtja dhe p\u00ebrdit\u00ebsimi i platform\u00ebs www.transparency.com.al dhe faqes p\u00ebrkat\u00ebse n\u00eb Facebook p\u00ebr raportimin e rasteve t\u00eb korrupsionit dhe promovimin e transparenc\u00ebs.\r\n \tP\u00ebrgatitja dhe publikimi i t\u00eb pakt\u00ebn tre njoftimeve p\u00ebr shtyp \u00e7do vit p\u00ebr t\u00eb rritur nd\u00ebrgjegj\u00ebsimin publik mbi problematikat e transparenc\u00ebs dhe llogaridh\u00ebnies n\u00eb sektorin sh\u00ebndet\u00ebsor.<\/div><\/article>Fibroza cistike \u2013 Nj\u00eb patologji komplekse q\u00eb sistemi sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri vazhdon ta trajtoj\u00eb si “s\u00ebmundje mushk\u00ebrish”<\/h2><\/div><\/div>P\u00ebr shumic\u00ebn e njer\u00ebzve, fibroza cistike mbetet nj\u00eb s\u00ebmundje pak e njohur. P\u00ebr m\u00eb shum\u00eb se 150 pacient\u00ebt dhe familjet e tyre n\u00eb Shqip\u00ebri, ajo p\u00ebrfaq\u00ebson nj\u00eb betej\u00eb t\u00eb p\u00ebrditshme q\u00eb nuk zhvillohet vet\u00ebm me s\u00ebmundjen, por edhe me vet\u00eb sistemin sh\u00ebndet\u00ebsor dhe at\u00eb t\u00eb mbrojtjes sociale.\r\n\r\nMenaxhimi i fibroz\u00ebs cistike nuk kufizohet vet\u00ebm n\u00eb marrjen e medikamenteve. Ai k\u00ebrkon nj\u00eb qasje t\u00eb integruar dhe multidisiplinare, q\u00eb p\u00ebrfshin ndjekje t\u00eb specializuar mjek\u00ebsore, fizioterapi respiratore t\u00eb p\u00ebrditshme, mb\u00ebshtetje psikologjike, akses t\u00eb vazhduesh\u00ebm n\u00eb barna specifike, sh\u00ebrbime sociale dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb pasqyron ndikimin real t\u00eb s\u00ebmundjes n\u00eb jet\u00ebn dhe funksionimin e pacientit.\r\n\r\nMegjithat\u00eb, d\u00ebshmit\u00eb e pacient\u00ebve dhe prind\u00ebrve t\u00eb tyre tregojn\u00eb se, edhe pas zbatimit t\u00eb modelit bio-psiko-social p\u00ebr vler\u00ebsimin e aft\u00ebsis\u00eb s\u00eb kufizuar, shum\u00eb prej k\u00ebtyre nevojave vazhdojn\u00eb t\u00eb mos njihen dhe t\u00eb mos adresohen n\u00eb praktik\u00eb.\r\n\r\nReforma e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, e nisur n\u00eb vitin 2019, synon t\u00eb z\u00ebvend\u00ebsoj\u00eb modelin tradicional t\u00eb bazuar vet\u00ebm n\u00eb diagnoz\u00eb me nj\u00eb qasje q\u00eb vler\u00ebson ndikimin e gjendjes sh\u00ebndet\u00ebsore n\u00eb funksionimin e p\u00ebrditsh\u00ebm t\u00eb individit. Megjithat\u00eb, gjetjet e mbledhura gjat\u00eb fokus-grupit t\u00eb zhvilluar me persona me fibroz\u00eb cistike dhe prind\u00ebr t\u00eb f\u00ebmij\u00ebve t\u00eb diagnostikuar me k\u00ebt\u00eb patologji tregojn\u00eb se ky objektiv ende nuk po realizohet plot\u00ebsisht.\r\n\r\nPjes\u00ebmarr\u00ebsit raportojn\u00eb se komisionet e vler\u00ebsimit shpesh nuk funksionojn\u00eb si ekipe t\u00eb mir\u00ebfillta multidisiplinare, kan\u00eb njohuri t\u00eb kufizuara mbi fibroz\u00ebn cistike dhe, n\u00eb disa raste, nuk shqyrtojn\u00eb dokumentacionin mjek\u00ebsor p\u00ebrpara takimit me pacientin. Si pasoj\u00eb, vler\u00ebsimi mb\u00ebshtetet m\u00eb shum\u00eb n\u00eb pamjen e jashtme t\u00eb personit sesa n\u00eb kufizimet funksionale dhe barr\u00ebn reale q\u00eb s\u00ebmundja imponon n\u00eb jet\u00ebn e p\u00ebrditshme.\r\n\r\nKy \u00ebsht\u00eb nj\u00eb paradoks q\u00eb bie ndesh me vet\u00eb filozofin\u00eb e modelit bio-psiko-social. Fibroza cistike \u00ebsht\u00eb nj\u00eb s\u00ebmundje kronike, progresive dhe multisistemike, e cila n\u00eb shum\u00eb raste nuk shfaq shenja t\u00eb dukshme fizike, por k\u00ebrkon trajtim t\u00eb p\u00ebrhersh\u00ebm, terapi t\u00eb p\u00ebrditshme dhe kujdes kompleks p\u00ebr t\u00eb parandaluar komplikacionet dhe p\u00ebr t\u00eb ruajtur cil\u00ebsin\u00eb e jet\u00ebs.\r\n\r\nKur vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar mb\u00ebshtetet kryesisht n\u00eb at\u00eb q\u00eb \"shihet me sy\", shum\u00eb pacient\u00eb klasifikohen me nj\u00eb shkall\u00eb m\u00eb t\u00eb ul\u00ebt t\u00eb r\u00ebnd\u00ebsis\u00eb s\u00eb s\u00ebmundjes nga ajo q\u00eb reflekton realisht gjendja e tyre sh\u00ebndet\u00ebsore. Si rrjedhoj\u00eb, nj\u00eb pjes\u00eb e tyre hasin v\u00ebshtir\u00ebsi n\u00eb p\u00ebrfitimin e mb\u00ebshtetjes ekonomike ose vler\u00ebsohen n\u00eb nivele q\u00eb nuk pasqyrojn\u00eb kostot reale t\u00eb jetes\u00ebs me fibroz\u00eb cistike.\r\n\r\n\"Her\u00ebn e par\u00eb komisioni vendosi q\u00eb f\u00ebmija im nuk i plot\u00ebsonte kriteret p\u00ebr t\u00eb p\u00ebrfituar KEMP. Kam dy f\u00ebmij\u00eb me fibroz\u00eb cistike, me t\u00eb nj\u00ebjt\u00ebn diagnoz\u00eb dhe n\u00eb t\u00eb nj\u00ebjt\u00ebn gjendje sh\u00ebndet\u00ebsore, por nj\u00ebri u vler\u00ebsua me r\u00ebndes\u00eb m\u00eb t\u00eb leht\u00eb t\u00eb s\u00ebmundjes, nd\u00ebrsa tjetri me r\u00ebndes\u00eb m\u00eb t\u00eb lart\u00eb. Nuk e kuptoj mbi \u00e7far\u00eb kriteresh b\u00ebhet ky vler\u00ebsim kur b\u00ebhet fjal\u00eb p\u00ebr t\u00eb nj\u00ebjt\u00ebn patologji\", shprehet R.XH., babai i dy f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike.\r\n\r\nK\u00ebto d\u00ebshmi tregojn\u00eb se nj\u00eb nga problemet themelore mbetet mungesa e njohjes institucionale t\u00eb fibroz\u00ebs cistike si nj\u00eb s\u00ebmundje komplekse. Edhe sot ajo vazhdon t\u00eb trajtohet kryesisht n\u00eb kuad\u00ebr t\u00eb patologjive pulmonare, nd\u00ebrkoh\u00eb q\u00eb prek nj\u00ebkoh\u00ebsisht mushk\u00ebrit\u00eb, pankreasin, sistemin tret\u00ebs, m\u00ebl\u00e7in\u00eb dhe organe t\u00eb tjera, duke k\u00ebrkuar kujdes multidisiplinar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nKy klasifikim ndikon jo vet\u00ebm n\u00eb m\u00ebnyr\u00ebn e organizimit t\u00eb trajtimit mjek\u00ebsor, por edhe n\u00eb procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar.\r\n\r\n\"N\u00eb dokumentacion paraqitet si nj\u00eb s\u00ebmundje e leht\u00eb\", shprehet L.H., n\u00ebna e nj\u00eb f\u00ebmije me fibroz\u00eb cistike, duke theksuar se komisionet shpesh nuk arrijn\u00eb t\u00eb kuptojn\u00eb se b\u00ebhet fjal\u00eb p\u00ebr nj\u00eb patologji kronike, progresive dhe potencialisht k\u00ebrc\u00ebnuese p\u00ebr jet\u00ebn.\r\n\r\nMungesa e protokollit t\u00eb trajtimit shoq\u00ebrohet me munges\u00ebn e munges\u00ebn e rimbursimit t\u00eb medikamenteve t\u00eb domosdoshme p\u00ebr trajtim\r\n\r\nMungesa e protokolleve t\u00eb p\u00ebrdit\u00ebsuara t\u00eb trajtimit dhe rimbursimit t\u00eb medikamenteve r\u00ebndon barr\u00ebn e pacient\u00ebve me fibroz\u00eb cistike\r\n\r\nP\u00ebrtej sfidave q\u00eb lidhen me procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, pacient\u00ebt me fibroz\u00eb cistike p\u00ebrballen edhe me munges\u00ebn e nj\u00eb modeli t\u00eb integruar t\u00eb kujdesit sh\u00ebndet\u00ebsor, i cili t\u00eb garantoj\u00eb trajtim t\u00eb standardizuar, vazhdim\u00ebsi t\u00eb sh\u00ebrbimeve dhe mb\u00ebshtetje t\u00eb specializuar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nPrind\u00ebrit e f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike raportojn\u00eb se q\u00eb n\u00eb momentin e diagnostikimit nuk marrin mb\u00ebshtetje psikologjike dhe as informacion t\u00eb strukturuar mbi m\u00ebnyr\u00ebn e menaxhimit t\u00eb s\u00ebmundjes apo protokollet e trajtimit. N\u00eb munges\u00eb t\u00eb nj\u00eb sistemi t\u00eb organizuar informimi dhe edukimi p\u00ebr pacient\u00ebt, familjet detyrohen t\u00eb k\u00ebrkojn\u00eb informacion nga organizata nd\u00ebrkomb\u00ebtare, rrjete mb\u00ebshtet\u00ebse, media sociale ose nga prind\u00ebr t\u00eb tjer\u00eb q\u00eb kan\u00eb kaluar t\u00eb nj\u00ebjt\u00ebn p\u00ebrvoj\u00eb. N\u00eb shum\u00eb raste, vet\u00eb familjet jan\u00eb shnd\u00ebrruar n\u00eb burimin kryesor t\u00eb informacionit dhe orientimit p\u00ebr pacient\u00ebt e sapodiagnostikuar, duke z\u00ebvend\u00ebsuar rolin q\u00eb duhet t\u00eb luajn\u00eb institucionet sh\u00ebndet\u00ebsore.\r\n\r\nNj\u00eb nga shqet\u00ebsimet m\u00eb serioze t\u00eb ngritura gjat\u00eb fokus-grupit lidhet me faktin se trajtimi i fibroz\u00ebs cistike n\u00eb Shqip\u00ebri vazhdon t\u00eb mb\u00ebshtetet n\u00eb nj\u00eb protokoll klinik t\u00eb miratuar n\u00eb vitin 2008, i cili nuk reflekton zhvillimet e fundit shkencore dhe standardet bashk\u00ebkohore t\u00eb trajtimit t\u00eb k\u00ebsaj patologjie. Sipas pjes\u00ebmarr\u00ebsve, protokolli p\u00ebrfshin medikamente q\u00eb nuk jan\u00eb m\u00eb t\u00eb disponueshme n\u00eb treg ose nuk p\u00ebrfaq\u00ebsojn\u00eb m\u00eb terapit\u00eb e rekomanduara sipas praktikave nd\u00ebrkomb\u00ebtare.\r\n\r\nMungesa e p\u00ebrdit\u00ebsimit t\u00eb protokollit ndikon drejtp\u00ebrdrejt edhe n\u00eb skem\u00ebn e rimbursimit t\u00eb barnave. Nj\u00eb pjes\u00eb e konsiderueshme e medikamenteve dhe produkteve t\u00eb nevojshme p\u00ebr menaxhimin e p\u00ebrditsh\u00ebm t\u00eb s\u00ebmundjes nuk mbulohen nga sistemi publik, duke detyruar familjet t'i sigurojn\u00eb ato me shpenzimet e tyre ose t'i blejn\u00eb jasht\u00eb Shqip\u00ebris\u00eb. P\u00ebr shum\u00eb familje, kjo p\u00ebrkthehet n\u00eb nj\u00eb barr\u00eb t\u00eb r\u00ebnd\u00eb financiare, nd\u00ebrkoh\u00eb q\u00eb nd\u00ebrprerja ose mungesa e trajtimit mund t\u00eb p\u00ebrshpejtoj\u00eb p\u00ebrkeq\u00ebsimin e gjendjes sh\u00ebndet\u00ebsore dhe t\u00eb rrezikoj\u00eb jet\u00ebgjat\u00ebsin\u00eb e pacient\u00ebve.\r\n\r\nNj\u00eb tjet\u00ebr problem strukturor lidhet me munges\u00ebn e vazhdim\u00ebsis\u00eb s\u00eb kujdesit pas mosh\u00ebs pediatrike. Sipas d\u00ebshmive t\u00eb prind\u00ebrve, pas mosh\u00ebs 16-vje\u00e7are pacient\u00ebt p\u00ebrballen me munges\u00ebn e sh\u00ebrbimeve t\u00eb specializuara dhe t\u00eb mjek\u00ebve t\u00eb trajnuar p\u00ebr trajtimin e fibroz\u00ebs cistike tek t\u00eb rriturit. Ky boshll\u00ebk n\u00eb sistem krijon nd\u00ebrprerje n\u00eb ndjekjen mjek\u00ebsore, cenon vazhdim\u00ebsin\u00eb e trajtimit dhe rrit rrezikun e komplikacioneve afatgjata.\r\n\r\nN\u00eb thelb, problemi nuk q\u00ebndron vet\u00ebm te mungesa e medikamenteve apo e protokolleve t\u00eb p\u00ebrdit\u00ebsuara, por te fakti se sistemi sh\u00ebndet\u00ebsor ende nuk e njeh fibroz\u00ebn cistike si nj\u00eb s\u00ebmundje komplekse q\u00eb k\u00ebrkon nj\u00eb qasje multidisiplinare dhe t\u00eb koordinuar. P\u00ebr sa koh\u00eb mungojn\u00eb protokollet e p\u00ebrdit\u00ebsuara sipas evidencave shkencore, rimbursimi i plot\u00eb i terapive t\u00eb domosdoshme, ekipet multidisiplinare dhe sh\u00ebrbimet e specializuara p\u00ebrgjat\u00eb gjith\u00eb ciklit t\u00eb jet\u00ebs s\u00eb pacientit, edhe zbatimi i modelit bio-psiko-social t\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar mbetet i pamjaftuesh\u00ebm p\u00ebr t'iu p\u00ebrgjigjur nevojave reale t\u00eb k\u00ebsaj kategorie.\r\n\r\nP\u00ebrmir\u00ebsimi i situat\u00ebs k\u00ebrkon nj\u00eb qasje t\u00eb integruar t\u00eb politikave publike. Kjo n\u00ebnkupton njohjen e fibroz\u00ebs cistike si nj\u00eb patologji komplekse dhe multisistemike, p\u00ebrdit\u00ebsimin e protokolleve komb\u00ebtare t\u00eb trajtimit n\u00eb p\u00ebrputhje me standardet nd\u00ebrkomb\u00ebtare, zgjerimin e list\u00ebs s\u00eb barnave t\u00eb rimbursueshme, krijimin e ekipeve multidisiplinare t\u00eb specializuara, garantimin e tranzicionit t\u00eb sigurt nga sh\u00ebrbimet pediatrike n\u00eb ato p\u00ebr t\u00eb rriturit, si dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb reflekton kufizimet funksionale dhe nevojat reale t\u00eb pacient\u00ebve, e jo vet\u00ebm diagnoz\u00ebn klinike.\r\n\r\n\r\n\r\n\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.<\/div><\/article>Rasti i pacientit n\u00eb Durr\u00ebs: Nj\u00eb alarm p\u00ebr aksesin e barabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit<\/h2><\/div><\/div>Ka ngjarje q\u00eb n\u00eb rrjetet sociale zgjasin vet\u00ebm pak minuta dhe pastaj harrohen si t\u00eb mos kishin ndodhur kurr\u00eb. Por ka edhe t\u00eb tilla q\u00eb kan\u00eb jehon\u00eb t\u00eb gjat\u00eb dhe marrin edhe reagimin e institucioneve. Rasti i pacientit 52-vje\u00e7ar n\u00eb Durr\u00ebs \u00ebsht\u00eb nj\u00ebri prej tyre.\r\n\r\nPamjet e nj\u00eb burri t\u00eb s\u00ebmur\u00eb, q\u00eb sipas informacioneve t\u00eb para ishte transportuar me ambulanc\u00eb nga Spitali i Durr\u00ebsit p\u00ebr t\u2019u braktisur n\u00eb \u2018rrug\u00eb\u2019, trondit\u00ebn opinionin publik. Reagime t\u00eb shumta pasuan, versione kontradiktore dhe deklarata institucionale. Fillimisht u raportua se pacienti kishte nd\u00ebrruar jet\u00eb, por m\u00eb pas Spitali Rajonal i Durr\u00ebsit sqaroi se ai ishte gjall\u00eb dhe ndodhej s\u00ebrish n\u00ebn kujdes mjek\u00ebsor, nd\u00ebrsa dy dit\u00eb pas ngjarjes Ministria e Sh\u00ebndet\u00ebsis\u00eb urdh\u00ebroi nisjen e nj\u00eb hetimi administrativ.\r\n\r\nMegjithat\u00eb, edhe pas reagimeve zyrtare, ende shum\u00eb pyetje mbeten ende pa p\u00ebrgjigje.\r\n\r\nN\u00ebse pacienti ishte n\u00eb gjendje t\u00eb stabilizuar dhe trajtimi spitalor kishte p\u00ebrfunduar, si ka mund\u00ebsi q\u00eb vet\u00ebm pak or\u00eb m\u00eb von\u00eb ai u rikthye n\u00eb spital dhe iu n\u00ebnshtrua menj\u00ebher\u00eb nj\u00eb nd\u00ebrhyrjeje tjet\u00ebr kirurgjikale, e cila p\u00ebrfundoi me amputimin e nj\u00ebr\u00ebs k\u00ebmb\u00eb? N\u00ebse, p\u00ebrkundrazi, gjendja e tij k\u00ebrkonte ende monitorim dhe nd\u00ebrhyrje, p\u00ebrse u largua nga spitali?\r\n\r\nK\u00ebto jan\u00eb pyetje q\u00eb lidhen drejtp\u00ebrdrejt me standardet e kujdesit sh\u00ebndet\u00ebsor publik n\u00eb Shqip\u00ebri.\r\n\r\nPo aq e r\u00ebnd\u00ebsishme \u00ebsht\u00eb q\u00eb institucionet t\u00eb sqarojn\u00eb se si ka funksionuar zinxhiri i vendimmarrjes n\u00eb k\u00ebt\u00eb rast. Kush e mori vendimin p\u00ebr daljen nga spitali t\u00eb pacientit t\u00eb s\u00ebmur\u00eb? Cilat ishin kriteret mjek\u00ebsore q\u00eb u ndoq\u00ebn nga vemdimarr\u00ebsit p\u00ebr rastin? A pat\u00ebn dhe a duhet t\u00eb kishin rol sh\u00ebrbimet sociale n\u00eb nj\u00eb koh\u00eb q\u00eb prej vitesh po trumbetohet nga institucionet ngritja e sh\u00ebrbimeve multidisiplinare, ku p\u00ebrfshihen sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe sociale? Dhe, a ekziston dokumentacioni q\u00eb provon se pacienti iu dor\u00ebzua v\u00ebrtet\u00eb nj\u00eb familjari, si\u00e7 deklaron spitali?\r\n\r\nNga ana tjet\u00ebr, edhe deklarata e Spitalit Rajonal t\u00eb Durr\u00ebsit ngre t\u00eb tjera pyetje. Institucioni pohon se pacienti nuk kishte vend ku t\u00eb q\u00ebndronte, se u njoftuan sh\u00ebrbimet sociale dhe Policia e Shtetit dhe se nj\u00eb familjar pranoi ta merrte n\u00eb banes\u00eb. Megjithat\u00eb, deri m\u00eb sot nuk \u00ebsht\u00eb ofruar asnj\u00eb informacion q\u00eb t\u00eb sqaroj\u00eb se kush ishte familjari (sigurisht jo t\u00eb dh\u00ebnat personale t\u00eb tij), ku ndodhej banesa apo n\u00ebse pacienti q\u00ebndroi realisht aty. P\u00ebrkundrazi, persona q\u00eb deklarojn\u00eb se e njihnin pacientin kan\u00eb pohuar publikisht se ai nuk kishte asnj\u00eb familjar q\u00eb t\u00eb kujdesej p\u00ebr t\u00eb dhe as nj\u00eb banes\u00eb ku t\u00eb strehohej. Ndaj, n\u00eb k\u00ebt\u00eb rast hetimi nuk mund t\u00eb kufizohet vet\u00ebm tek ndjekja e procedurave dhe protokolleve mjek\u00ebsore. Hetimit duhet t\u2019i n\u00ebnshtrohen t\u00eb gjitha hallkat e mekanizmave mbrojt\u00ebs, p\u00ebrfshi ato sociale.\r\n\r\nRasti i pacientit nga Durr\u00ebsi rikthen n\u00eb v\u00ebmendje nj\u00eb problem q\u00eb Together for Life e ka ngritur prej vitesh: qasjen e pabarabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore p\u00ebr pacient\u00ebt m\u00eb vulnerab\u00ebl. N\u00ebse do t\u2019i referohemi dokumentave strategjike, legjislacionit dhe deklaratave publike t\u00eb drejtuesve t\u00eb sh\u00ebndet\u00ebsis\u00eb sistemi publik garanton kujdes sh\u00ebndet\u00ebsor t\u00eb barabart\u00eb dhe t\u00eb aksesuesh\u00ebm p\u00ebr t\u00eb gjith\u00eb. Megjithat\u00eb, n\u00eb shum\u00eb raste, p\u00ebrfshi edhe k\u00ebt\u00eb t\u00eb fundit, pacient\u00ebt q\u00eb klasifikohet tek grupet me t\u00eb c\u00ebnueshme si ata nga familje t\u00eb varfra, t\u00eb braktisurit, personat me probleme t\u00eb sh\u00ebndetit mendor apo q\u00eb jetojn\u00eb n\u00eb kushte t\u00eb r\u00ebnda social-ekonomike p\u00ebrballen shpesh me barriera t\u00eb m\u00ebdha q\u00eb ua b\u00ebjn\u00eb t\u00eb v\u00ebshtir\u00eb, madje t\u00eb pamundur marrjen e trajtimit sh\u00ebndet\u00ebsor p\u00ebr t\u00eb cilin kan\u00eb nevoj\u00eb.\r\n\r\nN\u00ebse statusi social i nj\u00eb pacienti ndikon n\u00eb m\u00ebnyr\u00ebn se si ai trajtohet nga institucionet, at\u00ebher\u00eb nuk kemi t\u00eb b\u00ebjm\u00eb vet\u00ebm me nj\u00eb problem administrativ. Kemi t\u00eb b\u00ebjm\u00eb me c\u00ebnimin e parimit t\u00eb barazis\u00eb n\u00eb aksesin ndaj sh\u00ebrbimeve publike.\r\n\r\nFakti q\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb ka urdh\u00ebruar nj\u00eb hetim administrativ dhe se Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi ka nisur nj\u00eb procedur\u00eb hetimore kryesisht, \u00ebsht\u00eb p\u00ebr t\u2019u vler\u00ebsuar, por ende jo i mjaftuesh\u00ebm. P\u00ebrtej hetimit administrativ t\u00eb nisur nga dy institucionet e m\u00ebsip\u00ebrme, ky rast ngre edhe nj\u00eb tjet\u00ebr \u00e7\u00ebshtje me r\u00ebnd\u00ebsi publike: mbrojtjen e t\u00eb dh\u00ebnave personale t\u00eb pacientit. Publikimi nga institucioni spitalor i identitetit, diagnoz\u00ebs, historis\u00eb klinike dhe informacioneve tep\u00ebr sensitive, si statusi HIV dhe p\u00ebrdorimi i substancave narkotike, shtrojn\u00eb pyetjen n\u00ebse jan\u00eb respektuar detyrimet ligjore p\u00ebr konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore. Edhe n\u00ebse synimi ishte mbrojtja e institucionit nga akuzat publike, kjo nuk mund t\u00eb justifikoj\u00eb ekspozimin e t\u00eb dh\u00ebnave q\u00eb mbrohen nga legjislacioni shqiptar, Konventa Evropiane p\u00ebr t\u00eb Drejtat e Njeriut, Rregullorja Evropiane p\u00ebr Mbrojtjen e t\u00eb Dh\u00ebnave (GDPR) dhe parimet universale t\u00eb etik\u00ebs mjek\u00ebsore. Konfidencialiteti nuk \u00ebsht\u00eb nj\u00eb formalitet administrativ, \u00ebsht\u00eb element shum\u00eb i r\u00ebnd\u00ebsish\u00ebm p\u00ebr t\u00eb garantuar dinjitetin e pacientit.\r\n\r\nNdaj kjo ngjarje nuk duhet t\u00eb reduktohet vet\u00ebm n\u00eb debatin n\u00ebse pacienti u \"braktis\" apo jo. Kjo \u00ebsht\u00eb vet\u00ebm nj\u00eb pjes\u00eb e historis\u00eb. Pyetja m\u00eb e r\u00ebnd\u00ebsishme n\u00eb k\u00ebt\u00eb rast \u00ebsht\u00eb n\u00ebse sistemi funksionoi ashtu si\u00e7 duhet p\u00ebr nj\u00eb qytetar n\u00eb nevoj\u00eb. N\u00ebse u respektuan standardet profesionale. N\u00ebse institucionet bashk\u00ebpunuan si\u00e7 duhet. N\u00ebse t\u00eb drejtat e pacientit u mbrojt\u00ebn. Dhe n\u00ebse, p\u00ebrtej p\u00ebrgjegj\u00ebsive individuale, ky rast nxjerr n\u00eb pah mang\u00ebsi strukturore q\u00eb k\u00ebrkojn\u00eb reagim t\u00eb menj\u00ebher\u00ebsh.\r\n\r\nSepse nj\u00eb sistem sh\u00ebndet\u00ebsor nuk matet vet\u00ebm me buxhetin e alokuar nga fondet publike, q\u00eb p\u00ebr hir t\u00eb s\u00eb v\u00ebrtet\u00ebs vazhdojn\u00eb t\u00eb jen\u00eb m\u00eb t\u00eb ultat n\u00eb Rajon, por, mbi t\u00eb gjitha, matet me m\u00ebnyr\u00ebn si i trajton pacient\u00ebt, ve\u00e7an\u00ebrisht m\u00eb t\u00eb pambrojturit dhe t\u00eb rrezikuarit.\r\n\r\n \r\n\r\nREAGIMET E INSTITUCIONEVE \r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebq\u00ebnies Sociale - Lidhur me trajtimin e rastit t\u00eb pacientit 52-vje\u00e7ar A.A., nga qyteti i Durr\u00ebsit, Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale ka urdh\u00ebruar nisjen e nj\u00eb hetimi t\u00eb thelluar administrativ, i cili do t\u00eb shqyrtoj\u00eb n\u00eb m\u00ebnyr\u00eb t\u00eb plot\u00eb jo vet\u00ebm procedurat dhe masat e marra nga struktura spitalore, por edhe veprimet dhe p\u00ebrgjegj\u00ebsit\u00eb e strukturave t\u00eb sh\u00ebrbimit social t\u00eb p\u00ebrfshira n\u00eb k\u00ebt\u00eb rast.\r\n\r\nN\u00eb kuad\u00ebr t\u00eb k\u00ebtij procesi, drejtuesit e Operatorit t\u00eb Sh\u00ebrbimeve t\u00eb Kujdesit Sh\u00ebndet\u00ebsor dhe t\u00eb Sh\u00ebrbimit Social Shtet\u00ebror jan\u00eb n\u00eb terren p\u00ebr t\u00eb kryer verifikime t\u00eb drejtp\u00ebrdrejta dhe p\u00ebr t\u00eb mbik\u00ebqyrur procesin e hetimit administrativ t\u00eb strukturave n\u00eb qytetin e Durr\u00ebsit.\r\n\r\nNd\u00ebrkoh\u00eb, pacienti ndodhet n\u00ebn kujdesin e strukturave sh\u00ebndet\u00ebsore n\u00eb spitalin rajonal t\u00eb Durr\u00ebsit.\r\n\r\nGjithashtu, po verifikohet i gjith\u00eb dokumentacioni sh\u00ebndet\u00ebsor dhe administrativ, si edhe p\u00ebrgjegj\u00ebsia e personave t\u00eb p\u00ebrfshir\u00eb n\u00eb menaxhimin dhe transportimin e pacientit.\r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale mbetet e angazhuar p\u00ebr t\u00eb garantuar transparenc\u00eb t\u00eb plot\u00eb, zbardhjen e t\u00eb gjitha rrethanave t\u00eb k\u00ebtij rasti dhe marrjen e \u00e7do mase administrative apo ligjore q\u00eb do t\u00eb rezultoj\u00eb e nevojshme.\r\n\r\n\u00a0\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi - Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin kryesisht p\u00ebr rastin e b\u00ebr\u00eb publik n\u00eb Spitalin Rajonal t\u00eb Durr\u00ebsit\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin \u201cex-officio\u201d t\u00eb \u00e7\u00ebshtjes n\u00eb lidhje me trajtimin dhe ofrimin e sh\u00ebrbimeve t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe shoq\u00ebror ndaj shtetasit t\u00eb identifikuar si A.A, 52 vje\u00e7, nga qyteti i Durr\u00ebsit.\r\n\r\nPas informacioneve t\u00eb b\u00ebra publike n\u00eb media, Komisioneri ka vendosur fillimin e procedur\u00ebs administrative kryesisht, n\u00eb zbatim t\u00eb Ligjit nr. 10221, dat\u00eb 04.02.2010, \u201cP\u00ebr Mbrojtjen nga Diskriminimi\u201d si dhe dispozitat e Kodit t\u00eb Procedurave Administrative, p\u00ebr t\u00eb verifikuar n\u00ebse n\u00eb rastin konkret jan\u00eb respektuar parimet e trajtimit t\u00eb barabart\u00eb dhe mosdiskriminimit n\u00eb ofrimin e sh\u00ebrbimeve sh\u00ebndet\u00ebsore dhe shoq\u00ebrore.\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi mbetet i angazhuar n\u00eb garantimin e s\u00eb drejt\u00ebs s\u00eb \u00e7do individi p\u00ebr trajtim t\u00eb barabart\u00eb dhe akses pa diskriminim n\u00eb sh\u00ebrbimet publike dhe private, duke nd\u00ebrhyr\u00eb n\u00eb \u00e7do rast kur ka indicie se k\u00ebto t\u00eb drejta mund t\u00eb jen\u00eb c\u00ebnuar.\r\n\r\n \r\n\r\nSpitali Rajonal i Durr\u00ebsit - N\u00eb lidhje me lajmin e publikuar n\u00eb media, sipas t\u00eb cilit nj\u00eb pacient i trajtuar m\u00eb par\u00eb n\u00eb Spitalin Rajonal Durr\u00ebs ka nd\u00ebrruar jet\u00eb, sqarojm\u00eb se ky informacion nuk \u00ebsht\u00eb i v\u00ebrtet\u00eb.\r\n\r\nPacienti \u00ebsht\u00eb paraqitur s\u00ebrish dit\u00ebn e djeshme n\u00eb Sh\u00ebrbimin e Urgjenc\u00ebs t\u00eb Spitalit Rajonal Durr\u00ebs, ku vijon t\u00eb q\u00ebndroj\u00eb n\u00ebn kujdesin dhe vler\u00ebsimin e personelit mjek\u00ebsor.\r\n\r\nP\u00ebr informimin e plot\u00eb t\u00eb opinionit publik b\u00ebjm\u00eb me dije se pacienti ishte trajtuar m\u00eb par\u00eb n\u00eb QSUT, ku i ishte kryer nj\u00eb nd\u00ebrhyrje nga mjek\u00ebt kirurg\u00eb vaskular\u00eb n\u00eb en\u00ebt e gjakut t\u00eb k\u00ebmb\u00ebs s\u00eb majt\u00eb. Pas komunikimit nd\u00ebrmjet mjek\u00ebve, ai u shtrua n\u00eb Spitalin Rajonal Durr\u00ebs, ku q\u00ebndroi dhe u trajtua p\u00ebr disa jav\u00eb, duke marr\u00eb kujdesin e nevojsh\u00ebm mjek\u00ebsor n\u00eb p\u00ebrputhje me gjendjen e tij sh\u00ebndet\u00ebsore.\r\n\r\nPas stabilizimit t\u00eb parametrave klinik\u00eb dhe p\u00ebrfundimit t\u00eb trajtimit spitalor, pacientit iu p\u00ebrgatit epikriza dhe iu komunikua dalja nga spitali. Duke qen\u00eb se ai deklaroi se nuk kishte nj\u00eb vend ku t\u00eb q\u00ebndronte, strukturat e spitalit njoftuan sh\u00ebrbimin social dhe organet e Policis\u00eb s\u00eb Shtetit, me q\u00ebllim gjetjen e nj\u00eb zgjidhjeje t\u00eb sigurt sociale dhe familjare.\r\n\r\nPas komunikimeve t\u00eb kryera nga strukturat p\u00ebrkat\u00ebse, nj\u00eb familjar deklaroi se do ta merrte pran\u00eb banes\u00ebs s\u00eb tij. Pacienti u transportua me autoambulanc\u00eb deri n\u00eb destinacion, i shoq\u00ebruar nga punonj\u00ebs t\u00eb Policis\u00eb s\u00eb Shtetit, dhe iu dor\u00ebzua familjarit.\r\n\r\nP\u00ebr rrjedhoj\u00eb, sqarojm\u00eb se pacienti nuk \u00ebsht\u00eb nxjerr\u00eb apo braktisur n\u00eb rrug\u00eb nga Spitali Rajonal Durr\u00ebs, si\u00e7 pretendohet n\u00eb publikim. Dalja e tij nga spitali \u00ebsht\u00eb kryer pas p\u00ebrfundimit t\u00eb trajtimit, me dokumentacionin p\u00ebrkat\u00ebs mjek\u00ebsor dhe pas koordinimit me strukturat sociale, policore dhe familjare.\r\n\r\nSpitali Rajonal Durr\u00ebs u b\u00ebn thirrje mediave q\u00eb, ve\u00e7an\u00ebrisht n\u00eb raste kaq t\u00eb ndjeshme, informacioni t\u00eb verifikohet pran\u00eb institucioneve p\u00ebrkat\u00ebse p\u00ebrpara publikimit.\r\n\r\nInstitucioni yn\u00eb mbetet i angazhuar p\u00ebr ofrimin e kujdesit sh\u00ebndet\u00ebsor dhe p\u00ebr bashk\u00ebpunimin me \u00e7do autoritet kompetent, duke respektuar konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit.<\/div><\/article>TFL, fokus grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje<\/h2><\/div><\/div>Together for Life\u00a0zhvilloi nj\u00eb fokus-grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje, p\u00ebr t\u00eb\u00a0diskutuar ndikimin q\u00eb\u00a0ka pasur zbatimi\u00a0i skem\u00ebs s\u00eb\u00a0re t\u00eb vler\u00ebsimit\u00a0t\u00eb aft\u00ebsis\u00eb s\u00eb\u00a0kufizuar, bazuar n\u00eb\u00a0modelin\u00a0bio-psiko-social, si dhe sfidat\u00a0q\u00eb ata vazhdojn\u00eb\u00a0t\u00eb p\u00ebrballen \u00e7do\u00a0dit\u00eb.\r\n\r\nGjat\u00eb diskutimit u ngrit\u00ebn shqet\u00ebsime serioze mbi:\r\n\u2022 v\u00ebshtir\u00ebsit\u00eb n\u00eb procesin\u00a0e vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe munges\u00ebn e\u00a0njohjes s\u00eb plot\u00eb\u00a0t\u00eb k\u00ebsaj patologjie\u00a0nga komisionet e\u00a0vler\u00ebsimit;\r\n\u2022 munges\u00ebn e mb\u00ebshtetjes\u00a0psikologjike p\u00ebr pacient\u00ebt\u00a0dhe familjet q\u00eb\u00a0nga momenti i\u00a0diagnostikimit;\r\n\u2022 aksesin e kufizuar n\u00eb trajtime\u00a0dhe medikamente t\u00eb\u00a0domosdoshme, shum\u00eb prej\u00a0t\u00eb cilave mbeten\u00a0t\u00eb pap\u00ebrballueshme financiarisht;\r\n\u2022 munges\u00ebn e nj\u00eb\u00a0qasjeje t\u00eb integruar\u00a0p\u00ebr mbulimin e\u00a0nevojave sh\u00ebndet\u00ebsore,\u00a0sociale dhe t\u00eb\u00a0pun\u00ebsimit;\r\n\u2022 nevoj\u00ebn p\u00ebr politika\u00a0publike q\u00eb njohin\u00a0fibroz\u00ebn\u00a0cistike si nj\u00eb\u00a0s\u00ebmundje komplekse, q\u00eb\u00a0k\u00ebrkon trajtim multidisiplinar\u00a0dhe mb\u00ebshtetje t\u00eb\u00a0vazhdueshme.\r\n\r\nKy fokus-grup\u00a0\u00ebsht\u00eb pjes\u00eb\u00a0e monitorimit t\u00eb\u00a0efekteve t\u00eb reform\u00ebs\u00a0s\u00eb vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe synon t\u00eb\u00a0siguroj\u00eb q\u00eb z\u00ebri\u00a0dhe p\u00ebrvoja e\u00a0personave t\u00eb\u00a0prekur t\u00eb reflektohen\u00a0n\u00eb p\u00ebrmir\u00ebsimin e\u00a0politikave publike.\r\nAskush nuk duhet\u00a0t\u00eb mbetet pa\u00a0mb\u00ebshtetje p\u00ebr shkak\u00a0t\u00eb nj\u00eb sistemi\u00a0q\u00eb nuk arrin\u00a0t\u00eb kuptoj\u00eb kompleksitetin\u00a0e nevojave t\u00eb\u00a0tij.\r\n\r\n***\r\nTogether for Life organized a focus group with people living with cystic fibrosis and parents of children affected by the condition to discuss the impact of the implementation of the new disability assessment scheme based on the bio-psycho-social model, as well as the challenges they continue to face in accessing healthcare, social protection, and employment opportunities.\r\n\r\nParticipants highlighted several critical concerns, including:\r\n\u2022 challenges in the disability assessment process and the limited recognition of cystic fibrosis by assessment commissions;\r\n\u2022 the lack of psychological support for patients and their families from the moment of diagnosis;\r\n\u2022 limited access to essential medicines and treatment, many of which remain financially out of reach;\r\n\u2022 the absence of an integrated approach to addressing healthcare, social, and employment needs;\r\n\u2022 the urgent need for public policies that recognize cystic fibrosis as a complex condition requiring multidisciplinary care and long-term support.\r\n\r\nThis focus group forms part of the broader monitoring of the effects of Albania's disability assessment reform and aims to ensure that the experiences and voices of people living with cystic fibrosis are reflected in future policy improvements.<\/div><\/article>Trajnim me gazetar\u00eb\/ Raportimi etik i Dhun\u00ebs me Baz\u00eb Gjinore: Roli i Medias n\u00eb Nd\u00ebrgjegj\u00ebsimin Publik dhe Promovimin e Barazis\u00eb Gjinore<\/h2><\/div><\/div>\ud835\udc0a\ud835\udc2e\ud835\udc2b \ud835\udc20\ud835\udc1a\ud835\udc33\ud835\udc1e\ud835\udc2d\ud835\udc1a\ud835\udc2b\ud835\udc22 \ud835\udc2b\ud835\udc1a\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc28\ud835\udc27 \ud835\udc29\u00eb\ud835\udc2b \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc26\ud835\udc1e \ud835\udc1b\ud835\udc1a\ud835\udc33\u00eb \ud835\udc20\ud835\udc23\ud835\udc22\ud835\udc27\ud835\udc28\ud835\udc2b\ud835\udc1e \ud835\udc1a\ud835\udc29\ud835\udc28 \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc27\u00eb \ud835\udc1f\ud835\udc1a\ud835\udc26\ud835\udc22\ud835\udc25\ud835\udc23\ud835\udc1e, \ud835\udc27\ud835\udc2e\ud835\udc24 \ud835\udc29\ud835\udc28 \ud835\udc2d\ud835\udc2b\ud835\udc1e\ud835\udc20\ud835\udc28\ud835\udc27 \ud835\udc2d\ud835\udc21\ud835\udc23\ud835\udc1e\ud835\udc2c\ud835\udc21\ud835\udc2d \ud835\udc27\ud835\udc23\u00eb \ud835\udc21\ud835\udc22\ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc22. \ud835\udc0f\ud835\udc28 \ud835\udc27\ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc28\ud835\udc27 \ud835\udc27\u00eb \ud835\udc23\ud835\udc1e\ud835\udc2d\u00eb\ud835\udc27 \ud835\udc1e \ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc2e\ud835\udc23\ud835\udc2d.\n\n\n\nGjat\u00eb muajve qershor dhe korrik, gazetar\u00eb nga media t\u00eb ndryshme u b\u00ebn\u00eb pjes\u00eb e nj\u00eb serie trajnimesh kushtuar raportimit etik dhe profesional t\u00eb rasteve t\u00eb dhun\u00ebs me baz\u00eb gjinore dhe dhun\u00ebs n\u00eb familje, t\u00eb organizuara nga Together for Life, n\u00eb kuad\u00ebr t\u00eb \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc24\ud835\udc2d\ud835\udc22\ud835\udc2d \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 \u2013 \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a, i cili zbatohet nga nj\u00eb konsorcium organizatash dhe financohet nga Bashkimi Evropian.\n\n\n\n\nP\u00ebrmes analiz\u00ebs s\u00eb rasteve reale q\u00eb kan\u00eb tronditur opinionin publik pjes\u00ebmarr\u00ebsit diskutuan jo vet\u00ebm \u00e7far\u00eb raportohet, por mbi t\u00eb gjitha si raportohet.\n\n\n\nSepse gazetaria ka fuqin\u00eb:\nt\u00eb informoj\u00eb pa d\u00ebmtuar ask\u00ebnd;\n\u00a0t\u00eb mbroj\u00eb dinjitetin dhe privat\u00ebsin\u00eb e t\u00eb mbijetuarve;\n\u00a0t\u00eb edukoj\u00eb publikun;\nt\u00eb k\u00ebrkoj\u00eb llogari nga institucionet p\u00ebrgjegj\u00ebse \u2013 p\u00ebrfshir\u00eb sistemin sh\u00ebndet\u00ebsor, policin\u00eb, prokurorin\u00eb dhe sh\u00ebrbimet sociale \u2013 p\u00ebr m\u00ebnyr\u00ebn se si identifikojn\u00eb, raportojn\u00eb dhe menaxhojn\u00eb rastet e dhun\u00ebs.\n\n\nNj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e diskutimeve mes kolegeve gazetare iu kushtua sfid\u00ebs s\u00eb medias p\u00ebr t\u00eb mos r\u00ebn\u00eb pre e gar\u00ebs p\u00ebr klikime, duke shmangur gjuh\u00ebn q\u00eb romantizon dhun\u00ebn, faj\u00ebson viktim\u00ebn, cenon privat\u00ebsin\u00eb ose riviktimizon t\u00eb mbijetuarit.\n\n\n\nP\u00ebrmes metodave interaktive, si Mentimeter, gazetar\u00ebt testuan njohurit\u00eb e tyre, sfiduan perceptimet dhe reflektuan mbi p\u00ebrgjegj\u00ebsin\u00eb q\u00eb mbart \u00e7do lajm i publikuar. Sepse nj\u00eb raportim i mir\u00eb nuk matet vet\u00ebm me numrin e klikimeve.\n\n\n\n\nAi matet me ndikimin q\u00eb l\u00eb tek njer\u00ebzit, me besimin q\u00eb nd\u00ebrton dhe me kontributin q\u00eb jep p\u00ebr nj\u00eb shoq\u00ebri q\u00eb nuk e normalizon dhun\u00ebn, por e denon at\u00eb.\n\n\nKy publikim u realizua n\u00eb kuad\u00ebr t\u00eb iniciativ\u00ebs \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, t\u00eb zbatuar nga Gender Alliance for Development Centre (GADC), Together for Life dhe Institute of Romani Culture in Albania (IRCA), mb\u00ebshtetur financiarisht nga Bashkimi Evropian. P\u00ebrmbajtja e k\u00ebtij dokumenti \u00ebsht\u00eb p\u00ebrgjegj\u00ebsi e vetme e Together for Life dhe n\u00eb asnj\u00eb rrethan\u00eb nuk mund t\u00eb konsiderohet se pasqyron pozicionin e Bashkimit Evropian.\n\n\n\n***\n\n\n\n\ud835\udc16\ud835\udc21\ud835\udc1e\ud835\udc27 \ud835\udc1a \ud835\udc23\ud835\udc28\ud835\udc2e\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2c\ud835\udc2d \ud835\udc2b\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc2c \ud835\udc28\ud835\udc27 \ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b-\ud835\udc1b\ud835\udc1a\ud835\udc2c\ud835\udc1e\ud835\udc1d \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e \ud835\udc28\ud835\udc2b \ud835\udc1d\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc2c\ud835\udc2d\ud835\udc22\ud835\udc1c \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc27\ud835\udc28\ud835\udc2d \ud835\udc2c\ud835\udc22\ud835\udc26\ud835\udc29\ud835\udc25\ud835\udc32 \ud835\udc2d\ud835\udc1e\ud835\udc25\ud835\udc25\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc1a \ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc32, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc22\ud835\udc27\ud835\udc1f\ud835\udc25\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc2c\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc28\ud835\udc27\ud835\udc1e'\ud835\udc2c \ud835\udc25\ud835\udc22\ud835\udc1f\ud835\udc1e.\n\n\n\nDuring June and July, journalists from various media outlets participated in a series of training sessions on the ethical and professional reporting of gender-based violence and domestic violence cases.\n\n\nThe trainings were organized by Together for Life as part of the \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 - \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc1c\ud835\udc2d, implemented by GADC, TFL and IRCA organizations and funded by the European Union.\n\n\n\nThrough the analysis of real-life cases that have shocked public opinion, participants explored not only what is reported, but, more importantly, how it is reported.\n\n\nBecause journalism has the power to:\n\u00a0inform without causing harm;\nprotect the dignity and privacy of survivors;\neducate the public;\nhold responsible institutions, including the healthcare system, the police, the prosecution, and social services, accountable for how they identify, report, and respond to cases of violence.\n\n\nAn important part of the discussions among the participating journalists focused on the media's responsibility to resist the race for clicks by avoiding language that romanticizes violence, blames victims, violates their privacy, or re-traumatizes survivors.\n\n\n\n\n\u00a0Through interactive methods such as Mentimeter, journalists tested their knowledge, challenged their assumptions, and reflected on the responsibility that comes with every story they publish.\n\n\nBecause good journalism is not measured solely by the number of clicks. It is measured by the impact it has on people's lives, the trust it builds, and the contribution it makes to a society that does not normalize violence, but exposes and condemns it.\n\n\n\nThis publication was produced as part of the initiative \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, implemented by the Gender Alliance for Development Centre (GADC), Together for Life, and the Institute of Romani Culture in Albania (IRCA), with financial support from the European Union. The contents of this video are the sole responsibility of Together for Life and can under no circumstances be regarded as reflecting the position of the European Union.<\/div><\/article><\/div>
Ndihma e par\u00eb fillon nga komuniteti!\r\n\r\nMe rastin e Dit\u00ebs Bot\u00ebrore t\u00eb Ndihm\u00ebs s\u00eb Par\u00eb, n\u00eb kuad\u00ebr t\u00eb projektit\u00a0SOLIDAR, i zbatuar nga GFA Consulting Group GmbH n\u00eb partneritet me Together for Life, u zhvilluan nj\u00eb seri aktivitetesh informuese dhe praktike n\u00eb 7 bashki:\u00a0P\u00ebrmet, Gramsh, C\u00ebrrik, Vor\u00eb, Fush\u00eb-Kruj\u00eb, Shkod\u00ebr dhe Puk\u00eb.\u00a0Aktivitetet u organizuan n\u00eb bashk\u00ebpunim me bashkit\u00eb, Operatorin e Sh\u00ebrbimeve t\u00eb Kujdesit Sh\u00ebndet\u00ebsor (OSHKSH), Kryqin e Kuq Shqiptar, qendrat sh\u00ebndet\u00ebsore dhe aktor\u00eb t\u00eb tjer\u00eb vendor\u00eb.\r\n\r\n\r\n\r\nNga sheshet e qyteteve te qendrat komunitare dhe nj\u00ebsit\u00eb administrative, aktivitetet soll\u00ebn informacionin mbi ndihm\u00ebn e par\u00eb m\u00eb pran\u00eb qytetar\u00ebve dhe krijuan hap\u00ebsira p\u00ebr informim, bashk\u00ebbisedim dhe demonstrime praktike. Instruktor\u00ebt e Kryqit t\u00eb Kuq Shqiptar demonstruan m\u00ebnyr\u00ebn se si qytetar\u00ebt mund t\u00eb reagojn\u00eb n\u00eb minutat e para t\u00eb nj\u00eb situate emergjente, duke p\u00ebrfshir\u00eb raste si mbytja, t\u00eb fik\u00ebtit, konvulsionet dhe situata t\u00eb tjera q\u00eb k\u00ebrkojn\u00eb reagim t\u00eb shpejt\u00eb dhe t\u00eb p\u00ebrshtatsh\u00ebm.\r\n\r\nN\u00eb aktivitete u angazhuan p\u00ebrfaq\u00ebsues t\u00eb zyrave t\u00eb OSHKSH-s\u00eb, bashkive, qendrave sh\u00ebndet\u00ebsore, organizatave vendore, an\u00ebtar\u00eb t\u00eb Rrjeteve t\u00eb Aft\u00ebsive Rip\u00ebrt\u00ebrit\u00ebse n\u00eb Komunitet (CRN) dhe qytetar\u00eb t\u00eb shumt\u00eb nga komunitetet lokale.\r\n\r\n\r\n\r\nP\u00ebrtej informimit, k\u00ebto aktivitete sh\u00ebrbyen si nj\u00eb mund\u00ebsi p\u00ebr t\u00eb forcuar lidhjen mes komuniteteve dhe institucioneve q\u00eb kan\u00eb rol n\u00eb p\u00ebrgatitjen dhe reagimin ndaj emergjencave. Sepse gjat\u00eb nj\u00eb emergjence, komuniteti \u00ebsht\u00eb aty. Njohurit\u00eb baz\u00eb t\u00eb ndihm\u00ebs s\u00eb par\u00eb mund t\u00eb b\u00ebjn\u00eb nj\u00eb ndryshim t\u00eb madh n\u00eb minutat e para dhe \u00e7do qytetar mund t\u00eb jet\u00eb nj\u00eb hallk\u00eb e r\u00ebnd\u00ebsishme n\u00eb zinxhirin e shp\u00ebtimit.\r\n\r\nP\u00ebrmes k\u00ebtyre aktiviteteve, SOLIDAR vijon t\u00eb investoj\u00eb n\u00eb komunitete m\u00eb t\u00eb informuara, m\u00eb t\u00eb p\u00ebrgatitura dhe m\u00eb t\u00eb afta p\u00ebr t'u p\u00ebrballur me situata emergjente, duke nxitur bashk\u00ebpunimin, solidaritetin dhe vullnetarizmin n\u00eb nivel vendor.\r\n\r\nNdihma e par\u00eb nuk \u00ebsht\u00eb vet\u00ebm nj\u00eb aft\u00ebsi. \u00cbsht\u00eb nj\u00eb p\u00ebrgjegj\u00ebsi q\u00eb mund t\u00eb shp\u00ebtoj\u00eb jet\u00eb.\r\n\r\n\r\n\r\nKy aktivitet \u00ebsht\u00eb realizuar n\u00eb kuad\u00ebr t\u00eb projektit \u201cSOLIDAR \u2013 Bashk\u00eb n\u00eb emergjencat sh\u00ebndet\u00ebsore, nj\u00eb projekt i Agjensis\u00eb Zvicerane p\u00ebr Zhvillim dhe Bashk\u00ebpunim, q\u00eb implementohet nga GFA Consulting Group GmbH n\u00eb partneritet me Together for Life.\r\n\r\n***\r\n\r\nFirst aid starts with the community!\r\n\r\nOn the occasion of World First Aid Day, in frame of the SOLIDAR project, implemented by GFA Consulting Group GmbH in partnership with Together for Life, a series of awareness-raising and practical activities were held across 7 municipalities: P\u00ebrmet, Gramsh, C\u00ebrrik, Vor\u00eb, Fush\u00eb-Kruj\u00eb, Shkod\u00ebr, and Puk\u00eb. These activities were organized in cooperation with the municipalities, the Operator of Health Care Services (OSHKSH), the Albanian Red Cross, health centers, and other local stakeholders.\r\n\r\nFrom city squares to community centers and administrative units, the activities brought first aid information closer to citizens and created spaces for awareness, dialogue, and practical demonstrations. Instructors from the Albanian Red Cross demonstrated how citizens can respond in the first minutes of an emergency, including situations such as choking, fainting, seizures and other circumstances that require a rapid and appropriate response.\r\n\r\nActivities brought together representatives from OSHKSH offices, municipalities, health centers, local organizations, members of Community Resilience Networks (CRN), and many citizens from local communities.\r\n\r\nBeyond raising awareness, these activities provided an opportunity to strengthen the connection between communities and institutions involved in emergency preparedness and response. Because when an emergency happens, the community is there. Basic first aid knowledge can make a significant difference in the first few minutes, and every citizen can be an important link in the chain of survival.\r\n\r\nThrough these activities, SOLIDAR continues to invest in communities that are better informed, better prepared, and better equipped to respond to emergency situations, while promoting cooperation, solidarity, and volunteering at the local level.\r\n\r\nFirst aid is not just a skill. It is a responsibility that can save lives.\r\n\r\nThis activity was organized in frame of the Project \u201cSOLIDAR \u2013 Together in health emergencies\u201d, a project of the Swiss Agency for Development and Cooperation, implemented by GFA Consulting Group GmbH in partnership with Together for Life.\r\n\r\n <\/div><\/article>Combatting Corruption of Public Spending in the Health Sector<\/h2><\/div>
Combatting Corruption of Public Spending in the Health Sector<\/h2><\/div><\/div>Project Title\r\n\r\nCombatting Corruption of Public Spending in the Health Sector\r\n\r\nDonor\r\n\r\nNational Endowment for Democracy (NED)\r\n\r\nImplementation Period\r\n\r\n2026\u20132028\r\n\r\nPROJECT OBJECTIVE\r\n\r\nTo promote accountability and transparency in Albania's health sector through the systematic monitoring of public spending and public procurement procedures, the identification and exposure of corrupt practices, the strengthening of investigative journalism and civil society oversight, and the promotion of dialogue and advocacy with public institutions. The project aims to enhance institutional transparency, increase the accountability of public authorities, and empower citizens to actively monitor and demand greater accountability in the management of public resources in the health sector.\r\n\r\nActivities\r\n\r\n \tMonitor and analyze public spending and public procurement procedures in Albania's health sector during 2026 and 2027.\r\n \tPrepare and publish two annual reports on the health sector budget, focusing on spending patterns, allocation of public funds, and compliance with public procurement procedures.\r\n \tProduce a monitoring report on the regulation and oversight of public procurement and procurement practices in the pharmaceutical sector.\r\n \tDevelop a comparative analysis of the Public-Private Partnership (PPP) model and the state-owned enterprise model for the provision of hospital sterilization services.\r\n \tOrganize four regional information meetings on the right to information and institutional transparency in cooperation with the Office of the Commissioner for the Right to Information and Personal Data Protection.\r\n \tCollaborate with BIRN Albania to produce four investigative reports on corruption and mismanagement in the health sector and provide support to investigative journalists throughout the process.\r\n \tMaintain and regularly update the Transparency.com.al platform, including its online corruption reporting mechanism, and publish reports, analyses, and investigative articles.\r\n \tOrganize a public hearing with the Parliamentary Committee on Labour, Social Affairs and Health to present the project's findings and policy recommendations.\r\n \tHold at least two consultative roundtables with the Ministry of Health and Social Welfare to advocate for the implementation of the project's recommendations and improvements in the health sector budget.\r\n \tOrganize at least four roundtable discussions with key institutions, including the Office of the Commissioner for the Right to Information, the Prime Minister's Office, the Supreme State Audit, and other relevant institutions, to present the project's findings.\r\n \tStrengthen the network of civil society organizations engaged in monitoring transparency and accountability in public spending within the health sector.\r\n \tPrepare and disseminate six press releases per year to raise public awareness of transparency, accountability, and anti-corruption issues in Albania's health sector.\r\n\r\n <\/div><\/article>Skema e re e furnizimit me barna dhe fondet publike: Ministria \u201crefuzon\u201d t\u2019i p\u00ebrgjigjet TFL-s\u00eb p\u00ebr projektligjin<\/h2><\/div><\/div>Nd\u00ebrsa n\u00eb media raportohet se nj\u00eb projektligj i ri p\u00ebr krijimin e nj\u00eb shoq\u00ebrie shtet\u00ebrore p\u00ebr administrimin e barnave dhe pajisjeve mjek\u00ebsore \u00ebsht\u00eb pran\u00eb miratimit, Ministria e Sh\u00ebndet\u00ebsis\u00eb nuk i \u00ebsht\u00eb p\u00ebrgjigjur k\u00ebrkes\u00ebs p\u00ebr informacion t\u00eb Together for Life. P\u00ebr nj\u00eb reform\u00eb q\u00eb prek fondet publike, prokurimet dhe tregun farmaceutik, mungesa e transparenc\u00ebs ngre pik\u00ebpyetje serioze.\r\n\r\n \r\n\r\nMuajt e fundit, nisma p\u00ebr krijimin e nj\u00eb shoq\u00ebrie shtet\u00ebrore q\u00eb do t\u00eb administroj\u00eb furnizimin e institucioneve publike sh\u00ebndet\u00ebsore me barna dhe pajisje mjek\u00ebsore ka qen\u00eb n\u00eb qend\u00ebr t\u00eb raportimeve mediatike dhe t\u00eb debatit publik e politik. Megjithat\u00eb, pavar\u00ebsisht r\u00ebnd\u00ebsis\u00eb s\u00eb saj, p\u00ebrmbajtja e projektligjit, argumentet mbi t\u00eb cilat mb\u00ebshtetet kjo nism\u00eb, kostot e parashikuara dhe pasojat e mundshme p\u00ebr konkurrenc\u00ebn dhe menaxhimin e fondeve publike nuk jan\u00eb b\u00ebr\u00eb ende publike zyrtarisht.\r\n\r\n \r\n\r\nP\u00ebr t\u00eb hedhur drit\u00eb mbi k\u00ebt\u00eb nism\u00eb, Together for Life iu drejtua m\u00eb 5 gusht 2026 Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale, duke k\u00ebrkuar dokumentet kryesore dhe analizat mbi t\u00eb cilat \u00ebsht\u00eb mb\u00ebshtetur hartimi i projektligjit. Por, deri m\u00eb tani, TFL nuk ka marr\u00eb asnj\u00eb p\u00ebrgjigje nga Ministria.\r\n\r\n \r\n\r\nKjo munges\u00eb transparence b\u00ebhet shqet\u00ebsuese n\u00eb nj\u00eb koh\u00eb kur dor\u00ebheqja e ministres Evis Sala, n\u00eb dit\u00ebt e para t\u00eb shtatorit, u lidhur gjer\u00ebsisht n\u00eb raportimet mediatike me refuzimin e saj p\u00ebr t\u00eb firmosur draftligjin. Nd\u00ebrkoh\u00eb, n\u00eb media sot jan\u00eb raportuar zhvillime t\u00eb reja dhe sinjale se nisma mund t\u00eb jet\u00eb pran\u00eb miratimit nga ministrja e sapoem\u00ebruar, deputetja Klodiana Spahiu[1].\r\n\r\n \r\n\r\nN\u00eb k\u00ebt\u00eb situat\u00eb, b\u00ebrja publike e dokumentave dhe informacionit t\u00eb k\u00ebrkuar nga TFL m\u00eb shum\u00eb se nj\u00eb muaj m\u00eb par\u00eb do t\u2019i mund\u00ebsonin publikut dhe aktor\u00ebve t\u00eb interesuar t\u00eb kuptonin arsyet, q\u00ebllimin dhe pasojat e mundshme t\u00eb k\u00ebsaj nisme. Por, i gjith\u00eb procesi deri tani \u00ebsht\u00eb veshur me hijen e di\u00e7kaje t\u00eb fsheht\u00eb dhe sekrete.\r\n\r\n \r\n\r\nKjo situat\u00eb ngre nj\u00eb shqet\u00ebsim t\u00eb drejtp\u00ebrdrejt\u00eb mbi arsyet e munges\u00ebs s\u00eb transparenc\u00ebs p\u00ebr nj\u00eb nism\u00eb t\u00eb till\u00eb me ndikim t\u00eb drejt\u00ebp\u00ebrdrejt\u00eb n\u00eb jet\u00ebn dhe sh\u00ebndetin e pacient\u00ebve si dhe n\u00eb e financat publike. Si mund t\u00eb shqyrtohet dhe vler\u00ebsohet nj\u00eb reform\u00eb me ndikim potencial n\u00eb prokurimet publike, tregun farmaceutik dhe p\u00ebrdorimin e fondeve publike, kur dokumentet dhe analizat mbi t\u00eb cilat ajo mb\u00ebshtetet nuk b\u00ebhen publike?\r\n\r\n \r\n\r\nK\u00ebrkesa e TFL p\u00ebr transparenc\u00eb t\u00eb procesit\r\n\r\n \r\n\r\nN\u00eb k\u00ebrkes\u00ebn e saj p\u00ebr informacion, TFL nuk ka k\u00ebrkuar nj\u00eb q\u00ebndrim politik t\u00eb Ministris\u00eb mbi nism\u00ebn, por dokumentet dhe t\u00eb dh\u00ebnat q\u00eb do t\u00eb mund\u00ebsonin t\u00eb kuptohej mbi \u00e7far\u00eb baze \u00ebsht\u00eb hartuar projekt-ligji. N\u00eb k\u00ebrkes\u00ebn drejtuar Ministris\u00eb, organizata ka k\u00ebrkuar, nd\u00ebr t\u00eb tjera, draftin e projektligjit, relacionin shoq\u00ebrues, raportin e vler\u00ebsimit t\u00eb ndikimit, relacionin financiar dhe analiz\u00ebn e kostove e p\u00ebrfitimeve, si edhe studimin e fizibilitetit dhe dokumentet teknike q\u00eb kan\u00eb mb\u00ebshtetur nism\u00ebn.\r\n\r\n \r\n\r\nK\u00ebrkesa nuk ndalet te dokumentacioni formal. TFL k\u00ebrkon t\u00eb dij\u00eb si \u00ebsht\u00eb hartuar projektligji, cilat institucione apo organizata jan\u00eb p\u00ebrfshir\u00eb n\u00eb proces, n\u00ebse \u00ebsht\u00eb zhvilluar konsultim publik dhe si do t\u00eb garantohet mbik\u00ebqyrja administrative, financiare dhe operacionale e shoq\u00ebris\u00eb s\u00eb propozuar.\r\n\r\n \r\n\r\nTFL ngre shqet\u00ebsimin mbi ndikimin q\u00eb kjo nism\u00eb mund t\u00eb ket\u00eb n\u00eb konkurrenc\u00ebn n\u00eb tregun e barnave dhe pajisjeve mjek\u00ebsore, aksesin e operator\u00ebve ekonomik\u00eb n\u00eb procedurat e prokurimit, kostot p\u00ebr buxhetin e shtetit dhe efikasitetin e sistemit t\u00eb furnizimit.\r\n\r\n \r\n\r\nPa informacion t\u00eb plot\u00eb zyrtar, debati do t\u00eb zhvillohet mb\u00ebshtetur kryesisht n\u00eb deklarata publike dhe raportime mediatike, nd\u00ebrsa publiku dhe grupet e interesit do t\u00eb vazhdojn\u00eb t\u00eb hamend\u00ebsojn\u00eb mbi p\u00ebrmbajtjen, q\u00ebllimin dhe pasojat e mundshme t\u00eb k\u00ebsaj nisme.\r\n\r\n \r\n\r\nN\u00ebse modeli i ri synon t\u00eb ul\u00eb kostot, t\u00eb rris\u00eb efikasitetin dhe t\u00eb p\u00ebrmir\u00ebsoj\u00eb furnizimin e sistemit sh\u00ebndet\u00ebsor, k\u00ebto p\u00ebrfitime duhet t\u00eb mb\u00ebshteten me analiza t\u00eb b\u00ebra publike. Po k\u00ebshtu, \u00e7do rrezik p\u00ebr konkurrenc\u00ebn, menaxhimin e fondeve publike apo funksionimin e tregut duhet t\u00eb jet\u00eb pjes\u00eb e debatit p\u00ebrpara miratimit t\u00eb reform\u00ebs dhe jo pasi ajo t\u00eb ket\u00eb hyr\u00eb n\u00eb fuqi.\r\n\r\n \r\n\r\nN\u00eb fund t\u00eb fundit, pyetja q\u00eb mbetet \u00ebsht\u00eb e thjesht\u00eb: mbi \u00e7far\u00eb dokumentesh dhe analizash po merret nj\u00eb vendim q\u00eb mund t\u00eb ndryshoj\u00eb m\u00ebnyr\u00ebn e furnizimit t\u00eb sistemit publik sh\u00ebndet\u00ebsor?\r\n\r\n \r\n\r\nPik\u00ebrisht, p\u00ebr k\u00ebt\u00eb arsye, p\u00ebrgjigjja e Ministris\u00eb ndaj k\u00ebrkes\u00ebs s\u00eb TFL-s\u00eb nuk \u00ebsht\u00eb thjesht nj\u00eb \u00e7\u00ebshtje administrative. \u00cbsht\u00eb nj\u00eb test i transparenc\u00ebs s\u00eb nj\u00eb reforme q\u00eb prek drejtp\u00ebrdrejt parat\u00eb publike, prokurimet dhe funksionimin e tregut t\u00eb barnave dhe pajisjeve mjek\u00ebsore.\r\n\r\n \r\n\r\n[1] https:\/\/kapitali.al\/lajme-nga-vendi\/ekskluzive-klodiana-spahiu-konfirmon-se-do-te-firmose-ligjin-qe--i36873?fbclid=I\u00ebY2xja\u00ebUQ2LJ\u00ebZG9mB\u00cbV4dG4DY\u00cbVtAjExAGJya\u00cbQRMXB6S2VHU1BQaG1\u00ebbVV4YmRzcnRjBmF\u00ebcF9pZBAyMjI\u00ebMzkxNzg4MjA\u00ebODkyAAEev3\u00cbiBZ8MeHDec4czlBlkzUGxmP966blfLeqsJ\u00cbdUehMOStTxFYoi2eQU\u00ebSY_aem_pfhlnuGslgbNgkJ_i8\u00cbOXQ<\/div><\/article>Projektligji i ri p\u00ebr PAK: parashikohet rritja e aksesueshm\u00ebris\u00eb, por si do garantohet zbatimi?<\/h2><\/div><\/div>Gjasht\u00eb vite pas reform\u00ebs s\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, Shqip\u00ebria p\u00ebrgatit nj\u00eb tjet\u00ebr reform\u00eb ligjore. Projektligji i ri \u201cP\u00ebr p\u00ebrfshirjen dhe aksesueshm\u00ebrin\u00eb e personave me aft\u00ebsi t\u00eb kufizuara\u201d[1], i hedhur p\u00ebr konsultim publik m\u00eb 28 gusht 2026, premton nj\u00eb qasje m\u00eb t\u00eb gjer\u00eb ndaj aksesueshm\u00ebris\u00eb, autonomis\u00eb dhe jetes\u00ebs s\u00eb pavarur. Por p\u00ebrvoja e zbatimit t\u00eb modelit bio-psiko-social, ashtu si edhe e kuadrit ligjor t\u00eb m\u00ebparsh\u00ebm p\u00ebr personat me aft\u00ebsi t\u00eb kufizuara, ngre nj\u00eb pyetje thelb\u00ebsore: p\u00ebrtej t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, kur do t\u00eb mund t\u2019i g\u00ebzojn\u00eb ato realisht personat me aft\u00ebsi t\u00eb kufizuara?\r\n\r\nIshte viti 2019 kur Shqip\u00ebria ndryshoi m\u00ebnyr\u00ebn e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, duke kaluar nga nj\u00eb qasje kryesisht mjek\u00ebsore drejt modelit bio-psiko-social. Sipas institucioneve p\u00ebrgjegj\u00ebse, reforma synonte ta vendoste personin n\u00eb qend\u00ebr t\u00eb procesit, duke mos u ndalur vet\u00ebm te diagnoza apo d\u00ebmtimi sh\u00ebndet\u00ebsor, por duke marr\u00eb n\u00eb konsiderat\u00eb funksionalitetin e individit, pjes\u00ebmarrjen e tij n\u00eb shoq\u00ebri dhe barrierat sociale e mjedisore me t\u00eb cilat p\u00ebrballet.\r\n\r\nN\u00eb parim, ndryshimi ishte thelb\u00ebsor. Ai n\u00ebnkuptonte nj\u00eb zhvendosje nga nj\u00eb sistem q\u00eb fokusohej kryesisht te gjendja mjek\u00ebsore e individit, drejt nj\u00eb qasjeje q\u00eb k\u00ebrkon t\u00eb kuptoj\u00eb \u00e7far\u00eb mund t\u00eb b\u00ebj\u00eb personi, cilat pengesa kufizojn\u00eb pjes\u00ebmarrjen e tij dhe \u00e7far\u00eb mb\u00ebshtetjeje i nevojitet p\u00ebr t\u00eb jetuar n\u00eb m\u00ebnyr\u00eb sa m\u00eb t\u00eb pavarur.\r\n\r\nPor gjasht\u00eb vite m\u00eb pas, pyetja \u00ebsht\u00eb n\u00ebse kjo qasje ka arritur t\u00eb ndryshoj\u00eb realisht jet\u00ebn e personave me aft\u00ebsi t\u00eb kufizuara. Gjetjet e raportit \u201cMbi efektet e zbatimit t\u00eb skem\u00ebs s\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar bazuar n\u00eb modelin bio-psiko-social\u201d tregojn\u00eb se, pavar\u00ebsisht ndryshimit t\u00eb modelit, n\u00eb praktik\u00eb vazhdojn\u00eb t\u00eb ekzistojn\u00eb barriera t\u00eb r\u00ebnd\u00ebsishme n\u00eb procesin e vler\u00ebsimit dhe n\u00eb aksesin n\u00eb mb\u00ebshtetje e sh\u00ebrbime. Mungesa e kapaciteteve t\u00eb specializuara, problemet e infrastruktur\u00ebs, v\u00ebshtir\u00ebsit\u00eb e koordinimit nd\u00ebrmjet profesionist\u00ebve dhe k\u00ebrkesa p\u00ebr paraqitje fizike edhe n\u00eb raste kur personi e ka t\u00eb pamundur t\u00eb udh\u00ebtoj\u00eb, d\u00ebshmojn\u00eb hendekun mes parimit t\u00eb reform\u00ebs dhe zbatimit t\u00eb saj n\u00eb terren.\r\n\r\nDhe pik\u00ebrisht n\u00eb k\u00ebt\u00eb realitet shfaqet projektligji i ri. Ai premton t\u00eb shkoj\u00eb nj\u00eb hap m\u00eb tej: nga vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar te vler\u00ebsimi i nevojave, nga mb\u00ebshtetja financiare te sh\u00ebrbimet dhe jetesa e pavarur, dhe nga koncepti i aksesit fizik te aksesueshm\u00ebria n\u00eb informacion, sh\u00ebrbime, transport, teknologji dhe komunikim.\r\n\r\nPor p\u00ebrvoja e reform\u00ebs s\u00eb vitit 2019 ngre nj\u00eb pik\u00ebpyetje q\u00eb nuk mund t\u00eb anashkalohet: a do t\u00eb sjell\u00eb projektligji nj\u00eb ndryshim real n\u00eb jet\u00ebn e personave me aft\u00ebsi t\u00eb kufizuara, apo do t\u00eb shtoj\u00eb nj\u00eb tjet\u00ebr shtres\u00eb t\u00eb drejtash t\u00eb garantuara n\u00eb let\u00ebr, por t\u00eb v\u00ebshtira p\u00ebr t\u2019u realizuar n\u00eb praktik\u00eb?\r\nAksesueshm\u00ebria dhe testi i zbatimit\r\nNj\u00eb nga risit\u00eb m\u00eb t\u00eb r\u00ebnd\u00ebsishme t\u00eb projektligjit \u00ebsht\u00eb zhvendosja e fokusit nga statusi i aft\u00ebsis\u00eb s\u00eb kufizuar te nevojat konkrete t\u00eb personit. Neni 37 parashikon q\u00eb komisionet multidisiplinare t\u00eb vler\u00ebsojn\u00eb jo vet\u00ebm aft\u00ebsin\u00eb e kufizuar, por edhe nevojat p\u00ebr sh\u00ebrbime, mjete ndihm\u00ebse dhe p\u00ebrkujdesje, bazuar n\u00eb Klasifikimin Nd\u00ebrkomb\u00ebtar t\u00eb Funksionimit, Aft\u00ebsive t\u00eb Kufizuara dhe Sh\u00ebndetit (ICF) dhe duke marr\u00eb n\u00eb konsiderat\u00eb faktor\u00ebt social\u00eb. N\u00ebse kjo qasje zbatohet realisht, ajo do t\u00eb sh\u00ebnonte nj\u00eb ndryshim t\u00eb r\u00ebnd\u00ebsish\u00ebm: personi nuk do t\u00eb trajtohej thjesht si p\u00ebrfitues i nj\u00eb statusi apo pagese, por si subjekt i t\u00eb drejtave, me nevoja konkrete q\u00eb sistemi duhet t\u2019i identifikoj\u00eb dhe t\u2019u p\u00ebrgjigjet.\r\n\r\nPor pik\u00ebrisht k\u00ebtu p\u00ebrvoja e gjasht\u00eb viteve t\u00eb zbatimit t\u00eb modelit bio-psiko-social ngre pik\u00ebpyetje serioze. Raporti i Together for Life evidenton munges\u00eb t\u00eb profesionist\u00ebve dhe kapaciteteve p\u00ebr nj\u00eb vler\u00ebsim realisht multidimensional: 50% e t\u00eb anketuarve raportuan probleme me komponentin psikologjik, nd\u00ebrsa 20% evidentuan munges\u00eb koherence dhe koordinimi brenda komisioneve multidisiplinare. Kjo e zhvendos debatin nga ajo q\u00eb premton ligji te ajo q\u00eb mund t\u00eb zbatoj\u00eb sistemi: a \u00ebsht\u00eb p\u00ebrgatitur stafi, a jan\u00eb siguruar burimet dhe a ekzistojn\u00eb sh\u00ebrbimet q\u00eb duhet t\u2019u p\u00ebrgjigjen nevojave t\u00eb identifikuara?\r\n\r\nE nj\u00ebjta sfid\u00eb shfaqet edhe te koncepti i aksesueshm\u00ebris\u00eb. Projektligji e zgjeron at\u00eb p\u00ebrtej barrierave fizike, duke p\u00ebrfshir\u00eb transportin, informacionin dhe komunikimin, sh\u00ebrbimet bankare, tregtin\u00eb elektronike, librat elektronik\u00eb dhe sh\u00ebrbimet e urgjenc\u00ebs. Por raporti evidenton se edhe n\u00eb aksesin n\u00eb informacion dhe sh\u00ebrbimet digjitale, p\u00ebrfshir\u00eb e-Albania, masa t\u00eb planifikuara p\u00ebr p\u00ebrmir\u00ebsimin e aksesueshm\u00ebris\u00eb nuk ishin realizuar ende.\r\n\r\nKjo e b\u00ebn zbatimin pik\u00ebn m\u00eb kritike t\u00eb reform\u00ebs s\u00eb re. Projektligji \u00ebsht\u00eb m\u00eb ambicioz n\u00eb njohjen e t\u00eb drejtave, por nj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e mekanizmave t\u00eb zbatimit do t\u00eb p\u00ebrcaktohet m\u00eb tej me akte n\u00ebnligjore, p\u00ebrfshir\u00eb kriteret dhe procedurat e aksesueshm\u00ebris\u00eb s\u00eb sh\u00ebrbimeve dhe organizimin e asistenc\u00ebs personale, t\u00eb parashikuara t\u00eb rregullohen brenda 18 muajve nga hyrja n\u00eb fuqi e ligjit.\r\n\r\nN\u00eb k\u00ebt\u00eb kuptim, miratimi i ligjit nuk \u00ebsht\u00eb fundi i reform\u00ebs, por fillimi i testit t\u00eb saj real. Sepse suksesi nuk do t\u00eb matet me numrin e t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, por me sa prej tyre do t\u00eb mund t\u00eb ushtrohen realisht nga personat me aft\u00ebsi t\u00eb kufizuara.\r\nTesti i v\u00ebrtet\u00eb \u00ebsht\u00eb zbatimi\r\nN\u00eb fund, suksesi i projektligjit t\u00eb ri nuk do t\u00eb matet me numrin e t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, fondet e parashikuara apo aktet n\u00ebnligjore t\u00eb miratuara. Ai do t\u00eb matet me barrierat q\u00eb arrin t\u00eb heq\u00eb nga jeta e personave me aft\u00ebsi t\u00eb kufizuara.\r\n\r\nReforma e vitit 2019 synoi t\u00eb ndryshonte m\u00ebnyr\u00ebn se si shteti e vler\u00ebson aft\u00ebsin\u00eb e kufizuar. Projektligji i ri synon t\u00eb ndryshoj\u00eb m\u00ebnyr\u00ebn se si garantohen aksesi, autonomia dhe p\u00ebrfshirja. Por t\u00eb dyja kan\u00eb nj\u00eb pik\u00eb t\u00eb p\u00ebrbashk\u00ebt: vlera e nj\u00eb reforme p\u00ebrcaktohet jo nga ajo q\u00eb premton n\u00eb let\u00ebr, por nga ajo q\u00eb ndryshon n\u00eb jet\u00ebn e njer\u00ebzve.\r\n\r\nPrandaj, sfida e v\u00ebrtet\u00eb fillon me zbatimin. Nj\u00eb e drejt\u00eb q\u00eb nuk mund t\u00eb ushtrohet, nj\u00eb sh\u00ebrbim q\u00eb nuk mund t\u00eb aksesohet apo nj\u00eb mb\u00ebshtetje q\u00eb nuk mb\u00ebrrin te personi q\u00eb ka nevoj\u00eb p\u00ebr t\u00eb, mbetet vet\u00ebm nj\u00eb e drejt\u00eb formale.\r\n\r\nPyetja q\u00eb duhet t\u00eb shoq\u00ebroj\u00eb k\u00ebt\u00eb reform\u00eb \u00ebsht\u00eb, ndaj, e thjesht\u00eb, por thelb\u00ebsore: a do t\u00eb mundet nj\u00eb person me aft\u00ebsi t\u00eb kufizuara, fal\u00eb k\u00ebtij ligji, t\u00eb l\u00ebviz\u00eb m\u00eb lirsh\u00ebm, t\u00eb marr\u00eb sh\u00ebrbimet p\u00ebr t\u00eb cilat ka nevoj\u00eb, t\u00eb vendos\u00eb p\u00ebr jet\u00ebn e vet dhe t\u00eb marr\u00eb pjes\u00eb n\u00eb shoq\u00ebri pa u p\u00ebrballur me t\u00eb nj\u00ebjtat barriera?\r\n\r\nN\u00ebse p\u00ebrgjigjja \u00ebsht\u00eb po, at\u00ebher\u00eb Shqip\u00ebria do t\u00eb ket\u00eb b\u00ebr\u00eb kalimin nga statusi te e drejta, nga pagesa te mb\u00ebshtetja dhe nga letra te jeta reale.\r\n\r\nN\u00ebse jo, rreziku \u00ebsht\u00eb q\u00eb t\u00eb kemi s\u00ebrish nj\u00eb reform\u00eb progresive n\u00eb let\u00ebr, nd\u00ebrsa barrierat vazhdojn\u00eb t\u00eb mbeten aty ku kan\u00eb qen\u00eb: n\u00eb jet\u00ebn e p\u00ebrditshme t\u00eb njer\u00ebzve.\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.\r\n[1] https:\/\/konsultimipublik.gov.al\/Konsultime\/Detaje\/1044<\/div><\/article>Zjarret n\u00eb Shkod\u00ebr: Nga reagimi n\u00eb terren te gatishm\u00ebria e komunitetit<\/h2><\/div><\/div>Pas nj\u00eb situate t\u00eb v\u00ebshtir\u00eb gjat\u00eb djeshme (8 shtator 2026), ku n\u00eb territorin e Bashkis\u00eb Shkod\u00ebr u evidentuan disa vatra zjarri, sot (9 shtator 2026) situata paraqitet e qet\u00eb dhe pa vatra aktive.\r\n\r\n\r\nGjat\u00eb dit\u00ebs s\u00eb djeshme, u b\u00eb i mundur menaxhimi dhe shuarja e vatrave n\u00eb Oblik\u00eb, Muriqan dhe B\u00ebrdic\u00eb, nd\u00ebrsa vatra n\u00eb Bardhaj, mbi rezervuar, vijoi p\u00ebr nj\u00eb periudh\u00eb t\u00eb ishte aktive, pa paraqitur rrezik p\u00ebr banesat. Fal\u00eb nd\u00ebrhyrjes n\u00eb terren, u shp\u00ebtuan edhe gjasht\u00eb banesa t\u00eb rrezikuara nga zjarri n\u00eb Bardhaj.\r\n\r\n\r\nMir\u00ebnjohje zjarrfik\u00ebsve, Emergjencave Civile, Forcave t\u00eb Armatosura, punonj\u00ebsve t\u00eb Bashkis\u00eb, vullnetar\u00ebve dhe banor\u00ebve q\u00eb kontribuuan gjat\u00eb gjith\u00eb k\u00ebsaj situate.\r\n\r\n\r\nEdhe pse sot situata \u00ebsht\u00eb e qet\u00eb, zona vijon t\u00eb monitorohet p\u00ebr t\u00eb parandaluar \u00e7do riaktivizim t\u00eb mundsh\u00ebm. Kjo situat\u00eb na kujton se gatishm\u00ebria p\u00ebr emergjencat nuk fillon vet\u00ebm n\u00eb momentin kur shfaqet rreziku. Ajo nd\u00ebrtohet \u00e7do dit\u00eb, edhe n\u00eb nivel komunitar.\r\n\r\n\r\nN\u00eb k\u00ebt\u00eb kuad\u00ebr, Rrjeti i Q\u00ebndrueshm\u00ebris\u00eb s\u00eb Komunitetit (Community Resilience Network \u2013 CRN) Daj\u00e7, i mb\u00ebshtetur dhe fuqizuar p\u00ebrmes pun\u00ebs s\u00eb Together for Life, \u00ebsht\u00eb nj\u00eb mekaniz\u00ebm komunitar q\u00eb kontribuon n\u00eb forcimin e komunikimit, informimit dhe gatishm\u00ebris\u00eb n\u00eb nivel lokal.\r\n\r\n\r\nRrjeti \u00ebsht\u00eb vigjilent dhe aktiv n\u00eb komunikim dhe k\u00ebshillim me komunitetin n\u00eb Daj\u00e7, n\u00eb m\u00ebnyr\u00eb q\u00eb, n\u00eb rast t\u00eb nj\u00eb emergjence, informacioni i sakt\u00eb dhe nevojat e komunitetit t\u00eb p\u00ebrcillen dhe t\u00eb adresohen sa m\u00eb shpejt.\r\n\r\n\r\nCRN Daj\u00e7 sh\u00ebrben si nj\u00eb ur\u00eb lidh\u00ebse mes komunitetit, institucioneve dhe strukturave t\u00eb emergjencave, duke ndihmuar n\u00eb:\r\n\r\n\r\n\r\n \tp\u00ebrcjelljen e informacionit t\u00eb sakt\u00eb dhe n\u00eb koh\u00eb;\r\n \tidentifikimin e personave dhe familjeve q\u00eb mund t\u00eb ken\u00eb nevoj\u00eb p\u00ebr mb\u00ebshtetje t\u00eb ve\u00e7ant\u00eb;\r\n \tevidentimin e nevojave dhe problematikave n\u00eb komunitet;\r\n \tforcimin e komunikimit dhe koordinimit n\u00eb rast emergjence;\r\n \trritjen e nd\u00ebrgjegj\u00ebsimit p\u00ebr parandalimin dhe gatishm\u00ebrin\u00eb ndaj emergjencave.\r\n \t\r\n\r\n\r\nNj\u00eb komunitet i p\u00ebrgatitur nuk z\u00ebvend\u00ebson strukturat e emergjenc\u00ebs. P\u00ebrkundrazi, ai i ndihmon ato t\u00eb reagojn\u00eb m\u00eb mir\u00eb dhe m\u00eb shpejt aty ku nevojitet.\r\n\r\n\r\nP\u00ebr t\u00eb gjitha komunitetet n\u00eb zonat e prekura nga zjarret apo n\u00eb zona q\u00eb mund t\u00eb p\u00ebrballen me rrezik, apelojm\u00eb p\u00ebr qet\u00ebsi, kujdes dhe p\u00ebrgjegjshm\u00ebri:\r\n\r\n\r\n\u2022 T\u00eb ndiqen vet\u00ebm informacionet nga burimet zyrtare.\r\n\u2022 T\u00eb mos shp\u00ebrndahen lajme apo pamje t\u00eb pakonfirmuara q\u00eb mund t\u00eb krijojn\u00eb panik.\r\n\u2022 T\u00eb respektohen udh\u00ebzimet e autoriteteve.\r\n\u2022 T\u00eb mos afrohemi n\u00eb zonat e zjarrit p\u00ebr t\u00eb filmuar apo fotografuar.\r\n\u2022 T\u00eb tregohet kujdes i ve\u00e7ant\u00eb p\u00ebr t\u00eb moshuarit, personat me aft\u00ebsi t\u00eb kufizuara, f\u00ebmij\u00ebt dhe personat e tjer\u00eb q\u00eb mund t\u00eb ken\u00eb nevoj\u00eb p\u00ebr mb\u00ebshtetje.\r\n\r\n\r\nSot situata \u00ebsht\u00eb e qet\u00eb. Por gatishm\u00ebria duhet t\u00eb vazhdoj\u00eb.\r\n\r\n\r\nQet\u00ebsi. Informim. Solidaritet. Gatishm\u00ebri.\r\n\r\n\r\nTogether for Life | Rrjeti i Q\u00ebndrueshm\u00ebris\u00eb s\u00eb Komunitetit (Community Resilience Network \u2013 CRN) Daj\u00e7<\/div><\/article>Lufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb<\/h2><\/div><\/div>Titulli i Projektit:\r\n\r\nLufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb\r\n\r\nDonatori\r\n\r\nNational Endowment for Democracy (NED)\r\n\r\nPeriudha e zbatimit\r\n\r\n1 Korrik 2024 \u2013 30 Qershor 2026 (24 muaj)\r\n\r\nQ\u00cbLLIMI I PROJEKTIT\r\n\r\nT\u00eb promovoj\u00eb llogaridh\u00ebnien dhe transparenc\u00ebn n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri, p\u00ebrmes monitorimit t\u00eb shpenzimeve publike dhe prokurimeve, evidentimit t\u00eb rasteve t\u00eb mundshme t\u00eb korrupsionit, fuqizimit t\u00eb rolit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile, medias dhe qytetar\u00ebve, si dhe nxitjes s\u00eb institucioneve publike p\u00ebr t\u00eb nd\u00ebrmarr\u00eb masa konkrete p\u00ebr p\u00ebrmir\u00ebsimin e integritetit dhe p\u00ebrdorimit t\u00eb fondeve publike.\r\n\r\nAktivitetet\r\n\r\n \tMonitorimi dhe analiza e shpenzimeve publike dhe procedurave t\u00eb prokurimit n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri.\r\n \tHartimi i dy raporteve vjetore t\u00eb monitorimit mbi shpenzimet publike, prokurimet dhe shp\u00ebrndarjen e fondeve p\u00ebr grupet vulnerab\u00ebl.\r\n \tP\u00ebrgatitja e nj\u00eb raporti t\u00eb thelluar mbi zbatimin e ligjit p\u00ebr autonomin\u00eb spitalore dhe rekomandimeve p\u00ebr p\u00ebrmir\u00ebsimin e menaxhimit t\u00eb fondeve publike.\r\n \tP\u00ebrgatitja e nj\u00eb raporti gjith\u00ebp\u00ebrfshir\u00ebs mbi hetimet dhe gjetjet e SPAK lidhur me abuzimet financiare n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tBashk\u00ebpunimi me BIRN p\u00ebr realizimin e pes\u00eb artikujve investigativ\u00eb mbi korrupsionin n\u00eb shpenzimet publike n\u00eb sh\u00ebndet\u00ebsi.\r\n \tOrganizimi i t\u00eb pakt\u00ebn kat\u00ebr workshopeve me organizata t\u00eb shoq\u00ebris\u00eb civile dhe gazetar\u00eb p\u00ebr identifikimin dhe raportimin e rasteve t\u00eb munges\u00ebs s\u00eb transparenc\u00ebs dhe llogaridh\u00ebnies.\r\n \tPjes\u00ebmarrja n\u00eb seancat d\u00ebgjimore parlamentare p\u00ebr prezantimin e gjetjeve t\u00eb monitorimit.\r\n \tMbajtja dhe zgjerimi i rrjetit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile q\u00eb punojn\u00eb p\u00ebr transparenc\u00ebn dhe llogaridh\u00ebnien n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tOrganizimi i tet\u00eb takimeve rajonale n\u00eb Shkod\u00ebr, Vlor\u00eb, Elbasan dhe Dib\u00ebr me deputet\u00eb, organizata lokale dhe qytetar\u00eb p\u00ebr diskutimin e \u00e7\u00ebshtjeve t\u00eb sh\u00ebndet\u00ebsis\u00eb.\r\n \tOrganizimi i kat\u00ebr tryezave komb\u00ebtare me institucionet p\u00ebrgjegj\u00ebse (Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi, Avokati i Popullit, ILDKPKI dhe Komisioneri p\u00ebr t\u00eb Drejt\u00ebn e Informimit) p\u00ebr prezantimin e gjetjeve t\u00eb projektit.\r\n \tMir\u00ebmbajtja dhe p\u00ebrdit\u00ebsimi i platform\u00ebs www.transparency.com.al dhe faqes p\u00ebrkat\u00ebse n\u00eb Facebook p\u00ebr raportimin e rasteve t\u00eb korrupsionit dhe promovimin e transparenc\u00ebs.\r\n \tP\u00ebrgatitja dhe publikimi i t\u00eb pakt\u00ebn tre njoftimeve p\u00ebr shtyp \u00e7do vit p\u00ebr t\u00eb rritur nd\u00ebrgjegj\u00ebsimin publik mbi problematikat e transparenc\u00ebs dhe llogaridh\u00ebnies n\u00eb sektorin sh\u00ebndet\u00ebsor.<\/div><\/article>Fibroza cistike \u2013 Nj\u00eb patologji komplekse q\u00eb sistemi sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri vazhdon ta trajtoj\u00eb si “s\u00ebmundje mushk\u00ebrish”<\/h2><\/div><\/div>P\u00ebr shumic\u00ebn e njer\u00ebzve, fibroza cistike mbetet nj\u00eb s\u00ebmundje pak e njohur. P\u00ebr m\u00eb shum\u00eb se 150 pacient\u00ebt dhe familjet e tyre n\u00eb Shqip\u00ebri, ajo p\u00ebrfaq\u00ebson nj\u00eb betej\u00eb t\u00eb p\u00ebrditshme q\u00eb nuk zhvillohet vet\u00ebm me s\u00ebmundjen, por edhe me vet\u00eb sistemin sh\u00ebndet\u00ebsor dhe at\u00eb t\u00eb mbrojtjes sociale.\r\n\r\nMenaxhimi i fibroz\u00ebs cistike nuk kufizohet vet\u00ebm n\u00eb marrjen e medikamenteve. Ai k\u00ebrkon nj\u00eb qasje t\u00eb integruar dhe multidisiplinare, q\u00eb p\u00ebrfshin ndjekje t\u00eb specializuar mjek\u00ebsore, fizioterapi respiratore t\u00eb p\u00ebrditshme, mb\u00ebshtetje psikologjike, akses t\u00eb vazhduesh\u00ebm n\u00eb barna specifike, sh\u00ebrbime sociale dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb pasqyron ndikimin real t\u00eb s\u00ebmundjes n\u00eb jet\u00ebn dhe funksionimin e pacientit.\r\n\r\nMegjithat\u00eb, d\u00ebshmit\u00eb e pacient\u00ebve dhe prind\u00ebrve t\u00eb tyre tregojn\u00eb se, edhe pas zbatimit t\u00eb modelit bio-psiko-social p\u00ebr vler\u00ebsimin e aft\u00ebsis\u00eb s\u00eb kufizuar, shum\u00eb prej k\u00ebtyre nevojave vazhdojn\u00eb t\u00eb mos njihen dhe t\u00eb mos adresohen n\u00eb praktik\u00eb.\r\n\r\nReforma e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, e nisur n\u00eb vitin 2019, synon t\u00eb z\u00ebvend\u00ebsoj\u00eb modelin tradicional t\u00eb bazuar vet\u00ebm n\u00eb diagnoz\u00eb me nj\u00eb qasje q\u00eb vler\u00ebson ndikimin e gjendjes sh\u00ebndet\u00ebsore n\u00eb funksionimin e p\u00ebrditsh\u00ebm t\u00eb individit. Megjithat\u00eb, gjetjet e mbledhura gjat\u00eb fokus-grupit t\u00eb zhvilluar me persona me fibroz\u00eb cistike dhe prind\u00ebr t\u00eb f\u00ebmij\u00ebve t\u00eb diagnostikuar me k\u00ebt\u00eb patologji tregojn\u00eb se ky objektiv ende nuk po realizohet plot\u00ebsisht.\r\n\r\nPjes\u00ebmarr\u00ebsit raportojn\u00eb se komisionet e vler\u00ebsimit shpesh nuk funksionojn\u00eb si ekipe t\u00eb mir\u00ebfillta multidisiplinare, kan\u00eb njohuri t\u00eb kufizuara mbi fibroz\u00ebn cistike dhe, n\u00eb disa raste, nuk shqyrtojn\u00eb dokumentacionin mjek\u00ebsor p\u00ebrpara takimit me pacientin. Si pasoj\u00eb, vler\u00ebsimi mb\u00ebshtetet m\u00eb shum\u00eb n\u00eb pamjen e jashtme t\u00eb personit sesa n\u00eb kufizimet funksionale dhe barr\u00ebn reale q\u00eb s\u00ebmundja imponon n\u00eb jet\u00ebn e p\u00ebrditshme.\r\n\r\nKy \u00ebsht\u00eb nj\u00eb paradoks q\u00eb bie ndesh me vet\u00eb filozofin\u00eb e modelit bio-psiko-social. Fibroza cistike \u00ebsht\u00eb nj\u00eb s\u00ebmundje kronike, progresive dhe multisistemike, e cila n\u00eb shum\u00eb raste nuk shfaq shenja t\u00eb dukshme fizike, por k\u00ebrkon trajtim t\u00eb p\u00ebrhersh\u00ebm, terapi t\u00eb p\u00ebrditshme dhe kujdes kompleks p\u00ebr t\u00eb parandaluar komplikacionet dhe p\u00ebr t\u00eb ruajtur cil\u00ebsin\u00eb e jet\u00ebs.\r\n\r\nKur vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar mb\u00ebshtetet kryesisht n\u00eb at\u00eb q\u00eb \"shihet me sy\", shum\u00eb pacient\u00eb klasifikohen me nj\u00eb shkall\u00eb m\u00eb t\u00eb ul\u00ebt t\u00eb r\u00ebnd\u00ebsis\u00eb s\u00eb s\u00ebmundjes nga ajo q\u00eb reflekton realisht gjendja e tyre sh\u00ebndet\u00ebsore. Si rrjedhoj\u00eb, nj\u00eb pjes\u00eb e tyre hasin v\u00ebshtir\u00ebsi n\u00eb p\u00ebrfitimin e mb\u00ebshtetjes ekonomike ose vler\u00ebsohen n\u00eb nivele q\u00eb nuk pasqyrojn\u00eb kostot reale t\u00eb jetes\u00ebs me fibroz\u00eb cistike.\r\n\r\n\"Her\u00ebn e par\u00eb komisioni vendosi q\u00eb f\u00ebmija im nuk i plot\u00ebsonte kriteret p\u00ebr t\u00eb p\u00ebrfituar KEMP. Kam dy f\u00ebmij\u00eb me fibroz\u00eb cistike, me t\u00eb nj\u00ebjt\u00ebn diagnoz\u00eb dhe n\u00eb t\u00eb nj\u00ebjt\u00ebn gjendje sh\u00ebndet\u00ebsore, por nj\u00ebri u vler\u00ebsua me r\u00ebndes\u00eb m\u00eb t\u00eb leht\u00eb t\u00eb s\u00ebmundjes, nd\u00ebrsa tjetri me r\u00ebndes\u00eb m\u00eb t\u00eb lart\u00eb. Nuk e kuptoj mbi \u00e7far\u00eb kriteresh b\u00ebhet ky vler\u00ebsim kur b\u00ebhet fjal\u00eb p\u00ebr t\u00eb nj\u00ebjt\u00ebn patologji\", shprehet R.XH., babai i dy f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike.\r\n\r\nK\u00ebto d\u00ebshmi tregojn\u00eb se nj\u00eb nga problemet themelore mbetet mungesa e njohjes institucionale t\u00eb fibroz\u00ebs cistike si nj\u00eb s\u00ebmundje komplekse. Edhe sot ajo vazhdon t\u00eb trajtohet kryesisht n\u00eb kuad\u00ebr t\u00eb patologjive pulmonare, nd\u00ebrkoh\u00eb q\u00eb prek nj\u00ebkoh\u00ebsisht mushk\u00ebrit\u00eb, pankreasin, sistemin tret\u00ebs, m\u00ebl\u00e7in\u00eb dhe organe t\u00eb tjera, duke k\u00ebrkuar kujdes multidisiplinar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nKy klasifikim ndikon jo vet\u00ebm n\u00eb m\u00ebnyr\u00ebn e organizimit t\u00eb trajtimit mjek\u00ebsor, por edhe n\u00eb procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar.\r\n\r\n\"N\u00eb dokumentacion paraqitet si nj\u00eb s\u00ebmundje e leht\u00eb\", shprehet L.H., n\u00ebna e nj\u00eb f\u00ebmije me fibroz\u00eb cistike, duke theksuar se komisionet shpesh nuk arrijn\u00eb t\u00eb kuptojn\u00eb se b\u00ebhet fjal\u00eb p\u00ebr nj\u00eb patologji kronike, progresive dhe potencialisht k\u00ebrc\u00ebnuese p\u00ebr jet\u00ebn.\r\n\r\nMungesa e protokollit t\u00eb trajtimit shoq\u00ebrohet me munges\u00ebn e munges\u00ebn e rimbursimit t\u00eb medikamenteve t\u00eb domosdoshme p\u00ebr trajtim\r\n\r\nMungesa e protokolleve t\u00eb p\u00ebrdit\u00ebsuara t\u00eb trajtimit dhe rimbursimit t\u00eb medikamenteve r\u00ebndon barr\u00ebn e pacient\u00ebve me fibroz\u00eb cistike\r\n\r\nP\u00ebrtej sfidave q\u00eb lidhen me procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, pacient\u00ebt me fibroz\u00eb cistike p\u00ebrballen edhe me munges\u00ebn e nj\u00eb modeli t\u00eb integruar t\u00eb kujdesit sh\u00ebndet\u00ebsor, i cili t\u00eb garantoj\u00eb trajtim t\u00eb standardizuar, vazhdim\u00ebsi t\u00eb sh\u00ebrbimeve dhe mb\u00ebshtetje t\u00eb specializuar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nPrind\u00ebrit e f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike raportojn\u00eb se q\u00eb n\u00eb momentin e diagnostikimit nuk marrin mb\u00ebshtetje psikologjike dhe as informacion t\u00eb strukturuar mbi m\u00ebnyr\u00ebn e menaxhimit t\u00eb s\u00ebmundjes apo protokollet e trajtimit. N\u00eb munges\u00eb t\u00eb nj\u00eb sistemi t\u00eb organizuar informimi dhe edukimi p\u00ebr pacient\u00ebt, familjet detyrohen t\u00eb k\u00ebrkojn\u00eb informacion nga organizata nd\u00ebrkomb\u00ebtare, rrjete mb\u00ebshtet\u00ebse, media sociale ose nga prind\u00ebr t\u00eb tjer\u00eb q\u00eb kan\u00eb kaluar t\u00eb nj\u00ebjt\u00ebn p\u00ebrvoj\u00eb. N\u00eb shum\u00eb raste, vet\u00eb familjet jan\u00eb shnd\u00ebrruar n\u00eb burimin kryesor t\u00eb informacionit dhe orientimit p\u00ebr pacient\u00ebt e sapodiagnostikuar, duke z\u00ebvend\u00ebsuar rolin q\u00eb duhet t\u00eb luajn\u00eb institucionet sh\u00ebndet\u00ebsore.\r\n\r\nNj\u00eb nga shqet\u00ebsimet m\u00eb serioze t\u00eb ngritura gjat\u00eb fokus-grupit lidhet me faktin se trajtimi i fibroz\u00ebs cistike n\u00eb Shqip\u00ebri vazhdon t\u00eb mb\u00ebshtetet n\u00eb nj\u00eb protokoll klinik t\u00eb miratuar n\u00eb vitin 2008, i cili nuk reflekton zhvillimet e fundit shkencore dhe standardet bashk\u00ebkohore t\u00eb trajtimit t\u00eb k\u00ebsaj patologjie. Sipas pjes\u00ebmarr\u00ebsve, protokolli p\u00ebrfshin medikamente q\u00eb nuk jan\u00eb m\u00eb t\u00eb disponueshme n\u00eb treg ose nuk p\u00ebrfaq\u00ebsojn\u00eb m\u00eb terapit\u00eb e rekomanduara sipas praktikave nd\u00ebrkomb\u00ebtare.\r\n\r\nMungesa e p\u00ebrdit\u00ebsimit t\u00eb protokollit ndikon drejtp\u00ebrdrejt edhe n\u00eb skem\u00ebn e rimbursimit t\u00eb barnave. Nj\u00eb pjes\u00eb e konsiderueshme e medikamenteve dhe produkteve t\u00eb nevojshme p\u00ebr menaxhimin e p\u00ebrditsh\u00ebm t\u00eb s\u00ebmundjes nuk mbulohen nga sistemi publik, duke detyruar familjet t'i sigurojn\u00eb ato me shpenzimet e tyre ose t'i blejn\u00eb jasht\u00eb Shqip\u00ebris\u00eb. P\u00ebr shum\u00eb familje, kjo p\u00ebrkthehet n\u00eb nj\u00eb barr\u00eb t\u00eb r\u00ebnd\u00eb financiare, nd\u00ebrkoh\u00eb q\u00eb nd\u00ebrprerja ose mungesa e trajtimit mund t\u00eb p\u00ebrshpejtoj\u00eb p\u00ebrkeq\u00ebsimin e gjendjes sh\u00ebndet\u00ebsore dhe t\u00eb rrezikoj\u00eb jet\u00ebgjat\u00ebsin\u00eb e pacient\u00ebve.\r\n\r\nNj\u00eb tjet\u00ebr problem strukturor lidhet me munges\u00ebn e vazhdim\u00ebsis\u00eb s\u00eb kujdesit pas mosh\u00ebs pediatrike. Sipas d\u00ebshmive t\u00eb prind\u00ebrve, pas mosh\u00ebs 16-vje\u00e7are pacient\u00ebt p\u00ebrballen me munges\u00ebn e sh\u00ebrbimeve t\u00eb specializuara dhe t\u00eb mjek\u00ebve t\u00eb trajnuar p\u00ebr trajtimin e fibroz\u00ebs cistike tek t\u00eb rriturit. Ky boshll\u00ebk n\u00eb sistem krijon nd\u00ebrprerje n\u00eb ndjekjen mjek\u00ebsore, cenon vazhdim\u00ebsin\u00eb e trajtimit dhe rrit rrezikun e komplikacioneve afatgjata.\r\n\r\nN\u00eb thelb, problemi nuk q\u00ebndron vet\u00ebm te mungesa e medikamenteve apo e protokolleve t\u00eb p\u00ebrdit\u00ebsuara, por te fakti se sistemi sh\u00ebndet\u00ebsor ende nuk e njeh fibroz\u00ebn cistike si nj\u00eb s\u00ebmundje komplekse q\u00eb k\u00ebrkon nj\u00eb qasje multidisiplinare dhe t\u00eb koordinuar. P\u00ebr sa koh\u00eb mungojn\u00eb protokollet e p\u00ebrdit\u00ebsuara sipas evidencave shkencore, rimbursimi i plot\u00eb i terapive t\u00eb domosdoshme, ekipet multidisiplinare dhe sh\u00ebrbimet e specializuara p\u00ebrgjat\u00eb gjith\u00eb ciklit t\u00eb jet\u00ebs s\u00eb pacientit, edhe zbatimi i modelit bio-psiko-social t\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar mbetet i pamjaftuesh\u00ebm p\u00ebr t'iu p\u00ebrgjigjur nevojave reale t\u00eb k\u00ebsaj kategorie.\r\n\r\nP\u00ebrmir\u00ebsimi i situat\u00ebs k\u00ebrkon nj\u00eb qasje t\u00eb integruar t\u00eb politikave publike. Kjo n\u00ebnkupton njohjen e fibroz\u00ebs cistike si nj\u00eb patologji komplekse dhe multisistemike, p\u00ebrdit\u00ebsimin e protokolleve komb\u00ebtare t\u00eb trajtimit n\u00eb p\u00ebrputhje me standardet nd\u00ebrkomb\u00ebtare, zgjerimin e list\u00ebs s\u00eb barnave t\u00eb rimbursueshme, krijimin e ekipeve multidisiplinare t\u00eb specializuara, garantimin e tranzicionit t\u00eb sigurt nga sh\u00ebrbimet pediatrike n\u00eb ato p\u00ebr t\u00eb rriturit, si dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb reflekton kufizimet funksionale dhe nevojat reale t\u00eb pacient\u00ebve, e jo vet\u00ebm diagnoz\u00ebn klinike.\r\n\r\n\r\n\r\n\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.<\/div><\/article>Rasti i pacientit n\u00eb Durr\u00ebs: Nj\u00eb alarm p\u00ebr aksesin e barabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit<\/h2><\/div><\/div>Ka ngjarje q\u00eb n\u00eb rrjetet sociale zgjasin vet\u00ebm pak minuta dhe pastaj harrohen si t\u00eb mos kishin ndodhur kurr\u00eb. Por ka edhe t\u00eb tilla q\u00eb kan\u00eb jehon\u00eb t\u00eb gjat\u00eb dhe marrin edhe reagimin e institucioneve. Rasti i pacientit 52-vje\u00e7ar n\u00eb Durr\u00ebs \u00ebsht\u00eb nj\u00ebri prej tyre.\r\n\r\nPamjet e nj\u00eb burri t\u00eb s\u00ebmur\u00eb, q\u00eb sipas informacioneve t\u00eb para ishte transportuar me ambulanc\u00eb nga Spitali i Durr\u00ebsit p\u00ebr t\u2019u braktisur n\u00eb \u2018rrug\u00eb\u2019, trondit\u00ebn opinionin publik. Reagime t\u00eb shumta pasuan, versione kontradiktore dhe deklarata institucionale. Fillimisht u raportua se pacienti kishte nd\u00ebrruar jet\u00eb, por m\u00eb pas Spitali Rajonal i Durr\u00ebsit sqaroi se ai ishte gjall\u00eb dhe ndodhej s\u00ebrish n\u00ebn kujdes mjek\u00ebsor, nd\u00ebrsa dy dit\u00eb pas ngjarjes Ministria e Sh\u00ebndet\u00ebsis\u00eb urdh\u00ebroi nisjen e nj\u00eb hetimi administrativ.\r\n\r\nMegjithat\u00eb, edhe pas reagimeve zyrtare, ende shum\u00eb pyetje mbeten ende pa p\u00ebrgjigje.\r\n\r\nN\u00ebse pacienti ishte n\u00eb gjendje t\u00eb stabilizuar dhe trajtimi spitalor kishte p\u00ebrfunduar, si ka mund\u00ebsi q\u00eb vet\u00ebm pak or\u00eb m\u00eb von\u00eb ai u rikthye n\u00eb spital dhe iu n\u00ebnshtrua menj\u00ebher\u00eb nj\u00eb nd\u00ebrhyrjeje tjet\u00ebr kirurgjikale, e cila p\u00ebrfundoi me amputimin e nj\u00ebr\u00ebs k\u00ebmb\u00eb? N\u00ebse, p\u00ebrkundrazi, gjendja e tij k\u00ebrkonte ende monitorim dhe nd\u00ebrhyrje, p\u00ebrse u largua nga spitali?\r\n\r\nK\u00ebto jan\u00eb pyetje q\u00eb lidhen drejtp\u00ebrdrejt me standardet e kujdesit sh\u00ebndet\u00ebsor publik n\u00eb Shqip\u00ebri.\r\n\r\nPo aq e r\u00ebnd\u00ebsishme \u00ebsht\u00eb q\u00eb institucionet t\u00eb sqarojn\u00eb se si ka funksionuar zinxhiri i vendimmarrjes n\u00eb k\u00ebt\u00eb rast. Kush e mori vendimin p\u00ebr daljen nga spitali t\u00eb pacientit t\u00eb s\u00ebmur\u00eb? Cilat ishin kriteret mjek\u00ebsore q\u00eb u ndoq\u00ebn nga vemdimarr\u00ebsit p\u00ebr rastin? A pat\u00ebn dhe a duhet t\u00eb kishin rol sh\u00ebrbimet sociale n\u00eb nj\u00eb koh\u00eb q\u00eb prej vitesh po trumbetohet nga institucionet ngritja e sh\u00ebrbimeve multidisiplinare, ku p\u00ebrfshihen sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe sociale? Dhe, a ekziston dokumentacioni q\u00eb provon se pacienti iu dor\u00ebzua v\u00ebrtet\u00eb nj\u00eb familjari, si\u00e7 deklaron spitali?\r\n\r\nNga ana tjet\u00ebr, edhe deklarata e Spitalit Rajonal t\u00eb Durr\u00ebsit ngre t\u00eb tjera pyetje. Institucioni pohon se pacienti nuk kishte vend ku t\u00eb q\u00ebndronte, se u njoftuan sh\u00ebrbimet sociale dhe Policia e Shtetit dhe se nj\u00eb familjar pranoi ta merrte n\u00eb banes\u00eb. Megjithat\u00eb, deri m\u00eb sot nuk \u00ebsht\u00eb ofruar asnj\u00eb informacion q\u00eb t\u00eb sqaroj\u00eb se kush ishte familjari (sigurisht jo t\u00eb dh\u00ebnat personale t\u00eb tij), ku ndodhej banesa apo n\u00ebse pacienti q\u00ebndroi realisht aty. P\u00ebrkundrazi, persona q\u00eb deklarojn\u00eb se e njihnin pacientin kan\u00eb pohuar publikisht se ai nuk kishte asnj\u00eb familjar q\u00eb t\u00eb kujdesej p\u00ebr t\u00eb dhe as nj\u00eb banes\u00eb ku t\u00eb strehohej. Ndaj, n\u00eb k\u00ebt\u00eb rast hetimi nuk mund t\u00eb kufizohet vet\u00ebm tek ndjekja e procedurave dhe protokolleve mjek\u00ebsore. Hetimit duhet t\u2019i n\u00ebnshtrohen t\u00eb gjitha hallkat e mekanizmave mbrojt\u00ebs, p\u00ebrfshi ato sociale.\r\n\r\nRasti i pacientit nga Durr\u00ebsi rikthen n\u00eb v\u00ebmendje nj\u00eb problem q\u00eb Together for Life e ka ngritur prej vitesh: qasjen e pabarabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore p\u00ebr pacient\u00ebt m\u00eb vulnerab\u00ebl. N\u00ebse do t\u2019i referohemi dokumentave strategjike, legjislacionit dhe deklaratave publike t\u00eb drejtuesve t\u00eb sh\u00ebndet\u00ebsis\u00eb sistemi publik garanton kujdes sh\u00ebndet\u00ebsor t\u00eb barabart\u00eb dhe t\u00eb aksesuesh\u00ebm p\u00ebr t\u00eb gjith\u00eb. Megjithat\u00eb, n\u00eb shum\u00eb raste, p\u00ebrfshi edhe k\u00ebt\u00eb t\u00eb fundit, pacient\u00ebt q\u00eb klasifikohet tek grupet me t\u00eb c\u00ebnueshme si ata nga familje t\u00eb varfra, t\u00eb braktisurit, personat me probleme t\u00eb sh\u00ebndetit mendor apo q\u00eb jetojn\u00eb n\u00eb kushte t\u00eb r\u00ebnda social-ekonomike p\u00ebrballen shpesh me barriera t\u00eb m\u00ebdha q\u00eb ua b\u00ebjn\u00eb t\u00eb v\u00ebshtir\u00eb, madje t\u00eb pamundur marrjen e trajtimit sh\u00ebndet\u00ebsor p\u00ebr t\u00eb cilin kan\u00eb nevoj\u00eb.\r\n\r\nN\u00ebse statusi social i nj\u00eb pacienti ndikon n\u00eb m\u00ebnyr\u00ebn se si ai trajtohet nga institucionet, at\u00ebher\u00eb nuk kemi t\u00eb b\u00ebjm\u00eb vet\u00ebm me nj\u00eb problem administrativ. Kemi t\u00eb b\u00ebjm\u00eb me c\u00ebnimin e parimit t\u00eb barazis\u00eb n\u00eb aksesin ndaj sh\u00ebrbimeve publike.\r\n\r\nFakti q\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb ka urdh\u00ebruar nj\u00eb hetim administrativ dhe se Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi ka nisur nj\u00eb procedur\u00eb hetimore kryesisht, \u00ebsht\u00eb p\u00ebr t\u2019u vler\u00ebsuar, por ende jo i mjaftuesh\u00ebm. P\u00ebrtej hetimit administrativ t\u00eb nisur nga dy institucionet e m\u00ebsip\u00ebrme, ky rast ngre edhe nj\u00eb tjet\u00ebr \u00e7\u00ebshtje me r\u00ebnd\u00ebsi publike: mbrojtjen e t\u00eb dh\u00ebnave personale t\u00eb pacientit. Publikimi nga institucioni spitalor i identitetit, diagnoz\u00ebs, historis\u00eb klinike dhe informacioneve tep\u00ebr sensitive, si statusi HIV dhe p\u00ebrdorimi i substancave narkotike, shtrojn\u00eb pyetjen n\u00ebse jan\u00eb respektuar detyrimet ligjore p\u00ebr konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore. Edhe n\u00ebse synimi ishte mbrojtja e institucionit nga akuzat publike, kjo nuk mund t\u00eb justifikoj\u00eb ekspozimin e t\u00eb dh\u00ebnave q\u00eb mbrohen nga legjislacioni shqiptar, Konventa Evropiane p\u00ebr t\u00eb Drejtat e Njeriut, Rregullorja Evropiane p\u00ebr Mbrojtjen e t\u00eb Dh\u00ebnave (GDPR) dhe parimet universale t\u00eb etik\u00ebs mjek\u00ebsore. Konfidencialiteti nuk \u00ebsht\u00eb nj\u00eb formalitet administrativ, \u00ebsht\u00eb element shum\u00eb i r\u00ebnd\u00ebsish\u00ebm p\u00ebr t\u00eb garantuar dinjitetin e pacientit.\r\n\r\nNdaj kjo ngjarje nuk duhet t\u00eb reduktohet vet\u00ebm n\u00eb debatin n\u00ebse pacienti u \"braktis\" apo jo. Kjo \u00ebsht\u00eb vet\u00ebm nj\u00eb pjes\u00eb e historis\u00eb. Pyetja m\u00eb e r\u00ebnd\u00ebsishme n\u00eb k\u00ebt\u00eb rast \u00ebsht\u00eb n\u00ebse sistemi funksionoi ashtu si\u00e7 duhet p\u00ebr nj\u00eb qytetar n\u00eb nevoj\u00eb. N\u00ebse u respektuan standardet profesionale. N\u00ebse institucionet bashk\u00ebpunuan si\u00e7 duhet. N\u00ebse t\u00eb drejtat e pacientit u mbrojt\u00ebn. Dhe n\u00ebse, p\u00ebrtej p\u00ebrgjegj\u00ebsive individuale, ky rast nxjerr n\u00eb pah mang\u00ebsi strukturore q\u00eb k\u00ebrkojn\u00eb reagim t\u00eb menj\u00ebher\u00ebsh.\r\n\r\nSepse nj\u00eb sistem sh\u00ebndet\u00ebsor nuk matet vet\u00ebm me buxhetin e alokuar nga fondet publike, q\u00eb p\u00ebr hir t\u00eb s\u00eb v\u00ebrtet\u00ebs vazhdojn\u00eb t\u00eb jen\u00eb m\u00eb t\u00eb ultat n\u00eb Rajon, por, mbi t\u00eb gjitha, matet me m\u00ebnyr\u00ebn si i trajton pacient\u00ebt, ve\u00e7an\u00ebrisht m\u00eb t\u00eb pambrojturit dhe t\u00eb rrezikuarit.\r\n\r\n \r\n\r\nREAGIMET E INSTITUCIONEVE \r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebq\u00ebnies Sociale - Lidhur me trajtimin e rastit t\u00eb pacientit 52-vje\u00e7ar A.A., nga qyteti i Durr\u00ebsit, Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale ka urdh\u00ebruar nisjen e nj\u00eb hetimi t\u00eb thelluar administrativ, i cili do t\u00eb shqyrtoj\u00eb n\u00eb m\u00ebnyr\u00eb t\u00eb plot\u00eb jo vet\u00ebm procedurat dhe masat e marra nga struktura spitalore, por edhe veprimet dhe p\u00ebrgjegj\u00ebsit\u00eb e strukturave t\u00eb sh\u00ebrbimit social t\u00eb p\u00ebrfshira n\u00eb k\u00ebt\u00eb rast.\r\n\r\nN\u00eb kuad\u00ebr t\u00eb k\u00ebtij procesi, drejtuesit e Operatorit t\u00eb Sh\u00ebrbimeve t\u00eb Kujdesit Sh\u00ebndet\u00ebsor dhe t\u00eb Sh\u00ebrbimit Social Shtet\u00ebror jan\u00eb n\u00eb terren p\u00ebr t\u00eb kryer verifikime t\u00eb drejtp\u00ebrdrejta dhe p\u00ebr t\u00eb mbik\u00ebqyrur procesin e hetimit administrativ t\u00eb strukturave n\u00eb qytetin e Durr\u00ebsit.\r\n\r\nNd\u00ebrkoh\u00eb, pacienti ndodhet n\u00ebn kujdesin e strukturave sh\u00ebndet\u00ebsore n\u00eb spitalin rajonal t\u00eb Durr\u00ebsit.\r\n\r\nGjithashtu, po verifikohet i gjith\u00eb dokumentacioni sh\u00ebndet\u00ebsor dhe administrativ, si edhe p\u00ebrgjegj\u00ebsia e personave t\u00eb p\u00ebrfshir\u00eb n\u00eb menaxhimin dhe transportimin e pacientit.\r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale mbetet e angazhuar p\u00ebr t\u00eb garantuar transparenc\u00eb t\u00eb plot\u00eb, zbardhjen e t\u00eb gjitha rrethanave t\u00eb k\u00ebtij rasti dhe marrjen e \u00e7do mase administrative apo ligjore q\u00eb do t\u00eb rezultoj\u00eb e nevojshme.\r\n\r\n\u00a0\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi - Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin kryesisht p\u00ebr rastin e b\u00ebr\u00eb publik n\u00eb Spitalin Rajonal t\u00eb Durr\u00ebsit\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin \u201cex-officio\u201d t\u00eb \u00e7\u00ebshtjes n\u00eb lidhje me trajtimin dhe ofrimin e sh\u00ebrbimeve t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe shoq\u00ebror ndaj shtetasit t\u00eb identifikuar si A.A, 52 vje\u00e7, nga qyteti i Durr\u00ebsit.\r\n\r\nPas informacioneve t\u00eb b\u00ebra publike n\u00eb media, Komisioneri ka vendosur fillimin e procedur\u00ebs administrative kryesisht, n\u00eb zbatim t\u00eb Ligjit nr. 10221, dat\u00eb 04.02.2010, \u201cP\u00ebr Mbrojtjen nga Diskriminimi\u201d si dhe dispozitat e Kodit t\u00eb Procedurave Administrative, p\u00ebr t\u00eb verifikuar n\u00ebse n\u00eb rastin konkret jan\u00eb respektuar parimet e trajtimit t\u00eb barabart\u00eb dhe mosdiskriminimit n\u00eb ofrimin e sh\u00ebrbimeve sh\u00ebndet\u00ebsore dhe shoq\u00ebrore.\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi mbetet i angazhuar n\u00eb garantimin e s\u00eb drejt\u00ebs s\u00eb \u00e7do individi p\u00ebr trajtim t\u00eb barabart\u00eb dhe akses pa diskriminim n\u00eb sh\u00ebrbimet publike dhe private, duke nd\u00ebrhyr\u00eb n\u00eb \u00e7do rast kur ka indicie se k\u00ebto t\u00eb drejta mund t\u00eb jen\u00eb c\u00ebnuar.\r\n\r\n \r\n\r\nSpitali Rajonal i Durr\u00ebsit - N\u00eb lidhje me lajmin e publikuar n\u00eb media, sipas t\u00eb cilit nj\u00eb pacient i trajtuar m\u00eb par\u00eb n\u00eb Spitalin Rajonal Durr\u00ebs ka nd\u00ebrruar jet\u00eb, sqarojm\u00eb se ky informacion nuk \u00ebsht\u00eb i v\u00ebrtet\u00eb.\r\n\r\nPacienti \u00ebsht\u00eb paraqitur s\u00ebrish dit\u00ebn e djeshme n\u00eb Sh\u00ebrbimin e Urgjenc\u00ebs t\u00eb Spitalit Rajonal Durr\u00ebs, ku vijon t\u00eb q\u00ebndroj\u00eb n\u00ebn kujdesin dhe vler\u00ebsimin e personelit mjek\u00ebsor.\r\n\r\nP\u00ebr informimin e plot\u00eb t\u00eb opinionit publik b\u00ebjm\u00eb me dije se pacienti ishte trajtuar m\u00eb par\u00eb n\u00eb QSUT, ku i ishte kryer nj\u00eb nd\u00ebrhyrje nga mjek\u00ebt kirurg\u00eb vaskular\u00eb n\u00eb en\u00ebt e gjakut t\u00eb k\u00ebmb\u00ebs s\u00eb majt\u00eb. Pas komunikimit nd\u00ebrmjet mjek\u00ebve, ai u shtrua n\u00eb Spitalin Rajonal Durr\u00ebs, ku q\u00ebndroi dhe u trajtua p\u00ebr disa jav\u00eb, duke marr\u00eb kujdesin e nevojsh\u00ebm mjek\u00ebsor n\u00eb p\u00ebrputhje me gjendjen e tij sh\u00ebndet\u00ebsore.\r\n\r\nPas stabilizimit t\u00eb parametrave klinik\u00eb dhe p\u00ebrfundimit t\u00eb trajtimit spitalor, pacientit iu p\u00ebrgatit epikriza dhe iu komunikua dalja nga spitali. Duke qen\u00eb se ai deklaroi se nuk kishte nj\u00eb vend ku t\u00eb q\u00ebndronte, strukturat e spitalit njoftuan sh\u00ebrbimin social dhe organet e Policis\u00eb s\u00eb Shtetit, me q\u00ebllim gjetjen e nj\u00eb zgjidhjeje t\u00eb sigurt sociale dhe familjare.\r\n\r\nPas komunikimeve t\u00eb kryera nga strukturat p\u00ebrkat\u00ebse, nj\u00eb familjar deklaroi se do ta merrte pran\u00eb banes\u00ebs s\u00eb tij. Pacienti u transportua me autoambulanc\u00eb deri n\u00eb destinacion, i shoq\u00ebruar nga punonj\u00ebs t\u00eb Policis\u00eb s\u00eb Shtetit, dhe iu dor\u00ebzua familjarit.\r\n\r\nP\u00ebr rrjedhoj\u00eb, sqarojm\u00eb se pacienti nuk \u00ebsht\u00eb nxjerr\u00eb apo braktisur n\u00eb rrug\u00eb nga Spitali Rajonal Durr\u00ebs, si\u00e7 pretendohet n\u00eb publikim. Dalja e tij nga spitali \u00ebsht\u00eb kryer pas p\u00ebrfundimit t\u00eb trajtimit, me dokumentacionin p\u00ebrkat\u00ebs mjek\u00ebsor dhe pas koordinimit me strukturat sociale, policore dhe familjare.\r\n\r\nSpitali Rajonal Durr\u00ebs u b\u00ebn thirrje mediave q\u00eb, ve\u00e7an\u00ebrisht n\u00eb raste kaq t\u00eb ndjeshme, informacioni t\u00eb verifikohet pran\u00eb institucioneve p\u00ebrkat\u00ebse p\u00ebrpara publikimit.\r\n\r\nInstitucioni yn\u00eb mbetet i angazhuar p\u00ebr ofrimin e kujdesit sh\u00ebndet\u00ebsor dhe p\u00ebr bashk\u00ebpunimin me \u00e7do autoritet kompetent, duke respektuar konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit.<\/div><\/article>TFL, fokus grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje<\/h2><\/div><\/div>Together for Life\u00a0zhvilloi nj\u00eb fokus-grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje, p\u00ebr t\u00eb\u00a0diskutuar ndikimin q\u00eb\u00a0ka pasur zbatimi\u00a0i skem\u00ebs s\u00eb\u00a0re t\u00eb vler\u00ebsimit\u00a0t\u00eb aft\u00ebsis\u00eb s\u00eb\u00a0kufizuar, bazuar n\u00eb\u00a0modelin\u00a0bio-psiko-social, si dhe sfidat\u00a0q\u00eb ata vazhdojn\u00eb\u00a0t\u00eb p\u00ebrballen \u00e7do\u00a0dit\u00eb.\r\n\r\nGjat\u00eb diskutimit u ngrit\u00ebn shqet\u00ebsime serioze mbi:\r\n\u2022 v\u00ebshtir\u00ebsit\u00eb n\u00eb procesin\u00a0e vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe munges\u00ebn e\u00a0njohjes s\u00eb plot\u00eb\u00a0t\u00eb k\u00ebsaj patologjie\u00a0nga komisionet e\u00a0vler\u00ebsimit;\r\n\u2022 munges\u00ebn e mb\u00ebshtetjes\u00a0psikologjike p\u00ebr pacient\u00ebt\u00a0dhe familjet q\u00eb\u00a0nga momenti i\u00a0diagnostikimit;\r\n\u2022 aksesin e kufizuar n\u00eb trajtime\u00a0dhe medikamente t\u00eb\u00a0domosdoshme, shum\u00eb prej\u00a0t\u00eb cilave mbeten\u00a0t\u00eb pap\u00ebrballueshme financiarisht;\r\n\u2022 munges\u00ebn e nj\u00eb\u00a0qasjeje t\u00eb integruar\u00a0p\u00ebr mbulimin e\u00a0nevojave sh\u00ebndet\u00ebsore,\u00a0sociale dhe t\u00eb\u00a0pun\u00ebsimit;\r\n\u2022 nevoj\u00ebn p\u00ebr politika\u00a0publike q\u00eb njohin\u00a0fibroz\u00ebn\u00a0cistike si nj\u00eb\u00a0s\u00ebmundje komplekse, q\u00eb\u00a0k\u00ebrkon trajtim multidisiplinar\u00a0dhe mb\u00ebshtetje t\u00eb\u00a0vazhdueshme.\r\n\r\nKy fokus-grup\u00a0\u00ebsht\u00eb pjes\u00eb\u00a0e monitorimit t\u00eb\u00a0efekteve t\u00eb reform\u00ebs\u00a0s\u00eb vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe synon t\u00eb\u00a0siguroj\u00eb q\u00eb z\u00ebri\u00a0dhe p\u00ebrvoja e\u00a0personave t\u00eb\u00a0prekur t\u00eb reflektohen\u00a0n\u00eb p\u00ebrmir\u00ebsimin e\u00a0politikave publike.\r\nAskush nuk duhet\u00a0t\u00eb mbetet pa\u00a0mb\u00ebshtetje p\u00ebr shkak\u00a0t\u00eb nj\u00eb sistemi\u00a0q\u00eb nuk arrin\u00a0t\u00eb kuptoj\u00eb kompleksitetin\u00a0e nevojave t\u00eb\u00a0tij.\r\n\r\n***\r\nTogether for Life organized a focus group with people living with cystic fibrosis and parents of children affected by the condition to discuss the impact of the implementation of the new disability assessment scheme based on the bio-psycho-social model, as well as the challenges they continue to face in accessing healthcare, social protection, and employment opportunities.\r\n\r\nParticipants highlighted several critical concerns, including:\r\n\u2022 challenges in the disability assessment process and the limited recognition of cystic fibrosis by assessment commissions;\r\n\u2022 the lack of psychological support for patients and their families from the moment of diagnosis;\r\n\u2022 limited access to essential medicines and treatment, many of which remain financially out of reach;\r\n\u2022 the absence of an integrated approach to addressing healthcare, social, and employment needs;\r\n\u2022 the urgent need for public policies that recognize cystic fibrosis as a complex condition requiring multidisciplinary care and long-term support.\r\n\r\nThis focus group forms part of the broader monitoring of the effects of Albania's disability assessment reform and aims to ensure that the experiences and voices of people living with cystic fibrosis are reflected in future policy improvements.<\/div><\/article>Trajnim me gazetar\u00eb\/ Raportimi etik i Dhun\u00ebs me Baz\u00eb Gjinore: Roli i Medias n\u00eb Nd\u00ebrgjegj\u00ebsimin Publik dhe Promovimin e Barazis\u00eb Gjinore<\/h2><\/div><\/div>\ud835\udc0a\ud835\udc2e\ud835\udc2b \ud835\udc20\ud835\udc1a\ud835\udc33\ud835\udc1e\ud835\udc2d\ud835\udc1a\ud835\udc2b\ud835\udc22 \ud835\udc2b\ud835\udc1a\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc28\ud835\udc27 \ud835\udc29\u00eb\ud835\udc2b \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc26\ud835\udc1e \ud835\udc1b\ud835\udc1a\ud835\udc33\u00eb \ud835\udc20\ud835\udc23\ud835\udc22\ud835\udc27\ud835\udc28\ud835\udc2b\ud835\udc1e \ud835\udc1a\ud835\udc29\ud835\udc28 \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc27\u00eb \ud835\udc1f\ud835\udc1a\ud835\udc26\ud835\udc22\ud835\udc25\ud835\udc23\ud835\udc1e, \ud835\udc27\ud835\udc2e\ud835\udc24 \ud835\udc29\ud835\udc28 \ud835\udc2d\ud835\udc2b\ud835\udc1e\ud835\udc20\ud835\udc28\ud835\udc27 \ud835\udc2d\ud835\udc21\ud835\udc23\ud835\udc1e\ud835\udc2c\ud835\udc21\ud835\udc2d \ud835\udc27\ud835\udc23\u00eb \ud835\udc21\ud835\udc22\ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc22. \ud835\udc0f\ud835\udc28 \ud835\udc27\ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc28\ud835\udc27 \ud835\udc27\u00eb \ud835\udc23\ud835\udc1e\ud835\udc2d\u00eb\ud835\udc27 \ud835\udc1e \ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc2e\ud835\udc23\ud835\udc2d.\n\n\n\nGjat\u00eb muajve qershor dhe korrik, gazetar\u00eb nga media t\u00eb ndryshme u b\u00ebn\u00eb pjes\u00eb e nj\u00eb serie trajnimesh kushtuar raportimit etik dhe profesional t\u00eb rasteve t\u00eb dhun\u00ebs me baz\u00eb gjinore dhe dhun\u00ebs n\u00eb familje, t\u00eb organizuara nga Together for Life, n\u00eb kuad\u00ebr t\u00eb \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc24\ud835\udc2d\ud835\udc22\ud835\udc2d \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 \u2013 \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a, i cili zbatohet nga nj\u00eb konsorcium organizatash dhe financohet nga Bashkimi Evropian.\n\n\n\n\nP\u00ebrmes analiz\u00ebs s\u00eb rasteve reale q\u00eb kan\u00eb tronditur opinionin publik pjes\u00ebmarr\u00ebsit diskutuan jo vet\u00ebm \u00e7far\u00eb raportohet, por mbi t\u00eb gjitha si raportohet.\n\n\n\nSepse gazetaria ka fuqin\u00eb:\nt\u00eb informoj\u00eb pa d\u00ebmtuar ask\u00ebnd;\n\u00a0t\u00eb mbroj\u00eb dinjitetin dhe privat\u00ebsin\u00eb e t\u00eb mbijetuarve;\n\u00a0t\u00eb edukoj\u00eb publikun;\nt\u00eb k\u00ebrkoj\u00eb llogari nga institucionet p\u00ebrgjegj\u00ebse \u2013 p\u00ebrfshir\u00eb sistemin sh\u00ebndet\u00ebsor, policin\u00eb, prokurorin\u00eb dhe sh\u00ebrbimet sociale \u2013 p\u00ebr m\u00ebnyr\u00ebn se si identifikojn\u00eb, raportojn\u00eb dhe menaxhojn\u00eb rastet e dhun\u00ebs.\n\n\nNj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e diskutimeve mes kolegeve gazetare iu kushtua sfid\u00ebs s\u00eb medias p\u00ebr t\u00eb mos r\u00ebn\u00eb pre e gar\u00ebs p\u00ebr klikime, duke shmangur gjuh\u00ebn q\u00eb romantizon dhun\u00ebn, faj\u00ebson viktim\u00ebn, cenon privat\u00ebsin\u00eb ose riviktimizon t\u00eb mbijetuarit.\n\n\n\nP\u00ebrmes metodave interaktive, si Mentimeter, gazetar\u00ebt testuan njohurit\u00eb e tyre, sfiduan perceptimet dhe reflektuan mbi p\u00ebrgjegj\u00ebsin\u00eb q\u00eb mbart \u00e7do lajm i publikuar. Sepse nj\u00eb raportim i mir\u00eb nuk matet vet\u00ebm me numrin e klikimeve.\n\n\n\n\nAi matet me ndikimin q\u00eb l\u00eb tek njer\u00ebzit, me besimin q\u00eb nd\u00ebrton dhe me kontributin q\u00eb jep p\u00ebr nj\u00eb shoq\u00ebri q\u00eb nuk e normalizon dhun\u00ebn, por e denon at\u00eb.\n\n\nKy publikim u realizua n\u00eb kuad\u00ebr t\u00eb iniciativ\u00ebs \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, t\u00eb zbatuar nga Gender Alliance for Development Centre (GADC), Together for Life dhe Institute of Romani Culture in Albania (IRCA), mb\u00ebshtetur financiarisht nga Bashkimi Evropian. P\u00ebrmbajtja e k\u00ebtij dokumenti \u00ebsht\u00eb p\u00ebrgjegj\u00ebsi e vetme e Together for Life dhe n\u00eb asnj\u00eb rrethan\u00eb nuk mund t\u00eb konsiderohet se pasqyron pozicionin e Bashkimit Evropian.\n\n\n\n***\n\n\n\n\ud835\udc16\ud835\udc21\ud835\udc1e\ud835\udc27 \ud835\udc1a \ud835\udc23\ud835\udc28\ud835\udc2e\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2c\ud835\udc2d \ud835\udc2b\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc2c \ud835\udc28\ud835\udc27 \ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b-\ud835\udc1b\ud835\udc1a\ud835\udc2c\ud835\udc1e\ud835\udc1d \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e \ud835\udc28\ud835\udc2b \ud835\udc1d\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc2c\ud835\udc2d\ud835\udc22\ud835\udc1c \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc27\ud835\udc28\ud835\udc2d \ud835\udc2c\ud835\udc22\ud835\udc26\ud835\udc29\ud835\udc25\ud835\udc32 \ud835\udc2d\ud835\udc1e\ud835\udc25\ud835\udc25\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc1a \ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc32, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc22\ud835\udc27\ud835\udc1f\ud835\udc25\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc2c\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc28\ud835\udc27\ud835\udc1e'\ud835\udc2c \ud835\udc25\ud835\udc22\ud835\udc1f\ud835\udc1e.\n\n\n\nDuring June and July, journalists from various media outlets participated in a series of training sessions on the ethical and professional reporting of gender-based violence and domestic violence cases.\n\n\nThe trainings were organized by Together for Life as part of the \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 - \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc1c\ud835\udc2d, implemented by GADC, TFL and IRCA organizations and funded by the European Union.\n\n\n\nThrough the analysis of real-life cases that have shocked public opinion, participants explored not only what is reported, but, more importantly, how it is reported.\n\n\nBecause journalism has the power to:\n\u00a0inform without causing harm;\nprotect the dignity and privacy of survivors;\neducate the public;\nhold responsible institutions, including the healthcare system, the police, the prosecution, and social services, accountable for how they identify, report, and respond to cases of violence.\n\n\nAn important part of the discussions among the participating journalists focused on the media's responsibility to resist the race for clicks by avoiding language that romanticizes violence, blames victims, violates their privacy, or re-traumatizes survivors.\n\n\n\n\n\u00a0Through interactive methods such as Mentimeter, journalists tested their knowledge, challenged their assumptions, and reflected on the responsibility that comes with every story they publish.\n\n\nBecause good journalism is not measured solely by the number of clicks. It is measured by the impact it has on people's lives, the trust it builds, and the contribution it makes to a society that does not normalize violence, but exposes and condemns it.\n\n\n\nThis publication was produced as part of the initiative \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, implemented by the Gender Alliance for Development Centre (GADC), Together for Life, and the Institute of Romani Culture in Albania (IRCA), with financial support from the European Union. The contents of this video are the sole responsibility of Together for Life and can under no circumstances be regarded as reflecting the position of the European Union.<\/div><\/article><\/div>
Project Title\r\n\r\nCombatting Corruption of Public Spending in the Health Sector\r\n\r\nDonor\r\n\r\nNational Endowment for Democracy (NED)\r\n\r\nImplementation Period\r\n\r\n2026\u20132028\r\n\r\nPROJECT OBJECTIVE\r\n\r\nTo promote accountability and transparency in Albania's health sector through the systematic monitoring of public spending and public procurement procedures, the identification and exposure of corrupt practices, the strengthening of investigative journalism and civil society oversight, and the promotion of dialogue and advocacy with public institutions. The project aims to enhance institutional transparency, increase the accountability of public authorities, and empower citizens to actively monitor and demand greater accountability in the management of public resources in the health sector.\r\n\r\nActivities\r\n\r\n \tMonitor and analyze public spending and public procurement procedures in Albania's health sector during 2026 and 2027.\r\n \tPrepare and publish two annual reports on the health sector budget, focusing on spending patterns, allocation of public funds, and compliance with public procurement procedures.\r\n \tProduce a monitoring report on the regulation and oversight of public procurement and procurement practices in the pharmaceutical sector.\r\n \tDevelop a comparative analysis of the Public-Private Partnership (PPP) model and the state-owned enterprise model for the provision of hospital sterilization services.\r\n \tOrganize four regional information meetings on the right to information and institutional transparency in cooperation with the Office of the Commissioner for the Right to Information and Personal Data Protection.\r\n \tCollaborate with BIRN Albania to produce four investigative reports on corruption and mismanagement in the health sector and provide support to investigative journalists throughout the process.\r\n \tMaintain and regularly update the Transparency.com.al platform, including its online corruption reporting mechanism, and publish reports, analyses, and investigative articles.\r\n \tOrganize a public hearing with the Parliamentary Committee on Labour, Social Affairs and Health to present the project's findings and policy recommendations.\r\n \tHold at least two consultative roundtables with the Ministry of Health and Social Welfare to advocate for the implementation of the project's recommendations and improvements in the health sector budget.\r\n \tOrganize at least four roundtable discussions with key institutions, including the Office of the Commissioner for the Right to Information, the Prime Minister's Office, the Supreme State Audit, and other relevant institutions, to present the project's findings.\r\n \tStrengthen the network of civil society organizations engaged in monitoring transparency and accountability in public spending within the health sector.\r\n \tPrepare and disseminate six press releases per year to raise public awareness of transparency, accountability, and anti-corruption issues in Albania's health sector.\r\n\r\n <\/div><\/article>Skema e re e furnizimit me barna dhe fondet publike: Ministria \u201crefuzon\u201d t\u2019i p\u00ebrgjigjet TFL-s\u00eb p\u00ebr projektligjin<\/h2><\/div>
Skema e re e furnizimit me barna dhe fondet publike: Ministria \u201crefuzon\u201d t\u2019i p\u00ebrgjigjet TFL-s\u00eb p\u00ebr projektligjin<\/h2><\/div><\/div>Nd\u00ebrsa n\u00eb media raportohet se nj\u00eb projektligj i ri p\u00ebr krijimin e nj\u00eb shoq\u00ebrie shtet\u00ebrore p\u00ebr administrimin e barnave dhe pajisjeve mjek\u00ebsore \u00ebsht\u00eb pran\u00eb miratimit, Ministria e Sh\u00ebndet\u00ebsis\u00eb nuk i \u00ebsht\u00eb p\u00ebrgjigjur k\u00ebrkes\u00ebs p\u00ebr informacion t\u00eb Together for Life. P\u00ebr nj\u00eb reform\u00eb q\u00eb prek fondet publike, prokurimet dhe tregun farmaceutik, mungesa e transparenc\u00ebs ngre pik\u00ebpyetje serioze.\r\n\r\n \r\n\r\nMuajt e fundit, nisma p\u00ebr krijimin e nj\u00eb shoq\u00ebrie shtet\u00ebrore q\u00eb do t\u00eb administroj\u00eb furnizimin e institucioneve publike sh\u00ebndet\u00ebsore me barna dhe pajisje mjek\u00ebsore ka qen\u00eb n\u00eb qend\u00ebr t\u00eb raportimeve mediatike dhe t\u00eb debatit publik e politik. Megjithat\u00eb, pavar\u00ebsisht r\u00ebnd\u00ebsis\u00eb s\u00eb saj, p\u00ebrmbajtja e projektligjit, argumentet mbi t\u00eb cilat mb\u00ebshtetet kjo nism\u00eb, kostot e parashikuara dhe pasojat e mundshme p\u00ebr konkurrenc\u00ebn dhe menaxhimin e fondeve publike nuk jan\u00eb b\u00ebr\u00eb ende publike zyrtarisht.\r\n\r\n \r\n\r\nP\u00ebr t\u00eb hedhur drit\u00eb mbi k\u00ebt\u00eb nism\u00eb, Together for Life iu drejtua m\u00eb 5 gusht 2026 Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale, duke k\u00ebrkuar dokumentet kryesore dhe analizat mbi t\u00eb cilat \u00ebsht\u00eb mb\u00ebshtetur hartimi i projektligjit. Por, deri m\u00eb tani, TFL nuk ka marr\u00eb asnj\u00eb p\u00ebrgjigje nga Ministria.\r\n\r\n \r\n\r\nKjo munges\u00eb transparence b\u00ebhet shqet\u00ebsuese n\u00eb nj\u00eb koh\u00eb kur dor\u00ebheqja e ministres Evis Sala, n\u00eb dit\u00ebt e para t\u00eb shtatorit, u lidhur gjer\u00ebsisht n\u00eb raportimet mediatike me refuzimin e saj p\u00ebr t\u00eb firmosur draftligjin. Nd\u00ebrkoh\u00eb, n\u00eb media sot jan\u00eb raportuar zhvillime t\u00eb reja dhe sinjale se nisma mund t\u00eb jet\u00eb pran\u00eb miratimit nga ministrja e sapoem\u00ebruar, deputetja Klodiana Spahiu[1].\r\n\r\n \r\n\r\nN\u00eb k\u00ebt\u00eb situat\u00eb, b\u00ebrja publike e dokumentave dhe informacionit t\u00eb k\u00ebrkuar nga TFL m\u00eb shum\u00eb se nj\u00eb muaj m\u00eb par\u00eb do t\u2019i mund\u00ebsonin publikut dhe aktor\u00ebve t\u00eb interesuar t\u00eb kuptonin arsyet, q\u00ebllimin dhe pasojat e mundshme t\u00eb k\u00ebsaj nisme. Por, i gjith\u00eb procesi deri tani \u00ebsht\u00eb veshur me hijen e di\u00e7kaje t\u00eb fsheht\u00eb dhe sekrete.\r\n\r\n \r\n\r\nKjo situat\u00eb ngre nj\u00eb shqet\u00ebsim t\u00eb drejtp\u00ebrdrejt\u00eb mbi arsyet e munges\u00ebs s\u00eb transparenc\u00ebs p\u00ebr nj\u00eb nism\u00eb t\u00eb till\u00eb me ndikim t\u00eb drejt\u00ebp\u00ebrdrejt\u00eb n\u00eb jet\u00ebn dhe sh\u00ebndetin e pacient\u00ebve si dhe n\u00eb e financat publike. Si mund t\u00eb shqyrtohet dhe vler\u00ebsohet nj\u00eb reform\u00eb me ndikim potencial n\u00eb prokurimet publike, tregun farmaceutik dhe p\u00ebrdorimin e fondeve publike, kur dokumentet dhe analizat mbi t\u00eb cilat ajo mb\u00ebshtetet nuk b\u00ebhen publike?\r\n\r\n \r\n\r\nK\u00ebrkesa e TFL p\u00ebr transparenc\u00eb t\u00eb procesit\r\n\r\n \r\n\r\nN\u00eb k\u00ebrkes\u00ebn e saj p\u00ebr informacion, TFL nuk ka k\u00ebrkuar nj\u00eb q\u00ebndrim politik t\u00eb Ministris\u00eb mbi nism\u00ebn, por dokumentet dhe t\u00eb dh\u00ebnat q\u00eb do t\u00eb mund\u00ebsonin t\u00eb kuptohej mbi \u00e7far\u00eb baze \u00ebsht\u00eb hartuar projekt-ligji. N\u00eb k\u00ebrkes\u00ebn drejtuar Ministris\u00eb, organizata ka k\u00ebrkuar, nd\u00ebr t\u00eb tjera, draftin e projektligjit, relacionin shoq\u00ebrues, raportin e vler\u00ebsimit t\u00eb ndikimit, relacionin financiar dhe analiz\u00ebn e kostove e p\u00ebrfitimeve, si edhe studimin e fizibilitetit dhe dokumentet teknike q\u00eb kan\u00eb mb\u00ebshtetur nism\u00ebn.\r\n\r\n \r\n\r\nK\u00ebrkesa nuk ndalet te dokumentacioni formal. TFL k\u00ebrkon t\u00eb dij\u00eb si \u00ebsht\u00eb hartuar projektligji, cilat institucione apo organizata jan\u00eb p\u00ebrfshir\u00eb n\u00eb proces, n\u00ebse \u00ebsht\u00eb zhvilluar konsultim publik dhe si do t\u00eb garantohet mbik\u00ebqyrja administrative, financiare dhe operacionale e shoq\u00ebris\u00eb s\u00eb propozuar.\r\n\r\n \r\n\r\nTFL ngre shqet\u00ebsimin mbi ndikimin q\u00eb kjo nism\u00eb mund t\u00eb ket\u00eb n\u00eb konkurrenc\u00ebn n\u00eb tregun e barnave dhe pajisjeve mjek\u00ebsore, aksesin e operator\u00ebve ekonomik\u00eb n\u00eb procedurat e prokurimit, kostot p\u00ebr buxhetin e shtetit dhe efikasitetin e sistemit t\u00eb furnizimit.\r\n\r\n \r\n\r\nPa informacion t\u00eb plot\u00eb zyrtar, debati do t\u00eb zhvillohet mb\u00ebshtetur kryesisht n\u00eb deklarata publike dhe raportime mediatike, nd\u00ebrsa publiku dhe grupet e interesit do t\u00eb vazhdojn\u00eb t\u00eb hamend\u00ebsojn\u00eb mbi p\u00ebrmbajtjen, q\u00ebllimin dhe pasojat e mundshme t\u00eb k\u00ebsaj nisme.\r\n\r\n \r\n\r\nN\u00ebse modeli i ri synon t\u00eb ul\u00eb kostot, t\u00eb rris\u00eb efikasitetin dhe t\u00eb p\u00ebrmir\u00ebsoj\u00eb furnizimin e sistemit sh\u00ebndet\u00ebsor, k\u00ebto p\u00ebrfitime duhet t\u00eb mb\u00ebshteten me analiza t\u00eb b\u00ebra publike. Po k\u00ebshtu, \u00e7do rrezik p\u00ebr konkurrenc\u00ebn, menaxhimin e fondeve publike apo funksionimin e tregut duhet t\u00eb jet\u00eb pjes\u00eb e debatit p\u00ebrpara miratimit t\u00eb reform\u00ebs dhe jo pasi ajo t\u00eb ket\u00eb hyr\u00eb n\u00eb fuqi.\r\n\r\n \r\n\r\nN\u00eb fund t\u00eb fundit, pyetja q\u00eb mbetet \u00ebsht\u00eb e thjesht\u00eb: mbi \u00e7far\u00eb dokumentesh dhe analizash po merret nj\u00eb vendim q\u00eb mund t\u00eb ndryshoj\u00eb m\u00ebnyr\u00ebn e furnizimit t\u00eb sistemit publik sh\u00ebndet\u00ebsor?\r\n\r\n \r\n\r\nPik\u00ebrisht, p\u00ebr k\u00ebt\u00eb arsye, p\u00ebrgjigjja e Ministris\u00eb ndaj k\u00ebrkes\u00ebs s\u00eb TFL-s\u00eb nuk \u00ebsht\u00eb thjesht nj\u00eb \u00e7\u00ebshtje administrative. \u00cbsht\u00eb nj\u00eb test i transparenc\u00ebs s\u00eb nj\u00eb reforme q\u00eb prek drejtp\u00ebrdrejt parat\u00eb publike, prokurimet dhe funksionimin e tregut t\u00eb barnave dhe pajisjeve mjek\u00ebsore.\r\n\r\n \r\n\r\n[1] https:\/\/kapitali.al\/lajme-nga-vendi\/ekskluzive-klodiana-spahiu-konfirmon-se-do-te-firmose-ligjin-qe--i36873?fbclid=I\u00ebY2xja\u00ebUQ2LJ\u00ebZG9mB\u00cbV4dG4DY\u00cbVtAjExAGJya\u00cbQRMXB6S2VHU1BQaG1\u00ebbVV4YmRzcnRjBmF\u00ebcF9pZBAyMjI\u00ebMzkxNzg4MjA\u00ebODkyAAEev3\u00cbiBZ8MeHDec4czlBlkzUGxmP966blfLeqsJ\u00cbdUehMOStTxFYoi2eQU\u00ebSY_aem_pfhlnuGslgbNgkJ_i8\u00cbOXQ<\/div><\/article>Projektligji i ri p\u00ebr PAK: parashikohet rritja e aksesueshm\u00ebris\u00eb, por si do garantohet zbatimi?<\/h2><\/div><\/div>Gjasht\u00eb vite pas reform\u00ebs s\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, Shqip\u00ebria p\u00ebrgatit nj\u00eb tjet\u00ebr reform\u00eb ligjore. Projektligji i ri \u201cP\u00ebr p\u00ebrfshirjen dhe aksesueshm\u00ebrin\u00eb e personave me aft\u00ebsi t\u00eb kufizuara\u201d[1], i hedhur p\u00ebr konsultim publik m\u00eb 28 gusht 2026, premton nj\u00eb qasje m\u00eb t\u00eb gjer\u00eb ndaj aksesueshm\u00ebris\u00eb, autonomis\u00eb dhe jetes\u00ebs s\u00eb pavarur. Por p\u00ebrvoja e zbatimit t\u00eb modelit bio-psiko-social, ashtu si edhe e kuadrit ligjor t\u00eb m\u00ebparsh\u00ebm p\u00ebr personat me aft\u00ebsi t\u00eb kufizuara, ngre nj\u00eb pyetje thelb\u00ebsore: p\u00ebrtej t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, kur do t\u00eb mund t\u2019i g\u00ebzojn\u00eb ato realisht personat me aft\u00ebsi t\u00eb kufizuara?\r\n\r\nIshte viti 2019 kur Shqip\u00ebria ndryshoi m\u00ebnyr\u00ebn e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, duke kaluar nga nj\u00eb qasje kryesisht mjek\u00ebsore drejt modelit bio-psiko-social. Sipas institucioneve p\u00ebrgjegj\u00ebse, reforma synonte ta vendoste personin n\u00eb qend\u00ebr t\u00eb procesit, duke mos u ndalur vet\u00ebm te diagnoza apo d\u00ebmtimi sh\u00ebndet\u00ebsor, por duke marr\u00eb n\u00eb konsiderat\u00eb funksionalitetin e individit, pjes\u00ebmarrjen e tij n\u00eb shoq\u00ebri dhe barrierat sociale e mjedisore me t\u00eb cilat p\u00ebrballet.\r\n\r\nN\u00eb parim, ndryshimi ishte thelb\u00ebsor. Ai n\u00ebnkuptonte nj\u00eb zhvendosje nga nj\u00eb sistem q\u00eb fokusohej kryesisht te gjendja mjek\u00ebsore e individit, drejt nj\u00eb qasjeje q\u00eb k\u00ebrkon t\u00eb kuptoj\u00eb \u00e7far\u00eb mund t\u00eb b\u00ebj\u00eb personi, cilat pengesa kufizojn\u00eb pjes\u00ebmarrjen e tij dhe \u00e7far\u00eb mb\u00ebshtetjeje i nevojitet p\u00ebr t\u00eb jetuar n\u00eb m\u00ebnyr\u00eb sa m\u00eb t\u00eb pavarur.\r\n\r\nPor gjasht\u00eb vite m\u00eb pas, pyetja \u00ebsht\u00eb n\u00ebse kjo qasje ka arritur t\u00eb ndryshoj\u00eb realisht jet\u00ebn e personave me aft\u00ebsi t\u00eb kufizuara. Gjetjet e raportit \u201cMbi efektet e zbatimit t\u00eb skem\u00ebs s\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar bazuar n\u00eb modelin bio-psiko-social\u201d tregojn\u00eb se, pavar\u00ebsisht ndryshimit t\u00eb modelit, n\u00eb praktik\u00eb vazhdojn\u00eb t\u00eb ekzistojn\u00eb barriera t\u00eb r\u00ebnd\u00ebsishme n\u00eb procesin e vler\u00ebsimit dhe n\u00eb aksesin n\u00eb mb\u00ebshtetje e sh\u00ebrbime. Mungesa e kapaciteteve t\u00eb specializuara, problemet e infrastruktur\u00ebs, v\u00ebshtir\u00ebsit\u00eb e koordinimit nd\u00ebrmjet profesionist\u00ebve dhe k\u00ebrkesa p\u00ebr paraqitje fizike edhe n\u00eb raste kur personi e ka t\u00eb pamundur t\u00eb udh\u00ebtoj\u00eb, d\u00ebshmojn\u00eb hendekun mes parimit t\u00eb reform\u00ebs dhe zbatimit t\u00eb saj n\u00eb terren.\r\n\r\nDhe pik\u00ebrisht n\u00eb k\u00ebt\u00eb realitet shfaqet projektligji i ri. Ai premton t\u00eb shkoj\u00eb nj\u00eb hap m\u00eb tej: nga vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar te vler\u00ebsimi i nevojave, nga mb\u00ebshtetja financiare te sh\u00ebrbimet dhe jetesa e pavarur, dhe nga koncepti i aksesit fizik te aksesueshm\u00ebria n\u00eb informacion, sh\u00ebrbime, transport, teknologji dhe komunikim.\r\n\r\nPor p\u00ebrvoja e reform\u00ebs s\u00eb vitit 2019 ngre nj\u00eb pik\u00ebpyetje q\u00eb nuk mund t\u00eb anashkalohet: a do t\u00eb sjell\u00eb projektligji nj\u00eb ndryshim real n\u00eb jet\u00ebn e personave me aft\u00ebsi t\u00eb kufizuara, apo do t\u00eb shtoj\u00eb nj\u00eb tjet\u00ebr shtres\u00eb t\u00eb drejtash t\u00eb garantuara n\u00eb let\u00ebr, por t\u00eb v\u00ebshtira p\u00ebr t\u2019u realizuar n\u00eb praktik\u00eb?\r\nAksesueshm\u00ebria dhe testi i zbatimit\r\nNj\u00eb nga risit\u00eb m\u00eb t\u00eb r\u00ebnd\u00ebsishme t\u00eb projektligjit \u00ebsht\u00eb zhvendosja e fokusit nga statusi i aft\u00ebsis\u00eb s\u00eb kufizuar te nevojat konkrete t\u00eb personit. Neni 37 parashikon q\u00eb komisionet multidisiplinare t\u00eb vler\u00ebsojn\u00eb jo vet\u00ebm aft\u00ebsin\u00eb e kufizuar, por edhe nevojat p\u00ebr sh\u00ebrbime, mjete ndihm\u00ebse dhe p\u00ebrkujdesje, bazuar n\u00eb Klasifikimin Nd\u00ebrkomb\u00ebtar t\u00eb Funksionimit, Aft\u00ebsive t\u00eb Kufizuara dhe Sh\u00ebndetit (ICF) dhe duke marr\u00eb n\u00eb konsiderat\u00eb faktor\u00ebt social\u00eb. N\u00ebse kjo qasje zbatohet realisht, ajo do t\u00eb sh\u00ebnonte nj\u00eb ndryshim t\u00eb r\u00ebnd\u00ebsish\u00ebm: personi nuk do t\u00eb trajtohej thjesht si p\u00ebrfitues i nj\u00eb statusi apo pagese, por si subjekt i t\u00eb drejtave, me nevoja konkrete q\u00eb sistemi duhet t\u2019i identifikoj\u00eb dhe t\u2019u p\u00ebrgjigjet.\r\n\r\nPor pik\u00ebrisht k\u00ebtu p\u00ebrvoja e gjasht\u00eb viteve t\u00eb zbatimit t\u00eb modelit bio-psiko-social ngre pik\u00ebpyetje serioze. Raporti i Together for Life evidenton munges\u00eb t\u00eb profesionist\u00ebve dhe kapaciteteve p\u00ebr nj\u00eb vler\u00ebsim realisht multidimensional: 50% e t\u00eb anketuarve raportuan probleme me komponentin psikologjik, nd\u00ebrsa 20% evidentuan munges\u00eb koherence dhe koordinimi brenda komisioneve multidisiplinare. Kjo e zhvendos debatin nga ajo q\u00eb premton ligji te ajo q\u00eb mund t\u00eb zbatoj\u00eb sistemi: a \u00ebsht\u00eb p\u00ebrgatitur stafi, a jan\u00eb siguruar burimet dhe a ekzistojn\u00eb sh\u00ebrbimet q\u00eb duhet t\u2019u p\u00ebrgjigjen nevojave t\u00eb identifikuara?\r\n\r\nE nj\u00ebjta sfid\u00eb shfaqet edhe te koncepti i aksesueshm\u00ebris\u00eb. Projektligji e zgjeron at\u00eb p\u00ebrtej barrierave fizike, duke p\u00ebrfshir\u00eb transportin, informacionin dhe komunikimin, sh\u00ebrbimet bankare, tregtin\u00eb elektronike, librat elektronik\u00eb dhe sh\u00ebrbimet e urgjenc\u00ebs. Por raporti evidenton se edhe n\u00eb aksesin n\u00eb informacion dhe sh\u00ebrbimet digjitale, p\u00ebrfshir\u00eb e-Albania, masa t\u00eb planifikuara p\u00ebr p\u00ebrmir\u00ebsimin e aksesueshm\u00ebris\u00eb nuk ishin realizuar ende.\r\n\r\nKjo e b\u00ebn zbatimin pik\u00ebn m\u00eb kritike t\u00eb reform\u00ebs s\u00eb re. Projektligji \u00ebsht\u00eb m\u00eb ambicioz n\u00eb njohjen e t\u00eb drejtave, por nj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e mekanizmave t\u00eb zbatimit do t\u00eb p\u00ebrcaktohet m\u00eb tej me akte n\u00ebnligjore, p\u00ebrfshir\u00eb kriteret dhe procedurat e aksesueshm\u00ebris\u00eb s\u00eb sh\u00ebrbimeve dhe organizimin e asistenc\u00ebs personale, t\u00eb parashikuara t\u00eb rregullohen brenda 18 muajve nga hyrja n\u00eb fuqi e ligjit.\r\n\r\nN\u00eb k\u00ebt\u00eb kuptim, miratimi i ligjit nuk \u00ebsht\u00eb fundi i reform\u00ebs, por fillimi i testit t\u00eb saj real. Sepse suksesi nuk do t\u00eb matet me numrin e t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, por me sa prej tyre do t\u00eb mund t\u00eb ushtrohen realisht nga personat me aft\u00ebsi t\u00eb kufizuara.\r\nTesti i v\u00ebrtet\u00eb \u00ebsht\u00eb zbatimi\r\nN\u00eb fund, suksesi i projektligjit t\u00eb ri nuk do t\u00eb matet me numrin e t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, fondet e parashikuara apo aktet n\u00ebnligjore t\u00eb miratuara. Ai do t\u00eb matet me barrierat q\u00eb arrin t\u00eb heq\u00eb nga jeta e personave me aft\u00ebsi t\u00eb kufizuara.\r\n\r\nReforma e vitit 2019 synoi t\u00eb ndryshonte m\u00ebnyr\u00ebn se si shteti e vler\u00ebson aft\u00ebsin\u00eb e kufizuar. Projektligji i ri synon t\u00eb ndryshoj\u00eb m\u00ebnyr\u00ebn se si garantohen aksesi, autonomia dhe p\u00ebrfshirja. Por t\u00eb dyja kan\u00eb nj\u00eb pik\u00eb t\u00eb p\u00ebrbashk\u00ebt: vlera e nj\u00eb reforme p\u00ebrcaktohet jo nga ajo q\u00eb premton n\u00eb let\u00ebr, por nga ajo q\u00eb ndryshon n\u00eb jet\u00ebn e njer\u00ebzve.\r\n\r\nPrandaj, sfida e v\u00ebrtet\u00eb fillon me zbatimin. Nj\u00eb e drejt\u00eb q\u00eb nuk mund t\u00eb ushtrohet, nj\u00eb sh\u00ebrbim q\u00eb nuk mund t\u00eb aksesohet apo nj\u00eb mb\u00ebshtetje q\u00eb nuk mb\u00ebrrin te personi q\u00eb ka nevoj\u00eb p\u00ebr t\u00eb, mbetet vet\u00ebm nj\u00eb e drejt\u00eb formale.\r\n\r\nPyetja q\u00eb duhet t\u00eb shoq\u00ebroj\u00eb k\u00ebt\u00eb reform\u00eb \u00ebsht\u00eb, ndaj, e thjesht\u00eb, por thelb\u00ebsore: a do t\u00eb mundet nj\u00eb person me aft\u00ebsi t\u00eb kufizuara, fal\u00eb k\u00ebtij ligji, t\u00eb l\u00ebviz\u00eb m\u00eb lirsh\u00ebm, t\u00eb marr\u00eb sh\u00ebrbimet p\u00ebr t\u00eb cilat ka nevoj\u00eb, t\u00eb vendos\u00eb p\u00ebr jet\u00ebn e vet dhe t\u00eb marr\u00eb pjes\u00eb n\u00eb shoq\u00ebri pa u p\u00ebrballur me t\u00eb nj\u00ebjtat barriera?\r\n\r\nN\u00ebse p\u00ebrgjigjja \u00ebsht\u00eb po, at\u00ebher\u00eb Shqip\u00ebria do t\u00eb ket\u00eb b\u00ebr\u00eb kalimin nga statusi te e drejta, nga pagesa te mb\u00ebshtetja dhe nga letra te jeta reale.\r\n\r\nN\u00ebse jo, rreziku \u00ebsht\u00eb q\u00eb t\u00eb kemi s\u00ebrish nj\u00eb reform\u00eb progresive n\u00eb let\u00ebr, nd\u00ebrsa barrierat vazhdojn\u00eb t\u00eb mbeten aty ku kan\u00eb qen\u00eb: n\u00eb jet\u00ebn e p\u00ebrditshme t\u00eb njer\u00ebzve.\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.\r\n[1] https:\/\/konsultimipublik.gov.al\/Konsultime\/Detaje\/1044<\/div><\/article>Zjarret n\u00eb Shkod\u00ebr: Nga reagimi n\u00eb terren te gatishm\u00ebria e komunitetit<\/h2><\/div><\/div>Pas nj\u00eb situate t\u00eb v\u00ebshtir\u00eb gjat\u00eb djeshme (8 shtator 2026), ku n\u00eb territorin e Bashkis\u00eb Shkod\u00ebr u evidentuan disa vatra zjarri, sot (9 shtator 2026) situata paraqitet e qet\u00eb dhe pa vatra aktive.\r\n\r\n\r\nGjat\u00eb dit\u00ebs s\u00eb djeshme, u b\u00eb i mundur menaxhimi dhe shuarja e vatrave n\u00eb Oblik\u00eb, Muriqan dhe B\u00ebrdic\u00eb, nd\u00ebrsa vatra n\u00eb Bardhaj, mbi rezervuar, vijoi p\u00ebr nj\u00eb periudh\u00eb t\u00eb ishte aktive, pa paraqitur rrezik p\u00ebr banesat. Fal\u00eb nd\u00ebrhyrjes n\u00eb terren, u shp\u00ebtuan edhe gjasht\u00eb banesa t\u00eb rrezikuara nga zjarri n\u00eb Bardhaj.\r\n\r\n\r\nMir\u00ebnjohje zjarrfik\u00ebsve, Emergjencave Civile, Forcave t\u00eb Armatosura, punonj\u00ebsve t\u00eb Bashkis\u00eb, vullnetar\u00ebve dhe banor\u00ebve q\u00eb kontribuuan gjat\u00eb gjith\u00eb k\u00ebsaj situate.\r\n\r\n\r\nEdhe pse sot situata \u00ebsht\u00eb e qet\u00eb, zona vijon t\u00eb monitorohet p\u00ebr t\u00eb parandaluar \u00e7do riaktivizim t\u00eb mundsh\u00ebm. Kjo situat\u00eb na kujton se gatishm\u00ebria p\u00ebr emergjencat nuk fillon vet\u00ebm n\u00eb momentin kur shfaqet rreziku. Ajo nd\u00ebrtohet \u00e7do dit\u00eb, edhe n\u00eb nivel komunitar.\r\n\r\n\r\nN\u00eb k\u00ebt\u00eb kuad\u00ebr, Rrjeti i Q\u00ebndrueshm\u00ebris\u00eb s\u00eb Komunitetit (Community Resilience Network \u2013 CRN) Daj\u00e7, i mb\u00ebshtetur dhe fuqizuar p\u00ebrmes pun\u00ebs s\u00eb Together for Life, \u00ebsht\u00eb nj\u00eb mekaniz\u00ebm komunitar q\u00eb kontribuon n\u00eb forcimin e komunikimit, informimit dhe gatishm\u00ebris\u00eb n\u00eb nivel lokal.\r\n\r\n\r\nRrjeti \u00ebsht\u00eb vigjilent dhe aktiv n\u00eb komunikim dhe k\u00ebshillim me komunitetin n\u00eb Daj\u00e7, n\u00eb m\u00ebnyr\u00eb q\u00eb, n\u00eb rast t\u00eb nj\u00eb emergjence, informacioni i sakt\u00eb dhe nevojat e komunitetit t\u00eb p\u00ebrcillen dhe t\u00eb adresohen sa m\u00eb shpejt.\r\n\r\n\r\nCRN Daj\u00e7 sh\u00ebrben si nj\u00eb ur\u00eb lidh\u00ebse mes komunitetit, institucioneve dhe strukturave t\u00eb emergjencave, duke ndihmuar n\u00eb:\r\n\r\n\r\n\r\n \tp\u00ebrcjelljen e informacionit t\u00eb sakt\u00eb dhe n\u00eb koh\u00eb;\r\n \tidentifikimin e personave dhe familjeve q\u00eb mund t\u00eb ken\u00eb nevoj\u00eb p\u00ebr mb\u00ebshtetje t\u00eb ve\u00e7ant\u00eb;\r\n \tevidentimin e nevojave dhe problematikave n\u00eb komunitet;\r\n \tforcimin e komunikimit dhe koordinimit n\u00eb rast emergjence;\r\n \trritjen e nd\u00ebrgjegj\u00ebsimit p\u00ebr parandalimin dhe gatishm\u00ebrin\u00eb ndaj emergjencave.\r\n \t\r\n\r\n\r\nNj\u00eb komunitet i p\u00ebrgatitur nuk z\u00ebvend\u00ebson strukturat e emergjenc\u00ebs. P\u00ebrkundrazi, ai i ndihmon ato t\u00eb reagojn\u00eb m\u00eb mir\u00eb dhe m\u00eb shpejt aty ku nevojitet.\r\n\r\n\r\nP\u00ebr t\u00eb gjitha komunitetet n\u00eb zonat e prekura nga zjarret apo n\u00eb zona q\u00eb mund t\u00eb p\u00ebrballen me rrezik, apelojm\u00eb p\u00ebr qet\u00ebsi, kujdes dhe p\u00ebrgjegjshm\u00ebri:\r\n\r\n\r\n\u2022 T\u00eb ndiqen vet\u00ebm informacionet nga burimet zyrtare.\r\n\u2022 T\u00eb mos shp\u00ebrndahen lajme apo pamje t\u00eb pakonfirmuara q\u00eb mund t\u00eb krijojn\u00eb panik.\r\n\u2022 T\u00eb respektohen udh\u00ebzimet e autoriteteve.\r\n\u2022 T\u00eb mos afrohemi n\u00eb zonat e zjarrit p\u00ebr t\u00eb filmuar apo fotografuar.\r\n\u2022 T\u00eb tregohet kujdes i ve\u00e7ant\u00eb p\u00ebr t\u00eb moshuarit, personat me aft\u00ebsi t\u00eb kufizuara, f\u00ebmij\u00ebt dhe personat e tjer\u00eb q\u00eb mund t\u00eb ken\u00eb nevoj\u00eb p\u00ebr mb\u00ebshtetje.\r\n\r\n\r\nSot situata \u00ebsht\u00eb e qet\u00eb. Por gatishm\u00ebria duhet t\u00eb vazhdoj\u00eb.\r\n\r\n\r\nQet\u00ebsi. Informim. Solidaritet. Gatishm\u00ebri.\r\n\r\n\r\nTogether for Life | Rrjeti i Q\u00ebndrueshm\u00ebris\u00eb s\u00eb Komunitetit (Community Resilience Network \u2013 CRN) Daj\u00e7<\/div><\/article>Lufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb<\/h2><\/div><\/div>Titulli i Projektit:\r\n\r\nLufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb\r\n\r\nDonatori\r\n\r\nNational Endowment for Democracy (NED)\r\n\r\nPeriudha e zbatimit\r\n\r\n1 Korrik 2024 \u2013 30 Qershor 2026 (24 muaj)\r\n\r\nQ\u00cbLLIMI I PROJEKTIT\r\n\r\nT\u00eb promovoj\u00eb llogaridh\u00ebnien dhe transparenc\u00ebn n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri, p\u00ebrmes monitorimit t\u00eb shpenzimeve publike dhe prokurimeve, evidentimit t\u00eb rasteve t\u00eb mundshme t\u00eb korrupsionit, fuqizimit t\u00eb rolit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile, medias dhe qytetar\u00ebve, si dhe nxitjes s\u00eb institucioneve publike p\u00ebr t\u00eb nd\u00ebrmarr\u00eb masa konkrete p\u00ebr p\u00ebrmir\u00ebsimin e integritetit dhe p\u00ebrdorimit t\u00eb fondeve publike.\r\n\r\nAktivitetet\r\n\r\n \tMonitorimi dhe analiza e shpenzimeve publike dhe procedurave t\u00eb prokurimit n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri.\r\n \tHartimi i dy raporteve vjetore t\u00eb monitorimit mbi shpenzimet publike, prokurimet dhe shp\u00ebrndarjen e fondeve p\u00ebr grupet vulnerab\u00ebl.\r\n \tP\u00ebrgatitja e nj\u00eb raporti t\u00eb thelluar mbi zbatimin e ligjit p\u00ebr autonomin\u00eb spitalore dhe rekomandimeve p\u00ebr p\u00ebrmir\u00ebsimin e menaxhimit t\u00eb fondeve publike.\r\n \tP\u00ebrgatitja e nj\u00eb raporti gjith\u00ebp\u00ebrfshir\u00ebs mbi hetimet dhe gjetjet e SPAK lidhur me abuzimet financiare n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tBashk\u00ebpunimi me BIRN p\u00ebr realizimin e pes\u00eb artikujve investigativ\u00eb mbi korrupsionin n\u00eb shpenzimet publike n\u00eb sh\u00ebndet\u00ebsi.\r\n \tOrganizimi i t\u00eb pakt\u00ebn kat\u00ebr workshopeve me organizata t\u00eb shoq\u00ebris\u00eb civile dhe gazetar\u00eb p\u00ebr identifikimin dhe raportimin e rasteve t\u00eb munges\u00ebs s\u00eb transparenc\u00ebs dhe llogaridh\u00ebnies.\r\n \tPjes\u00ebmarrja n\u00eb seancat d\u00ebgjimore parlamentare p\u00ebr prezantimin e gjetjeve t\u00eb monitorimit.\r\n \tMbajtja dhe zgjerimi i rrjetit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile q\u00eb punojn\u00eb p\u00ebr transparenc\u00ebn dhe llogaridh\u00ebnien n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tOrganizimi i tet\u00eb takimeve rajonale n\u00eb Shkod\u00ebr, Vlor\u00eb, Elbasan dhe Dib\u00ebr me deputet\u00eb, organizata lokale dhe qytetar\u00eb p\u00ebr diskutimin e \u00e7\u00ebshtjeve t\u00eb sh\u00ebndet\u00ebsis\u00eb.\r\n \tOrganizimi i kat\u00ebr tryezave komb\u00ebtare me institucionet p\u00ebrgjegj\u00ebse (Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi, Avokati i Popullit, ILDKPKI dhe Komisioneri p\u00ebr t\u00eb Drejt\u00ebn e Informimit) p\u00ebr prezantimin e gjetjeve t\u00eb projektit.\r\n \tMir\u00ebmbajtja dhe p\u00ebrdit\u00ebsimi i platform\u00ebs www.transparency.com.al dhe faqes p\u00ebrkat\u00ebse n\u00eb Facebook p\u00ebr raportimin e rasteve t\u00eb korrupsionit dhe promovimin e transparenc\u00ebs.\r\n \tP\u00ebrgatitja dhe publikimi i t\u00eb pakt\u00ebn tre njoftimeve p\u00ebr shtyp \u00e7do vit p\u00ebr t\u00eb rritur nd\u00ebrgjegj\u00ebsimin publik mbi problematikat e transparenc\u00ebs dhe llogaridh\u00ebnies n\u00eb sektorin sh\u00ebndet\u00ebsor.<\/div><\/article>Fibroza cistike \u2013 Nj\u00eb patologji komplekse q\u00eb sistemi sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri vazhdon ta trajtoj\u00eb si “s\u00ebmundje mushk\u00ebrish”<\/h2><\/div><\/div>P\u00ebr shumic\u00ebn e njer\u00ebzve, fibroza cistike mbetet nj\u00eb s\u00ebmundje pak e njohur. P\u00ebr m\u00eb shum\u00eb se 150 pacient\u00ebt dhe familjet e tyre n\u00eb Shqip\u00ebri, ajo p\u00ebrfaq\u00ebson nj\u00eb betej\u00eb t\u00eb p\u00ebrditshme q\u00eb nuk zhvillohet vet\u00ebm me s\u00ebmundjen, por edhe me vet\u00eb sistemin sh\u00ebndet\u00ebsor dhe at\u00eb t\u00eb mbrojtjes sociale.\r\n\r\nMenaxhimi i fibroz\u00ebs cistike nuk kufizohet vet\u00ebm n\u00eb marrjen e medikamenteve. Ai k\u00ebrkon nj\u00eb qasje t\u00eb integruar dhe multidisiplinare, q\u00eb p\u00ebrfshin ndjekje t\u00eb specializuar mjek\u00ebsore, fizioterapi respiratore t\u00eb p\u00ebrditshme, mb\u00ebshtetje psikologjike, akses t\u00eb vazhduesh\u00ebm n\u00eb barna specifike, sh\u00ebrbime sociale dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb pasqyron ndikimin real t\u00eb s\u00ebmundjes n\u00eb jet\u00ebn dhe funksionimin e pacientit.\r\n\r\nMegjithat\u00eb, d\u00ebshmit\u00eb e pacient\u00ebve dhe prind\u00ebrve t\u00eb tyre tregojn\u00eb se, edhe pas zbatimit t\u00eb modelit bio-psiko-social p\u00ebr vler\u00ebsimin e aft\u00ebsis\u00eb s\u00eb kufizuar, shum\u00eb prej k\u00ebtyre nevojave vazhdojn\u00eb t\u00eb mos njihen dhe t\u00eb mos adresohen n\u00eb praktik\u00eb.\r\n\r\nReforma e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, e nisur n\u00eb vitin 2019, synon t\u00eb z\u00ebvend\u00ebsoj\u00eb modelin tradicional t\u00eb bazuar vet\u00ebm n\u00eb diagnoz\u00eb me nj\u00eb qasje q\u00eb vler\u00ebson ndikimin e gjendjes sh\u00ebndet\u00ebsore n\u00eb funksionimin e p\u00ebrditsh\u00ebm t\u00eb individit. Megjithat\u00eb, gjetjet e mbledhura gjat\u00eb fokus-grupit t\u00eb zhvilluar me persona me fibroz\u00eb cistike dhe prind\u00ebr t\u00eb f\u00ebmij\u00ebve t\u00eb diagnostikuar me k\u00ebt\u00eb patologji tregojn\u00eb se ky objektiv ende nuk po realizohet plot\u00ebsisht.\r\n\r\nPjes\u00ebmarr\u00ebsit raportojn\u00eb se komisionet e vler\u00ebsimit shpesh nuk funksionojn\u00eb si ekipe t\u00eb mir\u00ebfillta multidisiplinare, kan\u00eb njohuri t\u00eb kufizuara mbi fibroz\u00ebn cistike dhe, n\u00eb disa raste, nuk shqyrtojn\u00eb dokumentacionin mjek\u00ebsor p\u00ebrpara takimit me pacientin. Si pasoj\u00eb, vler\u00ebsimi mb\u00ebshtetet m\u00eb shum\u00eb n\u00eb pamjen e jashtme t\u00eb personit sesa n\u00eb kufizimet funksionale dhe barr\u00ebn reale q\u00eb s\u00ebmundja imponon n\u00eb jet\u00ebn e p\u00ebrditshme.\r\n\r\nKy \u00ebsht\u00eb nj\u00eb paradoks q\u00eb bie ndesh me vet\u00eb filozofin\u00eb e modelit bio-psiko-social. Fibroza cistike \u00ebsht\u00eb nj\u00eb s\u00ebmundje kronike, progresive dhe multisistemike, e cila n\u00eb shum\u00eb raste nuk shfaq shenja t\u00eb dukshme fizike, por k\u00ebrkon trajtim t\u00eb p\u00ebrhersh\u00ebm, terapi t\u00eb p\u00ebrditshme dhe kujdes kompleks p\u00ebr t\u00eb parandaluar komplikacionet dhe p\u00ebr t\u00eb ruajtur cil\u00ebsin\u00eb e jet\u00ebs.\r\n\r\nKur vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar mb\u00ebshtetet kryesisht n\u00eb at\u00eb q\u00eb \"shihet me sy\", shum\u00eb pacient\u00eb klasifikohen me nj\u00eb shkall\u00eb m\u00eb t\u00eb ul\u00ebt t\u00eb r\u00ebnd\u00ebsis\u00eb s\u00eb s\u00ebmundjes nga ajo q\u00eb reflekton realisht gjendja e tyre sh\u00ebndet\u00ebsore. Si rrjedhoj\u00eb, nj\u00eb pjes\u00eb e tyre hasin v\u00ebshtir\u00ebsi n\u00eb p\u00ebrfitimin e mb\u00ebshtetjes ekonomike ose vler\u00ebsohen n\u00eb nivele q\u00eb nuk pasqyrojn\u00eb kostot reale t\u00eb jetes\u00ebs me fibroz\u00eb cistike.\r\n\r\n\"Her\u00ebn e par\u00eb komisioni vendosi q\u00eb f\u00ebmija im nuk i plot\u00ebsonte kriteret p\u00ebr t\u00eb p\u00ebrfituar KEMP. Kam dy f\u00ebmij\u00eb me fibroz\u00eb cistike, me t\u00eb nj\u00ebjt\u00ebn diagnoz\u00eb dhe n\u00eb t\u00eb nj\u00ebjt\u00ebn gjendje sh\u00ebndet\u00ebsore, por nj\u00ebri u vler\u00ebsua me r\u00ebndes\u00eb m\u00eb t\u00eb leht\u00eb t\u00eb s\u00ebmundjes, nd\u00ebrsa tjetri me r\u00ebndes\u00eb m\u00eb t\u00eb lart\u00eb. Nuk e kuptoj mbi \u00e7far\u00eb kriteresh b\u00ebhet ky vler\u00ebsim kur b\u00ebhet fjal\u00eb p\u00ebr t\u00eb nj\u00ebjt\u00ebn patologji\", shprehet R.XH., babai i dy f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike.\r\n\r\nK\u00ebto d\u00ebshmi tregojn\u00eb se nj\u00eb nga problemet themelore mbetet mungesa e njohjes institucionale t\u00eb fibroz\u00ebs cistike si nj\u00eb s\u00ebmundje komplekse. Edhe sot ajo vazhdon t\u00eb trajtohet kryesisht n\u00eb kuad\u00ebr t\u00eb patologjive pulmonare, nd\u00ebrkoh\u00eb q\u00eb prek nj\u00ebkoh\u00ebsisht mushk\u00ebrit\u00eb, pankreasin, sistemin tret\u00ebs, m\u00ebl\u00e7in\u00eb dhe organe t\u00eb tjera, duke k\u00ebrkuar kujdes multidisiplinar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nKy klasifikim ndikon jo vet\u00ebm n\u00eb m\u00ebnyr\u00ebn e organizimit t\u00eb trajtimit mjek\u00ebsor, por edhe n\u00eb procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar.\r\n\r\n\"N\u00eb dokumentacion paraqitet si nj\u00eb s\u00ebmundje e leht\u00eb\", shprehet L.H., n\u00ebna e nj\u00eb f\u00ebmije me fibroz\u00eb cistike, duke theksuar se komisionet shpesh nuk arrijn\u00eb t\u00eb kuptojn\u00eb se b\u00ebhet fjal\u00eb p\u00ebr nj\u00eb patologji kronike, progresive dhe potencialisht k\u00ebrc\u00ebnuese p\u00ebr jet\u00ebn.\r\n\r\nMungesa e protokollit t\u00eb trajtimit shoq\u00ebrohet me munges\u00ebn e munges\u00ebn e rimbursimit t\u00eb medikamenteve t\u00eb domosdoshme p\u00ebr trajtim\r\n\r\nMungesa e protokolleve t\u00eb p\u00ebrdit\u00ebsuara t\u00eb trajtimit dhe rimbursimit t\u00eb medikamenteve r\u00ebndon barr\u00ebn e pacient\u00ebve me fibroz\u00eb cistike\r\n\r\nP\u00ebrtej sfidave q\u00eb lidhen me procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, pacient\u00ebt me fibroz\u00eb cistike p\u00ebrballen edhe me munges\u00ebn e nj\u00eb modeli t\u00eb integruar t\u00eb kujdesit sh\u00ebndet\u00ebsor, i cili t\u00eb garantoj\u00eb trajtim t\u00eb standardizuar, vazhdim\u00ebsi t\u00eb sh\u00ebrbimeve dhe mb\u00ebshtetje t\u00eb specializuar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nPrind\u00ebrit e f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike raportojn\u00eb se q\u00eb n\u00eb momentin e diagnostikimit nuk marrin mb\u00ebshtetje psikologjike dhe as informacion t\u00eb strukturuar mbi m\u00ebnyr\u00ebn e menaxhimit t\u00eb s\u00ebmundjes apo protokollet e trajtimit. N\u00eb munges\u00eb t\u00eb nj\u00eb sistemi t\u00eb organizuar informimi dhe edukimi p\u00ebr pacient\u00ebt, familjet detyrohen t\u00eb k\u00ebrkojn\u00eb informacion nga organizata nd\u00ebrkomb\u00ebtare, rrjete mb\u00ebshtet\u00ebse, media sociale ose nga prind\u00ebr t\u00eb tjer\u00eb q\u00eb kan\u00eb kaluar t\u00eb nj\u00ebjt\u00ebn p\u00ebrvoj\u00eb. N\u00eb shum\u00eb raste, vet\u00eb familjet jan\u00eb shnd\u00ebrruar n\u00eb burimin kryesor t\u00eb informacionit dhe orientimit p\u00ebr pacient\u00ebt e sapodiagnostikuar, duke z\u00ebvend\u00ebsuar rolin q\u00eb duhet t\u00eb luajn\u00eb institucionet sh\u00ebndet\u00ebsore.\r\n\r\nNj\u00eb nga shqet\u00ebsimet m\u00eb serioze t\u00eb ngritura gjat\u00eb fokus-grupit lidhet me faktin se trajtimi i fibroz\u00ebs cistike n\u00eb Shqip\u00ebri vazhdon t\u00eb mb\u00ebshtetet n\u00eb nj\u00eb protokoll klinik t\u00eb miratuar n\u00eb vitin 2008, i cili nuk reflekton zhvillimet e fundit shkencore dhe standardet bashk\u00ebkohore t\u00eb trajtimit t\u00eb k\u00ebsaj patologjie. Sipas pjes\u00ebmarr\u00ebsve, protokolli p\u00ebrfshin medikamente q\u00eb nuk jan\u00eb m\u00eb t\u00eb disponueshme n\u00eb treg ose nuk p\u00ebrfaq\u00ebsojn\u00eb m\u00eb terapit\u00eb e rekomanduara sipas praktikave nd\u00ebrkomb\u00ebtare.\r\n\r\nMungesa e p\u00ebrdit\u00ebsimit t\u00eb protokollit ndikon drejtp\u00ebrdrejt edhe n\u00eb skem\u00ebn e rimbursimit t\u00eb barnave. Nj\u00eb pjes\u00eb e konsiderueshme e medikamenteve dhe produkteve t\u00eb nevojshme p\u00ebr menaxhimin e p\u00ebrditsh\u00ebm t\u00eb s\u00ebmundjes nuk mbulohen nga sistemi publik, duke detyruar familjet t'i sigurojn\u00eb ato me shpenzimet e tyre ose t'i blejn\u00eb jasht\u00eb Shqip\u00ebris\u00eb. P\u00ebr shum\u00eb familje, kjo p\u00ebrkthehet n\u00eb nj\u00eb barr\u00eb t\u00eb r\u00ebnd\u00eb financiare, nd\u00ebrkoh\u00eb q\u00eb nd\u00ebrprerja ose mungesa e trajtimit mund t\u00eb p\u00ebrshpejtoj\u00eb p\u00ebrkeq\u00ebsimin e gjendjes sh\u00ebndet\u00ebsore dhe t\u00eb rrezikoj\u00eb jet\u00ebgjat\u00ebsin\u00eb e pacient\u00ebve.\r\n\r\nNj\u00eb tjet\u00ebr problem strukturor lidhet me munges\u00ebn e vazhdim\u00ebsis\u00eb s\u00eb kujdesit pas mosh\u00ebs pediatrike. Sipas d\u00ebshmive t\u00eb prind\u00ebrve, pas mosh\u00ebs 16-vje\u00e7are pacient\u00ebt p\u00ebrballen me munges\u00ebn e sh\u00ebrbimeve t\u00eb specializuara dhe t\u00eb mjek\u00ebve t\u00eb trajnuar p\u00ebr trajtimin e fibroz\u00ebs cistike tek t\u00eb rriturit. Ky boshll\u00ebk n\u00eb sistem krijon nd\u00ebrprerje n\u00eb ndjekjen mjek\u00ebsore, cenon vazhdim\u00ebsin\u00eb e trajtimit dhe rrit rrezikun e komplikacioneve afatgjata.\r\n\r\nN\u00eb thelb, problemi nuk q\u00ebndron vet\u00ebm te mungesa e medikamenteve apo e protokolleve t\u00eb p\u00ebrdit\u00ebsuara, por te fakti se sistemi sh\u00ebndet\u00ebsor ende nuk e njeh fibroz\u00ebn cistike si nj\u00eb s\u00ebmundje komplekse q\u00eb k\u00ebrkon nj\u00eb qasje multidisiplinare dhe t\u00eb koordinuar. P\u00ebr sa koh\u00eb mungojn\u00eb protokollet e p\u00ebrdit\u00ebsuara sipas evidencave shkencore, rimbursimi i plot\u00eb i terapive t\u00eb domosdoshme, ekipet multidisiplinare dhe sh\u00ebrbimet e specializuara p\u00ebrgjat\u00eb gjith\u00eb ciklit t\u00eb jet\u00ebs s\u00eb pacientit, edhe zbatimi i modelit bio-psiko-social t\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar mbetet i pamjaftuesh\u00ebm p\u00ebr t'iu p\u00ebrgjigjur nevojave reale t\u00eb k\u00ebsaj kategorie.\r\n\r\nP\u00ebrmir\u00ebsimi i situat\u00ebs k\u00ebrkon nj\u00eb qasje t\u00eb integruar t\u00eb politikave publike. Kjo n\u00ebnkupton njohjen e fibroz\u00ebs cistike si nj\u00eb patologji komplekse dhe multisistemike, p\u00ebrdit\u00ebsimin e protokolleve komb\u00ebtare t\u00eb trajtimit n\u00eb p\u00ebrputhje me standardet nd\u00ebrkomb\u00ebtare, zgjerimin e list\u00ebs s\u00eb barnave t\u00eb rimbursueshme, krijimin e ekipeve multidisiplinare t\u00eb specializuara, garantimin e tranzicionit t\u00eb sigurt nga sh\u00ebrbimet pediatrike n\u00eb ato p\u00ebr t\u00eb rriturit, si dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb reflekton kufizimet funksionale dhe nevojat reale t\u00eb pacient\u00ebve, e jo vet\u00ebm diagnoz\u00ebn klinike.\r\n\r\n\r\n\r\n\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.<\/div><\/article>Rasti i pacientit n\u00eb Durr\u00ebs: Nj\u00eb alarm p\u00ebr aksesin e barabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit<\/h2><\/div><\/div>Ka ngjarje q\u00eb n\u00eb rrjetet sociale zgjasin vet\u00ebm pak minuta dhe pastaj harrohen si t\u00eb mos kishin ndodhur kurr\u00eb. Por ka edhe t\u00eb tilla q\u00eb kan\u00eb jehon\u00eb t\u00eb gjat\u00eb dhe marrin edhe reagimin e institucioneve. Rasti i pacientit 52-vje\u00e7ar n\u00eb Durr\u00ebs \u00ebsht\u00eb nj\u00ebri prej tyre.\r\n\r\nPamjet e nj\u00eb burri t\u00eb s\u00ebmur\u00eb, q\u00eb sipas informacioneve t\u00eb para ishte transportuar me ambulanc\u00eb nga Spitali i Durr\u00ebsit p\u00ebr t\u2019u braktisur n\u00eb \u2018rrug\u00eb\u2019, trondit\u00ebn opinionin publik. Reagime t\u00eb shumta pasuan, versione kontradiktore dhe deklarata institucionale. Fillimisht u raportua se pacienti kishte nd\u00ebrruar jet\u00eb, por m\u00eb pas Spitali Rajonal i Durr\u00ebsit sqaroi se ai ishte gjall\u00eb dhe ndodhej s\u00ebrish n\u00ebn kujdes mjek\u00ebsor, nd\u00ebrsa dy dit\u00eb pas ngjarjes Ministria e Sh\u00ebndet\u00ebsis\u00eb urdh\u00ebroi nisjen e nj\u00eb hetimi administrativ.\r\n\r\nMegjithat\u00eb, edhe pas reagimeve zyrtare, ende shum\u00eb pyetje mbeten ende pa p\u00ebrgjigje.\r\n\r\nN\u00ebse pacienti ishte n\u00eb gjendje t\u00eb stabilizuar dhe trajtimi spitalor kishte p\u00ebrfunduar, si ka mund\u00ebsi q\u00eb vet\u00ebm pak or\u00eb m\u00eb von\u00eb ai u rikthye n\u00eb spital dhe iu n\u00ebnshtrua menj\u00ebher\u00eb nj\u00eb nd\u00ebrhyrjeje tjet\u00ebr kirurgjikale, e cila p\u00ebrfundoi me amputimin e nj\u00ebr\u00ebs k\u00ebmb\u00eb? N\u00ebse, p\u00ebrkundrazi, gjendja e tij k\u00ebrkonte ende monitorim dhe nd\u00ebrhyrje, p\u00ebrse u largua nga spitali?\r\n\r\nK\u00ebto jan\u00eb pyetje q\u00eb lidhen drejtp\u00ebrdrejt me standardet e kujdesit sh\u00ebndet\u00ebsor publik n\u00eb Shqip\u00ebri.\r\n\r\nPo aq e r\u00ebnd\u00ebsishme \u00ebsht\u00eb q\u00eb institucionet t\u00eb sqarojn\u00eb se si ka funksionuar zinxhiri i vendimmarrjes n\u00eb k\u00ebt\u00eb rast. Kush e mori vendimin p\u00ebr daljen nga spitali t\u00eb pacientit t\u00eb s\u00ebmur\u00eb? Cilat ishin kriteret mjek\u00ebsore q\u00eb u ndoq\u00ebn nga vemdimarr\u00ebsit p\u00ebr rastin? A pat\u00ebn dhe a duhet t\u00eb kishin rol sh\u00ebrbimet sociale n\u00eb nj\u00eb koh\u00eb q\u00eb prej vitesh po trumbetohet nga institucionet ngritja e sh\u00ebrbimeve multidisiplinare, ku p\u00ebrfshihen sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe sociale? Dhe, a ekziston dokumentacioni q\u00eb provon se pacienti iu dor\u00ebzua v\u00ebrtet\u00eb nj\u00eb familjari, si\u00e7 deklaron spitali?\r\n\r\nNga ana tjet\u00ebr, edhe deklarata e Spitalit Rajonal t\u00eb Durr\u00ebsit ngre t\u00eb tjera pyetje. Institucioni pohon se pacienti nuk kishte vend ku t\u00eb q\u00ebndronte, se u njoftuan sh\u00ebrbimet sociale dhe Policia e Shtetit dhe se nj\u00eb familjar pranoi ta merrte n\u00eb banes\u00eb. Megjithat\u00eb, deri m\u00eb sot nuk \u00ebsht\u00eb ofruar asnj\u00eb informacion q\u00eb t\u00eb sqaroj\u00eb se kush ishte familjari (sigurisht jo t\u00eb dh\u00ebnat personale t\u00eb tij), ku ndodhej banesa apo n\u00ebse pacienti q\u00ebndroi realisht aty. P\u00ebrkundrazi, persona q\u00eb deklarojn\u00eb se e njihnin pacientin kan\u00eb pohuar publikisht se ai nuk kishte asnj\u00eb familjar q\u00eb t\u00eb kujdesej p\u00ebr t\u00eb dhe as nj\u00eb banes\u00eb ku t\u00eb strehohej. Ndaj, n\u00eb k\u00ebt\u00eb rast hetimi nuk mund t\u00eb kufizohet vet\u00ebm tek ndjekja e procedurave dhe protokolleve mjek\u00ebsore. Hetimit duhet t\u2019i n\u00ebnshtrohen t\u00eb gjitha hallkat e mekanizmave mbrojt\u00ebs, p\u00ebrfshi ato sociale.\r\n\r\nRasti i pacientit nga Durr\u00ebsi rikthen n\u00eb v\u00ebmendje nj\u00eb problem q\u00eb Together for Life e ka ngritur prej vitesh: qasjen e pabarabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore p\u00ebr pacient\u00ebt m\u00eb vulnerab\u00ebl. N\u00ebse do t\u2019i referohemi dokumentave strategjike, legjislacionit dhe deklaratave publike t\u00eb drejtuesve t\u00eb sh\u00ebndet\u00ebsis\u00eb sistemi publik garanton kujdes sh\u00ebndet\u00ebsor t\u00eb barabart\u00eb dhe t\u00eb aksesuesh\u00ebm p\u00ebr t\u00eb gjith\u00eb. Megjithat\u00eb, n\u00eb shum\u00eb raste, p\u00ebrfshi edhe k\u00ebt\u00eb t\u00eb fundit, pacient\u00ebt q\u00eb klasifikohet tek grupet me t\u00eb c\u00ebnueshme si ata nga familje t\u00eb varfra, t\u00eb braktisurit, personat me probleme t\u00eb sh\u00ebndetit mendor apo q\u00eb jetojn\u00eb n\u00eb kushte t\u00eb r\u00ebnda social-ekonomike p\u00ebrballen shpesh me barriera t\u00eb m\u00ebdha q\u00eb ua b\u00ebjn\u00eb t\u00eb v\u00ebshtir\u00eb, madje t\u00eb pamundur marrjen e trajtimit sh\u00ebndet\u00ebsor p\u00ebr t\u00eb cilin kan\u00eb nevoj\u00eb.\r\n\r\nN\u00ebse statusi social i nj\u00eb pacienti ndikon n\u00eb m\u00ebnyr\u00ebn se si ai trajtohet nga institucionet, at\u00ebher\u00eb nuk kemi t\u00eb b\u00ebjm\u00eb vet\u00ebm me nj\u00eb problem administrativ. Kemi t\u00eb b\u00ebjm\u00eb me c\u00ebnimin e parimit t\u00eb barazis\u00eb n\u00eb aksesin ndaj sh\u00ebrbimeve publike.\r\n\r\nFakti q\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb ka urdh\u00ebruar nj\u00eb hetim administrativ dhe se Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi ka nisur nj\u00eb procedur\u00eb hetimore kryesisht, \u00ebsht\u00eb p\u00ebr t\u2019u vler\u00ebsuar, por ende jo i mjaftuesh\u00ebm. P\u00ebrtej hetimit administrativ t\u00eb nisur nga dy institucionet e m\u00ebsip\u00ebrme, ky rast ngre edhe nj\u00eb tjet\u00ebr \u00e7\u00ebshtje me r\u00ebnd\u00ebsi publike: mbrojtjen e t\u00eb dh\u00ebnave personale t\u00eb pacientit. Publikimi nga institucioni spitalor i identitetit, diagnoz\u00ebs, historis\u00eb klinike dhe informacioneve tep\u00ebr sensitive, si statusi HIV dhe p\u00ebrdorimi i substancave narkotike, shtrojn\u00eb pyetjen n\u00ebse jan\u00eb respektuar detyrimet ligjore p\u00ebr konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore. Edhe n\u00ebse synimi ishte mbrojtja e institucionit nga akuzat publike, kjo nuk mund t\u00eb justifikoj\u00eb ekspozimin e t\u00eb dh\u00ebnave q\u00eb mbrohen nga legjislacioni shqiptar, Konventa Evropiane p\u00ebr t\u00eb Drejtat e Njeriut, Rregullorja Evropiane p\u00ebr Mbrojtjen e t\u00eb Dh\u00ebnave (GDPR) dhe parimet universale t\u00eb etik\u00ebs mjek\u00ebsore. Konfidencialiteti nuk \u00ebsht\u00eb nj\u00eb formalitet administrativ, \u00ebsht\u00eb element shum\u00eb i r\u00ebnd\u00ebsish\u00ebm p\u00ebr t\u00eb garantuar dinjitetin e pacientit.\r\n\r\nNdaj kjo ngjarje nuk duhet t\u00eb reduktohet vet\u00ebm n\u00eb debatin n\u00ebse pacienti u \"braktis\" apo jo. Kjo \u00ebsht\u00eb vet\u00ebm nj\u00eb pjes\u00eb e historis\u00eb. Pyetja m\u00eb e r\u00ebnd\u00ebsishme n\u00eb k\u00ebt\u00eb rast \u00ebsht\u00eb n\u00ebse sistemi funksionoi ashtu si\u00e7 duhet p\u00ebr nj\u00eb qytetar n\u00eb nevoj\u00eb. N\u00ebse u respektuan standardet profesionale. N\u00ebse institucionet bashk\u00ebpunuan si\u00e7 duhet. N\u00ebse t\u00eb drejtat e pacientit u mbrojt\u00ebn. Dhe n\u00ebse, p\u00ebrtej p\u00ebrgjegj\u00ebsive individuale, ky rast nxjerr n\u00eb pah mang\u00ebsi strukturore q\u00eb k\u00ebrkojn\u00eb reagim t\u00eb menj\u00ebher\u00ebsh.\r\n\r\nSepse nj\u00eb sistem sh\u00ebndet\u00ebsor nuk matet vet\u00ebm me buxhetin e alokuar nga fondet publike, q\u00eb p\u00ebr hir t\u00eb s\u00eb v\u00ebrtet\u00ebs vazhdojn\u00eb t\u00eb jen\u00eb m\u00eb t\u00eb ultat n\u00eb Rajon, por, mbi t\u00eb gjitha, matet me m\u00ebnyr\u00ebn si i trajton pacient\u00ebt, ve\u00e7an\u00ebrisht m\u00eb t\u00eb pambrojturit dhe t\u00eb rrezikuarit.\r\n\r\n \r\n\r\nREAGIMET E INSTITUCIONEVE \r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebq\u00ebnies Sociale - Lidhur me trajtimin e rastit t\u00eb pacientit 52-vje\u00e7ar A.A., nga qyteti i Durr\u00ebsit, Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale ka urdh\u00ebruar nisjen e nj\u00eb hetimi t\u00eb thelluar administrativ, i cili do t\u00eb shqyrtoj\u00eb n\u00eb m\u00ebnyr\u00eb t\u00eb plot\u00eb jo vet\u00ebm procedurat dhe masat e marra nga struktura spitalore, por edhe veprimet dhe p\u00ebrgjegj\u00ebsit\u00eb e strukturave t\u00eb sh\u00ebrbimit social t\u00eb p\u00ebrfshira n\u00eb k\u00ebt\u00eb rast.\r\n\r\nN\u00eb kuad\u00ebr t\u00eb k\u00ebtij procesi, drejtuesit e Operatorit t\u00eb Sh\u00ebrbimeve t\u00eb Kujdesit Sh\u00ebndet\u00ebsor dhe t\u00eb Sh\u00ebrbimit Social Shtet\u00ebror jan\u00eb n\u00eb terren p\u00ebr t\u00eb kryer verifikime t\u00eb drejtp\u00ebrdrejta dhe p\u00ebr t\u00eb mbik\u00ebqyrur procesin e hetimit administrativ t\u00eb strukturave n\u00eb qytetin e Durr\u00ebsit.\r\n\r\nNd\u00ebrkoh\u00eb, pacienti ndodhet n\u00ebn kujdesin e strukturave sh\u00ebndet\u00ebsore n\u00eb spitalin rajonal t\u00eb Durr\u00ebsit.\r\n\r\nGjithashtu, po verifikohet i gjith\u00eb dokumentacioni sh\u00ebndet\u00ebsor dhe administrativ, si edhe p\u00ebrgjegj\u00ebsia e personave t\u00eb p\u00ebrfshir\u00eb n\u00eb menaxhimin dhe transportimin e pacientit.\r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale mbetet e angazhuar p\u00ebr t\u00eb garantuar transparenc\u00eb t\u00eb plot\u00eb, zbardhjen e t\u00eb gjitha rrethanave t\u00eb k\u00ebtij rasti dhe marrjen e \u00e7do mase administrative apo ligjore q\u00eb do t\u00eb rezultoj\u00eb e nevojshme.\r\n\r\n\u00a0\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi - Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin kryesisht p\u00ebr rastin e b\u00ebr\u00eb publik n\u00eb Spitalin Rajonal t\u00eb Durr\u00ebsit\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin \u201cex-officio\u201d t\u00eb \u00e7\u00ebshtjes n\u00eb lidhje me trajtimin dhe ofrimin e sh\u00ebrbimeve t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe shoq\u00ebror ndaj shtetasit t\u00eb identifikuar si A.A, 52 vje\u00e7, nga qyteti i Durr\u00ebsit.\r\n\r\nPas informacioneve t\u00eb b\u00ebra publike n\u00eb media, Komisioneri ka vendosur fillimin e procedur\u00ebs administrative kryesisht, n\u00eb zbatim t\u00eb Ligjit nr. 10221, dat\u00eb 04.02.2010, \u201cP\u00ebr Mbrojtjen nga Diskriminimi\u201d si dhe dispozitat e Kodit t\u00eb Procedurave Administrative, p\u00ebr t\u00eb verifikuar n\u00ebse n\u00eb rastin konkret jan\u00eb respektuar parimet e trajtimit t\u00eb barabart\u00eb dhe mosdiskriminimit n\u00eb ofrimin e sh\u00ebrbimeve sh\u00ebndet\u00ebsore dhe shoq\u00ebrore.\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi mbetet i angazhuar n\u00eb garantimin e s\u00eb drejt\u00ebs s\u00eb \u00e7do individi p\u00ebr trajtim t\u00eb barabart\u00eb dhe akses pa diskriminim n\u00eb sh\u00ebrbimet publike dhe private, duke nd\u00ebrhyr\u00eb n\u00eb \u00e7do rast kur ka indicie se k\u00ebto t\u00eb drejta mund t\u00eb jen\u00eb c\u00ebnuar.\r\n\r\n \r\n\r\nSpitali Rajonal i Durr\u00ebsit - N\u00eb lidhje me lajmin e publikuar n\u00eb media, sipas t\u00eb cilit nj\u00eb pacient i trajtuar m\u00eb par\u00eb n\u00eb Spitalin Rajonal Durr\u00ebs ka nd\u00ebrruar jet\u00eb, sqarojm\u00eb se ky informacion nuk \u00ebsht\u00eb i v\u00ebrtet\u00eb.\r\n\r\nPacienti \u00ebsht\u00eb paraqitur s\u00ebrish dit\u00ebn e djeshme n\u00eb Sh\u00ebrbimin e Urgjenc\u00ebs t\u00eb Spitalit Rajonal Durr\u00ebs, ku vijon t\u00eb q\u00ebndroj\u00eb n\u00ebn kujdesin dhe vler\u00ebsimin e personelit mjek\u00ebsor.\r\n\r\nP\u00ebr informimin e plot\u00eb t\u00eb opinionit publik b\u00ebjm\u00eb me dije se pacienti ishte trajtuar m\u00eb par\u00eb n\u00eb QSUT, ku i ishte kryer nj\u00eb nd\u00ebrhyrje nga mjek\u00ebt kirurg\u00eb vaskular\u00eb n\u00eb en\u00ebt e gjakut t\u00eb k\u00ebmb\u00ebs s\u00eb majt\u00eb. Pas komunikimit nd\u00ebrmjet mjek\u00ebve, ai u shtrua n\u00eb Spitalin Rajonal Durr\u00ebs, ku q\u00ebndroi dhe u trajtua p\u00ebr disa jav\u00eb, duke marr\u00eb kujdesin e nevojsh\u00ebm mjek\u00ebsor n\u00eb p\u00ebrputhje me gjendjen e tij sh\u00ebndet\u00ebsore.\r\n\r\nPas stabilizimit t\u00eb parametrave klinik\u00eb dhe p\u00ebrfundimit t\u00eb trajtimit spitalor, pacientit iu p\u00ebrgatit epikriza dhe iu komunikua dalja nga spitali. Duke qen\u00eb se ai deklaroi se nuk kishte nj\u00eb vend ku t\u00eb q\u00ebndronte, strukturat e spitalit njoftuan sh\u00ebrbimin social dhe organet e Policis\u00eb s\u00eb Shtetit, me q\u00ebllim gjetjen e nj\u00eb zgjidhjeje t\u00eb sigurt sociale dhe familjare.\r\n\r\nPas komunikimeve t\u00eb kryera nga strukturat p\u00ebrkat\u00ebse, nj\u00eb familjar deklaroi se do ta merrte pran\u00eb banes\u00ebs s\u00eb tij. Pacienti u transportua me autoambulanc\u00eb deri n\u00eb destinacion, i shoq\u00ebruar nga punonj\u00ebs t\u00eb Policis\u00eb s\u00eb Shtetit, dhe iu dor\u00ebzua familjarit.\r\n\r\nP\u00ebr rrjedhoj\u00eb, sqarojm\u00eb se pacienti nuk \u00ebsht\u00eb nxjerr\u00eb apo braktisur n\u00eb rrug\u00eb nga Spitali Rajonal Durr\u00ebs, si\u00e7 pretendohet n\u00eb publikim. Dalja e tij nga spitali \u00ebsht\u00eb kryer pas p\u00ebrfundimit t\u00eb trajtimit, me dokumentacionin p\u00ebrkat\u00ebs mjek\u00ebsor dhe pas koordinimit me strukturat sociale, policore dhe familjare.\r\n\r\nSpitali Rajonal Durr\u00ebs u b\u00ebn thirrje mediave q\u00eb, ve\u00e7an\u00ebrisht n\u00eb raste kaq t\u00eb ndjeshme, informacioni t\u00eb verifikohet pran\u00eb institucioneve p\u00ebrkat\u00ebse p\u00ebrpara publikimit.\r\n\r\nInstitucioni yn\u00eb mbetet i angazhuar p\u00ebr ofrimin e kujdesit sh\u00ebndet\u00ebsor dhe p\u00ebr bashk\u00ebpunimin me \u00e7do autoritet kompetent, duke respektuar konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit.<\/div><\/article>TFL, fokus grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje<\/h2><\/div><\/div>Together for Life\u00a0zhvilloi nj\u00eb fokus-grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje, p\u00ebr t\u00eb\u00a0diskutuar ndikimin q\u00eb\u00a0ka pasur zbatimi\u00a0i skem\u00ebs s\u00eb\u00a0re t\u00eb vler\u00ebsimit\u00a0t\u00eb aft\u00ebsis\u00eb s\u00eb\u00a0kufizuar, bazuar n\u00eb\u00a0modelin\u00a0bio-psiko-social, si dhe sfidat\u00a0q\u00eb ata vazhdojn\u00eb\u00a0t\u00eb p\u00ebrballen \u00e7do\u00a0dit\u00eb.\r\n\r\nGjat\u00eb diskutimit u ngrit\u00ebn shqet\u00ebsime serioze mbi:\r\n\u2022 v\u00ebshtir\u00ebsit\u00eb n\u00eb procesin\u00a0e vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe munges\u00ebn e\u00a0njohjes s\u00eb plot\u00eb\u00a0t\u00eb k\u00ebsaj patologjie\u00a0nga komisionet e\u00a0vler\u00ebsimit;\r\n\u2022 munges\u00ebn e mb\u00ebshtetjes\u00a0psikologjike p\u00ebr pacient\u00ebt\u00a0dhe familjet q\u00eb\u00a0nga momenti i\u00a0diagnostikimit;\r\n\u2022 aksesin e kufizuar n\u00eb trajtime\u00a0dhe medikamente t\u00eb\u00a0domosdoshme, shum\u00eb prej\u00a0t\u00eb cilave mbeten\u00a0t\u00eb pap\u00ebrballueshme financiarisht;\r\n\u2022 munges\u00ebn e nj\u00eb\u00a0qasjeje t\u00eb integruar\u00a0p\u00ebr mbulimin e\u00a0nevojave sh\u00ebndet\u00ebsore,\u00a0sociale dhe t\u00eb\u00a0pun\u00ebsimit;\r\n\u2022 nevoj\u00ebn p\u00ebr politika\u00a0publike q\u00eb njohin\u00a0fibroz\u00ebn\u00a0cistike si nj\u00eb\u00a0s\u00ebmundje komplekse, q\u00eb\u00a0k\u00ebrkon trajtim multidisiplinar\u00a0dhe mb\u00ebshtetje t\u00eb\u00a0vazhdueshme.\r\n\r\nKy fokus-grup\u00a0\u00ebsht\u00eb pjes\u00eb\u00a0e monitorimit t\u00eb\u00a0efekteve t\u00eb reform\u00ebs\u00a0s\u00eb vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe synon t\u00eb\u00a0siguroj\u00eb q\u00eb z\u00ebri\u00a0dhe p\u00ebrvoja e\u00a0personave t\u00eb\u00a0prekur t\u00eb reflektohen\u00a0n\u00eb p\u00ebrmir\u00ebsimin e\u00a0politikave publike.\r\nAskush nuk duhet\u00a0t\u00eb mbetet pa\u00a0mb\u00ebshtetje p\u00ebr shkak\u00a0t\u00eb nj\u00eb sistemi\u00a0q\u00eb nuk arrin\u00a0t\u00eb kuptoj\u00eb kompleksitetin\u00a0e nevojave t\u00eb\u00a0tij.\r\n\r\n***\r\nTogether for Life organized a focus group with people living with cystic fibrosis and parents of children affected by the condition to discuss the impact of the implementation of the new disability assessment scheme based on the bio-psycho-social model, as well as the challenges they continue to face in accessing healthcare, social protection, and employment opportunities.\r\n\r\nParticipants highlighted several critical concerns, including:\r\n\u2022 challenges in the disability assessment process and the limited recognition of cystic fibrosis by assessment commissions;\r\n\u2022 the lack of psychological support for patients and their families from the moment of diagnosis;\r\n\u2022 limited access to essential medicines and treatment, many of which remain financially out of reach;\r\n\u2022 the absence of an integrated approach to addressing healthcare, social, and employment needs;\r\n\u2022 the urgent need for public policies that recognize cystic fibrosis as a complex condition requiring multidisciplinary care and long-term support.\r\n\r\nThis focus group forms part of the broader monitoring of the effects of Albania's disability assessment reform and aims to ensure that the experiences and voices of people living with cystic fibrosis are reflected in future policy improvements.<\/div><\/article>Trajnim me gazetar\u00eb\/ Raportimi etik i Dhun\u00ebs me Baz\u00eb Gjinore: Roli i Medias n\u00eb Nd\u00ebrgjegj\u00ebsimin Publik dhe Promovimin e Barazis\u00eb Gjinore<\/h2><\/div><\/div>\ud835\udc0a\ud835\udc2e\ud835\udc2b \ud835\udc20\ud835\udc1a\ud835\udc33\ud835\udc1e\ud835\udc2d\ud835\udc1a\ud835\udc2b\ud835\udc22 \ud835\udc2b\ud835\udc1a\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc28\ud835\udc27 \ud835\udc29\u00eb\ud835\udc2b \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc26\ud835\udc1e \ud835\udc1b\ud835\udc1a\ud835\udc33\u00eb \ud835\udc20\ud835\udc23\ud835\udc22\ud835\udc27\ud835\udc28\ud835\udc2b\ud835\udc1e \ud835\udc1a\ud835\udc29\ud835\udc28 \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc27\u00eb \ud835\udc1f\ud835\udc1a\ud835\udc26\ud835\udc22\ud835\udc25\ud835\udc23\ud835\udc1e, \ud835\udc27\ud835\udc2e\ud835\udc24 \ud835\udc29\ud835\udc28 \ud835\udc2d\ud835\udc2b\ud835\udc1e\ud835\udc20\ud835\udc28\ud835\udc27 \ud835\udc2d\ud835\udc21\ud835\udc23\ud835\udc1e\ud835\udc2c\ud835\udc21\ud835\udc2d \ud835\udc27\ud835\udc23\u00eb \ud835\udc21\ud835\udc22\ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc22. \ud835\udc0f\ud835\udc28 \ud835\udc27\ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc28\ud835\udc27 \ud835\udc27\u00eb \ud835\udc23\ud835\udc1e\ud835\udc2d\u00eb\ud835\udc27 \ud835\udc1e \ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc2e\ud835\udc23\ud835\udc2d.\n\n\n\nGjat\u00eb muajve qershor dhe korrik, gazetar\u00eb nga media t\u00eb ndryshme u b\u00ebn\u00eb pjes\u00eb e nj\u00eb serie trajnimesh kushtuar raportimit etik dhe profesional t\u00eb rasteve t\u00eb dhun\u00ebs me baz\u00eb gjinore dhe dhun\u00ebs n\u00eb familje, t\u00eb organizuara nga Together for Life, n\u00eb kuad\u00ebr t\u00eb \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc24\ud835\udc2d\ud835\udc22\ud835\udc2d \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 \u2013 \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a, i cili zbatohet nga nj\u00eb konsorcium organizatash dhe financohet nga Bashkimi Evropian.\n\n\n\n\nP\u00ebrmes analiz\u00ebs s\u00eb rasteve reale q\u00eb kan\u00eb tronditur opinionin publik pjes\u00ebmarr\u00ebsit diskutuan jo vet\u00ebm \u00e7far\u00eb raportohet, por mbi t\u00eb gjitha si raportohet.\n\n\n\nSepse gazetaria ka fuqin\u00eb:\nt\u00eb informoj\u00eb pa d\u00ebmtuar ask\u00ebnd;\n\u00a0t\u00eb mbroj\u00eb dinjitetin dhe privat\u00ebsin\u00eb e t\u00eb mbijetuarve;\n\u00a0t\u00eb edukoj\u00eb publikun;\nt\u00eb k\u00ebrkoj\u00eb llogari nga institucionet p\u00ebrgjegj\u00ebse \u2013 p\u00ebrfshir\u00eb sistemin sh\u00ebndet\u00ebsor, policin\u00eb, prokurorin\u00eb dhe sh\u00ebrbimet sociale \u2013 p\u00ebr m\u00ebnyr\u00ebn se si identifikojn\u00eb, raportojn\u00eb dhe menaxhojn\u00eb rastet e dhun\u00ebs.\n\n\nNj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e diskutimeve mes kolegeve gazetare iu kushtua sfid\u00ebs s\u00eb medias p\u00ebr t\u00eb mos r\u00ebn\u00eb pre e gar\u00ebs p\u00ebr klikime, duke shmangur gjuh\u00ebn q\u00eb romantizon dhun\u00ebn, faj\u00ebson viktim\u00ebn, cenon privat\u00ebsin\u00eb ose riviktimizon t\u00eb mbijetuarit.\n\n\n\nP\u00ebrmes metodave interaktive, si Mentimeter, gazetar\u00ebt testuan njohurit\u00eb e tyre, sfiduan perceptimet dhe reflektuan mbi p\u00ebrgjegj\u00ebsin\u00eb q\u00eb mbart \u00e7do lajm i publikuar. Sepse nj\u00eb raportim i mir\u00eb nuk matet vet\u00ebm me numrin e klikimeve.\n\n\n\n\nAi matet me ndikimin q\u00eb l\u00eb tek njer\u00ebzit, me besimin q\u00eb nd\u00ebrton dhe me kontributin q\u00eb jep p\u00ebr nj\u00eb shoq\u00ebri q\u00eb nuk e normalizon dhun\u00ebn, por e denon at\u00eb.\n\n\nKy publikim u realizua n\u00eb kuad\u00ebr t\u00eb iniciativ\u00ebs \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, t\u00eb zbatuar nga Gender Alliance for Development Centre (GADC), Together for Life dhe Institute of Romani Culture in Albania (IRCA), mb\u00ebshtetur financiarisht nga Bashkimi Evropian. P\u00ebrmbajtja e k\u00ebtij dokumenti \u00ebsht\u00eb p\u00ebrgjegj\u00ebsi e vetme e Together for Life dhe n\u00eb asnj\u00eb rrethan\u00eb nuk mund t\u00eb konsiderohet se pasqyron pozicionin e Bashkimit Evropian.\n\n\n\n***\n\n\n\n\ud835\udc16\ud835\udc21\ud835\udc1e\ud835\udc27 \ud835\udc1a \ud835\udc23\ud835\udc28\ud835\udc2e\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2c\ud835\udc2d \ud835\udc2b\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc2c \ud835\udc28\ud835\udc27 \ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b-\ud835\udc1b\ud835\udc1a\ud835\udc2c\ud835\udc1e\ud835\udc1d \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e \ud835\udc28\ud835\udc2b \ud835\udc1d\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc2c\ud835\udc2d\ud835\udc22\ud835\udc1c \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc27\ud835\udc28\ud835\udc2d \ud835\udc2c\ud835\udc22\ud835\udc26\ud835\udc29\ud835\udc25\ud835\udc32 \ud835\udc2d\ud835\udc1e\ud835\udc25\ud835\udc25\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc1a \ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc32, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc22\ud835\udc27\ud835\udc1f\ud835\udc25\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc2c\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc28\ud835\udc27\ud835\udc1e'\ud835\udc2c \ud835\udc25\ud835\udc22\ud835\udc1f\ud835\udc1e.\n\n\n\nDuring June and July, journalists from various media outlets participated in a series of training sessions on the ethical and professional reporting of gender-based violence and domestic violence cases.\n\n\nThe trainings were organized by Together for Life as part of the \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 - \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc1c\ud835\udc2d, implemented by GADC, TFL and IRCA organizations and funded by the European Union.\n\n\n\nThrough the analysis of real-life cases that have shocked public opinion, participants explored not only what is reported, but, more importantly, how it is reported.\n\n\nBecause journalism has the power to:\n\u00a0inform without causing harm;\nprotect the dignity and privacy of survivors;\neducate the public;\nhold responsible institutions, including the healthcare system, the police, the prosecution, and social services, accountable for how they identify, report, and respond to cases of violence.\n\n\nAn important part of the discussions among the participating journalists focused on the media's responsibility to resist the race for clicks by avoiding language that romanticizes violence, blames victims, violates their privacy, or re-traumatizes survivors.\n\n\n\n\n\u00a0Through interactive methods such as Mentimeter, journalists tested their knowledge, challenged their assumptions, and reflected on the responsibility that comes with every story they publish.\n\n\nBecause good journalism is not measured solely by the number of clicks. It is measured by the impact it has on people's lives, the trust it builds, and the contribution it makes to a society that does not normalize violence, but exposes and condemns it.\n\n\n\nThis publication was produced as part of the initiative \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, implemented by the Gender Alliance for Development Centre (GADC), Together for Life, and the Institute of Romani Culture in Albania (IRCA), with financial support from the European Union. The contents of this video are the sole responsibility of Together for Life and can under no circumstances be regarded as reflecting the position of the European Union.<\/div><\/article><\/div>
Nd\u00ebrsa n\u00eb media raportohet se nj\u00eb projektligj i ri p\u00ebr krijimin e nj\u00eb shoq\u00ebrie shtet\u00ebrore p\u00ebr administrimin e barnave dhe pajisjeve mjek\u00ebsore \u00ebsht\u00eb pran\u00eb miratimit, Ministria e Sh\u00ebndet\u00ebsis\u00eb nuk i \u00ebsht\u00eb p\u00ebrgjigjur k\u00ebrkes\u00ebs p\u00ebr informacion t\u00eb Together for Life. P\u00ebr nj\u00eb reform\u00eb q\u00eb prek fondet publike, prokurimet dhe tregun farmaceutik, mungesa e transparenc\u00ebs ngre pik\u00ebpyetje serioze.\r\n\r\n \r\n\r\nMuajt e fundit, nisma p\u00ebr krijimin e nj\u00eb shoq\u00ebrie shtet\u00ebrore q\u00eb do t\u00eb administroj\u00eb furnizimin e institucioneve publike sh\u00ebndet\u00ebsore me barna dhe pajisje mjek\u00ebsore ka qen\u00eb n\u00eb qend\u00ebr t\u00eb raportimeve mediatike dhe t\u00eb debatit publik e politik. Megjithat\u00eb, pavar\u00ebsisht r\u00ebnd\u00ebsis\u00eb s\u00eb saj, p\u00ebrmbajtja e projektligjit, argumentet mbi t\u00eb cilat mb\u00ebshtetet kjo nism\u00eb, kostot e parashikuara dhe pasojat e mundshme p\u00ebr konkurrenc\u00ebn dhe menaxhimin e fondeve publike nuk jan\u00eb b\u00ebr\u00eb ende publike zyrtarisht.\r\n\r\n \r\n\r\nP\u00ebr t\u00eb hedhur drit\u00eb mbi k\u00ebt\u00eb nism\u00eb, Together for Life iu drejtua m\u00eb 5 gusht 2026 Ministris\u00eb s\u00eb Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale, duke k\u00ebrkuar dokumentet kryesore dhe analizat mbi t\u00eb cilat \u00ebsht\u00eb mb\u00ebshtetur hartimi i projektligjit. Por, deri m\u00eb tani, TFL nuk ka marr\u00eb asnj\u00eb p\u00ebrgjigje nga Ministria.\r\n\r\n \r\n\r\nKjo munges\u00eb transparence b\u00ebhet shqet\u00ebsuese n\u00eb nj\u00eb koh\u00eb kur dor\u00ebheqja e ministres Evis Sala, n\u00eb dit\u00ebt e para t\u00eb shtatorit, u lidhur gjer\u00ebsisht n\u00eb raportimet mediatike me refuzimin e saj p\u00ebr t\u00eb firmosur draftligjin. Nd\u00ebrkoh\u00eb, n\u00eb media sot jan\u00eb raportuar zhvillime t\u00eb reja dhe sinjale se nisma mund t\u00eb jet\u00eb pran\u00eb miratimit nga ministrja e sapoem\u00ebruar, deputetja Klodiana Spahiu[1].\r\n\r\n \r\n\r\nN\u00eb k\u00ebt\u00eb situat\u00eb, b\u00ebrja publike e dokumentave dhe informacionit t\u00eb k\u00ebrkuar nga TFL m\u00eb shum\u00eb se nj\u00eb muaj m\u00eb par\u00eb do t\u2019i mund\u00ebsonin publikut dhe aktor\u00ebve t\u00eb interesuar t\u00eb kuptonin arsyet, q\u00ebllimin dhe pasojat e mundshme t\u00eb k\u00ebsaj nisme. Por, i gjith\u00eb procesi deri tani \u00ebsht\u00eb veshur me hijen e di\u00e7kaje t\u00eb fsheht\u00eb dhe sekrete.\r\n\r\n \r\n\r\nKjo situat\u00eb ngre nj\u00eb shqet\u00ebsim t\u00eb drejtp\u00ebrdrejt\u00eb mbi arsyet e munges\u00ebs s\u00eb transparenc\u00ebs p\u00ebr nj\u00eb nism\u00eb t\u00eb till\u00eb me ndikim t\u00eb drejt\u00ebp\u00ebrdrejt\u00eb n\u00eb jet\u00ebn dhe sh\u00ebndetin e pacient\u00ebve si dhe n\u00eb e financat publike. Si mund t\u00eb shqyrtohet dhe vler\u00ebsohet nj\u00eb reform\u00eb me ndikim potencial n\u00eb prokurimet publike, tregun farmaceutik dhe p\u00ebrdorimin e fondeve publike, kur dokumentet dhe analizat mbi t\u00eb cilat ajo mb\u00ebshtetet nuk b\u00ebhen publike?\r\n\r\n \r\n\r\nK\u00ebrkesa e TFL p\u00ebr transparenc\u00eb t\u00eb procesit\r\n\r\n \r\n\r\nN\u00eb k\u00ebrkes\u00ebn e saj p\u00ebr informacion, TFL nuk ka k\u00ebrkuar nj\u00eb q\u00ebndrim politik t\u00eb Ministris\u00eb mbi nism\u00ebn, por dokumentet dhe t\u00eb dh\u00ebnat q\u00eb do t\u00eb mund\u00ebsonin t\u00eb kuptohej mbi \u00e7far\u00eb baze \u00ebsht\u00eb hartuar projekt-ligji. N\u00eb k\u00ebrkes\u00ebn drejtuar Ministris\u00eb, organizata ka k\u00ebrkuar, nd\u00ebr t\u00eb tjera, draftin e projektligjit, relacionin shoq\u00ebrues, raportin e vler\u00ebsimit t\u00eb ndikimit, relacionin financiar dhe analiz\u00ebn e kostove e p\u00ebrfitimeve, si edhe studimin e fizibilitetit dhe dokumentet teknike q\u00eb kan\u00eb mb\u00ebshtetur nism\u00ebn.\r\n\r\n \r\n\r\nK\u00ebrkesa nuk ndalet te dokumentacioni formal. TFL k\u00ebrkon t\u00eb dij\u00eb si \u00ebsht\u00eb hartuar projektligji, cilat institucione apo organizata jan\u00eb p\u00ebrfshir\u00eb n\u00eb proces, n\u00ebse \u00ebsht\u00eb zhvilluar konsultim publik dhe si do t\u00eb garantohet mbik\u00ebqyrja administrative, financiare dhe operacionale e shoq\u00ebris\u00eb s\u00eb propozuar.\r\n\r\n \r\n\r\nTFL ngre shqet\u00ebsimin mbi ndikimin q\u00eb kjo nism\u00eb mund t\u00eb ket\u00eb n\u00eb konkurrenc\u00ebn n\u00eb tregun e barnave dhe pajisjeve mjek\u00ebsore, aksesin e operator\u00ebve ekonomik\u00eb n\u00eb procedurat e prokurimit, kostot p\u00ebr buxhetin e shtetit dhe efikasitetin e sistemit t\u00eb furnizimit.\r\n\r\n \r\n\r\nPa informacion t\u00eb plot\u00eb zyrtar, debati do t\u00eb zhvillohet mb\u00ebshtetur kryesisht n\u00eb deklarata publike dhe raportime mediatike, nd\u00ebrsa publiku dhe grupet e interesit do t\u00eb vazhdojn\u00eb t\u00eb hamend\u00ebsojn\u00eb mbi p\u00ebrmbajtjen, q\u00ebllimin dhe pasojat e mundshme t\u00eb k\u00ebsaj nisme.\r\n\r\n \r\n\r\nN\u00ebse modeli i ri synon t\u00eb ul\u00eb kostot, t\u00eb rris\u00eb efikasitetin dhe t\u00eb p\u00ebrmir\u00ebsoj\u00eb furnizimin e sistemit sh\u00ebndet\u00ebsor, k\u00ebto p\u00ebrfitime duhet t\u00eb mb\u00ebshteten me analiza t\u00eb b\u00ebra publike. Po k\u00ebshtu, \u00e7do rrezik p\u00ebr konkurrenc\u00ebn, menaxhimin e fondeve publike apo funksionimin e tregut duhet t\u00eb jet\u00eb pjes\u00eb e debatit p\u00ebrpara miratimit t\u00eb reform\u00ebs dhe jo pasi ajo t\u00eb ket\u00eb hyr\u00eb n\u00eb fuqi.\r\n\r\n \r\n\r\nN\u00eb fund t\u00eb fundit, pyetja q\u00eb mbetet \u00ebsht\u00eb e thjesht\u00eb: mbi \u00e7far\u00eb dokumentesh dhe analizash po merret nj\u00eb vendim q\u00eb mund t\u00eb ndryshoj\u00eb m\u00ebnyr\u00ebn e furnizimit t\u00eb sistemit publik sh\u00ebndet\u00ebsor?\r\n\r\n \r\n\r\nPik\u00ebrisht, p\u00ebr k\u00ebt\u00eb arsye, p\u00ebrgjigjja e Ministris\u00eb ndaj k\u00ebrkes\u00ebs s\u00eb TFL-s\u00eb nuk \u00ebsht\u00eb thjesht nj\u00eb \u00e7\u00ebshtje administrative. \u00cbsht\u00eb nj\u00eb test i transparenc\u00ebs s\u00eb nj\u00eb reforme q\u00eb prek drejtp\u00ebrdrejt parat\u00eb publike, prokurimet dhe funksionimin e tregut t\u00eb barnave dhe pajisjeve mjek\u00ebsore.\r\n\r\n \r\n\r\n[1] https:\/\/kapitali.al\/lajme-nga-vendi\/ekskluzive-klodiana-spahiu-konfirmon-se-do-te-firmose-ligjin-qe--i36873?fbclid=I\u00ebY2xja\u00ebUQ2LJ\u00ebZG9mB\u00cbV4dG4DY\u00cbVtAjExAGJya\u00cbQRMXB6S2VHU1BQaG1\u00ebbVV4YmRzcnRjBmF\u00ebcF9pZBAyMjI\u00ebMzkxNzg4MjA\u00ebODkyAAEev3\u00cbiBZ8MeHDec4czlBlkzUGxmP966blfLeqsJ\u00cbdUehMOStTxFYoi2eQU\u00ebSY_aem_pfhlnuGslgbNgkJ_i8\u00cbOXQ<\/div><\/article>Projektligji i ri p\u00ebr PAK: parashikohet rritja e aksesueshm\u00ebris\u00eb, por si do garantohet zbatimi?<\/h2><\/div>
Projektligji i ri p\u00ebr PAK: parashikohet rritja e aksesueshm\u00ebris\u00eb, por si do garantohet zbatimi?<\/h2><\/div><\/div>Gjasht\u00eb vite pas reform\u00ebs s\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, Shqip\u00ebria p\u00ebrgatit nj\u00eb tjet\u00ebr reform\u00eb ligjore. Projektligji i ri \u201cP\u00ebr p\u00ebrfshirjen dhe aksesueshm\u00ebrin\u00eb e personave me aft\u00ebsi t\u00eb kufizuara\u201d[1], i hedhur p\u00ebr konsultim publik m\u00eb 28 gusht 2026, premton nj\u00eb qasje m\u00eb t\u00eb gjer\u00eb ndaj aksesueshm\u00ebris\u00eb, autonomis\u00eb dhe jetes\u00ebs s\u00eb pavarur. Por p\u00ebrvoja e zbatimit t\u00eb modelit bio-psiko-social, ashtu si edhe e kuadrit ligjor t\u00eb m\u00ebparsh\u00ebm p\u00ebr personat me aft\u00ebsi t\u00eb kufizuara, ngre nj\u00eb pyetje thelb\u00ebsore: p\u00ebrtej t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, kur do t\u00eb mund t\u2019i g\u00ebzojn\u00eb ato realisht personat me aft\u00ebsi t\u00eb kufizuara?\r\n\r\nIshte viti 2019 kur Shqip\u00ebria ndryshoi m\u00ebnyr\u00ebn e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, duke kaluar nga nj\u00eb qasje kryesisht mjek\u00ebsore drejt modelit bio-psiko-social. Sipas institucioneve p\u00ebrgjegj\u00ebse, reforma synonte ta vendoste personin n\u00eb qend\u00ebr t\u00eb procesit, duke mos u ndalur vet\u00ebm te diagnoza apo d\u00ebmtimi sh\u00ebndet\u00ebsor, por duke marr\u00eb n\u00eb konsiderat\u00eb funksionalitetin e individit, pjes\u00ebmarrjen e tij n\u00eb shoq\u00ebri dhe barrierat sociale e mjedisore me t\u00eb cilat p\u00ebrballet.\r\n\r\nN\u00eb parim, ndryshimi ishte thelb\u00ebsor. Ai n\u00ebnkuptonte nj\u00eb zhvendosje nga nj\u00eb sistem q\u00eb fokusohej kryesisht te gjendja mjek\u00ebsore e individit, drejt nj\u00eb qasjeje q\u00eb k\u00ebrkon t\u00eb kuptoj\u00eb \u00e7far\u00eb mund t\u00eb b\u00ebj\u00eb personi, cilat pengesa kufizojn\u00eb pjes\u00ebmarrjen e tij dhe \u00e7far\u00eb mb\u00ebshtetjeje i nevojitet p\u00ebr t\u00eb jetuar n\u00eb m\u00ebnyr\u00eb sa m\u00eb t\u00eb pavarur.\r\n\r\nPor gjasht\u00eb vite m\u00eb pas, pyetja \u00ebsht\u00eb n\u00ebse kjo qasje ka arritur t\u00eb ndryshoj\u00eb realisht jet\u00ebn e personave me aft\u00ebsi t\u00eb kufizuara. Gjetjet e raportit \u201cMbi efektet e zbatimit t\u00eb skem\u00ebs s\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar bazuar n\u00eb modelin bio-psiko-social\u201d tregojn\u00eb se, pavar\u00ebsisht ndryshimit t\u00eb modelit, n\u00eb praktik\u00eb vazhdojn\u00eb t\u00eb ekzistojn\u00eb barriera t\u00eb r\u00ebnd\u00ebsishme n\u00eb procesin e vler\u00ebsimit dhe n\u00eb aksesin n\u00eb mb\u00ebshtetje e sh\u00ebrbime. Mungesa e kapaciteteve t\u00eb specializuara, problemet e infrastruktur\u00ebs, v\u00ebshtir\u00ebsit\u00eb e koordinimit nd\u00ebrmjet profesionist\u00ebve dhe k\u00ebrkesa p\u00ebr paraqitje fizike edhe n\u00eb raste kur personi e ka t\u00eb pamundur t\u00eb udh\u00ebtoj\u00eb, d\u00ebshmojn\u00eb hendekun mes parimit t\u00eb reform\u00ebs dhe zbatimit t\u00eb saj n\u00eb terren.\r\n\r\nDhe pik\u00ebrisht n\u00eb k\u00ebt\u00eb realitet shfaqet projektligji i ri. Ai premton t\u00eb shkoj\u00eb nj\u00eb hap m\u00eb tej: nga vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar te vler\u00ebsimi i nevojave, nga mb\u00ebshtetja financiare te sh\u00ebrbimet dhe jetesa e pavarur, dhe nga koncepti i aksesit fizik te aksesueshm\u00ebria n\u00eb informacion, sh\u00ebrbime, transport, teknologji dhe komunikim.\r\n\r\nPor p\u00ebrvoja e reform\u00ebs s\u00eb vitit 2019 ngre nj\u00eb pik\u00ebpyetje q\u00eb nuk mund t\u00eb anashkalohet: a do t\u00eb sjell\u00eb projektligji nj\u00eb ndryshim real n\u00eb jet\u00ebn e personave me aft\u00ebsi t\u00eb kufizuara, apo do t\u00eb shtoj\u00eb nj\u00eb tjet\u00ebr shtres\u00eb t\u00eb drejtash t\u00eb garantuara n\u00eb let\u00ebr, por t\u00eb v\u00ebshtira p\u00ebr t\u2019u realizuar n\u00eb praktik\u00eb?\r\nAksesueshm\u00ebria dhe testi i zbatimit\r\nNj\u00eb nga risit\u00eb m\u00eb t\u00eb r\u00ebnd\u00ebsishme t\u00eb projektligjit \u00ebsht\u00eb zhvendosja e fokusit nga statusi i aft\u00ebsis\u00eb s\u00eb kufizuar te nevojat konkrete t\u00eb personit. Neni 37 parashikon q\u00eb komisionet multidisiplinare t\u00eb vler\u00ebsojn\u00eb jo vet\u00ebm aft\u00ebsin\u00eb e kufizuar, por edhe nevojat p\u00ebr sh\u00ebrbime, mjete ndihm\u00ebse dhe p\u00ebrkujdesje, bazuar n\u00eb Klasifikimin Nd\u00ebrkomb\u00ebtar t\u00eb Funksionimit, Aft\u00ebsive t\u00eb Kufizuara dhe Sh\u00ebndetit (ICF) dhe duke marr\u00eb n\u00eb konsiderat\u00eb faktor\u00ebt social\u00eb. N\u00ebse kjo qasje zbatohet realisht, ajo do t\u00eb sh\u00ebnonte nj\u00eb ndryshim t\u00eb r\u00ebnd\u00ebsish\u00ebm: personi nuk do t\u00eb trajtohej thjesht si p\u00ebrfitues i nj\u00eb statusi apo pagese, por si subjekt i t\u00eb drejtave, me nevoja konkrete q\u00eb sistemi duhet t\u2019i identifikoj\u00eb dhe t\u2019u p\u00ebrgjigjet.\r\n\r\nPor pik\u00ebrisht k\u00ebtu p\u00ebrvoja e gjasht\u00eb viteve t\u00eb zbatimit t\u00eb modelit bio-psiko-social ngre pik\u00ebpyetje serioze. Raporti i Together for Life evidenton munges\u00eb t\u00eb profesionist\u00ebve dhe kapaciteteve p\u00ebr nj\u00eb vler\u00ebsim realisht multidimensional: 50% e t\u00eb anketuarve raportuan probleme me komponentin psikologjik, nd\u00ebrsa 20% evidentuan munges\u00eb koherence dhe koordinimi brenda komisioneve multidisiplinare. Kjo e zhvendos debatin nga ajo q\u00eb premton ligji te ajo q\u00eb mund t\u00eb zbatoj\u00eb sistemi: a \u00ebsht\u00eb p\u00ebrgatitur stafi, a jan\u00eb siguruar burimet dhe a ekzistojn\u00eb sh\u00ebrbimet q\u00eb duhet t\u2019u p\u00ebrgjigjen nevojave t\u00eb identifikuara?\r\n\r\nE nj\u00ebjta sfid\u00eb shfaqet edhe te koncepti i aksesueshm\u00ebris\u00eb. Projektligji e zgjeron at\u00eb p\u00ebrtej barrierave fizike, duke p\u00ebrfshir\u00eb transportin, informacionin dhe komunikimin, sh\u00ebrbimet bankare, tregtin\u00eb elektronike, librat elektronik\u00eb dhe sh\u00ebrbimet e urgjenc\u00ebs. Por raporti evidenton se edhe n\u00eb aksesin n\u00eb informacion dhe sh\u00ebrbimet digjitale, p\u00ebrfshir\u00eb e-Albania, masa t\u00eb planifikuara p\u00ebr p\u00ebrmir\u00ebsimin e aksesueshm\u00ebris\u00eb nuk ishin realizuar ende.\r\n\r\nKjo e b\u00ebn zbatimin pik\u00ebn m\u00eb kritike t\u00eb reform\u00ebs s\u00eb re. Projektligji \u00ebsht\u00eb m\u00eb ambicioz n\u00eb njohjen e t\u00eb drejtave, por nj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e mekanizmave t\u00eb zbatimit do t\u00eb p\u00ebrcaktohet m\u00eb tej me akte n\u00ebnligjore, p\u00ebrfshir\u00eb kriteret dhe procedurat e aksesueshm\u00ebris\u00eb s\u00eb sh\u00ebrbimeve dhe organizimin e asistenc\u00ebs personale, t\u00eb parashikuara t\u00eb rregullohen brenda 18 muajve nga hyrja n\u00eb fuqi e ligjit.\r\n\r\nN\u00eb k\u00ebt\u00eb kuptim, miratimi i ligjit nuk \u00ebsht\u00eb fundi i reform\u00ebs, por fillimi i testit t\u00eb saj real. Sepse suksesi nuk do t\u00eb matet me numrin e t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, por me sa prej tyre do t\u00eb mund t\u00eb ushtrohen realisht nga personat me aft\u00ebsi t\u00eb kufizuara.\r\nTesti i v\u00ebrtet\u00eb \u00ebsht\u00eb zbatimi\r\nN\u00eb fund, suksesi i projektligjit t\u00eb ri nuk do t\u00eb matet me numrin e t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, fondet e parashikuara apo aktet n\u00ebnligjore t\u00eb miratuara. Ai do t\u00eb matet me barrierat q\u00eb arrin t\u00eb heq\u00eb nga jeta e personave me aft\u00ebsi t\u00eb kufizuara.\r\n\r\nReforma e vitit 2019 synoi t\u00eb ndryshonte m\u00ebnyr\u00ebn se si shteti e vler\u00ebson aft\u00ebsin\u00eb e kufizuar. Projektligji i ri synon t\u00eb ndryshoj\u00eb m\u00ebnyr\u00ebn se si garantohen aksesi, autonomia dhe p\u00ebrfshirja. Por t\u00eb dyja kan\u00eb nj\u00eb pik\u00eb t\u00eb p\u00ebrbashk\u00ebt: vlera e nj\u00eb reforme p\u00ebrcaktohet jo nga ajo q\u00eb premton n\u00eb let\u00ebr, por nga ajo q\u00eb ndryshon n\u00eb jet\u00ebn e njer\u00ebzve.\r\n\r\nPrandaj, sfida e v\u00ebrtet\u00eb fillon me zbatimin. Nj\u00eb e drejt\u00eb q\u00eb nuk mund t\u00eb ushtrohet, nj\u00eb sh\u00ebrbim q\u00eb nuk mund t\u00eb aksesohet apo nj\u00eb mb\u00ebshtetje q\u00eb nuk mb\u00ebrrin te personi q\u00eb ka nevoj\u00eb p\u00ebr t\u00eb, mbetet vet\u00ebm nj\u00eb e drejt\u00eb formale.\r\n\r\nPyetja q\u00eb duhet t\u00eb shoq\u00ebroj\u00eb k\u00ebt\u00eb reform\u00eb \u00ebsht\u00eb, ndaj, e thjesht\u00eb, por thelb\u00ebsore: a do t\u00eb mundet nj\u00eb person me aft\u00ebsi t\u00eb kufizuara, fal\u00eb k\u00ebtij ligji, t\u00eb l\u00ebviz\u00eb m\u00eb lirsh\u00ebm, t\u00eb marr\u00eb sh\u00ebrbimet p\u00ebr t\u00eb cilat ka nevoj\u00eb, t\u00eb vendos\u00eb p\u00ebr jet\u00ebn e vet dhe t\u00eb marr\u00eb pjes\u00eb n\u00eb shoq\u00ebri pa u p\u00ebrballur me t\u00eb nj\u00ebjtat barriera?\r\n\r\nN\u00ebse p\u00ebrgjigjja \u00ebsht\u00eb po, at\u00ebher\u00eb Shqip\u00ebria do t\u00eb ket\u00eb b\u00ebr\u00eb kalimin nga statusi te e drejta, nga pagesa te mb\u00ebshtetja dhe nga letra te jeta reale.\r\n\r\nN\u00ebse jo, rreziku \u00ebsht\u00eb q\u00eb t\u00eb kemi s\u00ebrish nj\u00eb reform\u00eb progresive n\u00eb let\u00ebr, nd\u00ebrsa barrierat vazhdojn\u00eb t\u00eb mbeten aty ku kan\u00eb qen\u00eb: n\u00eb jet\u00ebn e p\u00ebrditshme t\u00eb njer\u00ebzve.\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.\r\n[1] https:\/\/konsultimipublik.gov.al\/Konsultime\/Detaje\/1044<\/div><\/article>Zjarret n\u00eb Shkod\u00ebr: Nga reagimi n\u00eb terren te gatishm\u00ebria e komunitetit<\/h2><\/div><\/div>Pas nj\u00eb situate t\u00eb v\u00ebshtir\u00eb gjat\u00eb djeshme (8 shtator 2026), ku n\u00eb territorin e Bashkis\u00eb Shkod\u00ebr u evidentuan disa vatra zjarri, sot (9 shtator 2026) situata paraqitet e qet\u00eb dhe pa vatra aktive.\r\n\r\n\r\nGjat\u00eb dit\u00ebs s\u00eb djeshme, u b\u00eb i mundur menaxhimi dhe shuarja e vatrave n\u00eb Oblik\u00eb, Muriqan dhe B\u00ebrdic\u00eb, nd\u00ebrsa vatra n\u00eb Bardhaj, mbi rezervuar, vijoi p\u00ebr nj\u00eb periudh\u00eb t\u00eb ishte aktive, pa paraqitur rrezik p\u00ebr banesat. Fal\u00eb nd\u00ebrhyrjes n\u00eb terren, u shp\u00ebtuan edhe gjasht\u00eb banesa t\u00eb rrezikuara nga zjarri n\u00eb Bardhaj.\r\n\r\n\r\nMir\u00ebnjohje zjarrfik\u00ebsve, Emergjencave Civile, Forcave t\u00eb Armatosura, punonj\u00ebsve t\u00eb Bashkis\u00eb, vullnetar\u00ebve dhe banor\u00ebve q\u00eb kontribuuan gjat\u00eb gjith\u00eb k\u00ebsaj situate.\r\n\r\n\r\nEdhe pse sot situata \u00ebsht\u00eb e qet\u00eb, zona vijon t\u00eb monitorohet p\u00ebr t\u00eb parandaluar \u00e7do riaktivizim t\u00eb mundsh\u00ebm. Kjo situat\u00eb na kujton se gatishm\u00ebria p\u00ebr emergjencat nuk fillon vet\u00ebm n\u00eb momentin kur shfaqet rreziku. Ajo nd\u00ebrtohet \u00e7do dit\u00eb, edhe n\u00eb nivel komunitar.\r\n\r\n\r\nN\u00eb k\u00ebt\u00eb kuad\u00ebr, Rrjeti i Q\u00ebndrueshm\u00ebris\u00eb s\u00eb Komunitetit (Community Resilience Network \u2013 CRN) Daj\u00e7, i mb\u00ebshtetur dhe fuqizuar p\u00ebrmes pun\u00ebs s\u00eb Together for Life, \u00ebsht\u00eb nj\u00eb mekaniz\u00ebm komunitar q\u00eb kontribuon n\u00eb forcimin e komunikimit, informimit dhe gatishm\u00ebris\u00eb n\u00eb nivel lokal.\r\n\r\n\r\nRrjeti \u00ebsht\u00eb vigjilent dhe aktiv n\u00eb komunikim dhe k\u00ebshillim me komunitetin n\u00eb Daj\u00e7, n\u00eb m\u00ebnyr\u00eb q\u00eb, n\u00eb rast t\u00eb nj\u00eb emergjence, informacioni i sakt\u00eb dhe nevojat e komunitetit t\u00eb p\u00ebrcillen dhe t\u00eb adresohen sa m\u00eb shpejt.\r\n\r\n\r\nCRN Daj\u00e7 sh\u00ebrben si nj\u00eb ur\u00eb lidh\u00ebse mes komunitetit, institucioneve dhe strukturave t\u00eb emergjencave, duke ndihmuar n\u00eb:\r\n\r\n\r\n\r\n \tp\u00ebrcjelljen e informacionit t\u00eb sakt\u00eb dhe n\u00eb koh\u00eb;\r\n \tidentifikimin e personave dhe familjeve q\u00eb mund t\u00eb ken\u00eb nevoj\u00eb p\u00ebr mb\u00ebshtetje t\u00eb ve\u00e7ant\u00eb;\r\n \tevidentimin e nevojave dhe problematikave n\u00eb komunitet;\r\n \tforcimin e komunikimit dhe koordinimit n\u00eb rast emergjence;\r\n \trritjen e nd\u00ebrgjegj\u00ebsimit p\u00ebr parandalimin dhe gatishm\u00ebrin\u00eb ndaj emergjencave.\r\n \t\r\n\r\n\r\nNj\u00eb komunitet i p\u00ebrgatitur nuk z\u00ebvend\u00ebson strukturat e emergjenc\u00ebs. P\u00ebrkundrazi, ai i ndihmon ato t\u00eb reagojn\u00eb m\u00eb mir\u00eb dhe m\u00eb shpejt aty ku nevojitet.\r\n\r\n\r\nP\u00ebr t\u00eb gjitha komunitetet n\u00eb zonat e prekura nga zjarret apo n\u00eb zona q\u00eb mund t\u00eb p\u00ebrballen me rrezik, apelojm\u00eb p\u00ebr qet\u00ebsi, kujdes dhe p\u00ebrgjegjshm\u00ebri:\r\n\r\n\r\n\u2022 T\u00eb ndiqen vet\u00ebm informacionet nga burimet zyrtare.\r\n\u2022 T\u00eb mos shp\u00ebrndahen lajme apo pamje t\u00eb pakonfirmuara q\u00eb mund t\u00eb krijojn\u00eb panik.\r\n\u2022 T\u00eb respektohen udh\u00ebzimet e autoriteteve.\r\n\u2022 T\u00eb mos afrohemi n\u00eb zonat e zjarrit p\u00ebr t\u00eb filmuar apo fotografuar.\r\n\u2022 T\u00eb tregohet kujdes i ve\u00e7ant\u00eb p\u00ebr t\u00eb moshuarit, personat me aft\u00ebsi t\u00eb kufizuara, f\u00ebmij\u00ebt dhe personat e tjer\u00eb q\u00eb mund t\u00eb ken\u00eb nevoj\u00eb p\u00ebr mb\u00ebshtetje.\r\n\r\n\r\nSot situata \u00ebsht\u00eb e qet\u00eb. Por gatishm\u00ebria duhet t\u00eb vazhdoj\u00eb.\r\n\r\n\r\nQet\u00ebsi. Informim. Solidaritet. Gatishm\u00ebri.\r\n\r\n\r\nTogether for Life | Rrjeti i Q\u00ebndrueshm\u00ebris\u00eb s\u00eb Komunitetit (Community Resilience Network \u2013 CRN) Daj\u00e7<\/div><\/article>Lufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb<\/h2><\/div><\/div>Titulli i Projektit:\r\n\r\nLufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb\r\n\r\nDonatori\r\n\r\nNational Endowment for Democracy (NED)\r\n\r\nPeriudha e zbatimit\r\n\r\n1 Korrik 2024 \u2013 30 Qershor 2026 (24 muaj)\r\n\r\nQ\u00cbLLIMI I PROJEKTIT\r\n\r\nT\u00eb promovoj\u00eb llogaridh\u00ebnien dhe transparenc\u00ebn n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri, p\u00ebrmes monitorimit t\u00eb shpenzimeve publike dhe prokurimeve, evidentimit t\u00eb rasteve t\u00eb mundshme t\u00eb korrupsionit, fuqizimit t\u00eb rolit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile, medias dhe qytetar\u00ebve, si dhe nxitjes s\u00eb institucioneve publike p\u00ebr t\u00eb nd\u00ebrmarr\u00eb masa konkrete p\u00ebr p\u00ebrmir\u00ebsimin e integritetit dhe p\u00ebrdorimit t\u00eb fondeve publike.\r\n\r\nAktivitetet\r\n\r\n \tMonitorimi dhe analiza e shpenzimeve publike dhe procedurave t\u00eb prokurimit n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri.\r\n \tHartimi i dy raporteve vjetore t\u00eb monitorimit mbi shpenzimet publike, prokurimet dhe shp\u00ebrndarjen e fondeve p\u00ebr grupet vulnerab\u00ebl.\r\n \tP\u00ebrgatitja e nj\u00eb raporti t\u00eb thelluar mbi zbatimin e ligjit p\u00ebr autonomin\u00eb spitalore dhe rekomandimeve p\u00ebr p\u00ebrmir\u00ebsimin e menaxhimit t\u00eb fondeve publike.\r\n \tP\u00ebrgatitja e nj\u00eb raporti gjith\u00ebp\u00ebrfshir\u00ebs mbi hetimet dhe gjetjet e SPAK lidhur me abuzimet financiare n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tBashk\u00ebpunimi me BIRN p\u00ebr realizimin e pes\u00eb artikujve investigativ\u00eb mbi korrupsionin n\u00eb shpenzimet publike n\u00eb sh\u00ebndet\u00ebsi.\r\n \tOrganizimi i t\u00eb pakt\u00ebn kat\u00ebr workshopeve me organizata t\u00eb shoq\u00ebris\u00eb civile dhe gazetar\u00eb p\u00ebr identifikimin dhe raportimin e rasteve t\u00eb munges\u00ebs s\u00eb transparenc\u00ebs dhe llogaridh\u00ebnies.\r\n \tPjes\u00ebmarrja n\u00eb seancat d\u00ebgjimore parlamentare p\u00ebr prezantimin e gjetjeve t\u00eb monitorimit.\r\n \tMbajtja dhe zgjerimi i rrjetit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile q\u00eb punojn\u00eb p\u00ebr transparenc\u00ebn dhe llogaridh\u00ebnien n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tOrganizimi i tet\u00eb takimeve rajonale n\u00eb Shkod\u00ebr, Vlor\u00eb, Elbasan dhe Dib\u00ebr me deputet\u00eb, organizata lokale dhe qytetar\u00eb p\u00ebr diskutimin e \u00e7\u00ebshtjeve t\u00eb sh\u00ebndet\u00ebsis\u00eb.\r\n \tOrganizimi i kat\u00ebr tryezave komb\u00ebtare me institucionet p\u00ebrgjegj\u00ebse (Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi, Avokati i Popullit, ILDKPKI dhe Komisioneri p\u00ebr t\u00eb Drejt\u00ebn e Informimit) p\u00ebr prezantimin e gjetjeve t\u00eb projektit.\r\n \tMir\u00ebmbajtja dhe p\u00ebrdit\u00ebsimi i platform\u00ebs www.transparency.com.al dhe faqes p\u00ebrkat\u00ebse n\u00eb Facebook p\u00ebr raportimin e rasteve t\u00eb korrupsionit dhe promovimin e transparenc\u00ebs.\r\n \tP\u00ebrgatitja dhe publikimi i t\u00eb pakt\u00ebn tre njoftimeve p\u00ebr shtyp \u00e7do vit p\u00ebr t\u00eb rritur nd\u00ebrgjegj\u00ebsimin publik mbi problematikat e transparenc\u00ebs dhe llogaridh\u00ebnies n\u00eb sektorin sh\u00ebndet\u00ebsor.<\/div><\/article>Fibroza cistike \u2013 Nj\u00eb patologji komplekse q\u00eb sistemi sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri vazhdon ta trajtoj\u00eb si “s\u00ebmundje mushk\u00ebrish”<\/h2><\/div><\/div>P\u00ebr shumic\u00ebn e njer\u00ebzve, fibroza cistike mbetet nj\u00eb s\u00ebmundje pak e njohur. P\u00ebr m\u00eb shum\u00eb se 150 pacient\u00ebt dhe familjet e tyre n\u00eb Shqip\u00ebri, ajo p\u00ebrfaq\u00ebson nj\u00eb betej\u00eb t\u00eb p\u00ebrditshme q\u00eb nuk zhvillohet vet\u00ebm me s\u00ebmundjen, por edhe me vet\u00eb sistemin sh\u00ebndet\u00ebsor dhe at\u00eb t\u00eb mbrojtjes sociale.\r\n\r\nMenaxhimi i fibroz\u00ebs cistike nuk kufizohet vet\u00ebm n\u00eb marrjen e medikamenteve. Ai k\u00ebrkon nj\u00eb qasje t\u00eb integruar dhe multidisiplinare, q\u00eb p\u00ebrfshin ndjekje t\u00eb specializuar mjek\u00ebsore, fizioterapi respiratore t\u00eb p\u00ebrditshme, mb\u00ebshtetje psikologjike, akses t\u00eb vazhduesh\u00ebm n\u00eb barna specifike, sh\u00ebrbime sociale dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb pasqyron ndikimin real t\u00eb s\u00ebmundjes n\u00eb jet\u00ebn dhe funksionimin e pacientit.\r\n\r\nMegjithat\u00eb, d\u00ebshmit\u00eb e pacient\u00ebve dhe prind\u00ebrve t\u00eb tyre tregojn\u00eb se, edhe pas zbatimit t\u00eb modelit bio-psiko-social p\u00ebr vler\u00ebsimin e aft\u00ebsis\u00eb s\u00eb kufizuar, shum\u00eb prej k\u00ebtyre nevojave vazhdojn\u00eb t\u00eb mos njihen dhe t\u00eb mos adresohen n\u00eb praktik\u00eb.\r\n\r\nReforma e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, e nisur n\u00eb vitin 2019, synon t\u00eb z\u00ebvend\u00ebsoj\u00eb modelin tradicional t\u00eb bazuar vet\u00ebm n\u00eb diagnoz\u00eb me nj\u00eb qasje q\u00eb vler\u00ebson ndikimin e gjendjes sh\u00ebndet\u00ebsore n\u00eb funksionimin e p\u00ebrditsh\u00ebm t\u00eb individit. Megjithat\u00eb, gjetjet e mbledhura gjat\u00eb fokus-grupit t\u00eb zhvilluar me persona me fibroz\u00eb cistike dhe prind\u00ebr t\u00eb f\u00ebmij\u00ebve t\u00eb diagnostikuar me k\u00ebt\u00eb patologji tregojn\u00eb se ky objektiv ende nuk po realizohet plot\u00ebsisht.\r\n\r\nPjes\u00ebmarr\u00ebsit raportojn\u00eb se komisionet e vler\u00ebsimit shpesh nuk funksionojn\u00eb si ekipe t\u00eb mir\u00ebfillta multidisiplinare, kan\u00eb njohuri t\u00eb kufizuara mbi fibroz\u00ebn cistike dhe, n\u00eb disa raste, nuk shqyrtojn\u00eb dokumentacionin mjek\u00ebsor p\u00ebrpara takimit me pacientin. Si pasoj\u00eb, vler\u00ebsimi mb\u00ebshtetet m\u00eb shum\u00eb n\u00eb pamjen e jashtme t\u00eb personit sesa n\u00eb kufizimet funksionale dhe barr\u00ebn reale q\u00eb s\u00ebmundja imponon n\u00eb jet\u00ebn e p\u00ebrditshme.\r\n\r\nKy \u00ebsht\u00eb nj\u00eb paradoks q\u00eb bie ndesh me vet\u00eb filozofin\u00eb e modelit bio-psiko-social. Fibroza cistike \u00ebsht\u00eb nj\u00eb s\u00ebmundje kronike, progresive dhe multisistemike, e cila n\u00eb shum\u00eb raste nuk shfaq shenja t\u00eb dukshme fizike, por k\u00ebrkon trajtim t\u00eb p\u00ebrhersh\u00ebm, terapi t\u00eb p\u00ebrditshme dhe kujdes kompleks p\u00ebr t\u00eb parandaluar komplikacionet dhe p\u00ebr t\u00eb ruajtur cil\u00ebsin\u00eb e jet\u00ebs.\r\n\r\nKur vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar mb\u00ebshtetet kryesisht n\u00eb at\u00eb q\u00eb \"shihet me sy\", shum\u00eb pacient\u00eb klasifikohen me nj\u00eb shkall\u00eb m\u00eb t\u00eb ul\u00ebt t\u00eb r\u00ebnd\u00ebsis\u00eb s\u00eb s\u00ebmundjes nga ajo q\u00eb reflekton realisht gjendja e tyre sh\u00ebndet\u00ebsore. Si rrjedhoj\u00eb, nj\u00eb pjes\u00eb e tyre hasin v\u00ebshtir\u00ebsi n\u00eb p\u00ebrfitimin e mb\u00ebshtetjes ekonomike ose vler\u00ebsohen n\u00eb nivele q\u00eb nuk pasqyrojn\u00eb kostot reale t\u00eb jetes\u00ebs me fibroz\u00eb cistike.\r\n\r\n\"Her\u00ebn e par\u00eb komisioni vendosi q\u00eb f\u00ebmija im nuk i plot\u00ebsonte kriteret p\u00ebr t\u00eb p\u00ebrfituar KEMP. Kam dy f\u00ebmij\u00eb me fibroz\u00eb cistike, me t\u00eb nj\u00ebjt\u00ebn diagnoz\u00eb dhe n\u00eb t\u00eb nj\u00ebjt\u00ebn gjendje sh\u00ebndet\u00ebsore, por nj\u00ebri u vler\u00ebsua me r\u00ebndes\u00eb m\u00eb t\u00eb leht\u00eb t\u00eb s\u00ebmundjes, nd\u00ebrsa tjetri me r\u00ebndes\u00eb m\u00eb t\u00eb lart\u00eb. Nuk e kuptoj mbi \u00e7far\u00eb kriteresh b\u00ebhet ky vler\u00ebsim kur b\u00ebhet fjal\u00eb p\u00ebr t\u00eb nj\u00ebjt\u00ebn patologji\", shprehet R.XH., babai i dy f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike.\r\n\r\nK\u00ebto d\u00ebshmi tregojn\u00eb se nj\u00eb nga problemet themelore mbetet mungesa e njohjes institucionale t\u00eb fibroz\u00ebs cistike si nj\u00eb s\u00ebmundje komplekse. Edhe sot ajo vazhdon t\u00eb trajtohet kryesisht n\u00eb kuad\u00ebr t\u00eb patologjive pulmonare, nd\u00ebrkoh\u00eb q\u00eb prek nj\u00ebkoh\u00ebsisht mushk\u00ebrit\u00eb, pankreasin, sistemin tret\u00ebs, m\u00ebl\u00e7in\u00eb dhe organe t\u00eb tjera, duke k\u00ebrkuar kujdes multidisiplinar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nKy klasifikim ndikon jo vet\u00ebm n\u00eb m\u00ebnyr\u00ebn e organizimit t\u00eb trajtimit mjek\u00ebsor, por edhe n\u00eb procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar.\r\n\r\n\"N\u00eb dokumentacion paraqitet si nj\u00eb s\u00ebmundje e leht\u00eb\", shprehet L.H., n\u00ebna e nj\u00eb f\u00ebmije me fibroz\u00eb cistike, duke theksuar se komisionet shpesh nuk arrijn\u00eb t\u00eb kuptojn\u00eb se b\u00ebhet fjal\u00eb p\u00ebr nj\u00eb patologji kronike, progresive dhe potencialisht k\u00ebrc\u00ebnuese p\u00ebr jet\u00ebn.\r\n\r\nMungesa e protokollit t\u00eb trajtimit shoq\u00ebrohet me munges\u00ebn e munges\u00ebn e rimbursimit t\u00eb medikamenteve t\u00eb domosdoshme p\u00ebr trajtim\r\n\r\nMungesa e protokolleve t\u00eb p\u00ebrdit\u00ebsuara t\u00eb trajtimit dhe rimbursimit t\u00eb medikamenteve r\u00ebndon barr\u00ebn e pacient\u00ebve me fibroz\u00eb cistike\r\n\r\nP\u00ebrtej sfidave q\u00eb lidhen me procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, pacient\u00ebt me fibroz\u00eb cistike p\u00ebrballen edhe me munges\u00ebn e nj\u00eb modeli t\u00eb integruar t\u00eb kujdesit sh\u00ebndet\u00ebsor, i cili t\u00eb garantoj\u00eb trajtim t\u00eb standardizuar, vazhdim\u00ebsi t\u00eb sh\u00ebrbimeve dhe mb\u00ebshtetje t\u00eb specializuar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nPrind\u00ebrit e f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike raportojn\u00eb se q\u00eb n\u00eb momentin e diagnostikimit nuk marrin mb\u00ebshtetje psikologjike dhe as informacion t\u00eb strukturuar mbi m\u00ebnyr\u00ebn e menaxhimit t\u00eb s\u00ebmundjes apo protokollet e trajtimit. N\u00eb munges\u00eb t\u00eb nj\u00eb sistemi t\u00eb organizuar informimi dhe edukimi p\u00ebr pacient\u00ebt, familjet detyrohen t\u00eb k\u00ebrkojn\u00eb informacion nga organizata nd\u00ebrkomb\u00ebtare, rrjete mb\u00ebshtet\u00ebse, media sociale ose nga prind\u00ebr t\u00eb tjer\u00eb q\u00eb kan\u00eb kaluar t\u00eb nj\u00ebjt\u00ebn p\u00ebrvoj\u00eb. N\u00eb shum\u00eb raste, vet\u00eb familjet jan\u00eb shnd\u00ebrruar n\u00eb burimin kryesor t\u00eb informacionit dhe orientimit p\u00ebr pacient\u00ebt e sapodiagnostikuar, duke z\u00ebvend\u00ebsuar rolin q\u00eb duhet t\u00eb luajn\u00eb institucionet sh\u00ebndet\u00ebsore.\r\n\r\nNj\u00eb nga shqet\u00ebsimet m\u00eb serioze t\u00eb ngritura gjat\u00eb fokus-grupit lidhet me faktin se trajtimi i fibroz\u00ebs cistike n\u00eb Shqip\u00ebri vazhdon t\u00eb mb\u00ebshtetet n\u00eb nj\u00eb protokoll klinik t\u00eb miratuar n\u00eb vitin 2008, i cili nuk reflekton zhvillimet e fundit shkencore dhe standardet bashk\u00ebkohore t\u00eb trajtimit t\u00eb k\u00ebsaj patologjie. Sipas pjes\u00ebmarr\u00ebsve, protokolli p\u00ebrfshin medikamente q\u00eb nuk jan\u00eb m\u00eb t\u00eb disponueshme n\u00eb treg ose nuk p\u00ebrfaq\u00ebsojn\u00eb m\u00eb terapit\u00eb e rekomanduara sipas praktikave nd\u00ebrkomb\u00ebtare.\r\n\r\nMungesa e p\u00ebrdit\u00ebsimit t\u00eb protokollit ndikon drejtp\u00ebrdrejt edhe n\u00eb skem\u00ebn e rimbursimit t\u00eb barnave. Nj\u00eb pjes\u00eb e konsiderueshme e medikamenteve dhe produkteve t\u00eb nevojshme p\u00ebr menaxhimin e p\u00ebrditsh\u00ebm t\u00eb s\u00ebmundjes nuk mbulohen nga sistemi publik, duke detyruar familjet t'i sigurojn\u00eb ato me shpenzimet e tyre ose t'i blejn\u00eb jasht\u00eb Shqip\u00ebris\u00eb. P\u00ebr shum\u00eb familje, kjo p\u00ebrkthehet n\u00eb nj\u00eb barr\u00eb t\u00eb r\u00ebnd\u00eb financiare, nd\u00ebrkoh\u00eb q\u00eb nd\u00ebrprerja ose mungesa e trajtimit mund t\u00eb p\u00ebrshpejtoj\u00eb p\u00ebrkeq\u00ebsimin e gjendjes sh\u00ebndet\u00ebsore dhe t\u00eb rrezikoj\u00eb jet\u00ebgjat\u00ebsin\u00eb e pacient\u00ebve.\r\n\r\nNj\u00eb tjet\u00ebr problem strukturor lidhet me munges\u00ebn e vazhdim\u00ebsis\u00eb s\u00eb kujdesit pas mosh\u00ebs pediatrike. Sipas d\u00ebshmive t\u00eb prind\u00ebrve, pas mosh\u00ebs 16-vje\u00e7are pacient\u00ebt p\u00ebrballen me munges\u00ebn e sh\u00ebrbimeve t\u00eb specializuara dhe t\u00eb mjek\u00ebve t\u00eb trajnuar p\u00ebr trajtimin e fibroz\u00ebs cistike tek t\u00eb rriturit. Ky boshll\u00ebk n\u00eb sistem krijon nd\u00ebrprerje n\u00eb ndjekjen mjek\u00ebsore, cenon vazhdim\u00ebsin\u00eb e trajtimit dhe rrit rrezikun e komplikacioneve afatgjata.\r\n\r\nN\u00eb thelb, problemi nuk q\u00ebndron vet\u00ebm te mungesa e medikamenteve apo e protokolleve t\u00eb p\u00ebrdit\u00ebsuara, por te fakti se sistemi sh\u00ebndet\u00ebsor ende nuk e njeh fibroz\u00ebn cistike si nj\u00eb s\u00ebmundje komplekse q\u00eb k\u00ebrkon nj\u00eb qasje multidisiplinare dhe t\u00eb koordinuar. P\u00ebr sa koh\u00eb mungojn\u00eb protokollet e p\u00ebrdit\u00ebsuara sipas evidencave shkencore, rimbursimi i plot\u00eb i terapive t\u00eb domosdoshme, ekipet multidisiplinare dhe sh\u00ebrbimet e specializuara p\u00ebrgjat\u00eb gjith\u00eb ciklit t\u00eb jet\u00ebs s\u00eb pacientit, edhe zbatimi i modelit bio-psiko-social t\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar mbetet i pamjaftuesh\u00ebm p\u00ebr t'iu p\u00ebrgjigjur nevojave reale t\u00eb k\u00ebsaj kategorie.\r\n\r\nP\u00ebrmir\u00ebsimi i situat\u00ebs k\u00ebrkon nj\u00eb qasje t\u00eb integruar t\u00eb politikave publike. Kjo n\u00ebnkupton njohjen e fibroz\u00ebs cistike si nj\u00eb patologji komplekse dhe multisistemike, p\u00ebrdit\u00ebsimin e protokolleve komb\u00ebtare t\u00eb trajtimit n\u00eb p\u00ebrputhje me standardet nd\u00ebrkomb\u00ebtare, zgjerimin e list\u00ebs s\u00eb barnave t\u00eb rimbursueshme, krijimin e ekipeve multidisiplinare t\u00eb specializuara, garantimin e tranzicionit t\u00eb sigurt nga sh\u00ebrbimet pediatrike n\u00eb ato p\u00ebr t\u00eb rriturit, si dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb reflekton kufizimet funksionale dhe nevojat reale t\u00eb pacient\u00ebve, e jo vet\u00ebm diagnoz\u00ebn klinike.\r\n\r\n\r\n\r\n\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.<\/div><\/article>Rasti i pacientit n\u00eb Durr\u00ebs: Nj\u00eb alarm p\u00ebr aksesin e barabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit<\/h2><\/div><\/div>Ka ngjarje q\u00eb n\u00eb rrjetet sociale zgjasin vet\u00ebm pak minuta dhe pastaj harrohen si t\u00eb mos kishin ndodhur kurr\u00eb. Por ka edhe t\u00eb tilla q\u00eb kan\u00eb jehon\u00eb t\u00eb gjat\u00eb dhe marrin edhe reagimin e institucioneve. Rasti i pacientit 52-vje\u00e7ar n\u00eb Durr\u00ebs \u00ebsht\u00eb nj\u00ebri prej tyre.\r\n\r\nPamjet e nj\u00eb burri t\u00eb s\u00ebmur\u00eb, q\u00eb sipas informacioneve t\u00eb para ishte transportuar me ambulanc\u00eb nga Spitali i Durr\u00ebsit p\u00ebr t\u2019u braktisur n\u00eb \u2018rrug\u00eb\u2019, trondit\u00ebn opinionin publik. Reagime t\u00eb shumta pasuan, versione kontradiktore dhe deklarata institucionale. Fillimisht u raportua se pacienti kishte nd\u00ebrruar jet\u00eb, por m\u00eb pas Spitali Rajonal i Durr\u00ebsit sqaroi se ai ishte gjall\u00eb dhe ndodhej s\u00ebrish n\u00ebn kujdes mjek\u00ebsor, nd\u00ebrsa dy dit\u00eb pas ngjarjes Ministria e Sh\u00ebndet\u00ebsis\u00eb urdh\u00ebroi nisjen e nj\u00eb hetimi administrativ.\r\n\r\nMegjithat\u00eb, edhe pas reagimeve zyrtare, ende shum\u00eb pyetje mbeten ende pa p\u00ebrgjigje.\r\n\r\nN\u00ebse pacienti ishte n\u00eb gjendje t\u00eb stabilizuar dhe trajtimi spitalor kishte p\u00ebrfunduar, si ka mund\u00ebsi q\u00eb vet\u00ebm pak or\u00eb m\u00eb von\u00eb ai u rikthye n\u00eb spital dhe iu n\u00ebnshtrua menj\u00ebher\u00eb nj\u00eb nd\u00ebrhyrjeje tjet\u00ebr kirurgjikale, e cila p\u00ebrfundoi me amputimin e nj\u00ebr\u00ebs k\u00ebmb\u00eb? N\u00ebse, p\u00ebrkundrazi, gjendja e tij k\u00ebrkonte ende monitorim dhe nd\u00ebrhyrje, p\u00ebrse u largua nga spitali?\r\n\r\nK\u00ebto jan\u00eb pyetje q\u00eb lidhen drejtp\u00ebrdrejt me standardet e kujdesit sh\u00ebndet\u00ebsor publik n\u00eb Shqip\u00ebri.\r\n\r\nPo aq e r\u00ebnd\u00ebsishme \u00ebsht\u00eb q\u00eb institucionet t\u00eb sqarojn\u00eb se si ka funksionuar zinxhiri i vendimmarrjes n\u00eb k\u00ebt\u00eb rast. Kush e mori vendimin p\u00ebr daljen nga spitali t\u00eb pacientit t\u00eb s\u00ebmur\u00eb? Cilat ishin kriteret mjek\u00ebsore q\u00eb u ndoq\u00ebn nga vemdimarr\u00ebsit p\u00ebr rastin? A pat\u00ebn dhe a duhet t\u00eb kishin rol sh\u00ebrbimet sociale n\u00eb nj\u00eb koh\u00eb q\u00eb prej vitesh po trumbetohet nga institucionet ngritja e sh\u00ebrbimeve multidisiplinare, ku p\u00ebrfshihen sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe sociale? Dhe, a ekziston dokumentacioni q\u00eb provon se pacienti iu dor\u00ebzua v\u00ebrtet\u00eb nj\u00eb familjari, si\u00e7 deklaron spitali?\r\n\r\nNga ana tjet\u00ebr, edhe deklarata e Spitalit Rajonal t\u00eb Durr\u00ebsit ngre t\u00eb tjera pyetje. Institucioni pohon se pacienti nuk kishte vend ku t\u00eb q\u00ebndronte, se u njoftuan sh\u00ebrbimet sociale dhe Policia e Shtetit dhe se nj\u00eb familjar pranoi ta merrte n\u00eb banes\u00eb. Megjithat\u00eb, deri m\u00eb sot nuk \u00ebsht\u00eb ofruar asnj\u00eb informacion q\u00eb t\u00eb sqaroj\u00eb se kush ishte familjari (sigurisht jo t\u00eb dh\u00ebnat personale t\u00eb tij), ku ndodhej banesa apo n\u00ebse pacienti q\u00ebndroi realisht aty. P\u00ebrkundrazi, persona q\u00eb deklarojn\u00eb se e njihnin pacientin kan\u00eb pohuar publikisht se ai nuk kishte asnj\u00eb familjar q\u00eb t\u00eb kujdesej p\u00ebr t\u00eb dhe as nj\u00eb banes\u00eb ku t\u00eb strehohej. Ndaj, n\u00eb k\u00ebt\u00eb rast hetimi nuk mund t\u00eb kufizohet vet\u00ebm tek ndjekja e procedurave dhe protokolleve mjek\u00ebsore. Hetimit duhet t\u2019i n\u00ebnshtrohen t\u00eb gjitha hallkat e mekanizmave mbrojt\u00ebs, p\u00ebrfshi ato sociale.\r\n\r\nRasti i pacientit nga Durr\u00ebsi rikthen n\u00eb v\u00ebmendje nj\u00eb problem q\u00eb Together for Life e ka ngritur prej vitesh: qasjen e pabarabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore p\u00ebr pacient\u00ebt m\u00eb vulnerab\u00ebl. N\u00ebse do t\u2019i referohemi dokumentave strategjike, legjislacionit dhe deklaratave publike t\u00eb drejtuesve t\u00eb sh\u00ebndet\u00ebsis\u00eb sistemi publik garanton kujdes sh\u00ebndet\u00ebsor t\u00eb barabart\u00eb dhe t\u00eb aksesuesh\u00ebm p\u00ebr t\u00eb gjith\u00eb. Megjithat\u00eb, n\u00eb shum\u00eb raste, p\u00ebrfshi edhe k\u00ebt\u00eb t\u00eb fundit, pacient\u00ebt q\u00eb klasifikohet tek grupet me t\u00eb c\u00ebnueshme si ata nga familje t\u00eb varfra, t\u00eb braktisurit, personat me probleme t\u00eb sh\u00ebndetit mendor apo q\u00eb jetojn\u00eb n\u00eb kushte t\u00eb r\u00ebnda social-ekonomike p\u00ebrballen shpesh me barriera t\u00eb m\u00ebdha q\u00eb ua b\u00ebjn\u00eb t\u00eb v\u00ebshtir\u00eb, madje t\u00eb pamundur marrjen e trajtimit sh\u00ebndet\u00ebsor p\u00ebr t\u00eb cilin kan\u00eb nevoj\u00eb.\r\n\r\nN\u00ebse statusi social i nj\u00eb pacienti ndikon n\u00eb m\u00ebnyr\u00ebn se si ai trajtohet nga institucionet, at\u00ebher\u00eb nuk kemi t\u00eb b\u00ebjm\u00eb vet\u00ebm me nj\u00eb problem administrativ. Kemi t\u00eb b\u00ebjm\u00eb me c\u00ebnimin e parimit t\u00eb barazis\u00eb n\u00eb aksesin ndaj sh\u00ebrbimeve publike.\r\n\r\nFakti q\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb ka urdh\u00ebruar nj\u00eb hetim administrativ dhe se Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi ka nisur nj\u00eb procedur\u00eb hetimore kryesisht, \u00ebsht\u00eb p\u00ebr t\u2019u vler\u00ebsuar, por ende jo i mjaftuesh\u00ebm. P\u00ebrtej hetimit administrativ t\u00eb nisur nga dy institucionet e m\u00ebsip\u00ebrme, ky rast ngre edhe nj\u00eb tjet\u00ebr \u00e7\u00ebshtje me r\u00ebnd\u00ebsi publike: mbrojtjen e t\u00eb dh\u00ebnave personale t\u00eb pacientit. Publikimi nga institucioni spitalor i identitetit, diagnoz\u00ebs, historis\u00eb klinike dhe informacioneve tep\u00ebr sensitive, si statusi HIV dhe p\u00ebrdorimi i substancave narkotike, shtrojn\u00eb pyetjen n\u00ebse jan\u00eb respektuar detyrimet ligjore p\u00ebr konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore. Edhe n\u00ebse synimi ishte mbrojtja e institucionit nga akuzat publike, kjo nuk mund t\u00eb justifikoj\u00eb ekspozimin e t\u00eb dh\u00ebnave q\u00eb mbrohen nga legjislacioni shqiptar, Konventa Evropiane p\u00ebr t\u00eb Drejtat e Njeriut, Rregullorja Evropiane p\u00ebr Mbrojtjen e t\u00eb Dh\u00ebnave (GDPR) dhe parimet universale t\u00eb etik\u00ebs mjek\u00ebsore. Konfidencialiteti nuk \u00ebsht\u00eb nj\u00eb formalitet administrativ, \u00ebsht\u00eb element shum\u00eb i r\u00ebnd\u00ebsish\u00ebm p\u00ebr t\u00eb garantuar dinjitetin e pacientit.\r\n\r\nNdaj kjo ngjarje nuk duhet t\u00eb reduktohet vet\u00ebm n\u00eb debatin n\u00ebse pacienti u \"braktis\" apo jo. Kjo \u00ebsht\u00eb vet\u00ebm nj\u00eb pjes\u00eb e historis\u00eb. Pyetja m\u00eb e r\u00ebnd\u00ebsishme n\u00eb k\u00ebt\u00eb rast \u00ebsht\u00eb n\u00ebse sistemi funksionoi ashtu si\u00e7 duhet p\u00ebr nj\u00eb qytetar n\u00eb nevoj\u00eb. N\u00ebse u respektuan standardet profesionale. N\u00ebse institucionet bashk\u00ebpunuan si\u00e7 duhet. N\u00ebse t\u00eb drejtat e pacientit u mbrojt\u00ebn. Dhe n\u00ebse, p\u00ebrtej p\u00ebrgjegj\u00ebsive individuale, ky rast nxjerr n\u00eb pah mang\u00ebsi strukturore q\u00eb k\u00ebrkojn\u00eb reagim t\u00eb menj\u00ebher\u00ebsh.\r\n\r\nSepse nj\u00eb sistem sh\u00ebndet\u00ebsor nuk matet vet\u00ebm me buxhetin e alokuar nga fondet publike, q\u00eb p\u00ebr hir t\u00eb s\u00eb v\u00ebrtet\u00ebs vazhdojn\u00eb t\u00eb jen\u00eb m\u00eb t\u00eb ultat n\u00eb Rajon, por, mbi t\u00eb gjitha, matet me m\u00ebnyr\u00ebn si i trajton pacient\u00ebt, ve\u00e7an\u00ebrisht m\u00eb t\u00eb pambrojturit dhe t\u00eb rrezikuarit.\r\n\r\n \r\n\r\nREAGIMET E INSTITUCIONEVE \r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebq\u00ebnies Sociale - Lidhur me trajtimin e rastit t\u00eb pacientit 52-vje\u00e7ar A.A., nga qyteti i Durr\u00ebsit, Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale ka urdh\u00ebruar nisjen e nj\u00eb hetimi t\u00eb thelluar administrativ, i cili do t\u00eb shqyrtoj\u00eb n\u00eb m\u00ebnyr\u00eb t\u00eb plot\u00eb jo vet\u00ebm procedurat dhe masat e marra nga struktura spitalore, por edhe veprimet dhe p\u00ebrgjegj\u00ebsit\u00eb e strukturave t\u00eb sh\u00ebrbimit social t\u00eb p\u00ebrfshira n\u00eb k\u00ebt\u00eb rast.\r\n\r\nN\u00eb kuad\u00ebr t\u00eb k\u00ebtij procesi, drejtuesit e Operatorit t\u00eb Sh\u00ebrbimeve t\u00eb Kujdesit Sh\u00ebndet\u00ebsor dhe t\u00eb Sh\u00ebrbimit Social Shtet\u00ebror jan\u00eb n\u00eb terren p\u00ebr t\u00eb kryer verifikime t\u00eb drejtp\u00ebrdrejta dhe p\u00ebr t\u00eb mbik\u00ebqyrur procesin e hetimit administrativ t\u00eb strukturave n\u00eb qytetin e Durr\u00ebsit.\r\n\r\nNd\u00ebrkoh\u00eb, pacienti ndodhet n\u00ebn kujdesin e strukturave sh\u00ebndet\u00ebsore n\u00eb spitalin rajonal t\u00eb Durr\u00ebsit.\r\n\r\nGjithashtu, po verifikohet i gjith\u00eb dokumentacioni sh\u00ebndet\u00ebsor dhe administrativ, si edhe p\u00ebrgjegj\u00ebsia e personave t\u00eb p\u00ebrfshir\u00eb n\u00eb menaxhimin dhe transportimin e pacientit.\r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale mbetet e angazhuar p\u00ebr t\u00eb garantuar transparenc\u00eb t\u00eb plot\u00eb, zbardhjen e t\u00eb gjitha rrethanave t\u00eb k\u00ebtij rasti dhe marrjen e \u00e7do mase administrative apo ligjore q\u00eb do t\u00eb rezultoj\u00eb e nevojshme.\r\n\r\n\u00a0\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi - Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin kryesisht p\u00ebr rastin e b\u00ebr\u00eb publik n\u00eb Spitalin Rajonal t\u00eb Durr\u00ebsit\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin \u201cex-officio\u201d t\u00eb \u00e7\u00ebshtjes n\u00eb lidhje me trajtimin dhe ofrimin e sh\u00ebrbimeve t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe shoq\u00ebror ndaj shtetasit t\u00eb identifikuar si A.A, 52 vje\u00e7, nga qyteti i Durr\u00ebsit.\r\n\r\nPas informacioneve t\u00eb b\u00ebra publike n\u00eb media, Komisioneri ka vendosur fillimin e procedur\u00ebs administrative kryesisht, n\u00eb zbatim t\u00eb Ligjit nr. 10221, dat\u00eb 04.02.2010, \u201cP\u00ebr Mbrojtjen nga Diskriminimi\u201d si dhe dispozitat e Kodit t\u00eb Procedurave Administrative, p\u00ebr t\u00eb verifikuar n\u00ebse n\u00eb rastin konkret jan\u00eb respektuar parimet e trajtimit t\u00eb barabart\u00eb dhe mosdiskriminimit n\u00eb ofrimin e sh\u00ebrbimeve sh\u00ebndet\u00ebsore dhe shoq\u00ebrore.\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi mbetet i angazhuar n\u00eb garantimin e s\u00eb drejt\u00ebs s\u00eb \u00e7do individi p\u00ebr trajtim t\u00eb barabart\u00eb dhe akses pa diskriminim n\u00eb sh\u00ebrbimet publike dhe private, duke nd\u00ebrhyr\u00eb n\u00eb \u00e7do rast kur ka indicie se k\u00ebto t\u00eb drejta mund t\u00eb jen\u00eb c\u00ebnuar.\r\n\r\n \r\n\r\nSpitali Rajonal i Durr\u00ebsit - N\u00eb lidhje me lajmin e publikuar n\u00eb media, sipas t\u00eb cilit nj\u00eb pacient i trajtuar m\u00eb par\u00eb n\u00eb Spitalin Rajonal Durr\u00ebs ka nd\u00ebrruar jet\u00eb, sqarojm\u00eb se ky informacion nuk \u00ebsht\u00eb i v\u00ebrtet\u00eb.\r\n\r\nPacienti \u00ebsht\u00eb paraqitur s\u00ebrish dit\u00ebn e djeshme n\u00eb Sh\u00ebrbimin e Urgjenc\u00ebs t\u00eb Spitalit Rajonal Durr\u00ebs, ku vijon t\u00eb q\u00ebndroj\u00eb n\u00ebn kujdesin dhe vler\u00ebsimin e personelit mjek\u00ebsor.\r\n\r\nP\u00ebr informimin e plot\u00eb t\u00eb opinionit publik b\u00ebjm\u00eb me dije se pacienti ishte trajtuar m\u00eb par\u00eb n\u00eb QSUT, ku i ishte kryer nj\u00eb nd\u00ebrhyrje nga mjek\u00ebt kirurg\u00eb vaskular\u00eb n\u00eb en\u00ebt e gjakut t\u00eb k\u00ebmb\u00ebs s\u00eb majt\u00eb. Pas komunikimit nd\u00ebrmjet mjek\u00ebve, ai u shtrua n\u00eb Spitalin Rajonal Durr\u00ebs, ku q\u00ebndroi dhe u trajtua p\u00ebr disa jav\u00eb, duke marr\u00eb kujdesin e nevojsh\u00ebm mjek\u00ebsor n\u00eb p\u00ebrputhje me gjendjen e tij sh\u00ebndet\u00ebsore.\r\n\r\nPas stabilizimit t\u00eb parametrave klinik\u00eb dhe p\u00ebrfundimit t\u00eb trajtimit spitalor, pacientit iu p\u00ebrgatit epikriza dhe iu komunikua dalja nga spitali. Duke qen\u00eb se ai deklaroi se nuk kishte nj\u00eb vend ku t\u00eb q\u00ebndronte, strukturat e spitalit njoftuan sh\u00ebrbimin social dhe organet e Policis\u00eb s\u00eb Shtetit, me q\u00ebllim gjetjen e nj\u00eb zgjidhjeje t\u00eb sigurt sociale dhe familjare.\r\n\r\nPas komunikimeve t\u00eb kryera nga strukturat p\u00ebrkat\u00ebse, nj\u00eb familjar deklaroi se do ta merrte pran\u00eb banes\u00ebs s\u00eb tij. Pacienti u transportua me autoambulanc\u00eb deri n\u00eb destinacion, i shoq\u00ebruar nga punonj\u00ebs t\u00eb Policis\u00eb s\u00eb Shtetit, dhe iu dor\u00ebzua familjarit.\r\n\r\nP\u00ebr rrjedhoj\u00eb, sqarojm\u00eb se pacienti nuk \u00ebsht\u00eb nxjerr\u00eb apo braktisur n\u00eb rrug\u00eb nga Spitali Rajonal Durr\u00ebs, si\u00e7 pretendohet n\u00eb publikim. Dalja e tij nga spitali \u00ebsht\u00eb kryer pas p\u00ebrfundimit t\u00eb trajtimit, me dokumentacionin p\u00ebrkat\u00ebs mjek\u00ebsor dhe pas koordinimit me strukturat sociale, policore dhe familjare.\r\n\r\nSpitali Rajonal Durr\u00ebs u b\u00ebn thirrje mediave q\u00eb, ve\u00e7an\u00ebrisht n\u00eb raste kaq t\u00eb ndjeshme, informacioni t\u00eb verifikohet pran\u00eb institucioneve p\u00ebrkat\u00ebse p\u00ebrpara publikimit.\r\n\r\nInstitucioni yn\u00eb mbetet i angazhuar p\u00ebr ofrimin e kujdesit sh\u00ebndet\u00ebsor dhe p\u00ebr bashk\u00ebpunimin me \u00e7do autoritet kompetent, duke respektuar konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit.<\/div><\/article>TFL, fokus grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje<\/h2><\/div><\/div>Together for Life\u00a0zhvilloi nj\u00eb fokus-grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje, p\u00ebr t\u00eb\u00a0diskutuar ndikimin q\u00eb\u00a0ka pasur zbatimi\u00a0i skem\u00ebs s\u00eb\u00a0re t\u00eb vler\u00ebsimit\u00a0t\u00eb aft\u00ebsis\u00eb s\u00eb\u00a0kufizuar, bazuar n\u00eb\u00a0modelin\u00a0bio-psiko-social, si dhe sfidat\u00a0q\u00eb ata vazhdojn\u00eb\u00a0t\u00eb p\u00ebrballen \u00e7do\u00a0dit\u00eb.\r\n\r\nGjat\u00eb diskutimit u ngrit\u00ebn shqet\u00ebsime serioze mbi:\r\n\u2022 v\u00ebshtir\u00ebsit\u00eb n\u00eb procesin\u00a0e vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe munges\u00ebn e\u00a0njohjes s\u00eb plot\u00eb\u00a0t\u00eb k\u00ebsaj patologjie\u00a0nga komisionet e\u00a0vler\u00ebsimit;\r\n\u2022 munges\u00ebn e mb\u00ebshtetjes\u00a0psikologjike p\u00ebr pacient\u00ebt\u00a0dhe familjet q\u00eb\u00a0nga momenti i\u00a0diagnostikimit;\r\n\u2022 aksesin e kufizuar n\u00eb trajtime\u00a0dhe medikamente t\u00eb\u00a0domosdoshme, shum\u00eb prej\u00a0t\u00eb cilave mbeten\u00a0t\u00eb pap\u00ebrballueshme financiarisht;\r\n\u2022 munges\u00ebn e nj\u00eb\u00a0qasjeje t\u00eb integruar\u00a0p\u00ebr mbulimin e\u00a0nevojave sh\u00ebndet\u00ebsore,\u00a0sociale dhe t\u00eb\u00a0pun\u00ebsimit;\r\n\u2022 nevoj\u00ebn p\u00ebr politika\u00a0publike q\u00eb njohin\u00a0fibroz\u00ebn\u00a0cistike si nj\u00eb\u00a0s\u00ebmundje komplekse, q\u00eb\u00a0k\u00ebrkon trajtim multidisiplinar\u00a0dhe mb\u00ebshtetje t\u00eb\u00a0vazhdueshme.\r\n\r\nKy fokus-grup\u00a0\u00ebsht\u00eb pjes\u00eb\u00a0e monitorimit t\u00eb\u00a0efekteve t\u00eb reform\u00ebs\u00a0s\u00eb vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe synon t\u00eb\u00a0siguroj\u00eb q\u00eb z\u00ebri\u00a0dhe p\u00ebrvoja e\u00a0personave t\u00eb\u00a0prekur t\u00eb reflektohen\u00a0n\u00eb p\u00ebrmir\u00ebsimin e\u00a0politikave publike.\r\nAskush nuk duhet\u00a0t\u00eb mbetet pa\u00a0mb\u00ebshtetje p\u00ebr shkak\u00a0t\u00eb nj\u00eb sistemi\u00a0q\u00eb nuk arrin\u00a0t\u00eb kuptoj\u00eb kompleksitetin\u00a0e nevojave t\u00eb\u00a0tij.\r\n\r\n***\r\nTogether for Life organized a focus group with people living with cystic fibrosis and parents of children affected by the condition to discuss the impact of the implementation of the new disability assessment scheme based on the bio-psycho-social model, as well as the challenges they continue to face in accessing healthcare, social protection, and employment opportunities.\r\n\r\nParticipants highlighted several critical concerns, including:\r\n\u2022 challenges in the disability assessment process and the limited recognition of cystic fibrosis by assessment commissions;\r\n\u2022 the lack of psychological support for patients and their families from the moment of diagnosis;\r\n\u2022 limited access to essential medicines and treatment, many of which remain financially out of reach;\r\n\u2022 the absence of an integrated approach to addressing healthcare, social, and employment needs;\r\n\u2022 the urgent need for public policies that recognize cystic fibrosis as a complex condition requiring multidisciplinary care and long-term support.\r\n\r\nThis focus group forms part of the broader monitoring of the effects of Albania's disability assessment reform and aims to ensure that the experiences and voices of people living with cystic fibrosis are reflected in future policy improvements.<\/div><\/article>Trajnim me gazetar\u00eb\/ Raportimi etik i Dhun\u00ebs me Baz\u00eb Gjinore: Roli i Medias n\u00eb Nd\u00ebrgjegj\u00ebsimin Publik dhe Promovimin e Barazis\u00eb Gjinore<\/h2><\/div><\/div>\ud835\udc0a\ud835\udc2e\ud835\udc2b \ud835\udc20\ud835\udc1a\ud835\udc33\ud835\udc1e\ud835\udc2d\ud835\udc1a\ud835\udc2b\ud835\udc22 \ud835\udc2b\ud835\udc1a\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc28\ud835\udc27 \ud835\udc29\u00eb\ud835\udc2b \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc26\ud835\udc1e \ud835\udc1b\ud835\udc1a\ud835\udc33\u00eb \ud835\udc20\ud835\udc23\ud835\udc22\ud835\udc27\ud835\udc28\ud835\udc2b\ud835\udc1e \ud835\udc1a\ud835\udc29\ud835\udc28 \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc27\u00eb \ud835\udc1f\ud835\udc1a\ud835\udc26\ud835\udc22\ud835\udc25\ud835\udc23\ud835\udc1e, \ud835\udc27\ud835\udc2e\ud835\udc24 \ud835\udc29\ud835\udc28 \ud835\udc2d\ud835\udc2b\ud835\udc1e\ud835\udc20\ud835\udc28\ud835\udc27 \ud835\udc2d\ud835\udc21\ud835\udc23\ud835\udc1e\ud835\udc2c\ud835\udc21\ud835\udc2d \ud835\udc27\ud835\udc23\u00eb \ud835\udc21\ud835\udc22\ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc22. \ud835\udc0f\ud835\udc28 \ud835\udc27\ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc28\ud835\udc27 \ud835\udc27\u00eb \ud835\udc23\ud835\udc1e\ud835\udc2d\u00eb\ud835\udc27 \ud835\udc1e \ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc2e\ud835\udc23\ud835\udc2d.\n\n\n\nGjat\u00eb muajve qershor dhe korrik, gazetar\u00eb nga media t\u00eb ndryshme u b\u00ebn\u00eb pjes\u00eb e nj\u00eb serie trajnimesh kushtuar raportimit etik dhe profesional t\u00eb rasteve t\u00eb dhun\u00ebs me baz\u00eb gjinore dhe dhun\u00ebs n\u00eb familje, t\u00eb organizuara nga Together for Life, n\u00eb kuad\u00ebr t\u00eb \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc24\ud835\udc2d\ud835\udc22\ud835\udc2d \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 \u2013 \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a, i cili zbatohet nga nj\u00eb konsorcium organizatash dhe financohet nga Bashkimi Evropian.\n\n\n\n\nP\u00ebrmes analiz\u00ebs s\u00eb rasteve reale q\u00eb kan\u00eb tronditur opinionin publik pjes\u00ebmarr\u00ebsit diskutuan jo vet\u00ebm \u00e7far\u00eb raportohet, por mbi t\u00eb gjitha si raportohet.\n\n\n\nSepse gazetaria ka fuqin\u00eb:\nt\u00eb informoj\u00eb pa d\u00ebmtuar ask\u00ebnd;\n\u00a0t\u00eb mbroj\u00eb dinjitetin dhe privat\u00ebsin\u00eb e t\u00eb mbijetuarve;\n\u00a0t\u00eb edukoj\u00eb publikun;\nt\u00eb k\u00ebrkoj\u00eb llogari nga institucionet p\u00ebrgjegj\u00ebse \u2013 p\u00ebrfshir\u00eb sistemin sh\u00ebndet\u00ebsor, policin\u00eb, prokurorin\u00eb dhe sh\u00ebrbimet sociale \u2013 p\u00ebr m\u00ebnyr\u00ebn se si identifikojn\u00eb, raportojn\u00eb dhe menaxhojn\u00eb rastet e dhun\u00ebs.\n\n\nNj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e diskutimeve mes kolegeve gazetare iu kushtua sfid\u00ebs s\u00eb medias p\u00ebr t\u00eb mos r\u00ebn\u00eb pre e gar\u00ebs p\u00ebr klikime, duke shmangur gjuh\u00ebn q\u00eb romantizon dhun\u00ebn, faj\u00ebson viktim\u00ebn, cenon privat\u00ebsin\u00eb ose riviktimizon t\u00eb mbijetuarit.\n\n\n\nP\u00ebrmes metodave interaktive, si Mentimeter, gazetar\u00ebt testuan njohurit\u00eb e tyre, sfiduan perceptimet dhe reflektuan mbi p\u00ebrgjegj\u00ebsin\u00eb q\u00eb mbart \u00e7do lajm i publikuar. Sepse nj\u00eb raportim i mir\u00eb nuk matet vet\u00ebm me numrin e klikimeve.\n\n\n\n\nAi matet me ndikimin q\u00eb l\u00eb tek njer\u00ebzit, me besimin q\u00eb nd\u00ebrton dhe me kontributin q\u00eb jep p\u00ebr nj\u00eb shoq\u00ebri q\u00eb nuk e normalizon dhun\u00ebn, por e denon at\u00eb.\n\n\nKy publikim u realizua n\u00eb kuad\u00ebr t\u00eb iniciativ\u00ebs \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, t\u00eb zbatuar nga Gender Alliance for Development Centre (GADC), Together for Life dhe Institute of Romani Culture in Albania (IRCA), mb\u00ebshtetur financiarisht nga Bashkimi Evropian. P\u00ebrmbajtja e k\u00ebtij dokumenti \u00ebsht\u00eb p\u00ebrgjegj\u00ebsi e vetme e Together for Life dhe n\u00eb asnj\u00eb rrethan\u00eb nuk mund t\u00eb konsiderohet se pasqyron pozicionin e Bashkimit Evropian.\n\n\n\n***\n\n\n\n\ud835\udc16\ud835\udc21\ud835\udc1e\ud835\udc27 \ud835\udc1a \ud835\udc23\ud835\udc28\ud835\udc2e\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2c\ud835\udc2d \ud835\udc2b\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc2c \ud835\udc28\ud835\udc27 \ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b-\ud835\udc1b\ud835\udc1a\ud835\udc2c\ud835\udc1e\ud835\udc1d \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e \ud835\udc28\ud835\udc2b \ud835\udc1d\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc2c\ud835\udc2d\ud835\udc22\ud835\udc1c \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc27\ud835\udc28\ud835\udc2d \ud835\udc2c\ud835\udc22\ud835\udc26\ud835\udc29\ud835\udc25\ud835\udc32 \ud835\udc2d\ud835\udc1e\ud835\udc25\ud835\udc25\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc1a \ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc32, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc22\ud835\udc27\ud835\udc1f\ud835\udc25\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc2c\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc28\ud835\udc27\ud835\udc1e'\ud835\udc2c \ud835\udc25\ud835\udc22\ud835\udc1f\ud835\udc1e.\n\n\n\nDuring June and July, journalists from various media outlets participated in a series of training sessions on the ethical and professional reporting of gender-based violence and domestic violence cases.\n\n\nThe trainings were organized by Together for Life as part of the \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 - \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc1c\ud835\udc2d, implemented by GADC, TFL and IRCA organizations and funded by the European Union.\n\n\n\nThrough the analysis of real-life cases that have shocked public opinion, participants explored not only what is reported, but, more importantly, how it is reported.\n\n\nBecause journalism has the power to:\n\u00a0inform without causing harm;\nprotect the dignity and privacy of survivors;\neducate the public;\nhold responsible institutions, including the healthcare system, the police, the prosecution, and social services, accountable for how they identify, report, and respond to cases of violence.\n\n\nAn important part of the discussions among the participating journalists focused on the media's responsibility to resist the race for clicks by avoiding language that romanticizes violence, blames victims, violates their privacy, or re-traumatizes survivors.\n\n\n\n\n\u00a0Through interactive methods such as Mentimeter, journalists tested their knowledge, challenged their assumptions, and reflected on the responsibility that comes with every story they publish.\n\n\nBecause good journalism is not measured solely by the number of clicks. It is measured by the impact it has on people's lives, the trust it builds, and the contribution it makes to a society that does not normalize violence, but exposes and condemns it.\n\n\n\nThis publication was produced as part of the initiative \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, implemented by the Gender Alliance for Development Centre (GADC), Together for Life, and the Institute of Romani Culture in Albania (IRCA), with financial support from the European Union. The contents of this video are the sole responsibility of Together for Life and can under no circumstances be regarded as reflecting the position of the European Union.<\/div><\/article><\/div>
Gjasht\u00eb vite pas reform\u00ebs s\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, Shqip\u00ebria p\u00ebrgatit nj\u00eb tjet\u00ebr reform\u00eb ligjore. Projektligji i ri \u201cP\u00ebr p\u00ebrfshirjen dhe aksesueshm\u00ebrin\u00eb e personave me aft\u00ebsi t\u00eb kufizuara\u201d[1], i hedhur p\u00ebr konsultim publik m\u00eb 28 gusht 2026, premton nj\u00eb qasje m\u00eb t\u00eb gjer\u00eb ndaj aksesueshm\u00ebris\u00eb, autonomis\u00eb dhe jetes\u00ebs s\u00eb pavarur. Por p\u00ebrvoja e zbatimit t\u00eb modelit bio-psiko-social, ashtu si edhe e kuadrit ligjor t\u00eb m\u00ebparsh\u00ebm p\u00ebr personat me aft\u00ebsi t\u00eb kufizuara, ngre nj\u00eb pyetje thelb\u00ebsore: p\u00ebrtej t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, kur do t\u00eb mund t\u2019i g\u00ebzojn\u00eb ato realisht personat me aft\u00ebsi t\u00eb kufizuara?\r\n\r\nIshte viti 2019 kur Shqip\u00ebria ndryshoi m\u00ebnyr\u00ebn e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, duke kaluar nga nj\u00eb qasje kryesisht mjek\u00ebsore drejt modelit bio-psiko-social. Sipas institucioneve p\u00ebrgjegj\u00ebse, reforma synonte ta vendoste personin n\u00eb qend\u00ebr t\u00eb procesit, duke mos u ndalur vet\u00ebm te diagnoza apo d\u00ebmtimi sh\u00ebndet\u00ebsor, por duke marr\u00eb n\u00eb konsiderat\u00eb funksionalitetin e individit, pjes\u00ebmarrjen e tij n\u00eb shoq\u00ebri dhe barrierat sociale e mjedisore me t\u00eb cilat p\u00ebrballet.\r\n\r\nN\u00eb parim, ndryshimi ishte thelb\u00ebsor. Ai n\u00ebnkuptonte nj\u00eb zhvendosje nga nj\u00eb sistem q\u00eb fokusohej kryesisht te gjendja mjek\u00ebsore e individit, drejt nj\u00eb qasjeje q\u00eb k\u00ebrkon t\u00eb kuptoj\u00eb \u00e7far\u00eb mund t\u00eb b\u00ebj\u00eb personi, cilat pengesa kufizojn\u00eb pjes\u00ebmarrjen e tij dhe \u00e7far\u00eb mb\u00ebshtetjeje i nevojitet p\u00ebr t\u00eb jetuar n\u00eb m\u00ebnyr\u00eb sa m\u00eb t\u00eb pavarur.\r\n\r\nPor gjasht\u00eb vite m\u00eb pas, pyetja \u00ebsht\u00eb n\u00ebse kjo qasje ka arritur t\u00eb ndryshoj\u00eb realisht jet\u00ebn e personave me aft\u00ebsi t\u00eb kufizuara. Gjetjet e raportit \u201cMbi efektet e zbatimit t\u00eb skem\u00ebs s\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar bazuar n\u00eb modelin bio-psiko-social\u201d tregojn\u00eb se, pavar\u00ebsisht ndryshimit t\u00eb modelit, n\u00eb praktik\u00eb vazhdojn\u00eb t\u00eb ekzistojn\u00eb barriera t\u00eb r\u00ebnd\u00ebsishme n\u00eb procesin e vler\u00ebsimit dhe n\u00eb aksesin n\u00eb mb\u00ebshtetje e sh\u00ebrbime. Mungesa e kapaciteteve t\u00eb specializuara, problemet e infrastruktur\u00ebs, v\u00ebshtir\u00ebsit\u00eb e koordinimit nd\u00ebrmjet profesionist\u00ebve dhe k\u00ebrkesa p\u00ebr paraqitje fizike edhe n\u00eb raste kur personi e ka t\u00eb pamundur t\u00eb udh\u00ebtoj\u00eb, d\u00ebshmojn\u00eb hendekun mes parimit t\u00eb reform\u00ebs dhe zbatimit t\u00eb saj n\u00eb terren.\r\n\r\nDhe pik\u00ebrisht n\u00eb k\u00ebt\u00eb realitet shfaqet projektligji i ri. Ai premton t\u00eb shkoj\u00eb nj\u00eb hap m\u00eb tej: nga vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar te vler\u00ebsimi i nevojave, nga mb\u00ebshtetja financiare te sh\u00ebrbimet dhe jetesa e pavarur, dhe nga koncepti i aksesit fizik te aksesueshm\u00ebria n\u00eb informacion, sh\u00ebrbime, transport, teknologji dhe komunikim.\r\n\r\nPor p\u00ebrvoja e reform\u00ebs s\u00eb vitit 2019 ngre nj\u00eb pik\u00ebpyetje q\u00eb nuk mund t\u00eb anashkalohet: a do t\u00eb sjell\u00eb projektligji nj\u00eb ndryshim real n\u00eb jet\u00ebn e personave me aft\u00ebsi t\u00eb kufizuara, apo do t\u00eb shtoj\u00eb nj\u00eb tjet\u00ebr shtres\u00eb t\u00eb drejtash t\u00eb garantuara n\u00eb let\u00ebr, por t\u00eb v\u00ebshtira p\u00ebr t\u2019u realizuar n\u00eb praktik\u00eb?\r\nAksesueshm\u00ebria dhe testi i zbatimit\r\nNj\u00eb nga risit\u00eb m\u00eb t\u00eb r\u00ebnd\u00ebsishme t\u00eb projektligjit \u00ebsht\u00eb zhvendosja e fokusit nga statusi i aft\u00ebsis\u00eb s\u00eb kufizuar te nevojat konkrete t\u00eb personit. Neni 37 parashikon q\u00eb komisionet multidisiplinare t\u00eb vler\u00ebsojn\u00eb jo vet\u00ebm aft\u00ebsin\u00eb e kufizuar, por edhe nevojat p\u00ebr sh\u00ebrbime, mjete ndihm\u00ebse dhe p\u00ebrkujdesje, bazuar n\u00eb Klasifikimin Nd\u00ebrkomb\u00ebtar t\u00eb Funksionimit, Aft\u00ebsive t\u00eb Kufizuara dhe Sh\u00ebndetit (ICF) dhe duke marr\u00eb n\u00eb konsiderat\u00eb faktor\u00ebt social\u00eb. N\u00ebse kjo qasje zbatohet realisht, ajo do t\u00eb sh\u00ebnonte nj\u00eb ndryshim t\u00eb r\u00ebnd\u00ebsish\u00ebm: personi nuk do t\u00eb trajtohej thjesht si p\u00ebrfitues i nj\u00eb statusi apo pagese, por si subjekt i t\u00eb drejtave, me nevoja konkrete q\u00eb sistemi duhet t\u2019i identifikoj\u00eb dhe t\u2019u p\u00ebrgjigjet.\r\n\r\nPor pik\u00ebrisht k\u00ebtu p\u00ebrvoja e gjasht\u00eb viteve t\u00eb zbatimit t\u00eb modelit bio-psiko-social ngre pik\u00ebpyetje serioze. Raporti i Together for Life evidenton munges\u00eb t\u00eb profesionist\u00ebve dhe kapaciteteve p\u00ebr nj\u00eb vler\u00ebsim realisht multidimensional: 50% e t\u00eb anketuarve raportuan probleme me komponentin psikologjik, nd\u00ebrsa 20% evidentuan munges\u00eb koherence dhe koordinimi brenda komisioneve multidisiplinare. Kjo e zhvendos debatin nga ajo q\u00eb premton ligji te ajo q\u00eb mund t\u00eb zbatoj\u00eb sistemi: a \u00ebsht\u00eb p\u00ebrgatitur stafi, a jan\u00eb siguruar burimet dhe a ekzistojn\u00eb sh\u00ebrbimet q\u00eb duhet t\u2019u p\u00ebrgjigjen nevojave t\u00eb identifikuara?\r\n\r\nE nj\u00ebjta sfid\u00eb shfaqet edhe te koncepti i aksesueshm\u00ebris\u00eb. Projektligji e zgjeron at\u00eb p\u00ebrtej barrierave fizike, duke p\u00ebrfshir\u00eb transportin, informacionin dhe komunikimin, sh\u00ebrbimet bankare, tregtin\u00eb elektronike, librat elektronik\u00eb dhe sh\u00ebrbimet e urgjenc\u00ebs. Por raporti evidenton se edhe n\u00eb aksesin n\u00eb informacion dhe sh\u00ebrbimet digjitale, p\u00ebrfshir\u00eb e-Albania, masa t\u00eb planifikuara p\u00ebr p\u00ebrmir\u00ebsimin e aksesueshm\u00ebris\u00eb nuk ishin realizuar ende.\r\n\r\nKjo e b\u00ebn zbatimin pik\u00ebn m\u00eb kritike t\u00eb reform\u00ebs s\u00eb re. Projektligji \u00ebsht\u00eb m\u00eb ambicioz n\u00eb njohjen e t\u00eb drejtave, por nj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e mekanizmave t\u00eb zbatimit do t\u00eb p\u00ebrcaktohet m\u00eb tej me akte n\u00ebnligjore, p\u00ebrfshir\u00eb kriteret dhe procedurat e aksesueshm\u00ebris\u00eb s\u00eb sh\u00ebrbimeve dhe organizimin e asistenc\u00ebs personale, t\u00eb parashikuara t\u00eb rregullohen brenda 18 muajve nga hyrja n\u00eb fuqi e ligjit.\r\n\r\nN\u00eb k\u00ebt\u00eb kuptim, miratimi i ligjit nuk \u00ebsht\u00eb fundi i reform\u00ebs, por fillimi i testit t\u00eb saj real. Sepse suksesi nuk do t\u00eb matet me numrin e t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, por me sa prej tyre do t\u00eb mund t\u00eb ushtrohen realisht nga personat me aft\u00ebsi t\u00eb kufizuara.\r\nTesti i v\u00ebrtet\u00eb \u00ebsht\u00eb zbatimi\r\nN\u00eb fund, suksesi i projektligjit t\u00eb ri nuk do t\u00eb matet me numrin e t\u00eb drejtave t\u00eb shkruara n\u00eb ligj, fondet e parashikuara apo aktet n\u00ebnligjore t\u00eb miratuara. Ai do t\u00eb matet me barrierat q\u00eb arrin t\u00eb heq\u00eb nga jeta e personave me aft\u00ebsi t\u00eb kufizuara.\r\n\r\nReforma e vitit 2019 synoi t\u00eb ndryshonte m\u00ebnyr\u00ebn se si shteti e vler\u00ebson aft\u00ebsin\u00eb e kufizuar. Projektligji i ri synon t\u00eb ndryshoj\u00eb m\u00ebnyr\u00ebn se si garantohen aksesi, autonomia dhe p\u00ebrfshirja. Por t\u00eb dyja kan\u00eb nj\u00eb pik\u00eb t\u00eb p\u00ebrbashk\u00ebt: vlera e nj\u00eb reforme p\u00ebrcaktohet jo nga ajo q\u00eb premton n\u00eb let\u00ebr, por nga ajo q\u00eb ndryshon n\u00eb jet\u00ebn e njer\u00ebzve.\r\n\r\nPrandaj, sfida e v\u00ebrtet\u00eb fillon me zbatimin. Nj\u00eb e drejt\u00eb q\u00eb nuk mund t\u00eb ushtrohet, nj\u00eb sh\u00ebrbim q\u00eb nuk mund t\u00eb aksesohet apo nj\u00eb mb\u00ebshtetje q\u00eb nuk mb\u00ebrrin te personi q\u00eb ka nevoj\u00eb p\u00ebr t\u00eb, mbetet vet\u00ebm nj\u00eb e drejt\u00eb formale.\r\n\r\nPyetja q\u00eb duhet t\u00eb shoq\u00ebroj\u00eb k\u00ebt\u00eb reform\u00eb \u00ebsht\u00eb, ndaj, e thjesht\u00eb, por thelb\u00ebsore: a do t\u00eb mundet nj\u00eb person me aft\u00ebsi t\u00eb kufizuara, fal\u00eb k\u00ebtij ligji, t\u00eb l\u00ebviz\u00eb m\u00eb lirsh\u00ebm, t\u00eb marr\u00eb sh\u00ebrbimet p\u00ebr t\u00eb cilat ka nevoj\u00eb, t\u00eb vendos\u00eb p\u00ebr jet\u00ebn e vet dhe t\u00eb marr\u00eb pjes\u00eb n\u00eb shoq\u00ebri pa u p\u00ebrballur me t\u00eb nj\u00ebjtat barriera?\r\n\r\nN\u00ebse p\u00ebrgjigjja \u00ebsht\u00eb po, at\u00ebher\u00eb Shqip\u00ebria do t\u00eb ket\u00eb b\u00ebr\u00eb kalimin nga statusi te e drejta, nga pagesa te mb\u00ebshtetja dhe nga letra te jeta reale.\r\n\r\nN\u00ebse jo, rreziku \u00ebsht\u00eb q\u00eb t\u00eb kemi s\u00ebrish nj\u00eb reform\u00eb progresive n\u00eb let\u00ebr, nd\u00ebrsa barrierat vazhdojn\u00eb t\u00eb mbeten aty ku kan\u00eb qen\u00eb: n\u00eb jet\u00ebn e p\u00ebrditshme t\u00eb njer\u00ebzve.\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.\r\n[1] https:\/\/konsultimipublik.gov.al\/Konsultime\/Detaje\/1044<\/div><\/article>Zjarret n\u00eb Shkod\u00ebr: Nga reagimi n\u00eb terren te gatishm\u00ebria e komunitetit<\/h2><\/div>
Zjarret n\u00eb Shkod\u00ebr: Nga reagimi n\u00eb terren te gatishm\u00ebria e komunitetit<\/h2><\/div><\/div>Pas nj\u00eb situate t\u00eb v\u00ebshtir\u00eb gjat\u00eb djeshme (8 shtator 2026), ku n\u00eb territorin e Bashkis\u00eb Shkod\u00ebr u evidentuan disa vatra zjarri, sot (9 shtator 2026) situata paraqitet e qet\u00eb dhe pa vatra aktive.\r\n\r\n\r\nGjat\u00eb dit\u00ebs s\u00eb djeshme, u b\u00eb i mundur menaxhimi dhe shuarja e vatrave n\u00eb Oblik\u00eb, Muriqan dhe B\u00ebrdic\u00eb, nd\u00ebrsa vatra n\u00eb Bardhaj, mbi rezervuar, vijoi p\u00ebr nj\u00eb periudh\u00eb t\u00eb ishte aktive, pa paraqitur rrezik p\u00ebr banesat. Fal\u00eb nd\u00ebrhyrjes n\u00eb terren, u shp\u00ebtuan edhe gjasht\u00eb banesa t\u00eb rrezikuara nga zjarri n\u00eb Bardhaj.\r\n\r\n\r\nMir\u00ebnjohje zjarrfik\u00ebsve, Emergjencave Civile, Forcave t\u00eb Armatosura, punonj\u00ebsve t\u00eb Bashkis\u00eb, vullnetar\u00ebve dhe banor\u00ebve q\u00eb kontribuuan gjat\u00eb gjith\u00eb k\u00ebsaj situate.\r\n\r\n\r\nEdhe pse sot situata \u00ebsht\u00eb e qet\u00eb, zona vijon t\u00eb monitorohet p\u00ebr t\u00eb parandaluar \u00e7do riaktivizim t\u00eb mundsh\u00ebm. Kjo situat\u00eb na kujton se gatishm\u00ebria p\u00ebr emergjencat nuk fillon vet\u00ebm n\u00eb momentin kur shfaqet rreziku. Ajo nd\u00ebrtohet \u00e7do dit\u00eb, edhe n\u00eb nivel komunitar.\r\n\r\n\r\nN\u00eb k\u00ebt\u00eb kuad\u00ebr, Rrjeti i Q\u00ebndrueshm\u00ebris\u00eb s\u00eb Komunitetit (Community Resilience Network \u2013 CRN) Daj\u00e7, i mb\u00ebshtetur dhe fuqizuar p\u00ebrmes pun\u00ebs s\u00eb Together for Life, \u00ebsht\u00eb nj\u00eb mekaniz\u00ebm komunitar q\u00eb kontribuon n\u00eb forcimin e komunikimit, informimit dhe gatishm\u00ebris\u00eb n\u00eb nivel lokal.\r\n\r\n\r\nRrjeti \u00ebsht\u00eb vigjilent dhe aktiv n\u00eb komunikim dhe k\u00ebshillim me komunitetin n\u00eb Daj\u00e7, n\u00eb m\u00ebnyr\u00eb q\u00eb, n\u00eb rast t\u00eb nj\u00eb emergjence, informacioni i sakt\u00eb dhe nevojat e komunitetit t\u00eb p\u00ebrcillen dhe t\u00eb adresohen sa m\u00eb shpejt.\r\n\r\n\r\nCRN Daj\u00e7 sh\u00ebrben si nj\u00eb ur\u00eb lidh\u00ebse mes komunitetit, institucioneve dhe strukturave t\u00eb emergjencave, duke ndihmuar n\u00eb:\r\n\r\n\r\n\r\n \tp\u00ebrcjelljen e informacionit t\u00eb sakt\u00eb dhe n\u00eb koh\u00eb;\r\n \tidentifikimin e personave dhe familjeve q\u00eb mund t\u00eb ken\u00eb nevoj\u00eb p\u00ebr mb\u00ebshtetje t\u00eb ve\u00e7ant\u00eb;\r\n \tevidentimin e nevojave dhe problematikave n\u00eb komunitet;\r\n \tforcimin e komunikimit dhe koordinimit n\u00eb rast emergjence;\r\n \trritjen e nd\u00ebrgjegj\u00ebsimit p\u00ebr parandalimin dhe gatishm\u00ebrin\u00eb ndaj emergjencave.\r\n \t\r\n\r\n\r\nNj\u00eb komunitet i p\u00ebrgatitur nuk z\u00ebvend\u00ebson strukturat e emergjenc\u00ebs. P\u00ebrkundrazi, ai i ndihmon ato t\u00eb reagojn\u00eb m\u00eb mir\u00eb dhe m\u00eb shpejt aty ku nevojitet.\r\n\r\n\r\nP\u00ebr t\u00eb gjitha komunitetet n\u00eb zonat e prekura nga zjarret apo n\u00eb zona q\u00eb mund t\u00eb p\u00ebrballen me rrezik, apelojm\u00eb p\u00ebr qet\u00ebsi, kujdes dhe p\u00ebrgjegjshm\u00ebri:\r\n\r\n\r\n\u2022 T\u00eb ndiqen vet\u00ebm informacionet nga burimet zyrtare.\r\n\u2022 T\u00eb mos shp\u00ebrndahen lajme apo pamje t\u00eb pakonfirmuara q\u00eb mund t\u00eb krijojn\u00eb panik.\r\n\u2022 T\u00eb respektohen udh\u00ebzimet e autoriteteve.\r\n\u2022 T\u00eb mos afrohemi n\u00eb zonat e zjarrit p\u00ebr t\u00eb filmuar apo fotografuar.\r\n\u2022 T\u00eb tregohet kujdes i ve\u00e7ant\u00eb p\u00ebr t\u00eb moshuarit, personat me aft\u00ebsi t\u00eb kufizuara, f\u00ebmij\u00ebt dhe personat e tjer\u00eb q\u00eb mund t\u00eb ken\u00eb nevoj\u00eb p\u00ebr mb\u00ebshtetje.\r\n\r\n\r\nSot situata \u00ebsht\u00eb e qet\u00eb. Por gatishm\u00ebria duhet t\u00eb vazhdoj\u00eb.\r\n\r\n\r\nQet\u00ebsi. Informim. Solidaritet. Gatishm\u00ebri.\r\n\r\n\r\nTogether for Life | Rrjeti i Q\u00ebndrueshm\u00ebris\u00eb s\u00eb Komunitetit (Community Resilience Network \u2013 CRN) Daj\u00e7<\/div><\/article>Lufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb<\/h2><\/div><\/div>Titulli i Projektit:\r\n\r\nLufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb\r\n\r\nDonatori\r\n\r\nNational Endowment for Democracy (NED)\r\n\r\nPeriudha e zbatimit\r\n\r\n1 Korrik 2024 \u2013 30 Qershor 2026 (24 muaj)\r\n\r\nQ\u00cbLLIMI I PROJEKTIT\r\n\r\nT\u00eb promovoj\u00eb llogaridh\u00ebnien dhe transparenc\u00ebn n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri, p\u00ebrmes monitorimit t\u00eb shpenzimeve publike dhe prokurimeve, evidentimit t\u00eb rasteve t\u00eb mundshme t\u00eb korrupsionit, fuqizimit t\u00eb rolit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile, medias dhe qytetar\u00ebve, si dhe nxitjes s\u00eb institucioneve publike p\u00ebr t\u00eb nd\u00ebrmarr\u00eb masa konkrete p\u00ebr p\u00ebrmir\u00ebsimin e integritetit dhe p\u00ebrdorimit t\u00eb fondeve publike.\r\n\r\nAktivitetet\r\n\r\n \tMonitorimi dhe analiza e shpenzimeve publike dhe procedurave t\u00eb prokurimit n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri.\r\n \tHartimi i dy raporteve vjetore t\u00eb monitorimit mbi shpenzimet publike, prokurimet dhe shp\u00ebrndarjen e fondeve p\u00ebr grupet vulnerab\u00ebl.\r\n \tP\u00ebrgatitja e nj\u00eb raporti t\u00eb thelluar mbi zbatimin e ligjit p\u00ebr autonomin\u00eb spitalore dhe rekomandimeve p\u00ebr p\u00ebrmir\u00ebsimin e menaxhimit t\u00eb fondeve publike.\r\n \tP\u00ebrgatitja e nj\u00eb raporti gjith\u00ebp\u00ebrfshir\u00ebs mbi hetimet dhe gjetjet e SPAK lidhur me abuzimet financiare n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tBashk\u00ebpunimi me BIRN p\u00ebr realizimin e pes\u00eb artikujve investigativ\u00eb mbi korrupsionin n\u00eb shpenzimet publike n\u00eb sh\u00ebndet\u00ebsi.\r\n \tOrganizimi i t\u00eb pakt\u00ebn kat\u00ebr workshopeve me organizata t\u00eb shoq\u00ebris\u00eb civile dhe gazetar\u00eb p\u00ebr identifikimin dhe raportimin e rasteve t\u00eb munges\u00ebs s\u00eb transparenc\u00ebs dhe llogaridh\u00ebnies.\r\n \tPjes\u00ebmarrja n\u00eb seancat d\u00ebgjimore parlamentare p\u00ebr prezantimin e gjetjeve t\u00eb monitorimit.\r\n \tMbajtja dhe zgjerimi i rrjetit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile q\u00eb punojn\u00eb p\u00ebr transparenc\u00ebn dhe llogaridh\u00ebnien n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tOrganizimi i tet\u00eb takimeve rajonale n\u00eb Shkod\u00ebr, Vlor\u00eb, Elbasan dhe Dib\u00ebr me deputet\u00eb, organizata lokale dhe qytetar\u00eb p\u00ebr diskutimin e \u00e7\u00ebshtjeve t\u00eb sh\u00ebndet\u00ebsis\u00eb.\r\n \tOrganizimi i kat\u00ebr tryezave komb\u00ebtare me institucionet p\u00ebrgjegj\u00ebse (Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi, Avokati i Popullit, ILDKPKI dhe Komisioneri p\u00ebr t\u00eb Drejt\u00ebn e Informimit) p\u00ebr prezantimin e gjetjeve t\u00eb projektit.\r\n \tMir\u00ebmbajtja dhe p\u00ebrdit\u00ebsimi i platform\u00ebs www.transparency.com.al dhe faqes p\u00ebrkat\u00ebse n\u00eb Facebook p\u00ebr raportimin e rasteve t\u00eb korrupsionit dhe promovimin e transparenc\u00ebs.\r\n \tP\u00ebrgatitja dhe publikimi i t\u00eb pakt\u00ebn tre njoftimeve p\u00ebr shtyp \u00e7do vit p\u00ebr t\u00eb rritur nd\u00ebrgjegj\u00ebsimin publik mbi problematikat e transparenc\u00ebs dhe llogaridh\u00ebnies n\u00eb sektorin sh\u00ebndet\u00ebsor.<\/div><\/article>Fibroza cistike \u2013 Nj\u00eb patologji komplekse q\u00eb sistemi sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri vazhdon ta trajtoj\u00eb si “s\u00ebmundje mushk\u00ebrish”<\/h2><\/div><\/div>P\u00ebr shumic\u00ebn e njer\u00ebzve, fibroza cistike mbetet nj\u00eb s\u00ebmundje pak e njohur. P\u00ebr m\u00eb shum\u00eb se 150 pacient\u00ebt dhe familjet e tyre n\u00eb Shqip\u00ebri, ajo p\u00ebrfaq\u00ebson nj\u00eb betej\u00eb t\u00eb p\u00ebrditshme q\u00eb nuk zhvillohet vet\u00ebm me s\u00ebmundjen, por edhe me vet\u00eb sistemin sh\u00ebndet\u00ebsor dhe at\u00eb t\u00eb mbrojtjes sociale.\r\n\r\nMenaxhimi i fibroz\u00ebs cistike nuk kufizohet vet\u00ebm n\u00eb marrjen e medikamenteve. Ai k\u00ebrkon nj\u00eb qasje t\u00eb integruar dhe multidisiplinare, q\u00eb p\u00ebrfshin ndjekje t\u00eb specializuar mjek\u00ebsore, fizioterapi respiratore t\u00eb p\u00ebrditshme, mb\u00ebshtetje psikologjike, akses t\u00eb vazhduesh\u00ebm n\u00eb barna specifike, sh\u00ebrbime sociale dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb pasqyron ndikimin real t\u00eb s\u00ebmundjes n\u00eb jet\u00ebn dhe funksionimin e pacientit.\r\n\r\nMegjithat\u00eb, d\u00ebshmit\u00eb e pacient\u00ebve dhe prind\u00ebrve t\u00eb tyre tregojn\u00eb se, edhe pas zbatimit t\u00eb modelit bio-psiko-social p\u00ebr vler\u00ebsimin e aft\u00ebsis\u00eb s\u00eb kufizuar, shum\u00eb prej k\u00ebtyre nevojave vazhdojn\u00eb t\u00eb mos njihen dhe t\u00eb mos adresohen n\u00eb praktik\u00eb.\r\n\r\nReforma e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, e nisur n\u00eb vitin 2019, synon t\u00eb z\u00ebvend\u00ebsoj\u00eb modelin tradicional t\u00eb bazuar vet\u00ebm n\u00eb diagnoz\u00eb me nj\u00eb qasje q\u00eb vler\u00ebson ndikimin e gjendjes sh\u00ebndet\u00ebsore n\u00eb funksionimin e p\u00ebrditsh\u00ebm t\u00eb individit. Megjithat\u00eb, gjetjet e mbledhura gjat\u00eb fokus-grupit t\u00eb zhvilluar me persona me fibroz\u00eb cistike dhe prind\u00ebr t\u00eb f\u00ebmij\u00ebve t\u00eb diagnostikuar me k\u00ebt\u00eb patologji tregojn\u00eb se ky objektiv ende nuk po realizohet plot\u00ebsisht.\r\n\r\nPjes\u00ebmarr\u00ebsit raportojn\u00eb se komisionet e vler\u00ebsimit shpesh nuk funksionojn\u00eb si ekipe t\u00eb mir\u00ebfillta multidisiplinare, kan\u00eb njohuri t\u00eb kufizuara mbi fibroz\u00ebn cistike dhe, n\u00eb disa raste, nuk shqyrtojn\u00eb dokumentacionin mjek\u00ebsor p\u00ebrpara takimit me pacientin. Si pasoj\u00eb, vler\u00ebsimi mb\u00ebshtetet m\u00eb shum\u00eb n\u00eb pamjen e jashtme t\u00eb personit sesa n\u00eb kufizimet funksionale dhe barr\u00ebn reale q\u00eb s\u00ebmundja imponon n\u00eb jet\u00ebn e p\u00ebrditshme.\r\n\r\nKy \u00ebsht\u00eb nj\u00eb paradoks q\u00eb bie ndesh me vet\u00eb filozofin\u00eb e modelit bio-psiko-social. Fibroza cistike \u00ebsht\u00eb nj\u00eb s\u00ebmundje kronike, progresive dhe multisistemike, e cila n\u00eb shum\u00eb raste nuk shfaq shenja t\u00eb dukshme fizike, por k\u00ebrkon trajtim t\u00eb p\u00ebrhersh\u00ebm, terapi t\u00eb p\u00ebrditshme dhe kujdes kompleks p\u00ebr t\u00eb parandaluar komplikacionet dhe p\u00ebr t\u00eb ruajtur cil\u00ebsin\u00eb e jet\u00ebs.\r\n\r\nKur vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar mb\u00ebshtetet kryesisht n\u00eb at\u00eb q\u00eb \"shihet me sy\", shum\u00eb pacient\u00eb klasifikohen me nj\u00eb shkall\u00eb m\u00eb t\u00eb ul\u00ebt t\u00eb r\u00ebnd\u00ebsis\u00eb s\u00eb s\u00ebmundjes nga ajo q\u00eb reflekton realisht gjendja e tyre sh\u00ebndet\u00ebsore. Si rrjedhoj\u00eb, nj\u00eb pjes\u00eb e tyre hasin v\u00ebshtir\u00ebsi n\u00eb p\u00ebrfitimin e mb\u00ebshtetjes ekonomike ose vler\u00ebsohen n\u00eb nivele q\u00eb nuk pasqyrojn\u00eb kostot reale t\u00eb jetes\u00ebs me fibroz\u00eb cistike.\r\n\r\n\"Her\u00ebn e par\u00eb komisioni vendosi q\u00eb f\u00ebmija im nuk i plot\u00ebsonte kriteret p\u00ebr t\u00eb p\u00ebrfituar KEMP. Kam dy f\u00ebmij\u00eb me fibroz\u00eb cistike, me t\u00eb nj\u00ebjt\u00ebn diagnoz\u00eb dhe n\u00eb t\u00eb nj\u00ebjt\u00ebn gjendje sh\u00ebndet\u00ebsore, por nj\u00ebri u vler\u00ebsua me r\u00ebndes\u00eb m\u00eb t\u00eb leht\u00eb t\u00eb s\u00ebmundjes, nd\u00ebrsa tjetri me r\u00ebndes\u00eb m\u00eb t\u00eb lart\u00eb. Nuk e kuptoj mbi \u00e7far\u00eb kriteresh b\u00ebhet ky vler\u00ebsim kur b\u00ebhet fjal\u00eb p\u00ebr t\u00eb nj\u00ebjt\u00ebn patologji\", shprehet R.XH., babai i dy f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike.\r\n\r\nK\u00ebto d\u00ebshmi tregojn\u00eb se nj\u00eb nga problemet themelore mbetet mungesa e njohjes institucionale t\u00eb fibroz\u00ebs cistike si nj\u00eb s\u00ebmundje komplekse. Edhe sot ajo vazhdon t\u00eb trajtohet kryesisht n\u00eb kuad\u00ebr t\u00eb patologjive pulmonare, nd\u00ebrkoh\u00eb q\u00eb prek nj\u00ebkoh\u00ebsisht mushk\u00ebrit\u00eb, pankreasin, sistemin tret\u00ebs, m\u00ebl\u00e7in\u00eb dhe organe t\u00eb tjera, duke k\u00ebrkuar kujdes multidisiplinar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nKy klasifikim ndikon jo vet\u00ebm n\u00eb m\u00ebnyr\u00ebn e organizimit t\u00eb trajtimit mjek\u00ebsor, por edhe n\u00eb procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar.\r\n\r\n\"N\u00eb dokumentacion paraqitet si nj\u00eb s\u00ebmundje e leht\u00eb\", shprehet L.H., n\u00ebna e nj\u00eb f\u00ebmije me fibroz\u00eb cistike, duke theksuar se komisionet shpesh nuk arrijn\u00eb t\u00eb kuptojn\u00eb se b\u00ebhet fjal\u00eb p\u00ebr nj\u00eb patologji kronike, progresive dhe potencialisht k\u00ebrc\u00ebnuese p\u00ebr jet\u00ebn.\r\n\r\nMungesa e protokollit t\u00eb trajtimit shoq\u00ebrohet me munges\u00ebn e munges\u00ebn e rimbursimit t\u00eb medikamenteve t\u00eb domosdoshme p\u00ebr trajtim\r\n\r\nMungesa e protokolleve t\u00eb p\u00ebrdit\u00ebsuara t\u00eb trajtimit dhe rimbursimit t\u00eb medikamenteve r\u00ebndon barr\u00ebn e pacient\u00ebve me fibroz\u00eb cistike\r\n\r\nP\u00ebrtej sfidave q\u00eb lidhen me procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, pacient\u00ebt me fibroz\u00eb cistike p\u00ebrballen edhe me munges\u00ebn e nj\u00eb modeli t\u00eb integruar t\u00eb kujdesit sh\u00ebndet\u00ebsor, i cili t\u00eb garantoj\u00eb trajtim t\u00eb standardizuar, vazhdim\u00ebsi t\u00eb sh\u00ebrbimeve dhe mb\u00ebshtetje t\u00eb specializuar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nPrind\u00ebrit e f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike raportojn\u00eb se q\u00eb n\u00eb momentin e diagnostikimit nuk marrin mb\u00ebshtetje psikologjike dhe as informacion t\u00eb strukturuar mbi m\u00ebnyr\u00ebn e menaxhimit t\u00eb s\u00ebmundjes apo protokollet e trajtimit. N\u00eb munges\u00eb t\u00eb nj\u00eb sistemi t\u00eb organizuar informimi dhe edukimi p\u00ebr pacient\u00ebt, familjet detyrohen t\u00eb k\u00ebrkojn\u00eb informacion nga organizata nd\u00ebrkomb\u00ebtare, rrjete mb\u00ebshtet\u00ebse, media sociale ose nga prind\u00ebr t\u00eb tjer\u00eb q\u00eb kan\u00eb kaluar t\u00eb nj\u00ebjt\u00ebn p\u00ebrvoj\u00eb. N\u00eb shum\u00eb raste, vet\u00eb familjet jan\u00eb shnd\u00ebrruar n\u00eb burimin kryesor t\u00eb informacionit dhe orientimit p\u00ebr pacient\u00ebt e sapodiagnostikuar, duke z\u00ebvend\u00ebsuar rolin q\u00eb duhet t\u00eb luajn\u00eb institucionet sh\u00ebndet\u00ebsore.\r\n\r\nNj\u00eb nga shqet\u00ebsimet m\u00eb serioze t\u00eb ngritura gjat\u00eb fokus-grupit lidhet me faktin se trajtimi i fibroz\u00ebs cistike n\u00eb Shqip\u00ebri vazhdon t\u00eb mb\u00ebshtetet n\u00eb nj\u00eb protokoll klinik t\u00eb miratuar n\u00eb vitin 2008, i cili nuk reflekton zhvillimet e fundit shkencore dhe standardet bashk\u00ebkohore t\u00eb trajtimit t\u00eb k\u00ebsaj patologjie. Sipas pjes\u00ebmarr\u00ebsve, protokolli p\u00ebrfshin medikamente q\u00eb nuk jan\u00eb m\u00eb t\u00eb disponueshme n\u00eb treg ose nuk p\u00ebrfaq\u00ebsojn\u00eb m\u00eb terapit\u00eb e rekomanduara sipas praktikave nd\u00ebrkomb\u00ebtare.\r\n\r\nMungesa e p\u00ebrdit\u00ebsimit t\u00eb protokollit ndikon drejtp\u00ebrdrejt edhe n\u00eb skem\u00ebn e rimbursimit t\u00eb barnave. Nj\u00eb pjes\u00eb e konsiderueshme e medikamenteve dhe produkteve t\u00eb nevojshme p\u00ebr menaxhimin e p\u00ebrditsh\u00ebm t\u00eb s\u00ebmundjes nuk mbulohen nga sistemi publik, duke detyruar familjet t'i sigurojn\u00eb ato me shpenzimet e tyre ose t'i blejn\u00eb jasht\u00eb Shqip\u00ebris\u00eb. P\u00ebr shum\u00eb familje, kjo p\u00ebrkthehet n\u00eb nj\u00eb barr\u00eb t\u00eb r\u00ebnd\u00eb financiare, nd\u00ebrkoh\u00eb q\u00eb nd\u00ebrprerja ose mungesa e trajtimit mund t\u00eb p\u00ebrshpejtoj\u00eb p\u00ebrkeq\u00ebsimin e gjendjes sh\u00ebndet\u00ebsore dhe t\u00eb rrezikoj\u00eb jet\u00ebgjat\u00ebsin\u00eb e pacient\u00ebve.\r\n\r\nNj\u00eb tjet\u00ebr problem strukturor lidhet me munges\u00ebn e vazhdim\u00ebsis\u00eb s\u00eb kujdesit pas mosh\u00ebs pediatrike. Sipas d\u00ebshmive t\u00eb prind\u00ebrve, pas mosh\u00ebs 16-vje\u00e7are pacient\u00ebt p\u00ebrballen me munges\u00ebn e sh\u00ebrbimeve t\u00eb specializuara dhe t\u00eb mjek\u00ebve t\u00eb trajnuar p\u00ebr trajtimin e fibroz\u00ebs cistike tek t\u00eb rriturit. Ky boshll\u00ebk n\u00eb sistem krijon nd\u00ebrprerje n\u00eb ndjekjen mjek\u00ebsore, cenon vazhdim\u00ebsin\u00eb e trajtimit dhe rrit rrezikun e komplikacioneve afatgjata.\r\n\r\nN\u00eb thelb, problemi nuk q\u00ebndron vet\u00ebm te mungesa e medikamenteve apo e protokolleve t\u00eb p\u00ebrdit\u00ebsuara, por te fakti se sistemi sh\u00ebndet\u00ebsor ende nuk e njeh fibroz\u00ebn cistike si nj\u00eb s\u00ebmundje komplekse q\u00eb k\u00ebrkon nj\u00eb qasje multidisiplinare dhe t\u00eb koordinuar. P\u00ebr sa koh\u00eb mungojn\u00eb protokollet e p\u00ebrdit\u00ebsuara sipas evidencave shkencore, rimbursimi i plot\u00eb i terapive t\u00eb domosdoshme, ekipet multidisiplinare dhe sh\u00ebrbimet e specializuara p\u00ebrgjat\u00eb gjith\u00eb ciklit t\u00eb jet\u00ebs s\u00eb pacientit, edhe zbatimi i modelit bio-psiko-social t\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar mbetet i pamjaftuesh\u00ebm p\u00ebr t'iu p\u00ebrgjigjur nevojave reale t\u00eb k\u00ebsaj kategorie.\r\n\r\nP\u00ebrmir\u00ebsimi i situat\u00ebs k\u00ebrkon nj\u00eb qasje t\u00eb integruar t\u00eb politikave publike. Kjo n\u00ebnkupton njohjen e fibroz\u00ebs cistike si nj\u00eb patologji komplekse dhe multisistemike, p\u00ebrdit\u00ebsimin e protokolleve komb\u00ebtare t\u00eb trajtimit n\u00eb p\u00ebrputhje me standardet nd\u00ebrkomb\u00ebtare, zgjerimin e list\u00ebs s\u00eb barnave t\u00eb rimbursueshme, krijimin e ekipeve multidisiplinare t\u00eb specializuara, garantimin e tranzicionit t\u00eb sigurt nga sh\u00ebrbimet pediatrike n\u00eb ato p\u00ebr t\u00eb rriturit, si dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb reflekton kufizimet funksionale dhe nevojat reale t\u00eb pacient\u00ebve, e jo vet\u00ebm diagnoz\u00ebn klinike.\r\n\r\n\r\n\r\n\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.<\/div><\/article>Rasti i pacientit n\u00eb Durr\u00ebs: Nj\u00eb alarm p\u00ebr aksesin e barabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit<\/h2><\/div><\/div>Ka ngjarje q\u00eb n\u00eb rrjetet sociale zgjasin vet\u00ebm pak minuta dhe pastaj harrohen si t\u00eb mos kishin ndodhur kurr\u00eb. Por ka edhe t\u00eb tilla q\u00eb kan\u00eb jehon\u00eb t\u00eb gjat\u00eb dhe marrin edhe reagimin e institucioneve. Rasti i pacientit 52-vje\u00e7ar n\u00eb Durr\u00ebs \u00ebsht\u00eb nj\u00ebri prej tyre.\r\n\r\nPamjet e nj\u00eb burri t\u00eb s\u00ebmur\u00eb, q\u00eb sipas informacioneve t\u00eb para ishte transportuar me ambulanc\u00eb nga Spitali i Durr\u00ebsit p\u00ebr t\u2019u braktisur n\u00eb \u2018rrug\u00eb\u2019, trondit\u00ebn opinionin publik. Reagime t\u00eb shumta pasuan, versione kontradiktore dhe deklarata institucionale. Fillimisht u raportua se pacienti kishte nd\u00ebrruar jet\u00eb, por m\u00eb pas Spitali Rajonal i Durr\u00ebsit sqaroi se ai ishte gjall\u00eb dhe ndodhej s\u00ebrish n\u00ebn kujdes mjek\u00ebsor, nd\u00ebrsa dy dit\u00eb pas ngjarjes Ministria e Sh\u00ebndet\u00ebsis\u00eb urdh\u00ebroi nisjen e nj\u00eb hetimi administrativ.\r\n\r\nMegjithat\u00eb, edhe pas reagimeve zyrtare, ende shum\u00eb pyetje mbeten ende pa p\u00ebrgjigje.\r\n\r\nN\u00ebse pacienti ishte n\u00eb gjendje t\u00eb stabilizuar dhe trajtimi spitalor kishte p\u00ebrfunduar, si ka mund\u00ebsi q\u00eb vet\u00ebm pak or\u00eb m\u00eb von\u00eb ai u rikthye n\u00eb spital dhe iu n\u00ebnshtrua menj\u00ebher\u00eb nj\u00eb nd\u00ebrhyrjeje tjet\u00ebr kirurgjikale, e cila p\u00ebrfundoi me amputimin e nj\u00ebr\u00ebs k\u00ebmb\u00eb? N\u00ebse, p\u00ebrkundrazi, gjendja e tij k\u00ebrkonte ende monitorim dhe nd\u00ebrhyrje, p\u00ebrse u largua nga spitali?\r\n\r\nK\u00ebto jan\u00eb pyetje q\u00eb lidhen drejtp\u00ebrdrejt me standardet e kujdesit sh\u00ebndet\u00ebsor publik n\u00eb Shqip\u00ebri.\r\n\r\nPo aq e r\u00ebnd\u00ebsishme \u00ebsht\u00eb q\u00eb institucionet t\u00eb sqarojn\u00eb se si ka funksionuar zinxhiri i vendimmarrjes n\u00eb k\u00ebt\u00eb rast. Kush e mori vendimin p\u00ebr daljen nga spitali t\u00eb pacientit t\u00eb s\u00ebmur\u00eb? Cilat ishin kriteret mjek\u00ebsore q\u00eb u ndoq\u00ebn nga vemdimarr\u00ebsit p\u00ebr rastin? A pat\u00ebn dhe a duhet t\u00eb kishin rol sh\u00ebrbimet sociale n\u00eb nj\u00eb koh\u00eb q\u00eb prej vitesh po trumbetohet nga institucionet ngritja e sh\u00ebrbimeve multidisiplinare, ku p\u00ebrfshihen sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe sociale? Dhe, a ekziston dokumentacioni q\u00eb provon se pacienti iu dor\u00ebzua v\u00ebrtet\u00eb nj\u00eb familjari, si\u00e7 deklaron spitali?\r\n\r\nNga ana tjet\u00ebr, edhe deklarata e Spitalit Rajonal t\u00eb Durr\u00ebsit ngre t\u00eb tjera pyetje. Institucioni pohon se pacienti nuk kishte vend ku t\u00eb q\u00ebndronte, se u njoftuan sh\u00ebrbimet sociale dhe Policia e Shtetit dhe se nj\u00eb familjar pranoi ta merrte n\u00eb banes\u00eb. Megjithat\u00eb, deri m\u00eb sot nuk \u00ebsht\u00eb ofruar asnj\u00eb informacion q\u00eb t\u00eb sqaroj\u00eb se kush ishte familjari (sigurisht jo t\u00eb dh\u00ebnat personale t\u00eb tij), ku ndodhej banesa apo n\u00ebse pacienti q\u00ebndroi realisht aty. P\u00ebrkundrazi, persona q\u00eb deklarojn\u00eb se e njihnin pacientin kan\u00eb pohuar publikisht se ai nuk kishte asnj\u00eb familjar q\u00eb t\u00eb kujdesej p\u00ebr t\u00eb dhe as nj\u00eb banes\u00eb ku t\u00eb strehohej. Ndaj, n\u00eb k\u00ebt\u00eb rast hetimi nuk mund t\u00eb kufizohet vet\u00ebm tek ndjekja e procedurave dhe protokolleve mjek\u00ebsore. Hetimit duhet t\u2019i n\u00ebnshtrohen t\u00eb gjitha hallkat e mekanizmave mbrojt\u00ebs, p\u00ebrfshi ato sociale.\r\n\r\nRasti i pacientit nga Durr\u00ebsi rikthen n\u00eb v\u00ebmendje nj\u00eb problem q\u00eb Together for Life e ka ngritur prej vitesh: qasjen e pabarabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore p\u00ebr pacient\u00ebt m\u00eb vulnerab\u00ebl. N\u00ebse do t\u2019i referohemi dokumentave strategjike, legjislacionit dhe deklaratave publike t\u00eb drejtuesve t\u00eb sh\u00ebndet\u00ebsis\u00eb sistemi publik garanton kujdes sh\u00ebndet\u00ebsor t\u00eb barabart\u00eb dhe t\u00eb aksesuesh\u00ebm p\u00ebr t\u00eb gjith\u00eb. Megjithat\u00eb, n\u00eb shum\u00eb raste, p\u00ebrfshi edhe k\u00ebt\u00eb t\u00eb fundit, pacient\u00ebt q\u00eb klasifikohet tek grupet me t\u00eb c\u00ebnueshme si ata nga familje t\u00eb varfra, t\u00eb braktisurit, personat me probleme t\u00eb sh\u00ebndetit mendor apo q\u00eb jetojn\u00eb n\u00eb kushte t\u00eb r\u00ebnda social-ekonomike p\u00ebrballen shpesh me barriera t\u00eb m\u00ebdha q\u00eb ua b\u00ebjn\u00eb t\u00eb v\u00ebshtir\u00eb, madje t\u00eb pamundur marrjen e trajtimit sh\u00ebndet\u00ebsor p\u00ebr t\u00eb cilin kan\u00eb nevoj\u00eb.\r\n\r\nN\u00ebse statusi social i nj\u00eb pacienti ndikon n\u00eb m\u00ebnyr\u00ebn se si ai trajtohet nga institucionet, at\u00ebher\u00eb nuk kemi t\u00eb b\u00ebjm\u00eb vet\u00ebm me nj\u00eb problem administrativ. Kemi t\u00eb b\u00ebjm\u00eb me c\u00ebnimin e parimit t\u00eb barazis\u00eb n\u00eb aksesin ndaj sh\u00ebrbimeve publike.\r\n\r\nFakti q\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb ka urdh\u00ebruar nj\u00eb hetim administrativ dhe se Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi ka nisur nj\u00eb procedur\u00eb hetimore kryesisht, \u00ebsht\u00eb p\u00ebr t\u2019u vler\u00ebsuar, por ende jo i mjaftuesh\u00ebm. P\u00ebrtej hetimit administrativ t\u00eb nisur nga dy institucionet e m\u00ebsip\u00ebrme, ky rast ngre edhe nj\u00eb tjet\u00ebr \u00e7\u00ebshtje me r\u00ebnd\u00ebsi publike: mbrojtjen e t\u00eb dh\u00ebnave personale t\u00eb pacientit. Publikimi nga institucioni spitalor i identitetit, diagnoz\u00ebs, historis\u00eb klinike dhe informacioneve tep\u00ebr sensitive, si statusi HIV dhe p\u00ebrdorimi i substancave narkotike, shtrojn\u00eb pyetjen n\u00ebse jan\u00eb respektuar detyrimet ligjore p\u00ebr konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore. Edhe n\u00ebse synimi ishte mbrojtja e institucionit nga akuzat publike, kjo nuk mund t\u00eb justifikoj\u00eb ekspozimin e t\u00eb dh\u00ebnave q\u00eb mbrohen nga legjislacioni shqiptar, Konventa Evropiane p\u00ebr t\u00eb Drejtat e Njeriut, Rregullorja Evropiane p\u00ebr Mbrojtjen e t\u00eb Dh\u00ebnave (GDPR) dhe parimet universale t\u00eb etik\u00ebs mjek\u00ebsore. Konfidencialiteti nuk \u00ebsht\u00eb nj\u00eb formalitet administrativ, \u00ebsht\u00eb element shum\u00eb i r\u00ebnd\u00ebsish\u00ebm p\u00ebr t\u00eb garantuar dinjitetin e pacientit.\r\n\r\nNdaj kjo ngjarje nuk duhet t\u00eb reduktohet vet\u00ebm n\u00eb debatin n\u00ebse pacienti u \"braktis\" apo jo. Kjo \u00ebsht\u00eb vet\u00ebm nj\u00eb pjes\u00eb e historis\u00eb. Pyetja m\u00eb e r\u00ebnd\u00ebsishme n\u00eb k\u00ebt\u00eb rast \u00ebsht\u00eb n\u00ebse sistemi funksionoi ashtu si\u00e7 duhet p\u00ebr nj\u00eb qytetar n\u00eb nevoj\u00eb. N\u00ebse u respektuan standardet profesionale. N\u00ebse institucionet bashk\u00ebpunuan si\u00e7 duhet. N\u00ebse t\u00eb drejtat e pacientit u mbrojt\u00ebn. Dhe n\u00ebse, p\u00ebrtej p\u00ebrgjegj\u00ebsive individuale, ky rast nxjerr n\u00eb pah mang\u00ebsi strukturore q\u00eb k\u00ebrkojn\u00eb reagim t\u00eb menj\u00ebher\u00ebsh.\r\n\r\nSepse nj\u00eb sistem sh\u00ebndet\u00ebsor nuk matet vet\u00ebm me buxhetin e alokuar nga fondet publike, q\u00eb p\u00ebr hir t\u00eb s\u00eb v\u00ebrtet\u00ebs vazhdojn\u00eb t\u00eb jen\u00eb m\u00eb t\u00eb ultat n\u00eb Rajon, por, mbi t\u00eb gjitha, matet me m\u00ebnyr\u00ebn si i trajton pacient\u00ebt, ve\u00e7an\u00ebrisht m\u00eb t\u00eb pambrojturit dhe t\u00eb rrezikuarit.\r\n\r\n \r\n\r\nREAGIMET E INSTITUCIONEVE \r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebq\u00ebnies Sociale - Lidhur me trajtimin e rastit t\u00eb pacientit 52-vje\u00e7ar A.A., nga qyteti i Durr\u00ebsit, Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale ka urdh\u00ebruar nisjen e nj\u00eb hetimi t\u00eb thelluar administrativ, i cili do t\u00eb shqyrtoj\u00eb n\u00eb m\u00ebnyr\u00eb t\u00eb plot\u00eb jo vet\u00ebm procedurat dhe masat e marra nga struktura spitalore, por edhe veprimet dhe p\u00ebrgjegj\u00ebsit\u00eb e strukturave t\u00eb sh\u00ebrbimit social t\u00eb p\u00ebrfshira n\u00eb k\u00ebt\u00eb rast.\r\n\r\nN\u00eb kuad\u00ebr t\u00eb k\u00ebtij procesi, drejtuesit e Operatorit t\u00eb Sh\u00ebrbimeve t\u00eb Kujdesit Sh\u00ebndet\u00ebsor dhe t\u00eb Sh\u00ebrbimit Social Shtet\u00ebror jan\u00eb n\u00eb terren p\u00ebr t\u00eb kryer verifikime t\u00eb drejtp\u00ebrdrejta dhe p\u00ebr t\u00eb mbik\u00ebqyrur procesin e hetimit administrativ t\u00eb strukturave n\u00eb qytetin e Durr\u00ebsit.\r\n\r\nNd\u00ebrkoh\u00eb, pacienti ndodhet n\u00ebn kujdesin e strukturave sh\u00ebndet\u00ebsore n\u00eb spitalin rajonal t\u00eb Durr\u00ebsit.\r\n\r\nGjithashtu, po verifikohet i gjith\u00eb dokumentacioni sh\u00ebndet\u00ebsor dhe administrativ, si edhe p\u00ebrgjegj\u00ebsia e personave t\u00eb p\u00ebrfshir\u00eb n\u00eb menaxhimin dhe transportimin e pacientit.\r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale mbetet e angazhuar p\u00ebr t\u00eb garantuar transparenc\u00eb t\u00eb plot\u00eb, zbardhjen e t\u00eb gjitha rrethanave t\u00eb k\u00ebtij rasti dhe marrjen e \u00e7do mase administrative apo ligjore q\u00eb do t\u00eb rezultoj\u00eb e nevojshme.\r\n\r\n\u00a0\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi - Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin kryesisht p\u00ebr rastin e b\u00ebr\u00eb publik n\u00eb Spitalin Rajonal t\u00eb Durr\u00ebsit\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin \u201cex-officio\u201d t\u00eb \u00e7\u00ebshtjes n\u00eb lidhje me trajtimin dhe ofrimin e sh\u00ebrbimeve t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe shoq\u00ebror ndaj shtetasit t\u00eb identifikuar si A.A, 52 vje\u00e7, nga qyteti i Durr\u00ebsit.\r\n\r\nPas informacioneve t\u00eb b\u00ebra publike n\u00eb media, Komisioneri ka vendosur fillimin e procedur\u00ebs administrative kryesisht, n\u00eb zbatim t\u00eb Ligjit nr. 10221, dat\u00eb 04.02.2010, \u201cP\u00ebr Mbrojtjen nga Diskriminimi\u201d si dhe dispozitat e Kodit t\u00eb Procedurave Administrative, p\u00ebr t\u00eb verifikuar n\u00ebse n\u00eb rastin konkret jan\u00eb respektuar parimet e trajtimit t\u00eb barabart\u00eb dhe mosdiskriminimit n\u00eb ofrimin e sh\u00ebrbimeve sh\u00ebndet\u00ebsore dhe shoq\u00ebrore.\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi mbetet i angazhuar n\u00eb garantimin e s\u00eb drejt\u00ebs s\u00eb \u00e7do individi p\u00ebr trajtim t\u00eb barabart\u00eb dhe akses pa diskriminim n\u00eb sh\u00ebrbimet publike dhe private, duke nd\u00ebrhyr\u00eb n\u00eb \u00e7do rast kur ka indicie se k\u00ebto t\u00eb drejta mund t\u00eb jen\u00eb c\u00ebnuar.\r\n\r\n \r\n\r\nSpitali Rajonal i Durr\u00ebsit - N\u00eb lidhje me lajmin e publikuar n\u00eb media, sipas t\u00eb cilit nj\u00eb pacient i trajtuar m\u00eb par\u00eb n\u00eb Spitalin Rajonal Durr\u00ebs ka nd\u00ebrruar jet\u00eb, sqarojm\u00eb se ky informacion nuk \u00ebsht\u00eb i v\u00ebrtet\u00eb.\r\n\r\nPacienti \u00ebsht\u00eb paraqitur s\u00ebrish dit\u00ebn e djeshme n\u00eb Sh\u00ebrbimin e Urgjenc\u00ebs t\u00eb Spitalit Rajonal Durr\u00ebs, ku vijon t\u00eb q\u00ebndroj\u00eb n\u00ebn kujdesin dhe vler\u00ebsimin e personelit mjek\u00ebsor.\r\n\r\nP\u00ebr informimin e plot\u00eb t\u00eb opinionit publik b\u00ebjm\u00eb me dije se pacienti ishte trajtuar m\u00eb par\u00eb n\u00eb QSUT, ku i ishte kryer nj\u00eb nd\u00ebrhyrje nga mjek\u00ebt kirurg\u00eb vaskular\u00eb n\u00eb en\u00ebt e gjakut t\u00eb k\u00ebmb\u00ebs s\u00eb majt\u00eb. Pas komunikimit nd\u00ebrmjet mjek\u00ebve, ai u shtrua n\u00eb Spitalin Rajonal Durr\u00ebs, ku q\u00ebndroi dhe u trajtua p\u00ebr disa jav\u00eb, duke marr\u00eb kujdesin e nevojsh\u00ebm mjek\u00ebsor n\u00eb p\u00ebrputhje me gjendjen e tij sh\u00ebndet\u00ebsore.\r\n\r\nPas stabilizimit t\u00eb parametrave klinik\u00eb dhe p\u00ebrfundimit t\u00eb trajtimit spitalor, pacientit iu p\u00ebrgatit epikriza dhe iu komunikua dalja nga spitali. Duke qen\u00eb se ai deklaroi se nuk kishte nj\u00eb vend ku t\u00eb q\u00ebndronte, strukturat e spitalit njoftuan sh\u00ebrbimin social dhe organet e Policis\u00eb s\u00eb Shtetit, me q\u00ebllim gjetjen e nj\u00eb zgjidhjeje t\u00eb sigurt sociale dhe familjare.\r\n\r\nPas komunikimeve t\u00eb kryera nga strukturat p\u00ebrkat\u00ebse, nj\u00eb familjar deklaroi se do ta merrte pran\u00eb banes\u00ebs s\u00eb tij. Pacienti u transportua me autoambulanc\u00eb deri n\u00eb destinacion, i shoq\u00ebruar nga punonj\u00ebs t\u00eb Policis\u00eb s\u00eb Shtetit, dhe iu dor\u00ebzua familjarit.\r\n\r\nP\u00ebr rrjedhoj\u00eb, sqarojm\u00eb se pacienti nuk \u00ebsht\u00eb nxjerr\u00eb apo braktisur n\u00eb rrug\u00eb nga Spitali Rajonal Durr\u00ebs, si\u00e7 pretendohet n\u00eb publikim. Dalja e tij nga spitali \u00ebsht\u00eb kryer pas p\u00ebrfundimit t\u00eb trajtimit, me dokumentacionin p\u00ebrkat\u00ebs mjek\u00ebsor dhe pas koordinimit me strukturat sociale, policore dhe familjare.\r\n\r\nSpitali Rajonal Durr\u00ebs u b\u00ebn thirrje mediave q\u00eb, ve\u00e7an\u00ebrisht n\u00eb raste kaq t\u00eb ndjeshme, informacioni t\u00eb verifikohet pran\u00eb institucioneve p\u00ebrkat\u00ebse p\u00ebrpara publikimit.\r\n\r\nInstitucioni yn\u00eb mbetet i angazhuar p\u00ebr ofrimin e kujdesit sh\u00ebndet\u00ebsor dhe p\u00ebr bashk\u00ebpunimin me \u00e7do autoritet kompetent, duke respektuar konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit.<\/div><\/article>TFL, fokus grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje<\/h2><\/div><\/div>Together for Life\u00a0zhvilloi nj\u00eb fokus-grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje, p\u00ebr t\u00eb\u00a0diskutuar ndikimin q\u00eb\u00a0ka pasur zbatimi\u00a0i skem\u00ebs s\u00eb\u00a0re t\u00eb vler\u00ebsimit\u00a0t\u00eb aft\u00ebsis\u00eb s\u00eb\u00a0kufizuar, bazuar n\u00eb\u00a0modelin\u00a0bio-psiko-social, si dhe sfidat\u00a0q\u00eb ata vazhdojn\u00eb\u00a0t\u00eb p\u00ebrballen \u00e7do\u00a0dit\u00eb.\r\n\r\nGjat\u00eb diskutimit u ngrit\u00ebn shqet\u00ebsime serioze mbi:\r\n\u2022 v\u00ebshtir\u00ebsit\u00eb n\u00eb procesin\u00a0e vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe munges\u00ebn e\u00a0njohjes s\u00eb plot\u00eb\u00a0t\u00eb k\u00ebsaj patologjie\u00a0nga komisionet e\u00a0vler\u00ebsimit;\r\n\u2022 munges\u00ebn e mb\u00ebshtetjes\u00a0psikologjike p\u00ebr pacient\u00ebt\u00a0dhe familjet q\u00eb\u00a0nga momenti i\u00a0diagnostikimit;\r\n\u2022 aksesin e kufizuar n\u00eb trajtime\u00a0dhe medikamente t\u00eb\u00a0domosdoshme, shum\u00eb prej\u00a0t\u00eb cilave mbeten\u00a0t\u00eb pap\u00ebrballueshme financiarisht;\r\n\u2022 munges\u00ebn e nj\u00eb\u00a0qasjeje t\u00eb integruar\u00a0p\u00ebr mbulimin e\u00a0nevojave sh\u00ebndet\u00ebsore,\u00a0sociale dhe t\u00eb\u00a0pun\u00ebsimit;\r\n\u2022 nevoj\u00ebn p\u00ebr politika\u00a0publike q\u00eb njohin\u00a0fibroz\u00ebn\u00a0cistike si nj\u00eb\u00a0s\u00ebmundje komplekse, q\u00eb\u00a0k\u00ebrkon trajtim multidisiplinar\u00a0dhe mb\u00ebshtetje t\u00eb\u00a0vazhdueshme.\r\n\r\nKy fokus-grup\u00a0\u00ebsht\u00eb pjes\u00eb\u00a0e monitorimit t\u00eb\u00a0efekteve t\u00eb reform\u00ebs\u00a0s\u00eb vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe synon t\u00eb\u00a0siguroj\u00eb q\u00eb z\u00ebri\u00a0dhe p\u00ebrvoja e\u00a0personave t\u00eb\u00a0prekur t\u00eb reflektohen\u00a0n\u00eb p\u00ebrmir\u00ebsimin e\u00a0politikave publike.\r\nAskush nuk duhet\u00a0t\u00eb mbetet pa\u00a0mb\u00ebshtetje p\u00ebr shkak\u00a0t\u00eb nj\u00eb sistemi\u00a0q\u00eb nuk arrin\u00a0t\u00eb kuptoj\u00eb kompleksitetin\u00a0e nevojave t\u00eb\u00a0tij.\r\n\r\n***\r\nTogether for Life organized a focus group with people living with cystic fibrosis and parents of children affected by the condition to discuss the impact of the implementation of the new disability assessment scheme based on the bio-psycho-social model, as well as the challenges they continue to face in accessing healthcare, social protection, and employment opportunities.\r\n\r\nParticipants highlighted several critical concerns, including:\r\n\u2022 challenges in the disability assessment process and the limited recognition of cystic fibrosis by assessment commissions;\r\n\u2022 the lack of psychological support for patients and their families from the moment of diagnosis;\r\n\u2022 limited access to essential medicines and treatment, many of which remain financially out of reach;\r\n\u2022 the absence of an integrated approach to addressing healthcare, social, and employment needs;\r\n\u2022 the urgent need for public policies that recognize cystic fibrosis as a complex condition requiring multidisciplinary care and long-term support.\r\n\r\nThis focus group forms part of the broader monitoring of the effects of Albania's disability assessment reform and aims to ensure that the experiences and voices of people living with cystic fibrosis are reflected in future policy improvements.<\/div><\/article>Trajnim me gazetar\u00eb\/ Raportimi etik i Dhun\u00ebs me Baz\u00eb Gjinore: Roli i Medias n\u00eb Nd\u00ebrgjegj\u00ebsimin Publik dhe Promovimin e Barazis\u00eb Gjinore<\/h2><\/div><\/div>\ud835\udc0a\ud835\udc2e\ud835\udc2b \ud835\udc20\ud835\udc1a\ud835\udc33\ud835\udc1e\ud835\udc2d\ud835\udc1a\ud835\udc2b\ud835\udc22 \ud835\udc2b\ud835\udc1a\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc28\ud835\udc27 \ud835\udc29\u00eb\ud835\udc2b \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc26\ud835\udc1e \ud835\udc1b\ud835\udc1a\ud835\udc33\u00eb \ud835\udc20\ud835\udc23\ud835\udc22\ud835\udc27\ud835\udc28\ud835\udc2b\ud835\udc1e \ud835\udc1a\ud835\udc29\ud835\udc28 \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc27\u00eb \ud835\udc1f\ud835\udc1a\ud835\udc26\ud835\udc22\ud835\udc25\ud835\udc23\ud835\udc1e, \ud835\udc27\ud835\udc2e\ud835\udc24 \ud835\udc29\ud835\udc28 \ud835\udc2d\ud835\udc2b\ud835\udc1e\ud835\udc20\ud835\udc28\ud835\udc27 \ud835\udc2d\ud835\udc21\ud835\udc23\ud835\udc1e\ud835\udc2c\ud835\udc21\ud835\udc2d \ud835\udc27\ud835\udc23\u00eb \ud835\udc21\ud835\udc22\ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc22. \ud835\udc0f\ud835\udc28 \ud835\udc27\ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc28\ud835\udc27 \ud835\udc27\u00eb \ud835\udc23\ud835\udc1e\ud835\udc2d\u00eb\ud835\udc27 \ud835\udc1e \ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc2e\ud835\udc23\ud835\udc2d.\n\n\n\nGjat\u00eb muajve qershor dhe korrik, gazetar\u00eb nga media t\u00eb ndryshme u b\u00ebn\u00eb pjes\u00eb e nj\u00eb serie trajnimesh kushtuar raportimit etik dhe profesional t\u00eb rasteve t\u00eb dhun\u00ebs me baz\u00eb gjinore dhe dhun\u00ebs n\u00eb familje, t\u00eb organizuara nga Together for Life, n\u00eb kuad\u00ebr t\u00eb \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc24\ud835\udc2d\ud835\udc22\ud835\udc2d \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 \u2013 \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a, i cili zbatohet nga nj\u00eb konsorcium organizatash dhe financohet nga Bashkimi Evropian.\n\n\n\n\nP\u00ebrmes analiz\u00ebs s\u00eb rasteve reale q\u00eb kan\u00eb tronditur opinionin publik pjes\u00ebmarr\u00ebsit diskutuan jo vet\u00ebm \u00e7far\u00eb raportohet, por mbi t\u00eb gjitha si raportohet.\n\n\n\nSepse gazetaria ka fuqin\u00eb:\nt\u00eb informoj\u00eb pa d\u00ebmtuar ask\u00ebnd;\n\u00a0t\u00eb mbroj\u00eb dinjitetin dhe privat\u00ebsin\u00eb e t\u00eb mbijetuarve;\n\u00a0t\u00eb edukoj\u00eb publikun;\nt\u00eb k\u00ebrkoj\u00eb llogari nga institucionet p\u00ebrgjegj\u00ebse \u2013 p\u00ebrfshir\u00eb sistemin sh\u00ebndet\u00ebsor, policin\u00eb, prokurorin\u00eb dhe sh\u00ebrbimet sociale \u2013 p\u00ebr m\u00ebnyr\u00ebn se si identifikojn\u00eb, raportojn\u00eb dhe menaxhojn\u00eb rastet e dhun\u00ebs.\n\n\nNj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e diskutimeve mes kolegeve gazetare iu kushtua sfid\u00ebs s\u00eb medias p\u00ebr t\u00eb mos r\u00ebn\u00eb pre e gar\u00ebs p\u00ebr klikime, duke shmangur gjuh\u00ebn q\u00eb romantizon dhun\u00ebn, faj\u00ebson viktim\u00ebn, cenon privat\u00ebsin\u00eb ose riviktimizon t\u00eb mbijetuarit.\n\n\n\nP\u00ebrmes metodave interaktive, si Mentimeter, gazetar\u00ebt testuan njohurit\u00eb e tyre, sfiduan perceptimet dhe reflektuan mbi p\u00ebrgjegj\u00ebsin\u00eb q\u00eb mbart \u00e7do lajm i publikuar. Sepse nj\u00eb raportim i mir\u00eb nuk matet vet\u00ebm me numrin e klikimeve.\n\n\n\n\nAi matet me ndikimin q\u00eb l\u00eb tek njer\u00ebzit, me besimin q\u00eb nd\u00ebrton dhe me kontributin q\u00eb jep p\u00ebr nj\u00eb shoq\u00ebri q\u00eb nuk e normalizon dhun\u00ebn, por e denon at\u00eb.\n\n\nKy publikim u realizua n\u00eb kuad\u00ebr t\u00eb iniciativ\u00ebs \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, t\u00eb zbatuar nga Gender Alliance for Development Centre (GADC), Together for Life dhe Institute of Romani Culture in Albania (IRCA), mb\u00ebshtetur financiarisht nga Bashkimi Evropian. P\u00ebrmbajtja e k\u00ebtij dokumenti \u00ebsht\u00eb p\u00ebrgjegj\u00ebsi e vetme e Together for Life dhe n\u00eb asnj\u00eb rrethan\u00eb nuk mund t\u00eb konsiderohet se pasqyron pozicionin e Bashkimit Evropian.\n\n\n\n***\n\n\n\n\ud835\udc16\ud835\udc21\ud835\udc1e\ud835\udc27 \ud835\udc1a \ud835\udc23\ud835\udc28\ud835\udc2e\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2c\ud835\udc2d \ud835\udc2b\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc2c \ud835\udc28\ud835\udc27 \ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b-\ud835\udc1b\ud835\udc1a\ud835\udc2c\ud835\udc1e\ud835\udc1d \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e \ud835\udc28\ud835\udc2b \ud835\udc1d\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc2c\ud835\udc2d\ud835\udc22\ud835\udc1c \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc27\ud835\udc28\ud835\udc2d \ud835\udc2c\ud835\udc22\ud835\udc26\ud835\udc29\ud835\udc25\ud835\udc32 \ud835\udc2d\ud835\udc1e\ud835\udc25\ud835\udc25\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc1a \ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc32, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc22\ud835\udc27\ud835\udc1f\ud835\udc25\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc2c\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc28\ud835\udc27\ud835\udc1e'\ud835\udc2c \ud835\udc25\ud835\udc22\ud835\udc1f\ud835\udc1e.\n\n\n\nDuring June and July, journalists from various media outlets participated in a series of training sessions on the ethical and professional reporting of gender-based violence and domestic violence cases.\n\n\nThe trainings were organized by Together for Life as part of the \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 - \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc1c\ud835\udc2d, implemented by GADC, TFL and IRCA organizations and funded by the European Union.\n\n\n\nThrough the analysis of real-life cases that have shocked public opinion, participants explored not only what is reported, but, more importantly, how it is reported.\n\n\nBecause journalism has the power to:\n\u00a0inform without causing harm;\nprotect the dignity and privacy of survivors;\neducate the public;\nhold responsible institutions, including the healthcare system, the police, the prosecution, and social services, accountable for how they identify, report, and respond to cases of violence.\n\n\nAn important part of the discussions among the participating journalists focused on the media's responsibility to resist the race for clicks by avoiding language that romanticizes violence, blames victims, violates their privacy, or re-traumatizes survivors.\n\n\n\n\n\u00a0Through interactive methods such as Mentimeter, journalists tested their knowledge, challenged their assumptions, and reflected on the responsibility that comes with every story they publish.\n\n\nBecause good journalism is not measured solely by the number of clicks. It is measured by the impact it has on people's lives, the trust it builds, and the contribution it makes to a society that does not normalize violence, but exposes and condemns it.\n\n\n\nThis publication was produced as part of the initiative \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, implemented by the Gender Alliance for Development Centre (GADC), Together for Life, and the Institute of Romani Culture in Albania (IRCA), with financial support from the European Union. The contents of this video are the sole responsibility of Together for Life and can under no circumstances be regarded as reflecting the position of the European Union.<\/div><\/article><\/div>
Pas nj\u00eb situate t\u00eb v\u00ebshtir\u00eb gjat\u00eb djeshme (8 shtator 2026), ku n\u00eb territorin e Bashkis\u00eb Shkod\u00ebr u evidentuan disa vatra zjarri, sot (9 shtator 2026) situata paraqitet e qet\u00eb dhe pa vatra aktive.\r\n\r\n\r\nGjat\u00eb dit\u00ebs s\u00eb djeshme, u b\u00eb i mundur menaxhimi dhe shuarja e vatrave n\u00eb Oblik\u00eb, Muriqan dhe B\u00ebrdic\u00eb, nd\u00ebrsa vatra n\u00eb Bardhaj, mbi rezervuar, vijoi p\u00ebr nj\u00eb periudh\u00eb t\u00eb ishte aktive, pa paraqitur rrezik p\u00ebr banesat. Fal\u00eb nd\u00ebrhyrjes n\u00eb terren, u shp\u00ebtuan edhe gjasht\u00eb banesa t\u00eb rrezikuara nga zjarri n\u00eb Bardhaj.\r\n\r\n\r\nMir\u00ebnjohje zjarrfik\u00ebsve, Emergjencave Civile, Forcave t\u00eb Armatosura, punonj\u00ebsve t\u00eb Bashkis\u00eb, vullnetar\u00ebve dhe banor\u00ebve q\u00eb kontribuuan gjat\u00eb gjith\u00eb k\u00ebsaj situate.\r\n\r\n\r\nEdhe pse sot situata \u00ebsht\u00eb e qet\u00eb, zona vijon t\u00eb monitorohet p\u00ebr t\u00eb parandaluar \u00e7do riaktivizim t\u00eb mundsh\u00ebm. Kjo situat\u00eb na kujton se gatishm\u00ebria p\u00ebr emergjencat nuk fillon vet\u00ebm n\u00eb momentin kur shfaqet rreziku. Ajo nd\u00ebrtohet \u00e7do dit\u00eb, edhe n\u00eb nivel komunitar.\r\n\r\n\r\nN\u00eb k\u00ebt\u00eb kuad\u00ebr, Rrjeti i Q\u00ebndrueshm\u00ebris\u00eb s\u00eb Komunitetit (Community Resilience Network \u2013 CRN) Daj\u00e7, i mb\u00ebshtetur dhe fuqizuar p\u00ebrmes pun\u00ebs s\u00eb Together for Life, \u00ebsht\u00eb nj\u00eb mekaniz\u00ebm komunitar q\u00eb kontribuon n\u00eb forcimin e komunikimit, informimit dhe gatishm\u00ebris\u00eb n\u00eb nivel lokal.\r\n\r\n\r\nRrjeti \u00ebsht\u00eb vigjilent dhe aktiv n\u00eb komunikim dhe k\u00ebshillim me komunitetin n\u00eb Daj\u00e7, n\u00eb m\u00ebnyr\u00eb q\u00eb, n\u00eb rast t\u00eb nj\u00eb emergjence, informacioni i sakt\u00eb dhe nevojat e komunitetit t\u00eb p\u00ebrcillen dhe t\u00eb adresohen sa m\u00eb shpejt.\r\n\r\n\r\nCRN Daj\u00e7 sh\u00ebrben si nj\u00eb ur\u00eb lidh\u00ebse mes komunitetit, institucioneve dhe strukturave t\u00eb emergjencave, duke ndihmuar n\u00eb:\r\n\r\n\r\n\r\n \tp\u00ebrcjelljen e informacionit t\u00eb sakt\u00eb dhe n\u00eb koh\u00eb;\r\n \tidentifikimin e personave dhe familjeve q\u00eb mund t\u00eb ken\u00eb nevoj\u00eb p\u00ebr mb\u00ebshtetje t\u00eb ve\u00e7ant\u00eb;\r\n \tevidentimin e nevojave dhe problematikave n\u00eb komunitet;\r\n \tforcimin e komunikimit dhe koordinimit n\u00eb rast emergjence;\r\n \trritjen e nd\u00ebrgjegj\u00ebsimit p\u00ebr parandalimin dhe gatishm\u00ebrin\u00eb ndaj emergjencave.\r\n \t\r\n\r\n\r\nNj\u00eb komunitet i p\u00ebrgatitur nuk z\u00ebvend\u00ebson strukturat e emergjenc\u00ebs. P\u00ebrkundrazi, ai i ndihmon ato t\u00eb reagojn\u00eb m\u00eb mir\u00eb dhe m\u00eb shpejt aty ku nevojitet.\r\n\r\n\r\nP\u00ebr t\u00eb gjitha komunitetet n\u00eb zonat e prekura nga zjarret apo n\u00eb zona q\u00eb mund t\u00eb p\u00ebrballen me rrezik, apelojm\u00eb p\u00ebr qet\u00ebsi, kujdes dhe p\u00ebrgjegjshm\u00ebri:\r\n\r\n\r\n\u2022 T\u00eb ndiqen vet\u00ebm informacionet nga burimet zyrtare.\r\n\u2022 T\u00eb mos shp\u00ebrndahen lajme apo pamje t\u00eb pakonfirmuara q\u00eb mund t\u00eb krijojn\u00eb panik.\r\n\u2022 T\u00eb respektohen udh\u00ebzimet e autoriteteve.\r\n\u2022 T\u00eb mos afrohemi n\u00eb zonat e zjarrit p\u00ebr t\u00eb filmuar apo fotografuar.\r\n\u2022 T\u00eb tregohet kujdes i ve\u00e7ant\u00eb p\u00ebr t\u00eb moshuarit, personat me aft\u00ebsi t\u00eb kufizuara, f\u00ebmij\u00ebt dhe personat e tjer\u00eb q\u00eb mund t\u00eb ken\u00eb nevoj\u00eb p\u00ebr mb\u00ebshtetje.\r\n\r\n\r\nSot situata \u00ebsht\u00eb e qet\u00eb. Por gatishm\u00ebria duhet t\u00eb vazhdoj\u00eb.\r\n\r\n\r\nQet\u00ebsi. Informim. Solidaritet. Gatishm\u00ebri.\r\n\r\n\r\nTogether for Life | Rrjeti i Q\u00ebndrueshm\u00ebris\u00eb s\u00eb Komunitetit (Community Resilience Network \u2013 CRN) Daj\u00e7<\/div><\/article>Lufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb<\/h2><\/div>
Lufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb<\/h2><\/div><\/div>Titulli i Projektit:\r\n\r\nLufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb\r\n\r\nDonatori\r\n\r\nNational Endowment for Democracy (NED)\r\n\r\nPeriudha e zbatimit\r\n\r\n1 Korrik 2024 \u2013 30 Qershor 2026 (24 muaj)\r\n\r\nQ\u00cbLLIMI I PROJEKTIT\r\n\r\nT\u00eb promovoj\u00eb llogaridh\u00ebnien dhe transparenc\u00ebn n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri, p\u00ebrmes monitorimit t\u00eb shpenzimeve publike dhe prokurimeve, evidentimit t\u00eb rasteve t\u00eb mundshme t\u00eb korrupsionit, fuqizimit t\u00eb rolit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile, medias dhe qytetar\u00ebve, si dhe nxitjes s\u00eb institucioneve publike p\u00ebr t\u00eb nd\u00ebrmarr\u00eb masa konkrete p\u00ebr p\u00ebrmir\u00ebsimin e integritetit dhe p\u00ebrdorimit t\u00eb fondeve publike.\r\n\r\nAktivitetet\r\n\r\n \tMonitorimi dhe analiza e shpenzimeve publike dhe procedurave t\u00eb prokurimit n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri.\r\n \tHartimi i dy raporteve vjetore t\u00eb monitorimit mbi shpenzimet publike, prokurimet dhe shp\u00ebrndarjen e fondeve p\u00ebr grupet vulnerab\u00ebl.\r\n \tP\u00ebrgatitja e nj\u00eb raporti t\u00eb thelluar mbi zbatimin e ligjit p\u00ebr autonomin\u00eb spitalore dhe rekomandimeve p\u00ebr p\u00ebrmir\u00ebsimin e menaxhimit t\u00eb fondeve publike.\r\n \tP\u00ebrgatitja e nj\u00eb raporti gjith\u00ebp\u00ebrfshir\u00ebs mbi hetimet dhe gjetjet e SPAK lidhur me abuzimet financiare n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tBashk\u00ebpunimi me BIRN p\u00ebr realizimin e pes\u00eb artikujve investigativ\u00eb mbi korrupsionin n\u00eb shpenzimet publike n\u00eb sh\u00ebndet\u00ebsi.\r\n \tOrganizimi i t\u00eb pakt\u00ebn kat\u00ebr workshopeve me organizata t\u00eb shoq\u00ebris\u00eb civile dhe gazetar\u00eb p\u00ebr identifikimin dhe raportimin e rasteve t\u00eb munges\u00ebs s\u00eb transparenc\u00ebs dhe llogaridh\u00ebnies.\r\n \tPjes\u00ebmarrja n\u00eb seancat d\u00ebgjimore parlamentare p\u00ebr prezantimin e gjetjeve t\u00eb monitorimit.\r\n \tMbajtja dhe zgjerimi i rrjetit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile q\u00eb punojn\u00eb p\u00ebr transparenc\u00ebn dhe llogaridh\u00ebnien n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tOrganizimi i tet\u00eb takimeve rajonale n\u00eb Shkod\u00ebr, Vlor\u00eb, Elbasan dhe Dib\u00ebr me deputet\u00eb, organizata lokale dhe qytetar\u00eb p\u00ebr diskutimin e \u00e7\u00ebshtjeve t\u00eb sh\u00ebndet\u00ebsis\u00eb.\r\n \tOrganizimi i kat\u00ebr tryezave komb\u00ebtare me institucionet p\u00ebrgjegj\u00ebse (Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi, Avokati i Popullit, ILDKPKI dhe Komisioneri p\u00ebr t\u00eb Drejt\u00ebn e Informimit) p\u00ebr prezantimin e gjetjeve t\u00eb projektit.\r\n \tMir\u00ebmbajtja dhe p\u00ebrdit\u00ebsimi i platform\u00ebs www.transparency.com.al dhe faqes p\u00ebrkat\u00ebse n\u00eb Facebook p\u00ebr raportimin e rasteve t\u00eb korrupsionit dhe promovimin e transparenc\u00ebs.\r\n \tP\u00ebrgatitja dhe publikimi i t\u00eb pakt\u00ebn tre njoftimeve p\u00ebr shtyp \u00e7do vit p\u00ebr t\u00eb rritur nd\u00ebrgjegj\u00ebsimin publik mbi problematikat e transparenc\u00ebs dhe llogaridh\u00ebnies n\u00eb sektorin sh\u00ebndet\u00ebsor.<\/div><\/article>Fibroza cistike \u2013 Nj\u00eb patologji komplekse q\u00eb sistemi sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri vazhdon ta trajtoj\u00eb si “s\u00ebmundje mushk\u00ebrish”<\/h2><\/div><\/div>P\u00ebr shumic\u00ebn e njer\u00ebzve, fibroza cistike mbetet nj\u00eb s\u00ebmundje pak e njohur. P\u00ebr m\u00eb shum\u00eb se 150 pacient\u00ebt dhe familjet e tyre n\u00eb Shqip\u00ebri, ajo p\u00ebrfaq\u00ebson nj\u00eb betej\u00eb t\u00eb p\u00ebrditshme q\u00eb nuk zhvillohet vet\u00ebm me s\u00ebmundjen, por edhe me vet\u00eb sistemin sh\u00ebndet\u00ebsor dhe at\u00eb t\u00eb mbrojtjes sociale.\r\n\r\nMenaxhimi i fibroz\u00ebs cistike nuk kufizohet vet\u00ebm n\u00eb marrjen e medikamenteve. Ai k\u00ebrkon nj\u00eb qasje t\u00eb integruar dhe multidisiplinare, q\u00eb p\u00ebrfshin ndjekje t\u00eb specializuar mjek\u00ebsore, fizioterapi respiratore t\u00eb p\u00ebrditshme, mb\u00ebshtetje psikologjike, akses t\u00eb vazhduesh\u00ebm n\u00eb barna specifike, sh\u00ebrbime sociale dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb pasqyron ndikimin real t\u00eb s\u00ebmundjes n\u00eb jet\u00ebn dhe funksionimin e pacientit.\r\n\r\nMegjithat\u00eb, d\u00ebshmit\u00eb e pacient\u00ebve dhe prind\u00ebrve t\u00eb tyre tregojn\u00eb se, edhe pas zbatimit t\u00eb modelit bio-psiko-social p\u00ebr vler\u00ebsimin e aft\u00ebsis\u00eb s\u00eb kufizuar, shum\u00eb prej k\u00ebtyre nevojave vazhdojn\u00eb t\u00eb mos njihen dhe t\u00eb mos adresohen n\u00eb praktik\u00eb.\r\n\r\nReforma e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, e nisur n\u00eb vitin 2019, synon t\u00eb z\u00ebvend\u00ebsoj\u00eb modelin tradicional t\u00eb bazuar vet\u00ebm n\u00eb diagnoz\u00eb me nj\u00eb qasje q\u00eb vler\u00ebson ndikimin e gjendjes sh\u00ebndet\u00ebsore n\u00eb funksionimin e p\u00ebrditsh\u00ebm t\u00eb individit. Megjithat\u00eb, gjetjet e mbledhura gjat\u00eb fokus-grupit t\u00eb zhvilluar me persona me fibroz\u00eb cistike dhe prind\u00ebr t\u00eb f\u00ebmij\u00ebve t\u00eb diagnostikuar me k\u00ebt\u00eb patologji tregojn\u00eb se ky objektiv ende nuk po realizohet plot\u00ebsisht.\r\n\r\nPjes\u00ebmarr\u00ebsit raportojn\u00eb se komisionet e vler\u00ebsimit shpesh nuk funksionojn\u00eb si ekipe t\u00eb mir\u00ebfillta multidisiplinare, kan\u00eb njohuri t\u00eb kufizuara mbi fibroz\u00ebn cistike dhe, n\u00eb disa raste, nuk shqyrtojn\u00eb dokumentacionin mjek\u00ebsor p\u00ebrpara takimit me pacientin. Si pasoj\u00eb, vler\u00ebsimi mb\u00ebshtetet m\u00eb shum\u00eb n\u00eb pamjen e jashtme t\u00eb personit sesa n\u00eb kufizimet funksionale dhe barr\u00ebn reale q\u00eb s\u00ebmundja imponon n\u00eb jet\u00ebn e p\u00ebrditshme.\r\n\r\nKy \u00ebsht\u00eb nj\u00eb paradoks q\u00eb bie ndesh me vet\u00eb filozofin\u00eb e modelit bio-psiko-social. Fibroza cistike \u00ebsht\u00eb nj\u00eb s\u00ebmundje kronike, progresive dhe multisistemike, e cila n\u00eb shum\u00eb raste nuk shfaq shenja t\u00eb dukshme fizike, por k\u00ebrkon trajtim t\u00eb p\u00ebrhersh\u00ebm, terapi t\u00eb p\u00ebrditshme dhe kujdes kompleks p\u00ebr t\u00eb parandaluar komplikacionet dhe p\u00ebr t\u00eb ruajtur cil\u00ebsin\u00eb e jet\u00ebs.\r\n\r\nKur vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar mb\u00ebshtetet kryesisht n\u00eb at\u00eb q\u00eb \"shihet me sy\", shum\u00eb pacient\u00eb klasifikohen me nj\u00eb shkall\u00eb m\u00eb t\u00eb ul\u00ebt t\u00eb r\u00ebnd\u00ebsis\u00eb s\u00eb s\u00ebmundjes nga ajo q\u00eb reflekton realisht gjendja e tyre sh\u00ebndet\u00ebsore. Si rrjedhoj\u00eb, nj\u00eb pjes\u00eb e tyre hasin v\u00ebshtir\u00ebsi n\u00eb p\u00ebrfitimin e mb\u00ebshtetjes ekonomike ose vler\u00ebsohen n\u00eb nivele q\u00eb nuk pasqyrojn\u00eb kostot reale t\u00eb jetes\u00ebs me fibroz\u00eb cistike.\r\n\r\n\"Her\u00ebn e par\u00eb komisioni vendosi q\u00eb f\u00ebmija im nuk i plot\u00ebsonte kriteret p\u00ebr t\u00eb p\u00ebrfituar KEMP. Kam dy f\u00ebmij\u00eb me fibroz\u00eb cistike, me t\u00eb nj\u00ebjt\u00ebn diagnoz\u00eb dhe n\u00eb t\u00eb nj\u00ebjt\u00ebn gjendje sh\u00ebndet\u00ebsore, por nj\u00ebri u vler\u00ebsua me r\u00ebndes\u00eb m\u00eb t\u00eb leht\u00eb t\u00eb s\u00ebmundjes, nd\u00ebrsa tjetri me r\u00ebndes\u00eb m\u00eb t\u00eb lart\u00eb. Nuk e kuptoj mbi \u00e7far\u00eb kriteresh b\u00ebhet ky vler\u00ebsim kur b\u00ebhet fjal\u00eb p\u00ebr t\u00eb nj\u00ebjt\u00ebn patologji\", shprehet R.XH., babai i dy f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike.\r\n\r\nK\u00ebto d\u00ebshmi tregojn\u00eb se nj\u00eb nga problemet themelore mbetet mungesa e njohjes institucionale t\u00eb fibroz\u00ebs cistike si nj\u00eb s\u00ebmundje komplekse. Edhe sot ajo vazhdon t\u00eb trajtohet kryesisht n\u00eb kuad\u00ebr t\u00eb patologjive pulmonare, nd\u00ebrkoh\u00eb q\u00eb prek nj\u00ebkoh\u00ebsisht mushk\u00ebrit\u00eb, pankreasin, sistemin tret\u00ebs, m\u00ebl\u00e7in\u00eb dhe organe t\u00eb tjera, duke k\u00ebrkuar kujdes multidisiplinar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nKy klasifikim ndikon jo vet\u00ebm n\u00eb m\u00ebnyr\u00ebn e organizimit t\u00eb trajtimit mjek\u00ebsor, por edhe n\u00eb procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar.\r\n\r\n\"N\u00eb dokumentacion paraqitet si nj\u00eb s\u00ebmundje e leht\u00eb\", shprehet L.H., n\u00ebna e nj\u00eb f\u00ebmije me fibroz\u00eb cistike, duke theksuar se komisionet shpesh nuk arrijn\u00eb t\u00eb kuptojn\u00eb se b\u00ebhet fjal\u00eb p\u00ebr nj\u00eb patologji kronike, progresive dhe potencialisht k\u00ebrc\u00ebnuese p\u00ebr jet\u00ebn.\r\n\r\nMungesa e protokollit t\u00eb trajtimit shoq\u00ebrohet me munges\u00ebn e munges\u00ebn e rimbursimit t\u00eb medikamenteve t\u00eb domosdoshme p\u00ebr trajtim\r\n\r\nMungesa e protokolleve t\u00eb p\u00ebrdit\u00ebsuara t\u00eb trajtimit dhe rimbursimit t\u00eb medikamenteve r\u00ebndon barr\u00ebn e pacient\u00ebve me fibroz\u00eb cistike\r\n\r\nP\u00ebrtej sfidave q\u00eb lidhen me procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, pacient\u00ebt me fibroz\u00eb cistike p\u00ebrballen edhe me munges\u00ebn e nj\u00eb modeli t\u00eb integruar t\u00eb kujdesit sh\u00ebndet\u00ebsor, i cili t\u00eb garantoj\u00eb trajtim t\u00eb standardizuar, vazhdim\u00ebsi t\u00eb sh\u00ebrbimeve dhe mb\u00ebshtetje t\u00eb specializuar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nPrind\u00ebrit e f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike raportojn\u00eb se q\u00eb n\u00eb momentin e diagnostikimit nuk marrin mb\u00ebshtetje psikologjike dhe as informacion t\u00eb strukturuar mbi m\u00ebnyr\u00ebn e menaxhimit t\u00eb s\u00ebmundjes apo protokollet e trajtimit. N\u00eb munges\u00eb t\u00eb nj\u00eb sistemi t\u00eb organizuar informimi dhe edukimi p\u00ebr pacient\u00ebt, familjet detyrohen t\u00eb k\u00ebrkojn\u00eb informacion nga organizata nd\u00ebrkomb\u00ebtare, rrjete mb\u00ebshtet\u00ebse, media sociale ose nga prind\u00ebr t\u00eb tjer\u00eb q\u00eb kan\u00eb kaluar t\u00eb nj\u00ebjt\u00ebn p\u00ebrvoj\u00eb. N\u00eb shum\u00eb raste, vet\u00eb familjet jan\u00eb shnd\u00ebrruar n\u00eb burimin kryesor t\u00eb informacionit dhe orientimit p\u00ebr pacient\u00ebt e sapodiagnostikuar, duke z\u00ebvend\u00ebsuar rolin q\u00eb duhet t\u00eb luajn\u00eb institucionet sh\u00ebndet\u00ebsore.\r\n\r\nNj\u00eb nga shqet\u00ebsimet m\u00eb serioze t\u00eb ngritura gjat\u00eb fokus-grupit lidhet me faktin se trajtimi i fibroz\u00ebs cistike n\u00eb Shqip\u00ebri vazhdon t\u00eb mb\u00ebshtetet n\u00eb nj\u00eb protokoll klinik t\u00eb miratuar n\u00eb vitin 2008, i cili nuk reflekton zhvillimet e fundit shkencore dhe standardet bashk\u00ebkohore t\u00eb trajtimit t\u00eb k\u00ebsaj patologjie. Sipas pjes\u00ebmarr\u00ebsve, protokolli p\u00ebrfshin medikamente q\u00eb nuk jan\u00eb m\u00eb t\u00eb disponueshme n\u00eb treg ose nuk p\u00ebrfaq\u00ebsojn\u00eb m\u00eb terapit\u00eb e rekomanduara sipas praktikave nd\u00ebrkomb\u00ebtare.\r\n\r\nMungesa e p\u00ebrdit\u00ebsimit t\u00eb protokollit ndikon drejtp\u00ebrdrejt edhe n\u00eb skem\u00ebn e rimbursimit t\u00eb barnave. Nj\u00eb pjes\u00eb e konsiderueshme e medikamenteve dhe produkteve t\u00eb nevojshme p\u00ebr menaxhimin e p\u00ebrditsh\u00ebm t\u00eb s\u00ebmundjes nuk mbulohen nga sistemi publik, duke detyruar familjet t'i sigurojn\u00eb ato me shpenzimet e tyre ose t'i blejn\u00eb jasht\u00eb Shqip\u00ebris\u00eb. P\u00ebr shum\u00eb familje, kjo p\u00ebrkthehet n\u00eb nj\u00eb barr\u00eb t\u00eb r\u00ebnd\u00eb financiare, nd\u00ebrkoh\u00eb q\u00eb nd\u00ebrprerja ose mungesa e trajtimit mund t\u00eb p\u00ebrshpejtoj\u00eb p\u00ebrkeq\u00ebsimin e gjendjes sh\u00ebndet\u00ebsore dhe t\u00eb rrezikoj\u00eb jet\u00ebgjat\u00ebsin\u00eb e pacient\u00ebve.\r\n\r\nNj\u00eb tjet\u00ebr problem strukturor lidhet me munges\u00ebn e vazhdim\u00ebsis\u00eb s\u00eb kujdesit pas mosh\u00ebs pediatrike. Sipas d\u00ebshmive t\u00eb prind\u00ebrve, pas mosh\u00ebs 16-vje\u00e7are pacient\u00ebt p\u00ebrballen me munges\u00ebn e sh\u00ebrbimeve t\u00eb specializuara dhe t\u00eb mjek\u00ebve t\u00eb trajnuar p\u00ebr trajtimin e fibroz\u00ebs cistike tek t\u00eb rriturit. Ky boshll\u00ebk n\u00eb sistem krijon nd\u00ebrprerje n\u00eb ndjekjen mjek\u00ebsore, cenon vazhdim\u00ebsin\u00eb e trajtimit dhe rrit rrezikun e komplikacioneve afatgjata.\r\n\r\nN\u00eb thelb, problemi nuk q\u00ebndron vet\u00ebm te mungesa e medikamenteve apo e protokolleve t\u00eb p\u00ebrdit\u00ebsuara, por te fakti se sistemi sh\u00ebndet\u00ebsor ende nuk e njeh fibroz\u00ebn cistike si nj\u00eb s\u00ebmundje komplekse q\u00eb k\u00ebrkon nj\u00eb qasje multidisiplinare dhe t\u00eb koordinuar. P\u00ebr sa koh\u00eb mungojn\u00eb protokollet e p\u00ebrdit\u00ebsuara sipas evidencave shkencore, rimbursimi i plot\u00eb i terapive t\u00eb domosdoshme, ekipet multidisiplinare dhe sh\u00ebrbimet e specializuara p\u00ebrgjat\u00eb gjith\u00eb ciklit t\u00eb jet\u00ebs s\u00eb pacientit, edhe zbatimi i modelit bio-psiko-social t\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar mbetet i pamjaftuesh\u00ebm p\u00ebr t'iu p\u00ebrgjigjur nevojave reale t\u00eb k\u00ebsaj kategorie.\r\n\r\nP\u00ebrmir\u00ebsimi i situat\u00ebs k\u00ebrkon nj\u00eb qasje t\u00eb integruar t\u00eb politikave publike. Kjo n\u00ebnkupton njohjen e fibroz\u00ebs cistike si nj\u00eb patologji komplekse dhe multisistemike, p\u00ebrdit\u00ebsimin e protokolleve komb\u00ebtare t\u00eb trajtimit n\u00eb p\u00ebrputhje me standardet nd\u00ebrkomb\u00ebtare, zgjerimin e list\u00ebs s\u00eb barnave t\u00eb rimbursueshme, krijimin e ekipeve multidisiplinare t\u00eb specializuara, garantimin e tranzicionit t\u00eb sigurt nga sh\u00ebrbimet pediatrike n\u00eb ato p\u00ebr t\u00eb rriturit, si dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb reflekton kufizimet funksionale dhe nevojat reale t\u00eb pacient\u00ebve, e jo vet\u00ebm diagnoz\u00ebn klinike.\r\n\r\n\r\n\r\n\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.<\/div><\/article>Rasti i pacientit n\u00eb Durr\u00ebs: Nj\u00eb alarm p\u00ebr aksesin e barabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit<\/h2><\/div><\/div>Ka ngjarje q\u00eb n\u00eb rrjetet sociale zgjasin vet\u00ebm pak minuta dhe pastaj harrohen si t\u00eb mos kishin ndodhur kurr\u00eb. Por ka edhe t\u00eb tilla q\u00eb kan\u00eb jehon\u00eb t\u00eb gjat\u00eb dhe marrin edhe reagimin e institucioneve. Rasti i pacientit 52-vje\u00e7ar n\u00eb Durr\u00ebs \u00ebsht\u00eb nj\u00ebri prej tyre.\r\n\r\nPamjet e nj\u00eb burri t\u00eb s\u00ebmur\u00eb, q\u00eb sipas informacioneve t\u00eb para ishte transportuar me ambulanc\u00eb nga Spitali i Durr\u00ebsit p\u00ebr t\u2019u braktisur n\u00eb \u2018rrug\u00eb\u2019, trondit\u00ebn opinionin publik. Reagime t\u00eb shumta pasuan, versione kontradiktore dhe deklarata institucionale. Fillimisht u raportua se pacienti kishte nd\u00ebrruar jet\u00eb, por m\u00eb pas Spitali Rajonal i Durr\u00ebsit sqaroi se ai ishte gjall\u00eb dhe ndodhej s\u00ebrish n\u00ebn kujdes mjek\u00ebsor, nd\u00ebrsa dy dit\u00eb pas ngjarjes Ministria e Sh\u00ebndet\u00ebsis\u00eb urdh\u00ebroi nisjen e nj\u00eb hetimi administrativ.\r\n\r\nMegjithat\u00eb, edhe pas reagimeve zyrtare, ende shum\u00eb pyetje mbeten ende pa p\u00ebrgjigje.\r\n\r\nN\u00ebse pacienti ishte n\u00eb gjendje t\u00eb stabilizuar dhe trajtimi spitalor kishte p\u00ebrfunduar, si ka mund\u00ebsi q\u00eb vet\u00ebm pak or\u00eb m\u00eb von\u00eb ai u rikthye n\u00eb spital dhe iu n\u00ebnshtrua menj\u00ebher\u00eb nj\u00eb nd\u00ebrhyrjeje tjet\u00ebr kirurgjikale, e cila p\u00ebrfundoi me amputimin e nj\u00ebr\u00ebs k\u00ebmb\u00eb? N\u00ebse, p\u00ebrkundrazi, gjendja e tij k\u00ebrkonte ende monitorim dhe nd\u00ebrhyrje, p\u00ebrse u largua nga spitali?\r\n\r\nK\u00ebto jan\u00eb pyetje q\u00eb lidhen drejtp\u00ebrdrejt me standardet e kujdesit sh\u00ebndet\u00ebsor publik n\u00eb Shqip\u00ebri.\r\n\r\nPo aq e r\u00ebnd\u00ebsishme \u00ebsht\u00eb q\u00eb institucionet t\u00eb sqarojn\u00eb se si ka funksionuar zinxhiri i vendimmarrjes n\u00eb k\u00ebt\u00eb rast. Kush e mori vendimin p\u00ebr daljen nga spitali t\u00eb pacientit t\u00eb s\u00ebmur\u00eb? Cilat ishin kriteret mjek\u00ebsore q\u00eb u ndoq\u00ebn nga vemdimarr\u00ebsit p\u00ebr rastin? A pat\u00ebn dhe a duhet t\u00eb kishin rol sh\u00ebrbimet sociale n\u00eb nj\u00eb koh\u00eb q\u00eb prej vitesh po trumbetohet nga institucionet ngritja e sh\u00ebrbimeve multidisiplinare, ku p\u00ebrfshihen sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe sociale? Dhe, a ekziston dokumentacioni q\u00eb provon se pacienti iu dor\u00ebzua v\u00ebrtet\u00eb nj\u00eb familjari, si\u00e7 deklaron spitali?\r\n\r\nNga ana tjet\u00ebr, edhe deklarata e Spitalit Rajonal t\u00eb Durr\u00ebsit ngre t\u00eb tjera pyetje. Institucioni pohon se pacienti nuk kishte vend ku t\u00eb q\u00ebndronte, se u njoftuan sh\u00ebrbimet sociale dhe Policia e Shtetit dhe se nj\u00eb familjar pranoi ta merrte n\u00eb banes\u00eb. Megjithat\u00eb, deri m\u00eb sot nuk \u00ebsht\u00eb ofruar asnj\u00eb informacion q\u00eb t\u00eb sqaroj\u00eb se kush ishte familjari (sigurisht jo t\u00eb dh\u00ebnat personale t\u00eb tij), ku ndodhej banesa apo n\u00ebse pacienti q\u00ebndroi realisht aty. P\u00ebrkundrazi, persona q\u00eb deklarojn\u00eb se e njihnin pacientin kan\u00eb pohuar publikisht se ai nuk kishte asnj\u00eb familjar q\u00eb t\u00eb kujdesej p\u00ebr t\u00eb dhe as nj\u00eb banes\u00eb ku t\u00eb strehohej. Ndaj, n\u00eb k\u00ebt\u00eb rast hetimi nuk mund t\u00eb kufizohet vet\u00ebm tek ndjekja e procedurave dhe protokolleve mjek\u00ebsore. Hetimit duhet t\u2019i n\u00ebnshtrohen t\u00eb gjitha hallkat e mekanizmave mbrojt\u00ebs, p\u00ebrfshi ato sociale.\r\n\r\nRasti i pacientit nga Durr\u00ebsi rikthen n\u00eb v\u00ebmendje nj\u00eb problem q\u00eb Together for Life e ka ngritur prej vitesh: qasjen e pabarabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore p\u00ebr pacient\u00ebt m\u00eb vulnerab\u00ebl. N\u00ebse do t\u2019i referohemi dokumentave strategjike, legjislacionit dhe deklaratave publike t\u00eb drejtuesve t\u00eb sh\u00ebndet\u00ebsis\u00eb sistemi publik garanton kujdes sh\u00ebndet\u00ebsor t\u00eb barabart\u00eb dhe t\u00eb aksesuesh\u00ebm p\u00ebr t\u00eb gjith\u00eb. Megjithat\u00eb, n\u00eb shum\u00eb raste, p\u00ebrfshi edhe k\u00ebt\u00eb t\u00eb fundit, pacient\u00ebt q\u00eb klasifikohet tek grupet me t\u00eb c\u00ebnueshme si ata nga familje t\u00eb varfra, t\u00eb braktisurit, personat me probleme t\u00eb sh\u00ebndetit mendor apo q\u00eb jetojn\u00eb n\u00eb kushte t\u00eb r\u00ebnda social-ekonomike p\u00ebrballen shpesh me barriera t\u00eb m\u00ebdha q\u00eb ua b\u00ebjn\u00eb t\u00eb v\u00ebshtir\u00eb, madje t\u00eb pamundur marrjen e trajtimit sh\u00ebndet\u00ebsor p\u00ebr t\u00eb cilin kan\u00eb nevoj\u00eb.\r\n\r\nN\u00ebse statusi social i nj\u00eb pacienti ndikon n\u00eb m\u00ebnyr\u00ebn se si ai trajtohet nga institucionet, at\u00ebher\u00eb nuk kemi t\u00eb b\u00ebjm\u00eb vet\u00ebm me nj\u00eb problem administrativ. Kemi t\u00eb b\u00ebjm\u00eb me c\u00ebnimin e parimit t\u00eb barazis\u00eb n\u00eb aksesin ndaj sh\u00ebrbimeve publike.\r\n\r\nFakti q\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb ka urdh\u00ebruar nj\u00eb hetim administrativ dhe se Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi ka nisur nj\u00eb procedur\u00eb hetimore kryesisht, \u00ebsht\u00eb p\u00ebr t\u2019u vler\u00ebsuar, por ende jo i mjaftuesh\u00ebm. P\u00ebrtej hetimit administrativ t\u00eb nisur nga dy institucionet e m\u00ebsip\u00ebrme, ky rast ngre edhe nj\u00eb tjet\u00ebr \u00e7\u00ebshtje me r\u00ebnd\u00ebsi publike: mbrojtjen e t\u00eb dh\u00ebnave personale t\u00eb pacientit. Publikimi nga institucioni spitalor i identitetit, diagnoz\u00ebs, historis\u00eb klinike dhe informacioneve tep\u00ebr sensitive, si statusi HIV dhe p\u00ebrdorimi i substancave narkotike, shtrojn\u00eb pyetjen n\u00ebse jan\u00eb respektuar detyrimet ligjore p\u00ebr konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore. Edhe n\u00ebse synimi ishte mbrojtja e institucionit nga akuzat publike, kjo nuk mund t\u00eb justifikoj\u00eb ekspozimin e t\u00eb dh\u00ebnave q\u00eb mbrohen nga legjislacioni shqiptar, Konventa Evropiane p\u00ebr t\u00eb Drejtat e Njeriut, Rregullorja Evropiane p\u00ebr Mbrojtjen e t\u00eb Dh\u00ebnave (GDPR) dhe parimet universale t\u00eb etik\u00ebs mjek\u00ebsore. Konfidencialiteti nuk \u00ebsht\u00eb nj\u00eb formalitet administrativ, \u00ebsht\u00eb element shum\u00eb i r\u00ebnd\u00ebsish\u00ebm p\u00ebr t\u00eb garantuar dinjitetin e pacientit.\r\n\r\nNdaj kjo ngjarje nuk duhet t\u00eb reduktohet vet\u00ebm n\u00eb debatin n\u00ebse pacienti u \"braktis\" apo jo. Kjo \u00ebsht\u00eb vet\u00ebm nj\u00eb pjes\u00eb e historis\u00eb. Pyetja m\u00eb e r\u00ebnd\u00ebsishme n\u00eb k\u00ebt\u00eb rast \u00ebsht\u00eb n\u00ebse sistemi funksionoi ashtu si\u00e7 duhet p\u00ebr nj\u00eb qytetar n\u00eb nevoj\u00eb. N\u00ebse u respektuan standardet profesionale. N\u00ebse institucionet bashk\u00ebpunuan si\u00e7 duhet. N\u00ebse t\u00eb drejtat e pacientit u mbrojt\u00ebn. Dhe n\u00ebse, p\u00ebrtej p\u00ebrgjegj\u00ebsive individuale, ky rast nxjerr n\u00eb pah mang\u00ebsi strukturore q\u00eb k\u00ebrkojn\u00eb reagim t\u00eb menj\u00ebher\u00ebsh.\r\n\r\nSepse nj\u00eb sistem sh\u00ebndet\u00ebsor nuk matet vet\u00ebm me buxhetin e alokuar nga fondet publike, q\u00eb p\u00ebr hir t\u00eb s\u00eb v\u00ebrtet\u00ebs vazhdojn\u00eb t\u00eb jen\u00eb m\u00eb t\u00eb ultat n\u00eb Rajon, por, mbi t\u00eb gjitha, matet me m\u00ebnyr\u00ebn si i trajton pacient\u00ebt, ve\u00e7an\u00ebrisht m\u00eb t\u00eb pambrojturit dhe t\u00eb rrezikuarit.\r\n\r\n \r\n\r\nREAGIMET E INSTITUCIONEVE \r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebq\u00ebnies Sociale - Lidhur me trajtimin e rastit t\u00eb pacientit 52-vje\u00e7ar A.A., nga qyteti i Durr\u00ebsit, Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale ka urdh\u00ebruar nisjen e nj\u00eb hetimi t\u00eb thelluar administrativ, i cili do t\u00eb shqyrtoj\u00eb n\u00eb m\u00ebnyr\u00eb t\u00eb plot\u00eb jo vet\u00ebm procedurat dhe masat e marra nga struktura spitalore, por edhe veprimet dhe p\u00ebrgjegj\u00ebsit\u00eb e strukturave t\u00eb sh\u00ebrbimit social t\u00eb p\u00ebrfshira n\u00eb k\u00ebt\u00eb rast.\r\n\r\nN\u00eb kuad\u00ebr t\u00eb k\u00ebtij procesi, drejtuesit e Operatorit t\u00eb Sh\u00ebrbimeve t\u00eb Kujdesit Sh\u00ebndet\u00ebsor dhe t\u00eb Sh\u00ebrbimit Social Shtet\u00ebror jan\u00eb n\u00eb terren p\u00ebr t\u00eb kryer verifikime t\u00eb drejtp\u00ebrdrejta dhe p\u00ebr t\u00eb mbik\u00ebqyrur procesin e hetimit administrativ t\u00eb strukturave n\u00eb qytetin e Durr\u00ebsit.\r\n\r\nNd\u00ebrkoh\u00eb, pacienti ndodhet n\u00ebn kujdesin e strukturave sh\u00ebndet\u00ebsore n\u00eb spitalin rajonal t\u00eb Durr\u00ebsit.\r\n\r\nGjithashtu, po verifikohet i gjith\u00eb dokumentacioni sh\u00ebndet\u00ebsor dhe administrativ, si edhe p\u00ebrgjegj\u00ebsia e personave t\u00eb p\u00ebrfshir\u00eb n\u00eb menaxhimin dhe transportimin e pacientit.\r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale mbetet e angazhuar p\u00ebr t\u00eb garantuar transparenc\u00eb t\u00eb plot\u00eb, zbardhjen e t\u00eb gjitha rrethanave t\u00eb k\u00ebtij rasti dhe marrjen e \u00e7do mase administrative apo ligjore q\u00eb do t\u00eb rezultoj\u00eb e nevojshme.\r\n\r\n\u00a0\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi - Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin kryesisht p\u00ebr rastin e b\u00ebr\u00eb publik n\u00eb Spitalin Rajonal t\u00eb Durr\u00ebsit\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin \u201cex-officio\u201d t\u00eb \u00e7\u00ebshtjes n\u00eb lidhje me trajtimin dhe ofrimin e sh\u00ebrbimeve t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe shoq\u00ebror ndaj shtetasit t\u00eb identifikuar si A.A, 52 vje\u00e7, nga qyteti i Durr\u00ebsit.\r\n\r\nPas informacioneve t\u00eb b\u00ebra publike n\u00eb media, Komisioneri ka vendosur fillimin e procedur\u00ebs administrative kryesisht, n\u00eb zbatim t\u00eb Ligjit nr. 10221, dat\u00eb 04.02.2010, \u201cP\u00ebr Mbrojtjen nga Diskriminimi\u201d si dhe dispozitat e Kodit t\u00eb Procedurave Administrative, p\u00ebr t\u00eb verifikuar n\u00ebse n\u00eb rastin konkret jan\u00eb respektuar parimet e trajtimit t\u00eb barabart\u00eb dhe mosdiskriminimit n\u00eb ofrimin e sh\u00ebrbimeve sh\u00ebndet\u00ebsore dhe shoq\u00ebrore.\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi mbetet i angazhuar n\u00eb garantimin e s\u00eb drejt\u00ebs s\u00eb \u00e7do individi p\u00ebr trajtim t\u00eb barabart\u00eb dhe akses pa diskriminim n\u00eb sh\u00ebrbimet publike dhe private, duke nd\u00ebrhyr\u00eb n\u00eb \u00e7do rast kur ka indicie se k\u00ebto t\u00eb drejta mund t\u00eb jen\u00eb c\u00ebnuar.\r\n\r\n \r\n\r\nSpitali Rajonal i Durr\u00ebsit - N\u00eb lidhje me lajmin e publikuar n\u00eb media, sipas t\u00eb cilit nj\u00eb pacient i trajtuar m\u00eb par\u00eb n\u00eb Spitalin Rajonal Durr\u00ebs ka nd\u00ebrruar jet\u00eb, sqarojm\u00eb se ky informacion nuk \u00ebsht\u00eb i v\u00ebrtet\u00eb.\r\n\r\nPacienti \u00ebsht\u00eb paraqitur s\u00ebrish dit\u00ebn e djeshme n\u00eb Sh\u00ebrbimin e Urgjenc\u00ebs t\u00eb Spitalit Rajonal Durr\u00ebs, ku vijon t\u00eb q\u00ebndroj\u00eb n\u00ebn kujdesin dhe vler\u00ebsimin e personelit mjek\u00ebsor.\r\n\r\nP\u00ebr informimin e plot\u00eb t\u00eb opinionit publik b\u00ebjm\u00eb me dije se pacienti ishte trajtuar m\u00eb par\u00eb n\u00eb QSUT, ku i ishte kryer nj\u00eb nd\u00ebrhyrje nga mjek\u00ebt kirurg\u00eb vaskular\u00eb n\u00eb en\u00ebt e gjakut t\u00eb k\u00ebmb\u00ebs s\u00eb majt\u00eb. Pas komunikimit nd\u00ebrmjet mjek\u00ebve, ai u shtrua n\u00eb Spitalin Rajonal Durr\u00ebs, ku q\u00ebndroi dhe u trajtua p\u00ebr disa jav\u00eb, duke marr\u00eb kujdesin e nevojsh\u00ebm mjek\u00ebsor n\u00eb p\u00ebrputhje me gjendjen e tij sh\u00ebndet\u00ebsore.\r\n\r\nPas stabilizimit t\u00eb parametrave klinik\u00eb dhe p\u00ebrfundimit t\u00eb trajtimit spitalor, pacientit iu p\u00ebrgatit epikriza dhe iu komunikua dalja nga spitali. Duke qen\u00eb se ai deklaroi se nuk kishte nj\u00eb vend ku t\u00eb q\u00ebndronte, strukturat e spitalit njoftuan sh\u00ebrbimin social dhe organet e Policis\u00eb s\u00eb Shtetit, me q\u00ebllim gjetjen e nj\u00eb zgjidhjeje t\u00eb sigurt sociale dhe familjare.\r\n\r\nPas komunikimeve t\u00eb kryera nga strukturat p\u00ebrkat\u00ebse, nj\u00eb familjar deklaroi se do ta merrte pran\u00eb banes\u00ebs s\u00eb tij. Pacienti u transportua me autoambulanc\u00eb deri n\u00eb destinacion, i shoq\u00ebruar nga punonj\u00ebs t\u00eb Policis\u00eb s\u00eb Shtetit, dhe iu dor\u00ebzua familjarit.\r\n\r\nP\u00ebr rrjedhoj\u00eb, sqarojm\u00eb se pacienti nuk \u00ebsht\u00eb nxjerr\u00eb apo braktisur n\u00eb rrug\u00eb nga Spitali Rajonal Durr\u00ebs, si\u00e7 pretendohet n\u00eb publikim. Dalja e tij nga spitali \u00ebsht\u00eb kryer pas p\u00ebrfundimit t\u00eb trajtimit, me dokumentacionin p\u00ebrkat\u00ebs mjek\u00ebsor dhe pas koordinimit me strukturat sociale, policore dhe familjare.\r\n\r\nSpitali Rajonal Durr\u00ebs u b\u00ebn thirrje mediave q\u00eb, ve\u00e7an\u00ebrisht n\u00eb raste kaq t\u00eb ndjeshme, informacioni t\u00eb verifikohet pran\u00eb institucioneve p\u00ebrkat\u00ebse p\u00ebrpara publikimit.\r\n\r\nInstitucioni yn\u00eb mbetet i angazhuar p\u00ebr ofrimin e kujdesit sh\u00ebndet\u00ebsor dhe p\u00ebr bashk\u00ebpunimin me \u00e7do autoritet kompetent, duke respektuar konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit.<\/div><\/article>TFL, fokus grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje<\/h2><\/div><\/div>Together for Life\u00a0zhvilloi nj\u00eb fokus-grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje, p\u00ebr t\u00eb\u00a0diskutuar ndikimin q\u00eb\u00a0ka pasur zbatimi\u00a0i skem\u00ebs s\u00eb\u00a0re t\u00eb vler\u00ebsimit\u00a0t\u00eb aft\u00ebsis\u00eb s\u00eb\u00a0kufizuar, bazuar n\u00eb\u00a0modelin\u00a0bio-psiko-social, si dhe sfidat\u00a0q\u00eb ata vazhdojn\u00eb\u00a0t\u00eb p\u00ebrballen \u00e7do\u00a0dit\u00eb.\r\n\r\nGjat\u00eb diskutimit u ngrit\u00ebn shqet\u00ebsime serioze mbi:\r\n\u2022 v\u00ebshtir\u00ebsit\u00eb n\u00eb procesin\u00a0e vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe munges\u00ebn e\u00a0njohjes s\u00eb plot\u00eb\u00a0t\u00eb k\u00ebsaj patologjie\u00a0nga komisionet e\u00a0vler\u00ebsimit;\r\n\u2022 munges\u00ebn e mb\u00ebshtetjes\u00a0psikologjike p\u00ebr pacient\u00ebt\u00a0dhe familjet q\u00eb\u00a0nga momenti i\u00a0diagnostikimit;\r\n\u2022 aksesin e kufizuar n\u00eb trajtime\u00a0dhe medikamente t\u00eb\u00a0domosdoshme, shum\u00eb prej\u00a0t\u00eb cilave mbeten\u00a0t\u00eb pap\u00ebrballueshme financiarisht;\r\n\u2022 munges\u00ebn e nj\u00eb\u00a0qasjeje t\u00eb integruar\u00a0p\u00ebr mbulimin e\u00a0nevojave sh\u00ebndet\u00ebsore,\u00a0sociale dhe t\u00eb\u00a0pun\u00ebsimit;\r\n\u2022 nevoj\u00ebn p\u00ebr politika\u00a0publike q\u00eb njohin\u00a0fibroz\u00ebn\u00a0cistike si nj\u00eb\u00a0s\u00ebmundje komplekse, q\u00eb\u00a0k\u00ebrkon trajtim multidisiplinar\u00a0dhe mb\u00ebshtetje t\u00eb\u00a0vazhdueshme.\r\n\r\nKy fokus-grup\u00a0\u00ebsht\u00eb pjes\u00eb\u00a0e monitorimit t\u00eb\u00a0efekteve t\u00eb reform\u00ebs\u00a0s\u00eb vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe synon t\u00eb\u00a0siguroj\u00eb q\u00eb z\u00ebri\u00a0dhe p\u00ebrvoja e\u00a0personave t\u00eb\u00a0prekur t\u00eb reflektohen\u00a0n\u00eb p\u00ebrmir\u00ebsimin e\u00a0politikave publike.\r\nAskush nuk duhet\u00a0t\u00eb mbetet pa\u00a0mb\u00ebshtetje p\u00ebr shkak\u00a0t\u00eb nj\u00eb sistemi\u00a0q\u00eb nuk arrin\u00a0t\u00eb kuptoj\u00eb kompleksitetin\u00a0e nevojave t\u00eb\u00a0tij.\r\n\r\n***\r\nTogether for Life organized a focus group with people living with cystic fibrosis and parents of children affected by the condition to discuss the impact of the implementation of the new disability assessment scheme based on the bio-psycho-social model, as well as the challenges they continue to face in accessing healthcare, social protection, and employment opportunities.\r\n\r\nParticipants highlighted several critical concerns, including:\r\n\u2022 challenges in the disability assessment process and the limited recognition of cystic fibrosis by assessment commissions;\r\n\u2022 the lack of psychological support for patients and their families from the moment of diagnosis;\r\n\u2022 limited access to essential medicines and treatment, many of which remain financially out of reach;\r\n\u2022 the absence of an integrated approach to addressing healthcare, social, and employment needs;\r\n\u2022 the urgent need for public policies that recognize cystic fibrosis as a complex condition requiring multidisciplinary care and long-term support.\r\n\r\nThis focus group forms part of the broader monitoring of the effects of Albania's disability assessment reform and aims to ensure that the experiences and voices of people living with cystic fibrosis are reflected in future policy improvements.<\/div><\/article>Trajnim me gazetar\u00eb\/ Raportimi etik i Dhun\u00ebs me Baz\u00eb Gjinore: Roli i Medias n\u00eb Nd\u00ebrgjegj\u00ebsimin Publik dhe Promovimin e Barazis\u00eb Gjinore<\/h2><\/div><\/div>\ud835\udc0a\ud835\udc2e\ud835\udc2b \ud835\udc20\ud835\udc1a\ud835\udc33\ud835\udc1e\ud835\udc2d\ud835\udc1a\ud835\udc2b\ud835\udc22 \ud835\udc2b\ud835\udc1a\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc28\ud835\udc27 \ud835\udc29\u00eb\ud835\udc2b \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc26\ud835\udc1e \ud835\udc1b\ud835\udc1a\ud835\udc33\u00eb \ud835\udc20\ud835\udc23\ud835\udc22\ud835\udc27\ud835\udc28\ud835\udc2b\ud835\udc1e \ud835\udc1a\ud835\udc29\ud835\udc28 \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc27\u00eb \ud835\udc1f\ud835\udc1a\ud835\udc26\ud835\udc22\ud835\udc25\ud835\udc23\ud835\udc1e, \ud835\udc27\ud835\udc2e\ud835\udc24 \ud835\udc29\ud835\udc28 \ud835\udc2d\ud835\udc2b\ud835\udc1e\ud835\udc20\ud835\udc28\ud835\udc27 \ud835\udc2d\ud835\udc21\ud835\udc23\ud835\udc1e\ud835\udc2c\ud835\udc21\ud835\udc2d \ud835\udc27\ud835\udc23\u00eb \ud835\udc21\ud835\udc22\ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc22. \ud835\udc0f\ud835\udc28 \ud835\udc27\ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc28\ud835\udc27 \ud835\udc27\u00eb \ud835\udc23\ud835\udc1e\ud835\udc2d\u00eb\ud835\udc27 \ud835\udc1e \ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc2e\ud835\udc23\ud835\udc2d.\n\n\n\nGjat\u00eb muajve qershor dhe korrik, gazetar\u00eb nga media t\u00eb ndryshme u b\u00ebn\u00eb pjes\u00eb e nj\u00eb serie trajnimesh kushtuar raportimit etik dhe profesional t\u00eb rasteve t\u00eb dhun\u00ebs me baz\u00eb gjinore dhe dhun\u00ebs n\u00eb familje, t\u00eb organizuara nga Together for Life, n\u00eb kuad\u00ebr t\u00eb \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc24\ud835\udc2d\ud835\udc22\ud835\udc2d \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 \u2013 \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a, i cili zbatohet nga nj\u00eb konsorcium organizatash dhe financohet nga Bashkimi Evropian.\n\n\n\n\nP\u00ebrmes analiz\u00ebs s\u00eb rasteve reale q\u00eb kan\u00eb tronditur opinionin publik pjes\u00ebmarr\u00ebsit diskutuan jo vet\u00ebm \u00e7far\u00eb raportohet, por mbi t\u00eb gjitha si raportohet.\n\n\n\nSepse gazetaria ka fuqin\u00eb:\nt\u00eb informoj\u00eb pa d\u00ebmtuar ask\u00ebnd;\n\u00a0t\u00eb mbroj\u00eb dinjitetin dhe privat\u00ebsin\u00eb e t\u00eb mbijetuarve;\n\u00a0t\u00eb edukoj\u00eb publikun;\nt\u00eb k\u00ebrkoj\u00eb llogari nga institucionet p\u00ebrgjegj\u00ebse \u2013 p\u00ebrfshir\u00eb sistemin sh\u00ebndet\u00ebsor, policin\u00eb, prokurorin\u00eb dhe sh\u00ebrbimet sociale \u2013 p\u00ebr m\u00ebnyr\u00ebn se si identifikojn\u00eb, raportojn\u00eb dhe menaxhojn\u00eb rastet e dhun\u00ebs.\n\n\nNj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e diskutimeve mes kolegeve gazetare iu kushtua sfid\u00ebs s\u00eb medias p\u00ebr t\u00eb mos r\u00ebn\u00eb pre e gar\u00ebs p\u00ebr klikime, duke shmangur gjuh\u00ebn q\u00eb romantizon dhun\u00ebn, faj\u00ebson viktim\u00ebn, cenon privat\u00ebsin\u00eb ose riviktimizon t\u00eb mbijetuarit.\n\n\n\nP\u00ebrmes metodave interaktive, si Mentimeter, gazetar\u00ebt testuan njohurit\u00eb e tyre, sfiduan perceptimet dhe reflektuan mbi p\u00ebrgjegj\u00ebsin\u00eb q\u00eb mbart \u00e7do lajm i publikuar. Sepse nj\u00eb raportim i mir\u00eb nuk matet vet\u00ebm me numrin e klikimeve.\n\n\n\n\nAi matet me ndikimin q\u00eb l\u00eb tek njer\u00ebzit, me besimin q\u00eb nd\u00ebrton dhe me kontributin q\u00eb jep p\u00ebr nj\u00eb shoq\u00ebri q\u00eb nuk e normalizon dhun\u00ebn, por e denon at\u00eb.\n\n\nKy publikim u realizua n\u00eb kuad\u00ebr t\u00eb iniciativ\u00ebs \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, t\u00eb zbatuar nga Gender Alliance for Development Centre (GADC), Together for Life dhe Institute of Romani Culture in Albania (IRCA), mb\u00ebshtetur financiarisht nga Bashkimi Evropian. P\u00ebrmbajtja e k\u00ebtij dokumenti \u00ebsht\u00eb p\u00ebrgjegj\u00ebsi e vetme e Together for Life dhe n\u00eb asnj\u00eb rrethan\u00eb nuk mund t\u00eb konsiderohet se pasqyron pozicionin e Bashkimit Evropian.\n\n\n\n***\n\n\n\n\ud835\udc16\ud835\udc21\ud835\udc1e\ud835\udc27 \ud835\udc1a \ud835\udc23\ud835\udc28\ud835\udc2e\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2c\ud835\udc2d \ud835\udc2b\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc2c \ud835\udc28\ud835\udc27 \ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b-\ud835\udc1b\ud835\udc1a\ud835\udc2c\ud835\udc1e\ud835\udc1d \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e \ud835\udc28\ud835\udc2b \ud835\udc1d\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc2c\ud835\udc2d\ud835\udc22\ud835\udc1c \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc27\ud835\udc28\ud835\udc2d \ud835\udc2c\ud835\udc22\ud835\udc26\ud835\udc29\ud835\udc25\ud835\udc32 \ud835\udc2d\ud835\udc1e\ud835\udc25\ud835\udc25\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc1a \ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc32, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc22\ud835\udc27\ud835\udc1f\ud835\udc25\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc2c\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc28\ud835\udc27\ud835\udc1e'\ud835\udc2c \ud835\udc25\ud835\udc22\ud835\udc1f\ud835\udc1e.\n\n\n\nDuring June and July, journalists from various media outlets participated in a series of training sessions on the ethical and professional reporting of gender-based violence and domestic violence cases.\n\n\nThe trainings were organized by Together for Life as part of the \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 - \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc1c\ud835\udc2d, implemented by GADC, TFL and IRCA organizations and funded by the European Union.\n\n\n\nThrough the analysis of real-life cases that have shocked public opinion, participants explored not only what is reported, but, more importantly, how it is reported.\n\n\nBecause journalism has the power to:\n\u00a0inform without causing harm;\nprotect the dignity and privacy of survivors;\neducate the public;\nhold responsible institutions, including the healthcare system, the police, the prosecution, and social services, accountable for how they identify, report, and respond to cases of violence.\n\n\nAn important part of the discussions among the participating journalists focused on the media's responsibility to resist the race for clicks by avoiding language that romanticizes violence, blames victims, violates their privacy, or re-traumatizes survivors.\n\n\n\n\n\u00a0Through interactive methods such as Mentimeter, journalists tested their knowledge, challenged their assumptions, and reflected on the responsibility that comes with every story they publish.\n\n\nBecause good journalism is not measured solely by the number of clicks. It is measured by the impact it has on people's lives, the trust it builds, and the contribution it makes to a society that does not normalize violence, but exposes and condemns it.\n\n\n\nThis publication was produced as part of the initiative \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, implemented by the Gender Alliance for Development Centre (GADC), Together for Life, and the Institute of Romani Culture in Albania (IRCA), with financial support from the European Union. The contents of this video are the sole responsibility of Together for Life and can under no circumstances be regarded as reflecting the position of the European Union.<\/div><\/article><\/div>
Titulli i Projektit:\r\n\r\nLufta kund\u00ebr korrupsionit n\u00eb shpenzimet publike n\u00eb sektorin e sh\u00ebndet\u00ebsis\u00eb\r\n\r\nDonatori\r\n\r\nNational Endowment for Democracy (NED)\r\n\r\nPeriudha e zbatimit\r\n\r\n1 Korrik 2024 \u2013 30 Qershor 2026 (24 muaj)\r\n\r\nQ\u00cbLLIMI I PROJEKTIT\r\n\r\nT\u00eb promovoj\u00eb llogaridh\u00ebnien dhe transparenc\u00ebn n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri, p\u00ebrmes monitorimit t\u00eb shpenzimeve publike dhe prokurimeve, evidentimit t\u00eb rasteve t\u00eb mundshme t\u00eb korrupsionit, fuqizimit t\u00eb rolit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile, medias dhe qytetar\u00ebve, si dhe nxitjes s\u00eb institucioneve publike p\u00ebr t\u00eb nd\u00ebrmarr\u00eb masa konkrete p\u00ebr p\u00ebrmir\u00ebsimin e integritetit dhe p\u00ebrdorimit t\u00eb fondeve publike.\r\n\r\nAktivitetet\r\n\r\n \tMonitorimi dhe analiza e shpenzimeve publike dhe procedurave t\u00eb prokurimit n\u00eb sektorin sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri.\r\n \tHartimi i dy raporteve vjetore t\u00eb monitorimit mbi shpenzimet publike, prokurimet dhe shp\u00ebrndarjen e fondeve p\u00ebr grupet vulnerab\u00ebl.\r\n \tP\u00ebrgatitja e nj\u00eb raporti t\u00eb thelluar mbi zbatimin e ligjit p\u00ebr autonomin\u00eb spitalore dhe rekomandimeve p\u00ebr p\u00ebrmir\u00ebsimin e menaxhimit t\u00eb fondeve publike.\r\n \tP\u00ebrgatitja e nj\u00eb raporti gjith\u00ebp\u00ebrfshir\u00ebs mbi hetimet dhe gjetjet e SPAK lidhur me abuzimet financiare n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tBashk\u00ebpunimi me BIRN p\u00ebr realizimin e pes\u00eb artikujve investigativ\u00eb mbi korrupsionin n\u00eb shpenzimet publike n\u00eb sh\u00ebndet\u00ebsi.\r\n \tOrganizimi i t\u00eb pakt\u00ebn kat\u00ebr workshopeve me organizata t\u00eb shoq\u00ebris\u00eb civile dhe gazetar\u00eb p\u00ebr identifikimin dhe raportimin e rasteve t\u00eb munges\u00ebs s\u00eb transparenc\u00ebs dhe llogaridh\u00ebnies.\r\n \tPjes\u00ebmarrja n\u00eb seancat d\u00ebgjimore parlamentare p\u00ebr prezantimin e gjetjeve t\u00eb monitorimit.\r\n \tMbajtja dhe zgjerimi i rrjetit t\u00eb organizatave t\u00eb shoq\u00ebris\u00eb civile q\u00eb punojn\u00eb p\u00ebr transparenc\u00ebn dhe llogaridh\u00ebnien n\u00eb sektorin sh\u00ebndet\u00ebsor.\r\n \tOrganizimi i tet\u00eb takimeve rajonale n\u00eb Shkod\u00ebr, Vlor\u00eb, Elbasan dhe Dib\u00ebr me deputet\u00eb, organizata lokale dhe qytetar\u00eb p\u00ebr diskutimin e \u00e7\u00ebshtjeve t\u00eb sh\u00ebndet\u00ebsis\u00eb.\r\n \tOrganizimi i kat\u00ebr tryezave komb\u00ebtare me institucionet p\u00ebrgjegj\u00ebse (Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi, Avokati i Popullit, ILDKPKI dhe Komisioneri p\u00ebr t\u00eb Drejt\u00ebn e Informimit) p\u00ebr prezantimin e gjetjeve t\u00eb projektit.\r\n \tMir\u00ebmbajtja dhe p\u00ebrdit\u00ebsimi i platform\u00ebs www.transparency.com.al dhe faqes p\u00ebrkat\u00ebse n\u00eb Facebook p\u00ebr raportimin e rasteve t\u00eb korrupsionit dhe promovimin e transparenc\u00ebs.\r\n \tP\u00ebrgatitja dhe publikimi i t\u00eb pakt\u00ebn tre njoftimeve p\u00ebr shtyp \u00e7do vit p\u00ebr t\u00eb rritur nd\u00ebrgjegj\u00ebsimin publik mbi problematikat e transparenc\u00ebs dhe llogaridh\u00ebnies n\u00eb sektorin sh\u00ebndet\u00ebsor.<\/div><\/article>Fibroza cistike \u2013 Nj\u00eb patologji komplekse q\u00eb sistemi sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri vazhdon ta trajtoj\u00eb si “s\u00ebmundje mushk\u00ebrish”<\/h2><\/div>
Fibroza cistike \u2013 Nj\u00eb patologji komplekse q\u00eb sistemi sh\u00ebndet\u00ebsor n\u00eb Shqip\u00ebri vazhdon ta trajtoj\u00eb si “s\u00ebmundje mushk\u00ebrish”<\/h2><\/div><\/div>P\u00ebr shumic\u00ebn e njer\u00ebzve, fibroza cistike mbetet nj\u00eb s\u00ebmundje pak e njohur. P\u00ebr m\u00eb shum\u00eb se 150 pacient\u00ebt dhe familjet e tyre n\u00eb Shqip\u00ebri, ajo p\u00ebrfaq\u00ebson nj\u00eb betej\u00eb t\u00eb p\u00ebrditshme q\u00eb nuk zhvillohet vet\u00ebm me s\u00ebmundjen, por edhe me vet\u00eb sistemin sh\u00ebndet\u00ebsor dhe at\u00eb t\u00eb mbrojtjes sociale.\r\n\r\nMenaxhimi i fibroz\u00ebs cistike nuk kufizohet vet\u00ebm n\u00eb marrjen e medikamenteve. Ai k\u00ebrkon nj\u00eb qasje t\u00eb integruar dhe multidisiplinare, q\u00eb p\u00ebrfshin ndjekje t\u00eb specializuar mjek\u00ebsore, fizioterapi respiratore t\u00eb p\u00ebrditshme, mb\u00ebshtetje psikologjike, akses t\u00eb vazhduesh\u00ebm n\u00eb barna specifike, sh\u00ebrbime sociale dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb pasqyron ndikimin real t\u00eb s\u00ebmundjes n\u00eb jet\u00ebn dhe funksionimin e pacientit.\r\n\r\nMegjithat\u00eb, d\u00ebshmit\u00eb e pacient\u00ebve dhe prind\u00ebrve t\u00eb tyre tregojn\u00eb se, edhe pas zbatimit t\u00eb modelit bio-psiko-social p\u00ebr vler\u00ebsimin e aft\u00ebsis\u00eb s\u00eb kufizuar, shum\u00eb prej k\u00ebtyre nevojave vazhdojn\u00eb t\u00eb mos njihen dhe t\u00eb mos adresohen n\u00eb praktik\u00eb.\r\n\r\nReforma e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, e nisur n\u00eb vitin 2019, synon t\u00eb z\u00ebvend\u00ebsoj\u00eb modelin tradicional t\u00eb bazuar vet\u00ebm n\u00eb diagnoz\u00eb me nj\u00eb qasje q\u00eb vler\u00ebson ndikimin e gjendjes sh\u00ebndet\u00ebsore n\u00eb funksionimin e p\u00ebrditsh\u00ebm t\u00eb individit. Megjithat\u00eb, gjetjet e mbledhura gjat\u00eb fokus-grupit t\u00eb zhvilluar me persona me fibroz\u00eb cistike dhe prind\u00ebr t\u00eb f\u00ebmij\u00ebve t\u00eb diagnostikuar me k\u00ebt\u00eb patologji tregojn\u00eb se ky objektiv ende nuk po realizohet plot\u00ebsisht.\r\n\r\nPjes\u00ebmarr\u00ebsit raportojn\u00eb se komisionet e vler\u00ebsimit shpesh nuk funksionojn\u00eb si ekipe t\u00eb mir\u00ebfillta multidisiplinare, kan\u00eb njohuri t\u00eb kufizuara mbi fibroz\u00ebn cistike dhe, n\u00eb disa raste, nuk shqyrtojn\u00eb dokumentacionin mjek\u00ebsor p\u00ebrpara takimit me pacientin. Si pasoj\u00eb, vler\u00ebsimi mb\u00ebshtetet m\u00eb shum\u00eb n\u00eb pamjen e jashtme t\u00eb personit sesa n\u00eb kufizimet funksionale dhe barr\u00ebn reale q\u00eb s\u00ebmundja imponon n\u00eb jet\u00ebn e p\u00ebrditshme.\r\n\r\nKy \u00ebsht\u00eb nj\u00eb paradoks q\u00eb bie ndesh me vet\u00eb filozofin\u00eb e modelit bio-psiko-social. Fibroza cistike \u00ebsht\u00eb nj\u00eb s\u00ebmundje kronike, progresive dhe multisistemike, e cila n\u00eb shum\u00eb raste nuk shfaq shenja t\u00eb dukshme fizike, por k\u00ebrkon trajtim t\u00eb p\u00ebrhersh\u00ebm, terapi t\u00eb p\u00ebrditshme dhe kujdes kompleks p\u00ebr t\u00eb parandaluar komplikacionet dhe p\u00ebr t\u00eb ruajtur cil\u00ebsin\u00eb e jet\u00ebs.\r\n\r\nKur vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar mb\u00ebshtetet kryesisht n\u00eb at\u00eb q\u00eb \"shihet me sy\", shum\u00eb pacient\u00eb klasifikohen me nj\u00eb shkall\u00eb m\u00eb t\u00eb ul\u00ebt t\u00eb r\u00ebnd\u00ebsis\u00eb s\u00eb s\u00ebmundjes nga ajo q\u00eb reflekton realisht gjendja e tyre sh\u00ebndet\u00ebsore. Si rrjedhoj\u00eb, nj\u00eb pjes\u00eb e tyre hasin v\u00ebshtir\u00ebsi n\u00eb p\u00ebrfitimin e mb\u00ebshtetjes ekonomike ose vler\u00ebsohen n\u00eb nivele q\u00eb nuk pasqyrojn\u00eb kostot reale t\u00eb jetes\u00ebs me fibroz\u00eb cistike.\r\n\r\n\"Her\u00ebn e par\u00eb komisioni vendosi q\u00eb f\u00ebmija im nuk i plot\u00ebsonte kriteret p\u00ebr t\u00eb p\u00ebrfituar KEMP. Kam dy f\u00ebmij\u00eb me fibroz\u00eb cistike, me t\u00eb nj\u00ebjt\u00ebn diagnoz\u00eb dhe n\u00eb t\u00eb nj\u00ebjt\u00ebn gjendje sh\u00ebndet\u00ebsore, por nj\u00ebri u vler\u00ebsua me r\u00ebndes\u00eb m\u00eb t\u00eb leht\u00eb t\u00eb s\u00ebmundjes, nd\u00ebrsa tjetri me r\u00ebndes\u00eb m\u00eb t\u00eb lart\u00eb. Nuk e kuptoj mbi \u00e7far\u00eb kriteresh b\u00ebhet ky vler\u00ebsim kur b\u00ebhet fjal\u00eb p\u00ebr t\u00eb nj\u00ebjt\u00ebn patologji\", shprehet R.XH., babai i dy f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike.\r\n\r\nK\u00ebto d\u00ebshmi tregojn\u00eb se nj\u00eb nga problemet themelore mbetet mungesa e njohjes institucionale t\u00eb fibroz\u00ebs cistike si nj\u00eb s\u00ebmundje komplekse. Edhe sot ajo vazhdon t\u00eb trajtohet kryesisht n\u00eb kuad\u00ebr t\u00eb patologjive pulmonare, nd\u00ebrkoh\u00eb q\u00eb prek nj\u00ebkoh\u00ebsisht mushk\u00ebrit\u00eb, pankreasin, sistemin tret\u00ebs, m\u00ebl\u00e7in\u00eb dhe organe t\u00eb tjera, duke k\u00ebrkuar kujdes multidisiplinar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nKy klasifikim ndikon jo vet\u00ebm n\u00eb m\u00ebnyr\u00ebn e organizimit t\u00eb trajtimit mjek\u00ebsor, por edhe n\u00eb procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar.\r\n\r\n\"N\u00eb dokumentacion paraqitet si nj\u00eb s\u00ebmundje e leht\u00eb\", shprehet L.H., n\u00ebna e nj\u00eb f\u00ebmije me fibroz\u00eb cistike, duke theksuar se komisionet shpesh nuk arrijn\u00eb t\u00eb kuptojn\u00eb se b\u00ebhet fjal\u00eb p\u00ebr nj\u00eb patologji kronike, progresive dhe potencialisht k\u00ebrc\u00ebnuese p\u00ebr jet\u00ebn.\r\n\r\nMungesa e protokollit t\u00eb trajtimit shoq\u00ebrohet me munges\u00ebn e munges\u00ebn e rimbursimit t\u00eb medikamenteve t\u00eb domosdoshme p\u00ebr trajtim\r\n\r\nMungesa e protokolleve t\u00eb p\u00ebrdit\u00ebsuara t\u00eb trajtimit dhe rimbursimit t\u00eb medikamenteve r\u00ebndon barr\u00ebn e pacient\u00ebve me fibroz\u00eb cistike\r\n\r\nP\u00ebrtej sfidave q\u00eb lidhen me procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, pacient\u00ebt me fibroz\u00eb cistike p\u00ebrballen edhe me munges\u00ebn e nj\u00eb modeli t\u00eb integruar t\u00eb kujdesit sh\u00ebndet\u00ebsor, i cili t\u00eb garantoj\u00eb trajtim t\u00eb standardizuar, vazhdim\u00ebsi t\u00eb sh\u00ebrbimeve dhe mb\u00ebshtetje t\u00eb specializuar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nPrind\u00ebrit e f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike raportojn\u00eb se q\u00eb n\u00eb momentin e diagnostikimit nuk marrin mb\u00ebshtetje psikologjike dhe as informacion t\u00eb strukturuar mbi m\u00ebnyr\u00ebn e menaxhimit t\u00eb s\u00ebmundjes apo protokollet e trajtimit. N\u00eb munges\u00eb t\u00eb nj\u00eb sistemi t\u00eb organizuar informimi dhe edukimi p\u00ebr pacient\u00ebt, familjet detyrohen t\u00eb k\u00ebrkojn\u00eb informacion nga organizata nd\u00ebrkomb\u00ebtare, rrjete mb\u00ebshtet\u00ebse, media sociale ose nga prind\u00ebr t\u00eb tjer\u00eb q\u00eb kan\u00eb kaluar t\u00eb nj\u00ebjt\u00ebn p\u00ebrvoj\u00eb. N\u00eb shum\u00eb raste, vet\u00eb familjet jan\u00eb shnd\u00ebrruar n\u00eb burimin kryesor t\u00eb informacionit dhe orientimit p\u00ebr pacient\u00ebt e sapodiagnostikuar, duke z\u00ebvend\u00ebsuar rolin q\u00eb duhet t\u00eb luajn\u00eb institucionet sh\u00ebndet\u00ebsore.\r\n\r\nNj\u00eb nga shqet\u00ebsimet m\u00eb serioze t\u00eb ngritura gjat\u00eb fokus-grupit lidhet me faktin se trajtimi i fibroz\u00ebs cistike n\u00eb Shqip\u00ebri vazhdon t\u00eb mb\u00ebshtetet n\u00eb nj\u00eb protokoll klinik t\u00eb miratuar n\u00eb vitin 2008, i cili nuk reflekton zhvillimet e fundit shkencore dhe standardet bashk\u00ebkohore t\u00eb trajtimit t\u00eb k\u00ebsaj patologjie. Sipas pjes\u00ebmarr\u00ebsve, protokolli p\u00ebrfshin medikamente q\u00eb nuk jan\u00eb m\u00eb t\u00eb disponueshme n\u00eb treg ose nuk p\u00ebrfaq\u00ebsojn\u00eb m\u00eb terapit\u00eb e rekomanduara sipas praktikave nd\u00ebrkomb\u00ebtare.\r\n\r\nMungesa e p\u00ebrdit\u00ebsimit t\u00eb protokollit ndikon drejtp\u00ebrdrejt edhe n\u00eb skem\u00ebn e rimbursimit t\u00eb barnave. Nj\u00eb pjes\u00eb e konsiderueshme e medikamenteve dhe produkteve t\u00eb nevojshme p\u00ebr menaxhimin e p\u00ebrditsh\u00ebm t\u00eb s\u00ebmundjes nuk mbulohen nga sistemi publik, duke detyruar familjet t'i sigurojn\u00eb ato me shpenzimet e tyre ose t'i blejn\u00eb jasht\u00eb Shqip\u00ebris\u00eb. P\u00ebr shum\u00eb familje, kjo p\u00ebrkthehet n\u00eb nj\u00eb barr\u00eb t\u00eb r\u00ebnd\u00eb financiare, nd\u00ebrkoh\u00eb q\u00eb nd\u00ebrprerja ose mungesa e trajtimit mund t\u00eb p\u00ebrshpejtoj\u00eb p\u00ebrkeq\u00ebsimin e gjendjes sh\u00ebndet\u00ebsore dhe t\u00eb rrezikoj\u00eb jet\u00ebgjat\u00ebsin\u00eb e pacient\u00ebve.\r\n\r\nNj\u00eb tjet\u00ebr problem strukturor lidhet me munges\u00ebn e vazhdim\u00ebsis\u00eb s\u00eb kujdesit pas mosh\u00ebs pediatrike. Sipas d\u00ebshmive t\u00eb prind\u00ebrve, pas mosh\u00ebs 16-vje\u00e7are pacient\u00ebt p\u00ebrballen me munges\u00ebn e sh\u00ebrbimeve t\u00eb specializuara dhe t\u00eb mjek\u00ebve t\u00eb trajnuar p\u00ebr trajtimin e fibroz\u00ebs cistike tek t\u00eb rriturit. Ky boshll\u00ebk n\u00eb sistem krijon nd\u00ebrprerje n\u00eb ndjekjen mjek\u00ebsore, cenon vazhdim\u00ebsin\u00eb e trajtimit dhe rrit rrezikun e komplikacioneve afatgjata.\r\n\r\nN\u00eb thelb, problemi nuk q\u00ebndron vet\u00ebm te mungesa e medikamenteve apo e protokolleve t\u00eb p\u00ebrdit\u00ebsuara, por te fakti se sistemi sh\u00ebndet\u00ebsor ende nuk e njeh fibroz\u00ebn cistike si nj\u00eb s\u00ebmundje komplekse q\u00eb k\u00ebrkon nj\u00eb qasje multidisiplinare dhe t\u00eb koordinuar. P\u00ebr sa koh\u00eb mungojn\u00eb protokollet e p\u00ebrdit\u00ebsuara sipas evidencave shkencore, rimbursimi i plot\u00eb i terapive t\u00eb domosdoshme, ekipet multidisiplinare dhe sh\u00ebrbimet e specializuara p\u00ebrgjat\u00eb gjith\u00eb ciklit t\u00eb jet\u00ebs s\u00eb pacientit, edhe zbatimi i modelit bio-psiko-social t\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar mbetet i pamjaftuesh\u00ebm p\u00ebr t'iu p\u00ebrgjigjur nevojave reale t\u00eb k\u00ebsaj kategorie.\r\n\r\nP\u00ebrmir\u00ebsimi i situat\u00ebs k\u00ebrkon nj\u00eb qasje t\u00eb integruar t\u00eb politikave publike. Kjo n\u00ebnkupton njohjen e fibroz\u00ebs cistike si nj\u00eb patologji komplekse dhe multisistemike, p\u00ebrdit\u00ebsimin e protokolleve komb\u00ebtare t\u00eb trajtimit n\u00eb p\u00ebrputhje me standardet nd\u00ebrkomb\u00ebtare, zgjerimin e list\u00ebs s\u00eb barnave t\u00eb rimbursueshme, krijimin e ekipeve multidisiplinare t\u00eb specializuara, garantimin e tranzicionit t\u00eb sigurt nga sh\u00ebrbimet pediatrike n\u00eb ato p\u00ebr t\u00eb rriturit, si dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb reflekton kufizimet funksionale dhe nevojat reale t\u00eb pacient\u00ebve, e jo vet\u00ebm diagnoz\u00ebn klinike.\r\n\r\n\r\n\r\n\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.<\/div><\/article>Rasti i pacientit n\u00eb Durr\u00ebs: Nj\u00eb alarm p\u00ebr aksesin e barabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit<\/h2><\/div><\/div>Ka ngjarje q\u00eb n\u00eb rrjetet sociale zgjasin vet\u00ebm pak minuta dhe pastaj harrohen si t\u00eb mos kishin ndodhur kurr\u00eb. Por ka edhe t\u00eb tilla q\u00eb kan\u00eb jehon\u00eb t\u00eb gjat\u00eb dhe marrin edhe reagimin e institucioneve. Rasti i pacientit 52-vje\u00e7ar n\u00eb Durr\u00ebs \u00ebsht\u00eb nj\u00ebri prej tyre.\r\n\r\nPamjet e nj\u00eb burri t\u00eb s\u00ebmur\u00eb, q\u00eb sipas informacioneve t\u00eb para ishte transportuar me ambulanc\u00eb nga Spitali i Durr\u00ebsit p\u00ebr t\u2019u braktisur n\u00eb \u2018rrug\u00eb\u2019, trondit\u00ebn opinionin publik. Reagime t\u00eb shumta pasuan, versione kontradiktore dhe deklarata institucionale. Fillimisht u raportua se pacienti kishte nd\u00ebrruar jet\u00eb, por m\u00eb pas Spitali Rajonal i Durr\u00ebsit sqaroi se ai ishte gjall\u00eb dhe ndodhej s\u00ebrish n\u00ebn kujdes mjek\u00ebsor, nd\u00ebrsa dy dit\u00eb pas ngjarjes Ministria e Sh\u00ebndet\u00ebsis\u00eb urdh\u00ebroi nisjen e nj\u00eb hetimi administrativ.\r\n\r\nMegjithat\u00eb, edhe pas reagimeve zyrtare, ende shum\u00eb pyetje mbeten ende pa p\u00ebrgjigje.\r\n\r\nN\u00ebse pacienti ishte n\u00eb gjendje t\u00eb stabilizuar dhe trajtimi spitalor kishte p\u00ebrfunduar, si ka mund\u00ebsi q\u00eb vet\u00ebm pak or\u00eb m\u00eb von\u00eb ai u rikthye n\u00eb spital dhe iu n\u00ebnshtrua menj\u00ebher\u00eb nj\u00eb nd\u00ebrhyrjeje tjet\u00ebr kirurgjikale, e cila p\u00ebrfundoi me amputimin e nj\u00ebr\u00ebs k\u00ebmb\u00eb? N\u00ebse, p\u00ebrkundrazi, gjendja e tij k\u00ebrkonte ende monitorim dhe nd\u00ebrhyrje, p\u00ebrse u largua nga spitali?\r\n\r\nK\u00ebto jan\u00eb pyetje q\u00eb lidhen drejtp\u00ebrdrejt me standardet e kujdesit sh\u00ebndet\u00ebsor publik n\u00eb Shqip\u00ebri.\r\n\r\nPo aq e r\u00ebnd\u00ebsishme \u00ebsht\u00eb q\u00eb institucionet t\u00eb sqarojn\u00eb se si ka funksionuar zinxhiri i vendimmarrjes n\u00eb k\u00ebt\u00eb rast. Kush e mori vendimin p\u00ebr daljen nga spitali t\u00eb pacientit t\u00eb s\u00ebmur\u00eb? Cilat ishin kriteret mjek\u00ebsore q\u00eb u ndoq\u00ebn nga vemdimarr\u00ebsit p\u00ebr rastin? A pat\u00ebn dhe a duhet t\u00eb kishin rol sh\u00ebrbimet sociale n\u00eb nj\u00eb koh\u00eb q\u00eb prej vitesh po trumbetohet nga institucionet ngritja e sh\u00ebrbimeve multidisiplinare, ku p\u00ebrfshihen sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe sociale? Dhe, a ekziston dokumentacioni q\u00eb provon se pacienti iu dor\u00ebzua v\u00ebrtet\u00eb nj\u00eb familjari, si\u00e7 deklaron spitali?\r\n\r\nNga ana tjet\u00ebr, edhe deklarata e Spitalit Rajonal t\u00eb Durr\u00ebsit ngre t\u00eb tjera pyetje. Institucioni pohon se pacienti nuk kishte vend ku t\u00eb q\u00ebndronte, se u njoftuan sh\u00ebrbimet sociale dhe Policia e Shtetit dhe se nj\u00eb familjar pranoi ta merrte n\u00eb banes\u00eb. Megjithat\u00eb, deri m\u00eb sot nuk \u00ebsht\u00eb ofruar asnj\u00eb informacion q\u00eb t\u00eb sqaroj\u00eb se kush ishte familjari (sigurisht jo t\u00eb dh\u00ebnat personale t\u00eb tij), ku ndodhej banesa apo n\u00ebse pacienti q\u00ebndroi realisht aty. P\u00ebrkundrazi, persona q\u00eb deklarojn\u00eb se e njihnin pacientin kan\u00eb pohuar publikisht se ai nuk kishte asnj\u00eb familjar q\u00eb t\u00eb kujdesej p\u00ebr t\u00eb dhe as nj\u00eb banes\u00eb ku t\u00eb strehohej. Ndaj, n\u00eb k\u00ebt\u00eb rast hetimi nuk mund t\u00eb kufizohet vet\u00ebm tek ndjekja e procedurave dhe protokolleve mjek\u00ebsore. Hetimit duhet t\u2019i n\u00ebnshtrohen t\u00eb gjitha hallkat e mekanizmave mbrojt\u00ebs, p\u00ebrfshi ato sociale.\r\n\r\nRasti i pacientit nga Durr\u00ebsi rikthen n\u00eb v\u00ebmendje nj\u00eb problem q\u00eb Together for Life e ka ngritur prej vitesh: qasjen e pabarabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore p\u00ebr pacient\u00ebt m\u00eb vulnerab\u00ebl. N\u00ebse do t\u2019i referohemi dokumentave strategjike, legjislacionit dhe deklaratave publike t\u00eb drejtuesve t\u00eb sh\u00ebndet\u00ebsis\u00eb sistemi publik garanton kujdes sh\u00ebndet\u00ebsor t\u00eb barabart\u00eb dhe t\u00eb aksesuesh\u00ebm p\u00ebr t\u00eb gjith\u00eb. Megjithat\u00eb, n\u00eb shum\u00eb raste, p\u00ebrfshi edhe k\u00ebt\u00eb t\u00eb fundit, pacient\u00ebt q\u00eb klasifikohet tek grupet me t\u00eb c\u00ebnueshme si ata nga familje t\u00eb varfra, t\u00eb braktisurit, personat me probleme t\u00eb sh\u00ebndetit mendor apo q\u00eb jetojn\u00eb n\u00eb kushte t\u00eb r\u00ebnda social-ekonomike p\u00ebrballen shpesh me barriera t\u00eb m\u00ebdha q\u00eb ua b\u00ebjn\u00eb t\u00eb v\u00ebshtir\u00eb, madje t\u00eb pamundur marrjen e trajtimit sh\u00ebndet\u00ebsor p\u00ebr t\u00eb cilin kan\u00eb nevoj\u00eb.\r\n\r\nN\u00ebse statusi social i nj\u00eb pacienti ndikon n\u00eb m\u00ebnyr\u00ebn se si ai trajtohet nga institucionet, at\u00ebher\u00eb nuk kemi t\u00eb b\u00ebjm\u00eb vet\u00ebm me nj\u00eb problem administrativ. Kemi t\u00eb b\u00ebjm\u00eb me c\u00ebnimin e parimit t\u00eb barazis\u00eb n\u00eb aksesin ndaj sh\u00ebrbimeve publike.\r\n\r\nFakti q\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb ka urdh\u00ebruar nj\u00eb hetim administrativ dhe se Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi ka nisur nj\u00eb procedur\u00eb hetimore kryesisht, \u00ebsht\u00eb p\u00ebr t\u2019u vler\u00ebsuar, por ende jo i mjaftuesh\u00ebm. P\u00ebrtej hetimit administrativ t\u00eb nisur nga dy institucionet e m\u00ebsip\u00ebrme, ky rast ngre edhe nj\u00eb tjet\u00ebr \u00e7\u00ebshtje me r\u00ebnd\u00ebsi publike: mbrojtjen e t\u00eb dh\u00ebnave personale t\u00eb pacientit. Publikimi nga institucioni spitalor i identitetit, diagnoz\u00ebs, historis\u00eb klinike dhe informacioneve tep\u00ebr sensitive, si statusi HIV dhe p\u00ebrdorimi i substancave narkotike, shtrojn\u00eb pyetjen n\u00ebse jan\u00eb respektuar detyrimet ligjore p\u00ebr konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore. Edhe n\u00ebse synimi ishte mbrojtja e institucionit nga akuzat publike, kjo nuk mund t\u00eb justifikoj\u00eb ekspozimin e t\u00eb dh\u00ebnave q\u00eb mbrohen nga legjislacioni shqiptar, Konventa Evropiane p\u00ebr t\u00eb Drejtat e Njeriut, Rregullorja Evropiane p\u00ebr Mbrojtjen e t\u00eb Dh\u00ebnave (GDPR) dhe parimet universale t\u00eb etik\u00ebs mjek\u00ebsore. Konfidencialiteti nuk \u00ebsht\u00eb nj\u00eb formalitet administrativ, \u00ebsht\u00eb element shum\u00eb i r\u00ebnd\u00ebsish\u00ebm p\u00ebr t\u00eb garantuar dinjitetin e pacientit.\r\n\r\nNdaj kjo ngjarje nuk duhet t\u00eb reduktohet vet\u00ebm n\u00eb debatin n\u00ebse pacienti u \"braktis\" apo jo. Kjo \u00ebsht\u00eb vet\u00ebm nj\u00eb pjes\u00eb e historis\u00eb. Pyetja m\u00eb e r\u00ebnd\u00ebsishme n\u00eb k\u00ebt\u00eb rast \u00ebsht\u00eb n\u00ebse sistemi funksionoi ashtu si\u00e7 duhet p\u00ebr nj\u00eb qytetar n\u00eb nevoj\u00eb. N\u00ebse u respektuan standardet profesionale. N\u00ebse institucionet bashk\u00ebpunuan si\u00e7 duhet. N\u00ebse t\u00eb drejtat e pacientit u mbrojt\u00ebn. Dhe n\u00ebse, p\u00ebrtej p\u00ebrgjegj\u00ebsive individuale, ky rast nxjerr n\u00eb pah mang\u00ebsi strukturore q\u00eb k\u00ebrkojn\u00eb reagim t\u00eb menj\u00ebher\u00ebsh.\r\n\r\nSepse nj\u00eb sistem sh\u00ebndet\u00ebsor nuk matet vet\u00ebm me buxhetin e alokuar nga fondet publike, q\u00eb p\u00ebr hir t\u00eb s\u00eb v\u00ebrtet\u00ebs vazhdojn\u00eb t\u00eb jen\u00eb m\u00eb t\u00eb ultat n\u00eb Rajon, por, mbi t\u00eb gjitha, matet me m\u00ebnyr\u00ebn si i trajton pacient\u00ebt, ve\u00e7an\u00ebrisht m\u00eb t\u00eb pambrojturit dhe t\u00eb rrezikuarit.\r\n\r\n \r\n\r\nREAGIMET E INSTITUCIONEVE \r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebq\u00ebnies Sociale - Lidhur me trajtimin e rastit t\u00eb pacientit 52-vje\u00e7ar A.A., nga qyteti i Durr\u00ebsit, Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale ka urdh\u00ebruar nisjen e nj\u00eb hetimi t\u00eb thelluar administrativ, i cili do t\u00eb shqyrtoj\u00eb n\u00eb m\u00ebnyr\u00eb t\u00eb plot\u00eb jo vet\u00ebm procedurat dhe masat e marra nga struktura spitalore, por edhe veprimet dhe p\u00ebrgjegj\u00ebsit\u00eb e strukturave t\u00eb sh\u00ebrbimit social t\u00eb p\u00ebrfshira n\u00eb k\u00ebt\u00eb rast.\r\n\r\nN\u00eb kuad\u00ebr t\u00eb k\u00ebtij procesi, drejtuesit e Operatorit t\u00eb Sh\u00ebrbimeve t\u00eb Kujdesit Sh\u00ebndet\u00ebsor dhe t\u00eb Sh\u00ebrbimit Social Shtet\u00ebror jan\u00eb n\u00eb terren p\u00ebr t\u00eb kryer verifikime t\u00eb drejtp\u00ebrdrejta dhe p\u00ebr t\u00eb mbik\u00ebqyrur procesin e hetimit administrativ t\u00eb strukturave n\u00eb qytetin e Durr\u00ebsit.\r\n\r\nNd\u00ebrkoh\u00eb, pacienti ndodhet n\u00ebn kujdesin e strukturave sh\u00ebndet\u00ebsore n\u00eb spitalin rajonal t\u00eb Durr\u00ebsit.\r\n\r\nGjithashtu, po verifikohet i gjith\u00eb dokumentacioni sh\u00ebndet\u00ebsor dhe administrativ, si edhe p\u00ebrgjegj\u00ebsia e personave t\u00eb p\u00ebrfshir\u00eb n\u00eb menaxhimin dhe transportimin e pacientit.\r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale mbetet e angazhuar p\u00ebr t\u00eb garantuar transparenc\u00eb t\u00eb plot\u00eb, zbardhjen e t\u00eb gjitha rrethanave t\u00eb k\u00ebtij rasti dhe marrjen e \u00e7do mase administrative apo ligjore q\u00eb do t\u00eb rezultoj\u00eb e nevojshme.\r\n\r\n\u00a0\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi - Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin kryesisht p\u00ebr rastin e b\u00ebr\u00eb publik n\u00eb Spitalin Rajonal t\u00eb Durr\u00ebsit\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin \u201cex-officio\u201d t\u00eb \u00e7\u00ebshtjes n\u00eb lidhje me trajtimin dhe ofrimin e sh\u00ebrbimeve t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe shoq\u00ebror ndaj shtetasit t\u00eb identifikuar si A.A, 52 vje\u00e7, nga qyteti i Durr\u00ebsit.\r\n\r\nPas informacioneve t\u00eb b\u00ebra publike n\u00eb media, Komisioneri ka vendosur fillimin e procedur\u00ebs administrative kryesisht, n\u00eb zbatim t\u00eb Ligjit nr. 10221, dat\u00eb 04.02.2010, \u201cP\u00ebr Mbrojtjen nga Diskriminimi\u201d si dhe dispozitat e Kodit t\u00eb Procedurave Administrative, p\u00ebr t\u00eb verifikuar n\u00ebse n\u00eb rastin konkret jan\u00eb respektuar parimet e trajtimit t\u00eb barabart\u00eb dhe mosdiskriminimit n\u00eb ofrimin e sh\u00ebrbimeve sh\u00ebndet\u00ebsore dhe shoq\u00ebrore.\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi mbetet i angazhuar n\u00eb garantimin e s\u00eb drejt\u00ebs s\u00eb \u00e7do individi p\u00ebr trajtim t\u00eb barabart\u00eb dhe akses pa diskriminim n\u00eb sh\u00ebrbimet publike dhe private, duke nd\u00ebrhyr\u00eb n\u00eb \u00e7do rast kur ka indicie se k\u00ebto t\u00eb drejta mund t\u00eb jen\u00eb c\u00ebnuar.\r\n\r\n \r\n\r\nSpitali Rajonal i Durr\u00ebsit - N\u00eb lidhje me lajmin e publikuar n\u00eb media, sipas t\u00eb cilit nj\u00eb pacient i trajtuar m\u00eb par\u00eb n\u00eb Spitalin Rajonal Durr\u00ebs ka nd\u00ebrruar jet\u00eb, sqarojm\u00eb se ky informacion nuk \u00ebsht\u00eb i v\u00ebrtet\u00eb.\r\n\r\nPacienti \u00ebsht\u00eb paraqitur s\u00ebrish dit\u00ebn e djeshme n\u00eb Sh\u00ebrbimin e Urgjenc\u00ebs t\u00eb Spitalit Rajonal Durr\u00ebs, ku vijon t\u00eb q\u00ebndroj\u00eb n\u00ebn kujdesin dhe vler\u00ebsimin e personelit mjek\u00ebsor.\r\n\r\nP\u00ebr informimin e plot\u00eb t\u00eb opinionit publik b\u00ebjm\u00eb me dije se pacienti ishte trajtuar m\u00eb par\u00eb n\u00eb QSUT, ku i ishte kryer nj\u00eb nd\u00ebrhyrje nga mjek\u00ebt kirurg\u00eb vaskular\u00eb n\u00eb en\u00ebt e gjakut t\u00eb k\u00ebmb\u00ebs s\u00eb majt\u00eb. Pas komunikimit nd\u00ebrmjet mjek\u00ebve, ai u shtrua n\u00eb Spitalin Rajonal Durr\u00ebs, ku q\u00ebndroi dhe u trajtua p\u00ebr disa jav\u00eb, duke marr\u00eb kujdesin e nevojsh\u00ebm mjek\u00ebsor n\u00eb p\u00ebrputhje me gjendjen e tij sh\u00ebndet\u00ebsore.\r\n\r\nPas stabilizimit t\u00eb parametrave klinik\u00eb dhe p\u00ebrfundimit t\u00eb trajtimit spitalor, pacientit iu p\u00ebrgatit epikriza dhe iu komunikua dalja nga spitali. Duke qen\u00eb se ai deklaroi se nuk kishte nj\u00eb vend ku t\u00eb q\u00ebndronte, strukturat e spitalit njoftuan sh\u00ebrbimin social dhe organet e Policis\u00eb s\u00eb Shtetit, me q\u00ebllim gjetjen e nj\u00eb zgjidhjeje t\u00eb sigurt sociale dhe familjare.\r\n\r\nPas komunikimeve t\u00eb kryera nga strukturat p\u00ebrkat\u00ebse, nj\u00eb familjar deklaroi se do ta merrte pran\u00eb banes\u00ebs s\u00eb tij. Pacienti u transportua me autoambulanc\u00eb deri n\u00eb destinacion, i shoq\u00ebruar nga punonj\u00ebs t\u00eb Policis\u00eb s\u00eb Shtetit, dhe iu dor\u00ebzua familjarit.\r\n\r\nP\u00ebr rrjedhoj\u00eb, sqarojm\u00eb se pacienti nuk \u00ebsht\u00eb nxjerr\u00eb apo braktisur n\u00eb rrug\u00eb nga Spitali Rajonal Durr\u00ebs, si\u00e7 pretendohet n\u00eb publikim. Dalja e tij nga spitali \u00ebsht\u00eb kryer pas p\u00ebrfundimit t\u00eb trajtimit, me dokumentacionin p\u00ebrkat\u00ebs mjek\u00ebsor dhe pas koordinimit me strukturat sociale, policore dhe familjare.\r\n\r\nSpitali Rajonal Durr\u00ebs u b\u00ebn thirrje mediave q\u00eb, ve\u00e7an\u00ebrisht n\u00eb raste kaq t\u00eb ndjeshme, informacioni t\u00eb verifikohet pran\u00eb institucioneve p\u00ebrkat\u00ebse p\u00ebrpara publikimit.\r\n\r\nInstitucioni yn\u00eb mbetet i angazhuar p\u00ebr ofrimin e kujdesit sh\u00ebndet\u00ebsor dhe p\u00ebr bashk\u00ebpunimin me \u00e7do autoritet kompetent, duke respektuar konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit.<\/div><\/article>TFL, fokus grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje<\/h2><\/div><\/div>Together for Life\u00a0zhvilloi nj\u00eb fokus-grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje, p\u00ebr t\u00eb\u00a0diskutuar ndikimin q\u00eb\u00a0ka pasur zbatimi\u00a0i skem\u00ebs s\u00eb\u00a0re t\u00eb vler\u00ebsimit\u00a0t\u00eb aft\u00ebsis\u00eb s\u00eb\u00a0kufizuar, bazuar n\u00eb\u00a0modelin\u00a0bio-psiko-social, si dhe sfidat\u00a0q\u00eb ata vazhdojn\u00eb\u00a0t\u00eb p\u00ebrballen \u00e7do\u00a0dit\u00eb.\r\n\r\nGjat\u00eb diskutimit u ngrit\u00ebn shqet\u00ebsime serioze mbi:\r\n\u2022 v\u00ebshtir\u00ebsit\u00eb n\u00eb procesin\u00a0e vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe munges\u00ebn e\u00a0njohjes s\u00eb plot\u00eb\u00a0t\u00eb k\u00ebsaj patologjie\u00a0nga komisionet e\u00a0vler\u00ebsimit;\r\n\u2022 munges\u00ebn e mb\u00ebshtetjes\u00a0psikologjike p\u00ebr pacient\u00ebt\u00a0dhe familjet q\u00eb\u00a0nga momenti i\u00a0diagnostikimit;\r\n\u2022 aksesin e kufizuar n\u00eb trajtime\u00a0dhe medikamente t\u00eb\u00a0domosdoshme, shum\u00eb prej\u00a0t\u00eb cilave mbeten\u00a0t\u00eb pap\u00ebrballueshme financiarisht;\r\n\u2022 munges\u00ebn e nj\u00eb\u00a0qasjeje t\u00eb integruar\u00a0p\u00ebr mbulimin e\u00a0nevojave sh\u00ebndet\u00ebsore,\u00a0sociale dhe t\u00eb\u00a0pun\u00ebsimit;\r\n\u2022 nevoj\u00ebn p\u00ebr politika\u00a0publike q\u00eb njohin\u00a0fibroz\u00ebn\u00a0cistike si nj\u00eb\u00a0s\u00ebmundje komplekse, q\u00eb\u00a0k\u00ebrkon trajtim multidisiplinar\u00a0dhe mb\u00ebshtetje t\u00eb\u00a0vazhdueshme.\r\n\r\nKy fokus-grup\u00a0\u00ebsht\u00eb pjes\u00eb\u00a0e monitorimit t\u00eb\u00a0efekteve t\u00eb reform\u00ebs\u00a0s\u00eb vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe synon t\u00eb\u00a0siguroj\u00eb q\u00eb z\u00ebri\u00a0dhe p\u00ebrvoja e\u00a0personave t\u00eb\u00a0prekur t\u00eb reflektohen\u00a0n\u00eb p\u00ebrmir\u00ebsimin e\u00a0politikave publike.\r\nAskush nuk duhet\u00a0t\u00eb mbetet pa\u00a0mb\u00ebshtetje p\u00ebr shkak\u00a0t\u00eb nj\u00eb sistemi\u00a0q\u00eb nuk arrin\u00a0t\u00eb kuptoj\u00eb kompleksitetin\u00a0e nevojave t\u00eb\u00a0tij.\r\n\r\n***\r\nTogether for Life organized a focus group with people living with cystic fibrosis and parents of children affected by the condition to discuss the impact of the implementation of the new disability assessment scheme based on the bio-psycho-social model, as well as the challenges they continue to face in accessing healthcare, social protection, and employment opportunities.\r\n\r\nParticipants highlighted several critical concerns, including:\r\n\u2022 challenges in the disability assessment process and the limited recognition of cystic fibrosis by assessment commissions;\r\n\u2022 the lack of psychological support for patients and their families from the moment of diagnosis;\r\n\u2022 limited access to essential medicines and treatment, many of which remain financially out of reach;\r\n\u2022 the absence of an integrated approach to addressing healthcare, social, and employment needs;\r\n\u2022 the urgent need for public policies that recognize cystic fibrosis as a complex condition requiring multidisciplinary care and long-term support.\r\n\r\nThis focus group forms part of the broader monitoring of the effects of Albania's disability assessment reform and aims to ensure that the experiences and voices of people living with cystic fibrosis are reflected in future policy improvements.<\/div><\/article>Trajnim me gazetar\u00eb\/ Raportimi etik i Dhun\u00ebs me Baz\u00eb Gjinore: Roli i Medias n\u00eb Nd\u00ebrgjegj\u00ebsimin Publik dhe Promovimin e Barazis\u00eb Gjinore<\/h2><\/div><\/div>\ud835\udc0a\ud835\udc2e\ud835\udc2b \ud835\udc20\ud835\udc1a\ud835\udc33\ud835\udc1e\ud835\udc2d\ud835\udc1a\ud835\udc2b\ud835\udc22 \ud835\udc2b\ud835\udc1a\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc28\ud835\udc27 \ud835\udc29\u00eb\ud835\udc2b \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc26\ud835\udc1e \ud835\udc1b\ud835\udc1a\ud835\udc33\u00eb \ud835\udc20\ud835\udc23\ud835\udc22\ud835\udc27\ud835\udc28\ud835\udc2b\ud835\udc1e \ud835\udc1a\ud835\udc29\ud835\udc28 \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc27\u00eb \ud835\udc1f\ud835\udc1a\ud835\udc26\ud835\udc22\ud835\udc25\ud835\udc23\ud835\udc1e, \ud835\udc27\ud835\udc2e\ud835\udc24 \ud835\udc29\ud835\udc28 \ud835\udc2d\ud835\udc2b\ud835\udc1e\ud835\udc20\ud835\udc28\ud835\udc27 \ud835\udc2d\ud835\udc21\ud835\udc23\ud835\udc1e\ud835\udc2c\ud835\udc21\ud835\udc2d \ud835\udc27\ud835\udc23\u00eb \ud835\udc21\ud835\udc22\ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc22. \ud835\udc0f\ud835\udc28 \ud835\udc27\ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc28\ud835\udc27 \ud835\udc27\u00eb \ud835\udc23\ud835\udc1e\ud835\udc2d\u00eb\ud835\udc27 \ud835\udc1e \ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc2e\ud835\udc23\ud835\udc2d.\n\n\n\nGjat\u00eb muajve qershor dhe korrik, gazetar\u00eb nga media t\u00eb ndryshme u b\u00ebn\u00eb pjes\u00eb e nj\u00eb serie trajnimesh kushtuar raportimit etik dhe profesional t\u00eb rasteve t\u00eb dhun\u00ebs me baz\u00eb gjinore dhe dhun\u00ebs n\u00eb familje, t\u00eb organizuara nga Together for Life, n\u00eb kuad\u00ebr t\u00eb \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc24\ud835\udc2d\ud835\udc22\ud835\udc2d \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 \u2013 \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a, i cili zbatohet nga nj\u00eb konsorcium organizatash dhe financohet nga Bashkimi Evropian.\n\n\n\n\nP\u00ebrmes analiz\u00ebs s\u00eb rasteve reale q\u00eb kan\u00eb tronditur opinionin publik pjes\u00ebmarr\u00ebsit diskutuan jo vet\u00ebm \u00e7far\u00eb raportohet, por mbi t\u00eb gjitha si raportohet.\n\n\n\nSepse gazetaria ka fuqin\u00eb:\nt\u00eb informoj\u00eb pa d\u00ebmtuar ask\u00ebnd;\n\u00a0t\u00eb mbroj\u00eb dinjitetin dhe privat\u00ebsin\u00eb e t\u00eb mbijetuarve;\n\u00a0t\u00eb edukoj\u00eb publikun;\nt\u00eb k\u00ebrkoj\u00eb llogari nga institucionet p\u00ebrgjegj\u00ebse \u2013 p\u00ebrfshir\u00eb sistemin sh\u00ebndet\u00ebsor, policin\u00eb, prokurorin\u00eb dhe sh\u00ebrbimet sociale \u2013 p\u00ebr m\u00ebnyr\u00ebn se si identifikojn\u00eb, raportojn\u00eb dhe menaxhojn\u00eb rastet e dhun\u00ebs.\n\n\nNj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e diskutimeve mes kolegeve gazetare iu kushtua sfid\u00ebs s\u00eb medias p\u00ebr t\u00eb mos r\u00ebn\u00eb pre e gar\u00ebs p\u00ebr klikime, duke shmangur gjuh\u00ebn q\u00eb romantizon dhun\u00ebn, faj\u00ebson viktim\u00ebn, cenon privat\u00ebsin\u00eb ose riviktimizon t\u00eb mbijetuarit.\n\n\n\nP\u00ebrmes metodave interaktive, si Mentimeter, gazetar\u00ebt testuan njohurit\u00eb e tyre, sfiduan perceptimet dhe reflektuan mbi p\u00ebrgjegj\u00ebsin\u00eb q\u00eb mbart \u00e7do lajm i publikuar. Sepse nj\u00eb raportim i mir\u00eb nuk matet vet\u00ebm me numrin e klikimeve.\n\n\n\n\nAi matet me ndikimin q\u00eb l\u00eb tek njer\u00ebzit, me besimin q\u00eb nd\u00ebrton dhe me kontributin q\u00eb jep p\u00ebr nj\u00eb shoq\u00ebri q\u00eb nuk e normalizon dhun\u00ebn, por e denon at\u00eb.\n\n\nKy publikim u realizua n\u00eb kuad\u00ebr t\u00eb iniciativ\u00ebs \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, t\u00eb zbatuar nga Gender Alliance for Development Centre (GADC), Together for Life dhe Institute of Romani Culture in Albania (IRCA), mb\u00ebshtetur financiarisht nga Bashkimi Evropian. P\u00ebrmbajtja e k\u00ebtij dokumenti \u00ebsht\u00eb p\u00ebrgjegj\u00ebsi e vetme e Together for Life dhe n\u00eb asnj\u00eb rrethan\u00eb nuk mund t\u00eb konsiderohet se pasqyron pozicionin e Bashkimit Evropian.\n\n\n\n***\n\n\n\n\ud835\udc16\ud835\udc21\ud835\udc1e\ud835\udc27 \ud835\udc1a \ud835\udc23\ud835\udc28\ud835\udc2e\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2c\ud835\udc2d \ud835\udc2b\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc2c \ud835\udc28\ud835\udc27 \ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b-\ud835\udc1b\ud835\udc1a\ud835\udc2c\ud835\udc1e\ud835\udc1d \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e \ud835\udc28\ud835\udc2b \ud835\udc1d\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc2c\ud835\udc2d\ud835\udc22\ud835\udc1c \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc27\ud835\udc28\ud835\udc2d \ud835\udc2c\ud835\udc22\ud835\udc26\ud835\udc29\ud835\udc25\ud835\udc32 \ud835\udc2d\ud835\udc1e\ud835\udc25\ud835\udc25\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc1a \ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc32, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc22\ud835\udc27\ud835\udc1f\ud835\udc25\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc2c\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc28\ud835\udc27\ud835\udc1e'\ud835\udc2c \ud835\udc25\ud835\udc22\ud835\udc1f\ud835\udc1e.\n\n\n\nDuring June and July, journalists from various media outlets participated in a series of training sessions on the ethical and professional reporting of gender-based violence and domestic violence cases.\n\n\nThe trainings were organized by Together for Life as part of the \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 - \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc1c\ud835\udc2d, implemented by GADC, TFL and IRCA organizations and funded by the European Union.\n\n\n\nThrough the analysis of real-life cases that have shocked public opinion, participants explored not only what is reported, but, more importantly, how it is reported.\n\n\nBecause journalism has the power to:\n\u00a0inform without causing harm;\nprotect the dignity and privacy of survivors;\neducate the public;\nhold responsible institutions, including the healthcare system, the police, the prosecution, and social services, accountable for how they identify, report, and respond to cases of violence.\n\n\nAn important part of the discussions among the participating journalists focused on the media's responsibility to resist the race for clicks by avoiding language that romanticizes violence, blames victims, violates their privacy, or re-traumatizes survivors.\n\n\n\n\n\u00a0Through interactive methods such as Mentimeter, journalists tested their knowledge, challenged their assumptions, and reflected on the responsibility that comes with every story they publish.\n\n\nBecause good journalism is not measured solely by the number of clicks. It is measured by the impact it has on people's lives, the trust it builds, and the contribution it makes to a society that does not normalize violence, but exposes and condemns it.\n\n\n\nThis publication was produced as part of the initiative \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, implemented by the Gender Alliance for Development Centre (GADC), Together for Life, and the Institute of Romani Culture in Albania (IRCA), with financial support from the European Union. The contents of this video are the sole responsibility of Together for Life and can under no circumstances be regarded as reflecting the position of the European Union.<\/div><\/article><\/div>
P\u00ebr shumic\u00ebn e njer\u00ebzve, fibroza cistike mbetet nj\u00eb s\u00ebmundje pak e njohur. P\u00ebr m\u00eb shum\u00eb se 150 pacient\u00ebt dhe familjet e tyre n\u00eb Shqip\u00ebri, ajo p\u00ebrfaq\u00ebson nj\u00eb betej\u00eb t\u00eb p\u00ebrditshme q\u00eb nuk zhvillohet vet\u00ebm me s\u00ebmundjen, por edhe me vet\u00eb sistemin sh\u00ebndet\u00ebsor dhe at\u00eb t\u00eb mbrojtjes sociale.\r\n\r\nMenaxhimi i fibroz\u00ebs cistike nuk kufizohet vet\u00ebm n\u00eb marrjen e medikamenteve. Ai k\u00ebrkon nj\u00eb qasje t\u00eb integruar dhe multidisiplinare, q\u00eb p\u00ebrfshin ndjekje t\u00eb specializuar mjek\u00ebsore, fizioterapi respiratore t\u00eb p\u00ebrditshme, mb\u00ebshtetje psikologjike, akses t\u00eb vazhduesh\u00ebm n\u00eb barna specifike, sh\u00ebrbime sociale dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb pasqyron ndikimin real t\u00eb s\u00ebmundjes n\u00eb jet\u00ebn dhe funksionimin e pacientit.\r\n\r\nMegjithat\u00eb, d\u00ebshmit\u00eb e pacient\u00ebve dhe prind\u00ebrve t\u00eb tyre tregojn\u00eb se, edhe pas zbatimit t\u00eb modelit bio-psiko-social p\u00ebr vler\u00ebsimin e aft\u00ebsis\u00eb s\u00eb kufizuar, shum\u00eb prej k\u00ebtyre nevojave vazhdojn\u00eb t\u00eb mos njihen dhe t\u00eb mos adresohen n\u00eb praktik\u00eb.\r\n\r\nReforma e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, e nisur n\u00eb vitin 2019, synon t\u00eb z\u00ebvend\u00ebsoj\u00eb modelin tradicional t\u00eb bazuar vet\u00ebm n\u00eb diagnoz\u00eb me nj\u00eb qasje q\u00eb vler\u00ebson ndikimin e gjendjes sh\u00ebndet\u00ebsore n\u00eb funksionimin e p\u00ebrditsh\u00ebm t\u00eb individit. Megjithat\u00eb, gjetjet e mbledhura gjat\u00eb fokus-grupit t\u00eb zhvilluar me persona me fibroz\u00eb cistike dhe prind\u00ebr t\u00eb f\u00ebmij\u00ebve t\u00eb diagnostikuar me k\u00ebt\u00eb patologji tregojn\u00eb se ky objektiv ende nuk po realizohet plot\u00ebsisht.\r\n\r\nPjes\u00ebmarr\u00ebsit raportojn\u00eb se komisionet e vler\u00ebsimit shpesh nuk funksionojn\u00eb si ekipe t\u00eb mir\u00ebfillta multidisiplinare, kan\u00eb njohuri t\u00eb kufizuara mbi fibroz\u00ebn cistike dhe, n\u00eb disa raste, nuk shqyrtojn\u00eb dokumentacionin mjek\u00ebsor p\u00ebrpara takimit me pacientin. Si pasoj\u00eb, vler\u00ebsimi mb\u00ebshtetet m\u00eb shum\u00eb n\u00eb pamjen e jashtme t\u00eb personit sesa n\u00eb kufizimet funksionale dhe barr\u00ebn reale q\u00eb s\u00ebmundja imponon n\u00eb jet\u00ebn e p\u00ebrditshme.\r\n\r\nKy \u00ebsht\u00eb nj\u00eb paradoks q\u00eb bie ndesh me vet\u00eb filozofin\u00eb e modelit bio-psiko-social. Fibroza cistike \u00ebsht\u00eb nj\u00eb s\u00ebmundje kronike, progresive dhe multisistemike, e cila n\u00eb shum\u00eb raste nuk shfaq shenja t\u00eb dukshme fizike, por k\u00ebrkon trajtim t\u00eb p\u00ebrhersh\u00ebm, terapi t\u00eb p\u00ebrditshme dhe kujdes kompleks p\u00ebr t\u00eb parandaluar komplikacionet dhe p\u00ebr t\u00eb ruajtur cil\u00ebsin\u00eb e jet\u00ebs.\r\n\r\nKur vler\u00ebsimi i aft\u00ebsis\u00eb s\u00eb kufizuar mb\u00ebshtetet kryesisht n\u00eb at\u00eb q\u00eb \"shihet me sy\", shum\u00eb pacient\u00eb klasifikohen me nj\u00eb shkall\u00eb m\u00eb t\u00eb ul\u00ebt t\u00eb r\u00ebnd\u00ebsis\u00eb s\u00eb s\u00ebmundjes nga ajo q\u00eb reflekton realisht gjendja e tyre sh\u00ebndet\u00ebsore. Si rrjedhoj\u00eb, nj\u00eb pjes\u00eb e tyre hasin v\u00ebshtir\u00ebsi n\u00eb p\u00ebrfitimin e mb\u00ebshtetjes ekonomike ose vler\u00ebsohen n\u00eb nivele q\u00eb nuk pasqyrojn\u00eb kostot reale t\u00eb jetes\u00ebs me fibroz\u00eb cistike.\r\n\r\n\"Her\u00ebn e par\u00eb komisioni vendosi q\u00eb f\u00ebmija im nuk i plot\u00ebsonte kriteret p\u00ebr t\u00eb p\u00ebrfituar KEMP. Kam dy f\u00ebmij\u00eb me fibroz\u00eb cistike, me t\u00eb nj\u00ebjt\u00ebn diagnoz\u00eb dhe n\u00eb t\u00eb nj\u00ebjt\u00ebn gjendje sh\u00ebndet\u00ebsore, por nj\u00ebri u vler\u00ebsua me r\u00ebndes\u00eb m\u00eb t\u00eb leht\u00eb t\u00eb s\u00ebmundjes, nd\u00ebrsa tjetri me r\u00ebndes\u00eb m\u00eb t\u00eb lart\u00eb. Nuk e kuptoj mbi \u00e7far\u00eb kriteresh b\u00ebhet ky vler\u00ebsim kur b\u00ebhet fjal\u00eb p\u00ebr t\u00eb nj\u00ebjt\u00ebn patologji\", shprehet R.XH., babai i dy f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike.\r\n\r\nK\u00ebto d\u00ebshmi tregojn\u00eb se nj\u00eb nga problemet themelore mbetet mungesa e njohjes institucionale t\u00eb fibroz\u00ebs cistike si nj\u00eb s\u00ebmundje komplekse. Edhe sot ajo vazhdon t\u00eb trajtohet kryesisht n\u00eb kuad\u00ebr t\u00eb patologjive pulmonare, nd\u00ebrkoh\u00eb q\u00eb prek nj\u00ebkoh\u00ebsisht mushk\u00ebrit\u00eb, pankreasin, sistemin tret\u00ebs, m\u00ebl\u00e7in\u00eb dhe organe t\u00eb tjera, duke k\u00ebrkuar kujdes multidisiplinar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nKy klasifikim ndikon jo vet\u00ebm n\u00eb m\u00ebnyr\u00ebn e organizimit t\u00eb trajtimit mjek\u00ebsor, por edhe n\u00eb procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar.\r\n\r\n\"N\u00eb dokumentacion paraqitet si nj\u00eb s\u00ebmundje e leht\u00eb\", shprehet L.H., n\u00ebna e nj\u00eb f\u00ebmije me fibroz\u00eb cistike, duke theksuar se komisionet shpesh nuk arrijn\u00eb t\u00eb kuptojn\u00eb se b\u00ebhet fjal\u00eb p\u00ebr nj\u00eb patologji kronike, progresive dhe potencialisht k\u00ebrc\u00ebnuese p\u00ebr jet\u00ebn.\r\n\r\nMungesa e protokollit t\u00eb trajtimit shoq\u00ebrohet me munges\u00ebn e munges\u00ebn e rimbursimit t\u00eb medikamenteve t\u00eb domosdoshme p\u00ebr trajtim\r\n\r\nMungesa e protokolleve t\u00eb p\u00ebrdit\u00ebsuara t\u00eb trajtimit dhe rimbursimit t\u00eb medikamenteve r\u00ebndon barr\u00ebn e pacient\u00ebve me fibroz\u00eb cistike\r\n\r\nP\u00ebrtej sfidave q\u00eb lidhen me procesin e vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar, pacient\u00ebt me fibroz\u00eb cistike p\u00ebrballen edhe me munges\u00ebn e nj\u00eb modeli t\u00eb integruar t\u00eb kujdesit sh\u00ebndet\u00ebsor, i cili t\u00eb garantoj\u00eb trajtim t\u00eb standardizuar, vazhdim\u00ebsi t\u00eb sh\u00ebrbimeve dhe mb\u00ebshtetje t\u00eb specializuar gjat\u00eb gjith\u00eb jet\u00ebs.\r\n\r\nPrind\u00ebrit e f\u00ebmij\u00ebve t\u00eb diagnostikuar me fibroz\u00eb cistike raportojn\u00eb se q\u00eb n\u00eb momentin e diagnostikimit nuk marrin mb\u00ebshtetje psikologjike dhe as informacion t\u00eb strukturuar mbi m\u00ebnyr\u00ebn e menaxhimit t\u00eb s\u00ebmundjes apo protokollet e trajtimit. N\u00eb munges\u00eb t\u00eb nj\u00eb sistemi t\u00eb organizuar informimi dhe edukimi p\u00ebr pacient\u00ebt, familjet detyrohen t\u00eb k\u00ebrkojn\u00eb informacion nga organizata nd\u00ebrkomb\u00ebtare, rrjete mb\u00ebshtet\u00ebse, media sociale ose nga prind\u00ebr t\u00eb tjer\u00eb q\u00eb kan\u00eb kaluar t\u00eb nj\u00ebjt\u00ebn p\u00ebrvoj\u00eb. N\u00eb shum\u00eb raste, vet\u00eb familjet jan\u00eb shnd\u00ebrruar n\u00eb burimin kryesor t\u00eb informacionit dhe orientimit p\u00ebr pacient\u00ebt e sapodiagnostikuar, duke z\u00ebvend\u00ebsuar rolin q\u00eb duhet t\u00eb luajn\u00eb institucionet sh\u00ebndet\u00ebsore.\r\n\r\nNj\u00eb nga shqet\u00ebsimet m\u00eb serioze t\u00eb ngritura gjat\u00eb fokus-grupit lidhet me faktin se trajtimi i fibroz\u00ebs cistike n\u00eb Shqip\u00ebri vazhdon t\u00eb mb\u00ebshtetet n\u00eb nj\u00eb protokoll klinik t\u00eb miratuar n\u00eb vitin 2008, i cili nuk reflekton zhvillimet e fundit shkencore dhe standardet bashk\u00ebkohore t\u00eb trajtimit t\u00eb k\u00ebsaj patologjie. Sipas pjes\u00ebmarr\u00ebsve, protokolli p\u00ebrfshin medikamente q\u00eb nuk jan\u00eb m\u00eb t\u00eb disponueshme n\u00eb treg ose nuk p\u00ebrfaq\u00ebsojn\u00eb m\u00eb terapit\u00eb e rekomanduara sipas praktikave nd\u00ebrkomb\u00ebtare.\r\n\r\nMungesa e p\u00ebrdit\u00ebsimit t\u00eb protokollit ndikon drejtp\u00ebrdrejt edhe n\u00eb skem\u00ebn e rimbursimit t\u00eb barnave. Nj\u00eb pjes\u00eb e konsiderueshme e medikamenteve dhe produkteve t\u00eb nevojshme p\u00ebr menaxhimin e p\u00ebrditsh\u00ebm t\u00eb s\u00ebmundjes nuk mbulohen nga sistemi publik, duke detyruar familjet t'i sigurojn\u00eb ato me shpenzimet e tyre ose t'i blejn\u00eb jasht\u00eb Shqip\u00ebris\u00eb. P\u00ebr shum\u00eb familje, kjo p\u00ebrkthehet n\u00eb nj\u00eb barr\u00eb t\u00eb r\u00ebnd\u00eb financiare, nd\u00ebrkoh\u00eb q\u00eb nd\u00ebrprerja ose mungesa e trajtimit mund t\u00eb p\u00ebrshpejtoj\u00eb p\u00ebrkeq\u00ebsimin e gjendjes sh\u00ebndet\u00ebsore dhe t\u00eb rrezikoj\u00eb jet\u00ebgjat\u00ebsin\u00eb e pacient\u00ebve.\r\n\r\nNj\u00eb tjet\u00ebr problem strukturor lidhet me munges\u00ebn e vazhdim\u00ebsis\u00eb s\u00eb kujdesit pas mosh\u00ebs pediatrike. Sipas d\u00ebshmive t\u00eb prind\u00ebrve, pas mosh\u00ebs 16-vje\u00e7are pacient\u00ebt p\u00ebrballen me munges\u00ebn e sh\u00ebrbimeve t\u00eb specializuara dhe t\u00eb mjek\u00ebve t\u00eb trajnuar p\u00ebr trajtimin e fibroz\u00ebs cistike tek t\u00eb rriturit. Ky boshll\u00ebk n\u00eb sistem krijon nd\u00ebrprerje n\u00eb ndjekjen mjek\u00ebsore, cenon vazhdim\u00ebsin\u00eb e trajtimit dhe rrit rrezikun e komplikacioneve afatgjata.\r\n\r\nN\u00eb thelb, problemi nuk q\u00ebndron vet\u00ebm te mungesa e medikamenteve apo e protokolleve t\u00eb p\u00ebrdit\u00ebsuara, por te fakti se sistemi sh\u00ebndet\u00ebsor ende nuk e njeh fibroz\u00ebn cistike si nj\u00eb s\u00ebmundje komplekse q\u00eb k\u00ebrkon nj\u00eb qasje multidisiplinare dhe t\u00eb koordinuar. P\u00ebr sa koh\u00eb mungojn\u00eb protokollet e p\u00ebrdit\u00ebsuara sipas evidencave shkencore, rimbursimi i plot\u00eb i terapive t\u00eb domosdoshme, ekipet multidisiplinare dhe sh\u00ebrbimet e specializuara p\u00ebrgjat\u00eb gjith\u00eb ciklit t\u00eb jet\u00ebs s\u00eb pacientit, edhe zbatimi i modelit bio-psiko-social t\u00eb vler\u00ebsimit t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar mbetet i pamjaftuesh\u00ebm p\u00ebr t'iu p\u00ebrgjigjur nevojave reale t\u00eb k\u00ebsaj kategorie.\r\n\r\nP\u00ebrmir\u00ebsimi i situat\u00ebs k\u00ebrkon nj\u00eb qasje t\u00eb integruar t\u00eb politikave publike. Kjo n\u00ebnkupton njohjen e fibroz\u00ebs cistike si nj\u00eb patologji komplekse dhe multisistemike, p\u00ebrdit\u00ebsimin e protokolleve komb\u00ebtare t\u00eb trajtimit n\u00eb p\u00ebrputhje me standardet nd\u00ebrkomb\u00ebtare, zgjerimin e list\u00ebs s\u00eb barnave t\u00eb rimbursueshme, krijimin e ekipeve multidisiplinare t\u00eb specializuara, garantimin e tranzicionit t\u00eb sigurt nga sh\u00ebrbimet pediatrike n\u00eb ato p\u00ebr t\u00eb rriturit, si dhe nj\u00eb sistem vler\u00ebsimi t\u00eb aft\u00ebsis\u00eb s\u00eb kufizuar q\u00eb reflekton kufizimet funksionale dhe nevojat reale t\u00eb pacient\u00ebve, e jo vet\u00ebm diagnoz\u00ebn klinike.\r\n\r\n\r\n\r\n\r\n* Ky publikim \u00ebsht\u00eb p\u00ebrgatitur nga Together for Life n\u00eb kuad\u00ebr t\u00eb Programit t\u00eb Mb\u00ebshtetjes Themelore, i mb\u00ebshtetur financiarisht nga Ambasada Suedeze n\u00eb Tiran\u00eb . P\u00ebrgjegj\u00ebsia p\u00ebr p\u00ebrmbajtjen i takon vet\u00ebm Together for Life dhe nuk pasqyron domosdoshm\u00ebrisht pik\u00ebpamjet e Ambasad\u00ebs Suedeze n\u00eb Tiran\u00eb.<\/div><\/article>Rasti i pacientit n\u00eb Durr\u00ebs: Nj\u00eb alarm p\u00ebr aksesin e barabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit<\/h2><\/div>
Rasti i pacientit n\u00eb Durr\u00ebs: Nj\u00eb alarm p\u00ebr aksesin e barabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit<\/h2><\/div><\/div>Ka ngjarje q\u00eb n\u00eb rrjetet sociale zgjasin vet\u00ebm pak minuta dhe pastaj harrohen si t\u00eb mos kishin ndodhur kurr\u00eb. Por ka edhe t\u00eb tilla q\u00eb kan\u00eb jehon\u00eb t\u00eb gjat\u00eb dhe marrin edhe reagimin e institucioneve. Rasti i pacientit 52-vje\u00e7ar n\u00eb Durr\u00ebs \u00ebsht\u00eb nj\u00ebri prej tyre.\r\n\r\nPamjet e nj\u00eb burri t\u00eb s\u00ebmur\u00eb, q\u00eb sipas informacioneve t\u00eb para ishte transportuar me ambulanc\u00eb nga Spitali i Durr\u00ebsit p\u00ebr t\u2019u braktisur n\u00eb \u2018rrug\u00eb\u2019, trondit\u00ebn opinionin publik. Reagime t\u00eb shumta pasuan, versione kontradiktore dhe deklarata institucionale. Fillimisht u raportua se pacienti kishte nd\u00ebrruar jet\u00eb, por m\u00eb pas Spitali Rajonal i Durr\u00ebsit sqaroi se ai ishte gjall\u00eb dhe ndodhej s\u00ebrish n\u00ebn kujdes mjek\u00ebsor, nd\u00ebrsa dy dit\u00eb pas ngjarjes Ministria e Sh\u00ebndet\u00ebsis\u00eb urdh\u00ebroi nisjen e nj\u00eb hetimi administrativ.\r\n\r\nMegjithat\u00eb, edhe pas reagimeve zyrtare, ende shum\u00eb pyetje mbeten ende pa p\u00ebrgjigje.\r\n\r\nN\u00ebse pacienti ishte n\u00eb gjendje t\u00eb stabilizuar dhe trajtimi spitalor kishte p\u00ebrfunduar, si ka mund\u00ebsi q\u00eb vet\u00ebm pak or\u00eb m\u00eb von\u00eb ai u rikthye n\u00eb spital dhe iu n\u00ebnshtrua menj\u00ebher\u00eb nj\u00eb nd\u00ebrhyrjeje tjet\u00ebr kirurgjikale, e cila p\u00ebrfundoi me amputimin e nj\u00ebr\u00ebs k\u00ebmb\u00eb? N\u00ebse, p\u00ebrkundrazi, gjendja e tij k\u00ebrkonte ende monitorim dhe nd\u00ebrhyrje, p\u00ebrse u largua nga spitali?\r\n\r\nK\u00ebto jan\u00eb pyetje q\u00eb lidhen drejtp\u00ebrdrejt me standardet e kujdesit sh\u00ebndet\u00ebsor publik n\u00eb Shqip\u00ebri.\r\n\r\nPo aq e r\u00ebnd\u00ebsishme \u00ebsht\u00eb q\u00eb institucionet t\u00eb sqarojn\u00eb se si ka funksionuar zinxhiri i vendimmarrjes n\u00eb k\u00ebt\u00eb rast. Kush e mori vendimin p\u00ebr daljen nga spitali t\u00eb pacientit t\u00eb s\u00ebmur\u00eb? Cilat ishin kriteret mjek\u00ebsore q\u00eb u ndoq\u00ebn nga vemdimarr\u00ebsit p\u00ebr rastin? A pat\u00ebn dhe a duhet t\u00eb kishin rol sh\u00ebrbimet sociale n\u00eb nj\u00eb koh\u00eb q\u00eb prej vitesh po trumbetohet nga institucionet ngritja e sh\u00ebrbimeve multidisiplinare, ku p\u00ebrfshihen sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe sociale? Dhe, a ekziston dokumentacioni q\u00eb provon se pacienti iu dor\u00ebzua v\u00ebrtet\u00eb nj\u00eb familjari, si\u00e7 deklaron spitali?\r\n\r\nNga ana tjet\u00ebr, edhe deklarata e Spitalit Rajonal t\u00eb Durr\u00ebsit ngre t\u00eb tjera pyetje. Institucioni pohon se pacienti nuk kishte vend ku t\u00eb q\u00ebndronte, se u njoftuan sh\u00ebrbimet sociale dhe Policia e Shtetit dhe se nj\u00eb familjar pranoi ta merrte n\u00eb banes\u00eb. Megjithat\u00eb, deri m\u00eb sot nuk \u00ebsht\u00eb ofruar asnj\u00eb informacion q\u00eb t\u00eb sqaroj\u00eb se kush ishte familjari (sigurisht jo t\u00eb dh\u00ebnat personale t\u00eb tij), ku ndodhej banesa apo n\u00ebse pacienti q\u00ebndroi realisht aty. P\u00ebrkundrazi, persona q\u00eb deklarojn\u00eb se e njihnin pacientin kan\u00eb pohuar publikisht se ai nuk kishte asnj\u00eb familjar q\u00eb t\u00eb kujdesej p\u00ebr t\u00eb dhe as nj\u00eb banes\u00eb ku t\u00eb strehohej. Ndaj, n\u00eb k\u00ebt\u00eb rast hetimi nuk mund t\u00eb kufizohet vet\u00ebm tek ndjekja e procedurave dhe protokolleve mjek\u00ebsore. Hetimit duhet t\u2019i n\u00ebnshtrohen t\u00eb gjitha hallkat e mekanizmave mbrojt\u00ebs, p\u00ebrfshi ato sociale.\r\n\r\nRasti i pacientit nga Durr\u00ebsi rikthen n\u00eb v\u00ebmendje nj\u00eb problem q\u00eb Together for Life e ka ngritur prej vitesh: qasjen e pabarabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore p\u00ebr pacient\u00ebt m\u00eb vulnerab\u00ebl. N\u00ebse do t\u2019i referohemi dokumentave strategjike, legjislacionit dhe deklaratave publike t\u00eb drejtuesve t\u00eb sh\u00ebndet\u00ebsis\u00eb sistemi publik garanton kujdes sh\u00ebndet\u00ebsor t\u00eb barabart\u00eb dhe t\u00eb aksesuesh\u00ebm p\u00ebr t\u00eb gjith\u00eb. Megjithat\u00eb, n\u00eb shum\u00eb raste, p\u00ebrfshi edhe k\u00ebt\u00eb t\u00eb fundit, pacient\u00ebt q\u00eb klasifikohet tek grupet me t\u00eb c\u00ebnueshme si ata nga familje t\u00eb varfra, t\u00eb braktisurit, personat me probleme t\u00eb sh\u00ebndetit mendor apo q\u00eb jetojn\u00eb n\u00eb kushte t\u00eb r\u00ebnda social-ekonomike p\u00ebrballen shpesh me barriera t\u00eb m\u00ebdha q\u00eb ua b\u00ebjn\u00eb t\u00eb v\u00ebshtir\u00eb, madje t\u00eb pamundur marrjen e trajtimit sh\u00ebndet\u00ebsor p\u00ebr t\u00eb cilin kan\u00eb nevoj\u00eb.\r\n\r\nN\u00ebse statusi social i nj\u00eb pacienti ndikon n\u00eb m\u00ebnyr\u00ebn se si ai trajtohet nga institucionet, at\u00ebher\u00eb nuk kemi t\u00eb b\u00ebjm\u00eb vet\u00ebm me nj\u00eb problem administrativ. Kemi t\u00eb b\u00ebjm\u00eb me c\u00ebnimin e parimit t\u00eb barazis\u00eb n\u00eb aksesin ndaj sh\u00ebrbimeve publike.\r\n\r\nFakti q\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb ka urdh\u00ebruar nj\u00eb hetim administrativ dhe se Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi ka nisur nj\u00eb procedur\u00eb hetimore kryesisht, \u00ebsht\u00eb p\u00ebr t\u2019u vler\u00ebsuar, por ende jo i mjaftuesh\u00ebm. P\u00ebrtej hetimit administrativ t\u00eb nisur nga dy institucionet e m\u00ebsip\u00ebrme, ky rast ngre edhe nj\u00eb tjet\u00ebr \u00e7\u00ebshtje me r\u00ebnd\u00ebsi publike: mbrojtjen e t\u00eb dh\u00ebnave personale t\u00eb pacientit. Publikimi nga institucioni spitalor i identitetit, diagnoz\u00ebs, historis\u00eb klinike dhe informacioneve tep\u00ebr sensitive, si statusi HIV dhe p\u00ebrdorimi i substancave narkotike, shtrojn\u00eb pyetjen n\u00ebse jan\u00eb respektuar detyrimet ligjore p\u00ebr konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore. Edhe n\u00ebse synimi ishte mbrojtja e institucionit nga akuzat publike, kjo nuk mund t\u00eb justifikoj\u00eb ekspozimin e t\u00eb dh\u00ebnave q\u00eb mbrohen nga legjislacioni shqiptar, Konventa Evropiane p\u00ebr t\u00eb Drejtat e Njeriut, Rregullorja Evropiane p\u00ebr Mbrojtjen e t\u00eb Dh\u00ebnave (GDPR) dhe parimet universale t\u00eb etik\u00ebs mjek\u00ebsore. Konfidencialiteti nuk \u00ebsht\u00eb nj\u00eb formalitet administrativ, \u00ebsht\u00eb element shum\u00eb i r\u00ebnd\u00ebsish\u00ebm p\u00ebr t\u00eb garantuar dinjitetin e pacientit.\r\n\r\nNdaj kjo ngjarje nuk duhet t\u00eb reduktohet vet\u00ebm n\u00eb debatin n\u00ebse pacienti u \"braktis\" apo jo. Kjo \u00ebsht\u00eb vet\u00ebm nj\u00eb pjes\u00eb e historis\u00eb. Pyetja m\u00eb e r\u00ebnd\u00ebsishme n\u00eb k\u00ebt\u00eb rast \u00ebsht\u00eb n\u00ebse sistemi funksionoi ashtu si\u00e7 duhet p\u00ebr nj\u00eb qytetar n\u00eb nevoj\u00eb. N\u00ebse u respektuan standardet profesionale. N\u00ebse institucionet bashk\u00ebpunuan si\u00e7 duhet. N\u00ebse t\u00eb drejtat e pacientit u mbrojt\u00ebn. Dhe n\u00ebse, p\u00ebrtej p\u00ebrgjegj\u00ebsive individuale, ky rast nxjerr n\u00eb pah mang\u00ebsi strukturore q\u00eb k\u00ebrkojn\u00eb reagim t\u00eb menj\u00ebher\u00ebsh.\r\n\r\nSepse nj\u00eb sistem sh\u00ebndet\u00ebsor nuk matet vet\u00ebm me buxhetin e alokuar nga fondet publike, q\u00eb p\u00ebr hir t\u00eb s\u00eb v\u00ebrtet\u00ebs vazhdojn\u00eb t\u00eb jen\u00eb m\u00eb t\u00eb ultat n\u00eb Rajon, por, mbi t\u00eb gjitha, matet me m\u00ebnyr\u00ebn si i trajton pacient\u00ebt, ve\u00e7an\u00ebrisht m\u00eb t\u00eb pambrojturit dhe t\u00eb rrezikuarit.\r\n\r\n \r\n\r\nREAGIMET E INSTITUCIONEVE \r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebq\u00ebnies Sociale - Lidhur me trajtimin e rastit t\u00eb pacientit 52-vje\u00e7ar A.A., nga qyteti i Durr\u00ebsit, Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale ka urdh\u00ebruar nisjen e nj\u00eb hetimi t\u00eb thelluar administrativ, i cili do t\u00eb shqyrtoj\u00eb n\u00eb m\u00ebnyr\u00eb t\u00eb plot\u00eb jo vet\u00ebm procedurat dhe masat e marra nga struktura spitalore, por edhe veprimet dhe p\u00ebrgjegj\u00ebsit\u00eb e strukturave t\u00eb sh\u00ebrbimit social t\u00eb p\u00ebrfshira n\u00eb k\u00ebt\u00eb rast.\r\n\r\nN\u00eb kuad\u00ebr t\u00eb k\u00ebtij procesi, drejtuesit e Operatorit t\u00eb Sh\u00ebrbimeve t\u00eb Kujdesit Sh\u00ebndet\u00ebsor dhe t\u00eb Sh\u00ebrbimit Social Shtet\u00ebror jan\u00eb n\u00eb terren p\u00ebr t\u00eb kryer verifikime t\u00eb drejtp\u00ebrdrejta dhe p\u00ebr t\u00eb mbik\u00ebqyrur procesin e hetimit administrativ t\u00eb strukturave n\u00eb qytetin e Durr\u00ebsit.\r\n\r\nNd\u00ebrkoh\u00eb, pacienti ndodhet n\u00ebn kujdesin e strukturave sh\u00ebndet\u00ebsore n\u00eb spitalin rajonal t\u00eb Durr\u00ebsit.\r\n\r\nGjithashtu, po verifikohet i gjith\u00eb dokumentacioni sh\u00ebndet\u00ebsor dhe administrativ, si edhe p\u00ebrgjegj\u00ebsia e personave t\u00eb p\u00ebrfshir\u00eb n\u00eb menaxhimin dhe transportimin e pacientit.\r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale mbetet e angazhuar p\u00ebr t\u00eb garantuar transparenc\u00eb t\u00eb plot\u00eb, zbardhjen e t\u00eb gjitha rrethanave t\u00eb k\u00ebtij rasti dhe marrjen e \u00e7do mase administrative apo ligjore q\u00eb do t\u00eb rezultoj\u00eb e nevojshme.\r\n\r\n\u00a0\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi - Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin kryesisht p\u00ebr rastin e b\u00ebr\u00eb publik n\u00eb Spitalin Rajonal t\u00eb Durr\u00ebsit\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin \u201cex-officio\u201d t\u00eb \u00e7\u00ebshtjes n\u00eb lidhje me trajtimin dhe ofrimin e sh\u00ebrbimeve t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe shoq\u00ebror ndaj shtetasit t\u00eb identifikuar si A.A, 52 vje\u00e7, nga qyteti i Durr\u00ebsit.\r\n\r\nPas informacioneve t\u00eb b\u00ebra publike n\u00eb media, Komisioneri ka vendosur fillimin e procedur\u00ebs administrative kryesisht, n\u00eb zbatim t\u00eb Ligjit nr. 10221, dat\u00eb 04.02.2010, \u201cP\u00ebr Mbrojtjen nga Diskriminimi\u201d si dhe dispozitat e Kodit t\u00eb Procedurave Administrative, p\u00ebr t\u00eb verifikuar n\u00ebse n\u00eb rastin konkret jan\u00eb respektuar parimet e trajtimit t\u00eb barabart\u00eb dhe mosdiskriminimit n\u00eb ofrimin e sh\u00ebrbimeve sh\u00ebndet\u00ebsore dhe shoq\u00ebrore.\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi mbetet i angazhuar n\u00eb garantimin e s\u00eb drejt\u00ebs s\u00eb \u00e7do individi p\u00ebr trajtim t\u00eb barabart\u00eb dhe akses pa diskriminim n\u00eb sh\u00ebrbimet publike dhe private, duke nd\u00ebrhyr\u00eb n\u00eb \u00e7do rast kur ka indicie se k\u00ebto t\u00eb drejta mund t\u00eb jen\u00eb c\u00ebnuar.\r\n\r\n \r\n\r\nSpitali Rajonal i Durr\u00ebsit - N\u00eb lidhje me lajmin e publikuar n\u00eb media, sipas t\u00eb cilit nj\u00eb pacient i trajtuar m\u00eb par\u00eb n\u00eb Spitalin Rajonal Durr\u00ebs ka nd\u00ebrruar jet\u00eb, sqarojm\u00eb se ky informacion nuk \u00ebsht\u00eb i v\u00ebrtet\u00eb.\r\n\r\nPacienti \u00ebsht\u00eb paraqitur s\u00ebrish dit\u00ebn e djeshme n\u00eb Sh\u00ebrbimin e Urgjenc\u00ebs t\u00eb Spitalit Rajonal Durr\u00ebs, ku vijon t\u00eb q\u00ebndroj\u00eb n\u00ebn kujdesin dhe vler\u00ebsimin e personelit mjek\u00ebsor.\r\n\r\nP\u00ebr informimin e plot\u00eb t\u00eb opinionit publik b\u00ebjm\u00eb me dije se pacienti ishte trajtuar m\u00eb par\u00eb n\u00eb QSUT, ku i ishte kryer nj\u00eb nd\u00ebrhyrje nga mjek\u00ebt kirurg\u00eb vaskular\u00eb n\u00eb en\u00ebt e gjakut t\u00eb k\u00ebmb\u00ebs s\u00eb majt\u00eb. Pas komunikimit nd\u00ebrmjet mjek\u00ebve, ai u shtrua n\u00eb Spitalin Rajonal Durr\u00ebs, ku q\u00ebndroi dhe u trajtua p\u00ebr disa jav\u00eb, duke marr\u00eb kujdesin e nevojsh\u00ebm mjek\u00ebsor n\u00eb p\u00ebrputhje me gjendjen e tij sh\u00ebndet\u00ebsore.\r\n\r\nPas stabilizimit t\u00eb parametrave klinik\u00eb dhe p\u00ebrfundimit t\u00eb trajtimit spitalor, pacientit iu p\u00ebrgatit epikriza dhe iu komunikua dalja nga spitali. Duke qen\u00eb se ai deklaroi se nuk kishte nj\u00eb vend ku t\u00eb q\u00ebndronte, strukturat e spitalit njoftuan sh\u00ebrbimin social dhe organet e Policis\u00eb s\u00eb Shtetit, me q\u00ebllim gjetjen e nj\u00eb zgjidhjeje t\u00eb sigurt sociale dhe familjare.\r\n\r\nPas komunikimeve t\u00eb kryera nga strukturat p\u00ebrkat\u00ebse, nj\u00eb familjar deklaroi se do ta merrte pran\u00eb banes\u00ebs s\u00eb tij. Pacienti u transportua me autoambulanc\u00eb deri n\u00eb destinacion, i shoq\u00ebruar nga punonj\u00ebs t\u00eb Policis\u00eb s\u00eb Shtetit, dhe iu dor\u00ebzua familjarit.\r\n\r\nP\u00ebr rrjedhoj\u00eb, sqarojm\u00eb se pacienti nuk \u00ebsht\u00eb nxjerr\u00eb apo braktisur n\u00eb rrug\u00eb nga Spitali Rajonal Durr\u00ebs, si\u00e7 pretendohet n\u00eb publikim. Dalja e tij nga spitali \u00ebsht\u00eb kryer pas p\u00ebrfundimit t\u00eb trajtimit, me dokumentacionin p\u00ebrkat\u00ebs mjek\u00ebsor dhe pas koordinimit me strukturat sociale, policore dhe familjare.\r\n\r\nSpitali Rajonal Durr\u00ebs u b\u00ebn thirrje mediave q\u00eb, ve\u00e7an\u00ebrisht n\u00eb raste kaq t\u00eb ndjeshme, informacioni t\u00eb verifikohet pran\u00eb institucioneve p\u00ebrkat\u00ebse p\u00ebrpara publikimit.\r\n\r\nInstitucioni yn\u00eb mbetet i angazhuar p\u00ebr ofrimin e kujdesit sh\u00ebndet\u00ebsor dhe p\u00ebr bashk\u00ebpunimin me \u00e7do autoritet kompetent, duke respektuar konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit.<\/div><\/article>TFL, fokus grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje<\/h2><\/div><\/div>Together for Life\u00a0zhvilloi nj\u00eb fokus-grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje, p\u00ebr t\u00eb\u00a0diskutuar ndikimin q\u00eb\u00a0ka pasur zbatimi\u00a0i skem\u00ebs s\u00eb\u00a0re t\u00eb vler\u00ebsimit\u00a0t\u00eb aft\u00ebsis\u00eb s\u00eb\u00a0kufizuar, bazuar n\u00eb\u00a0modelin\u00a0bio-psiko-social, si dhe sfidat\u00a0q\u00eb ata vazhdojn\u00eb\u00a0t\u00eb p\u00ebrballen \u00e7do\u00a0dit\u00eb.\r\n\r\nGjat\u00eb diskutimit u ngrit\u00ebn shqet\u00ebsime serioze mbi:\r\n\u2022 v\u00ebshtir\u00ebsit\u00eb n\u00eb procesin\u00a0e vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe munges\u00ebn e\u00a0njohjes s\u00eb plot\u00eb\u00a0t\u00eb k\u00ebsaj patologjie\u00a0nga komisionet e\u00a0vler\u00ebsimit;\r\n\u2022 munges\u00ebn e mb\u00ebshtetjes\u00a0psikologjike p\u00ebr pacient\u00ebt\u00a0dhe familjet q\u00eb\u00a0nga momenti i\u00a0diagnostikimit;\r\n\u2022 aksesin e kufizuar n\u00eb trajtime\u00a0dhe medikamente t\u00eb\u00a0domosdoshme, shum\u00eb prej\u00a0t\u00eb cilave mbeten\u00a0t\u00eb pap\u00ebrballueshme financiarisht;\r\n\u2022 munges\u00ebn e nj\u00eb\u00a0qasjeje t\u00eb integruar\u00a0p\u00ebr mbulimin e\u00a0nevojave sh\u00ebndet\u00ebsore,\u00a0sociale dhe t\u00eb\u00a0pun\u00ebsimit;\r\n\u2022 nevoj\u00ebn p\u00ebr politika\u00a0publike q\u00eb njohin\u00a0fibroz\u00ebn\u00a0cistike si nj\u00eb\u00a0s\u00ebmundje komplekse, q\u00eb\u00a0k\u00ebrkon trajtim multidisiplinar\u00a0dhe mb\u00ebshtetje t\u00eb\u00a0vazhdueshme.\r\n\r\nKy fokus-grup\u00a0\u00ebsht\u00eb pjes\u00eb\u00a0e monitorimit t\u00eb\u00a0efekteve t\u00eb reform\u00ebs\u00a0s\u00eb vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe synon t\u00eb\u00a0siguroj\u00eb q\u00eb z\u00ebri\u00a0dhe p\u00ebrvoja e\u00a0personave t\u00eb\u00a0prekur t\u00eb reflektohen\u00a0n\u00eb p\u00ebrmir\u00ebsimin e\u00a0politikave publike.\r\nAskush nuk duhet\u00a0t\u00eb mbetet pa\u00a0mb\u00ebshtetje p\u00ebr shkak\u00a0t\u00eb nj\u00eb sistemi\u00a0q\u00eb nuk arrin\u00a0t\u00eb kuptoj\u00eb kompleksitetin\u00a0e nevojave t\u00eb\u00a0tij.\r\n\r\n***\r\nTogether for Life organized a focus group with people living with cystic fibrosis and parents of children affected by the condition to discuss the impact of the implementation of the new disability assessment scheme based on the bio-psycho-social model, as well as the challenges they continue to face in accessing healthcare, social protection, and employment opportunities.\r\n\r\nParticipants highlighted several critical concerns, including:\r\n\u2022 challenges in the disability assessment process and the limited recognition of cystic fibrosis by assessment commissions;\r\n\u2022 the lack of psychological support for patients and their families from the moment of diagnosis;\r\n\u2022 limited access to essential medicines and treatment, many of which remain financially out of reach;\r\n\u2022 the absence of an integrated approach to addressing healthcare, social, and employment needs;\r\n\u2022 the urgent need for public policies that recognize cystic fibrosis as a complex condition requiring multidisciplinary care and long-term support.\r\n\r\nThis focus group forms part of the broader monitoring of the effects of Albania's disability assessment reform and aims to ensure that the experiences and voices of people living with cystic fibrosis are reflected in future policy improvements.<\/div><\/article>Trajnim me gazetar\u00eb\/ Raportimi etik i Dhun\u00ebs me Baz\u00eb Gjinore: Roli i Medias n\u00eb Nd\u00ebrgjegj\u00ebsimin Publik dhe Promovimin e Barazis\u00eb Gjinore<\/h2><\/div><\/div>\ud835\udc0a\ud835\udc2e\ud835\udc2b \ud835\udc20\ud835\udc1a\ud835\udc33\ud835\udc1e\ud835\udc2d\ud835\udc1a\ud835\udc2b\ud835\udc22 \ud835\udc2b\ud835\udc1a\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc28\ud835\udc27 \ud835\udc29\u00eb\ud835\udc2b \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc26\ud835\udc1e \ud835\udc1b\ud835\udc1a\ud835\udc33\u00eb \ud835\udc20\ud835\udc23\ud835\udc22\ud835\udc27\ud835\udc28\ud835\udc2b\ud835\udc1e \ud835\udc1a\ud835\udc29\ud835\udc28 \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc27\u00eb \ud835\udc1f\ud835\udc1a\ud835\udc26\ud835\udc22\ud835\udc25\ud835\udc23\ud835\udc1e, \ud835\udc27\ud835\udc2e\ud835\udc24 \ud835\udc29\ud835\udc28 \ud835\udc2d\ud835\udc2b\ud835\udc1e\ud835\udc20\ud835\udc28\ud835\udc27 \ud835\udc2d\ud835\udc21\ud835\udc23\ud835\udc1e\ud835\udc2c\ud835\udc21\ud835\udc2d \ud835\udc27\ud835\udc23\u00eb \ud835\udc21\ud835\udc22\ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc22. \ud835\udc0f\ud835\udc28 \ud835\udc27\ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc28\ud835\udc27 \ud835\udc27\u00eb \ud835\udc23\ud835\udc1e\ud835\udc2d\u00eb\ud835\udc27 \ud835\udc1e \ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc2e\ud835\udc23\ud835\udc2d.\n\n\n\nGjat\u00eb muajve qershor dhe korrik, gazetar\u00eb nga media t\u00eb ndryshme u b\u00ebn\u00eb pjes\u00eb e nj\u00eb serie trajnimesh kushtuar raportimit etik dhe profesional t\u00eb rasteve t\u00eb dhun\u00ebs me baz\u00eb gjinore dhe dhun\u00ebs n\u00eb familje, t\u00eb organizuara nga Together for Life, n\u00eb kuad\u00ebr t\u00eb \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc24\ud835\udc2d\ud835\udc22\ud835\udc2d \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 \u2013 \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a, i cili zbatohet nga nj\u00eb konsorcium organizatash dhe financohet nga Bashkimi Evropian.\n\n\n\n\nP\u00ebrmes analiz\u00ebs s\u00eb rasteve reale q\u00eb kan\u00eb tronditur opinionin publik pjes\u00ebmarr\u00ebsit diskutuan jo vet\u00ebm \u00e7far\u00eb raportohet, por mbi t\u00eb gjitha si raportohet.\n\n\n\nSepse gazetaria ka fuqin\u00eb:\nt\u00eb informoj\u00eb pa d\u00ebmtuar ask\u00ebnd;\n\u00a0t\u00eb mbroj\u00eb dinjitetin dhe privat\u00ebsin\u00eb e t\u00eb mbijetuarve;\n\u00a0t\u00eb edukoj\u00eb publikun;\nt\u00eb k\u00ebrkoj\u00eb llogari nga institucionet p\u00ebrgjegj\u00ebse \u2013 p\u00ebrfshir\u00eb sistemin sh\u00ebndet\u00ebsor, policin\u00eb, prokurorin\u00eb dhe sh\u00ebrbimet sociale \u2013 p\u00ebr m\u00ebnyr\u00ebn se si identifikojn\u00eb, raportojn\u00eb dhe menaxhojn\u00eb rastet e dhun\u00ebs.\n\n\nNj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e diskutimeve mes kolegeve gazetare iu kushtua sfid\u00ebs s\u00eb medias p\u00ebr t\u00eb mos r\u00ebn\u00eb pre e gar\u00ebs p\u00ebr klikime, duke shmangur gjuh\u00ebn q\u00eb romantizon dhun\u00ebn, faj\u00ebson viktim\u00ebn, cenon privat\u00ebsin\u00eb ose riviktimizon t\u00eb mbijetuarit.\n\n\n\nP\u00ebrmes metodave interaktive, si Mentimeter, gazetar\u00ebt testuan njohurit\u00eb e tyre, sfiduan perceptimet dhe reflektuan mbi p\u00ebrgjegj\u00ebsin\u00eb q\u00eb mbart \u00e7do lajm i publikuar. Sepse nj\u00eb raportim i mir\u00eb nuk matet vet\u00ebm me numrin e klikimeve.\n\n\n\n\nAi matet me ndikimin q\u00eb l\u00eb tek njer\u00ebzit, me besimin q\u00eb nd\u00ebrton dhe me kontributin q\u00eb jep p\u00ebr nj\u00eb shoq\u00ebri q\u00eb nuk e normalizon dhun\u00ebn, por e denon at\u00eb.\n\n\nKy publikim u realizua n\u00eb kuad\u00ebr t\u00eb iniciativ\u00ebs \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, t\u00eb zbatuar nga Gender Alliance for Development Centre (GADC), Together for Life dhe Institute of Romani Culture in Albania (IRCA), mb\u00ebshtetur financiarisht nga Bashkimi Evropian. P\u00ebrmbajtja e k\u00ebtij dokumenti \u00ebsht\u00eb p\u00ebrgjegj\u00ebsi e vetme e Together for Life dhe n\u00eb asnj\u00eb rrethan\u00eb nuk mund t\u00eb konsiderohet se pasqyron pozicionin e Bashkimit Evropian.\n\n\n\n***\n\n\n\n\ud835\udc16\ud835\udc21\ud835\udc1e\ud835\udc27 \ud835\udc1a \ud835\udc23\ud835\udc28\ud835\udc2e\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2c\ud835\udc2d \ud835\udc2b\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc2c \ud835\udc28\ud835\udc27 \ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b-\ud835\udc1b\ud835\udc1a\ud835\udc2c\ud835\udc1e\ud835\udc1d \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e \ud835\udc28\ud835\udc2b \ud835\udc1d\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc2c\ud835\udc2d\ud835\udc22\ud835\udc1c \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc27\ud835\udc28\ud835\udc2d \ud835\udc2c\ud835\udc22\ud835\udc26\ud835\udc29\ud835\udc25\ud835\udc32 \ud835\udc2d\ud835\udc1e\ud835\udc25\ud835\udc25\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc1a \ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc32, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc22\ud835\udc27\ud835\udc1f\ud835\udc25\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc2c\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc28\ud835\udc27\ud835\udc1e'\ud835\udc2c \ud835\udc25\ud835\udc22\ud835\udc1f\ud835\udc1e.\n\n\n\nDuring June and July, journalists from various media outlets participated in a series of training sessions on the ethical and professional reporting of gender-based violence and domestic violence cases.\n\n\nThe trainings were organized by Together for Life as part of the \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 - \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc1c\ud835\udc2d, implemented by GADC, TFL and IRCA organizations and funded by the European Union.\n\n\n\nThrough the analysis of real-life cases that have shocked public opinion, participants explored not only what is reported, but, more importantly, how it is reported.\n\n\nBecause journalism has the power to:\n\u00a0inform without causing harm;\nprotect the dignity and privacy of survivors;\neducate the public;\nhold responsible institutions, including the healthcare system, the police, the prosecution, and social services, accountable for how they identify, report, and respond to cases of violence.\n\n\nAn important part of the discussions among the participating journalists focused on the media's responsibility to resist the race for clicks by avoiding language that romanticizes violence, blames victims, violates their privacy, or re-traumatizes survivors.\n\n\n\n\n\u00a0Through interactive methods such as Mentimeter, journalists tested their knowledge, challenged their assumptions, and reflected on the responsibility that comes with every story they publish.\n\n\nBecause good journalism is not measured solely by the number of clicks. It is measured by the impact it has on people's lives, the trust it builds, and the contribution it makes to a society that does not normalize violence, but exposes and condemns it.\n\n\n\nThis publication was produced as part of the initiative \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, implemented by the Gender Alliance for Development Centre (GADC), Together for Life, and the Institute of Romani Culture in Albania (IRCA), with financial support from the European Union. The contents of this video are the sole responsibility of Together for Life and can under no circumstances be regarded as reflecting the position of the European Union.<\/div><\/article><\/div>
Ka ngjarje q\u00eb n\u00eb rrjetet sociale zgjasin vet\u00ebm pak minuta dhe pastaj harrohen si t\u00eb mos kishin ndodhur kurr\u00eb. Por ka edhe t\u00eb tilla q\u00eb kan\u00eb jehon\u00eb t\u00eb gjat\u00eb dhe marrin edhe reagimin e institucioneve. Rasti i pacientit 52-vje\u00e7ar n\u00eb Durr\u00ebs \u00ebsht\u00eb nj\u00ebri prej tyre.\r\n\r\nPamjet e nj\u00eb burri t\u00eb s\u00ebmur\u00eb, q\u00eb sipas informacioneve t\u00eb para ishte transportuar me ambulanc\u00eb nga Spitali i Durr\u00ebsit p\u00ebr t\u2019u braktisur n\u00eb \u2018rrug\u00eb\u2019, trondit\u00ebn opinionin publik. Reagime t\u00eb shumta pasuan, versione kontradiktore dhe deklarata institucionale. Fillimisht u raportua se pacienti kishte nd\u00ebrruar jet\u00eb, por m\u00eb pas Spitali Rajonal i Durr\u00ebsit sqaroi se ai ishte gjall\u00eb dhe ndodhej s\u00ebrish n\u00ebn kujdes mjek\u00ebsor, nd\u00ebrsa dy dit\u00eb pas ngjarjes Ministria e Sh\u00ebndet\u00ebsis\u00eb urdh\u00ebroi nisjen e nj\u00eb hetimi administrativ.\r\n\r\nMegjithat\u00eb, edhe pas reagimeve zyrtare, ende shum\u00eb pyetje mbeten ende pa p\u00ebrgjigje.\r\n\r\nN\u00ebse pacienti ishte n\u00eb gjendje t\u00eb stabilizuar dhe trajtimi spitalor kishte p\u00ebrfunduar, si ka mund\u00ebsi q\u00eb vet\u00ebm pak or\u00eb m\u00eb von\u00eb ai u rikthye n\u00eb spital dhe iu n\u00ebnshtrua menj\u00ebher\u00eb nj\u00eb nd\u00ebrhyrjeje tjet\u00ebr kirurgjikale, e cila p\u00ebrfundoi me amputimin e nj\u00ebr\u00ebs k\u00ebmb\u00eb? N\u00ebse, p\u00ebrkundrazi, gjendja e tij k\u00ebrkonte ende monitorim dhe nd\u00ebrhyrje, p\u00ebrse u largua nga spitali?\r\n\r\nK\u00ebto jan\u00eb pyetje q\u00eb lidhen drejtp\u00ebrdrejt me standardet e kujdesit sh\u00ebndet\u00ebsor publik n\u00eb Shqip\u00ebri.\r\n\r\nPo aq e r\u00ebnd\u00ebsishme \u00ebsht\u00eb q\u00eb institucionet t\u00eb sqarojn\u00eb se si ka funksionuar zinxhiri i vendimmarrjes n\u00eb k\u00ebt\u00eb rast. Kush e mori vendimin p\u00ebr daljen nga spitali t\u00eb pacientit t\u00eb s\u00ebmur\u00eb? Cilat ishin kriteret mjek\u00ebsore q\u00eb u ndoq\u00ebn nga vemdimarr\u00ebsit p\u00ebr rastin? A pat\u00ebn dhe a duhet t\u00eb kishin rol sh\u00ebrbimet sociale n\u00eb nj\u00eb koh\u00eb q\u00eb prej vitesh po trumbetohet nga institucionet ngritja e sh\u00ebrbimeve multidisiplinare, ku p\u00ebrfshihen sh\u00ebrbimet sh\u00ebndet\u00ebsore dhe sociale? Dhe, a ekziston dokumentacioni q\u00eb provon se pacienti iu dor\u00ebzua v\u00ebrtet\u00eb nj\u00eb familjari, si\u00e7 deklaron spitali?\r\n\r\nNga ana tjet\u00ebr, edhe deklarata e Spitalit Rajonal t\u00eb Durr\u00ebsit ngre t\u00eb tjera pyetje. Institucioni pohon se pacienti nuk kishte vend ku t\u00eb q\u00ebndronte, se u njoftuan sh\u00ebrbimet sociale dhe Policia e Shtetit dhe se nj\u00eb familjar pranoi ta merrte n\u00eb banes\u00eb. Megjithat\u00eb, deri m\u00eb sot nuk \u00ebsht\u00eb ofruar asnj\u00eb informacion q\u00eb t\u00eb sqaroj\u00eb se kush ishte familjari (sigurisht jo t\u00eb dh\u00ebnat personale t\u00eb tij), ku ndodhej banesa apo n\u00ebse pacienti q\u00ebndroi realisht aty. P\u00ebrkundrazi, persona q\u00eb deklarojn\u00eb se e njihnin pacientin kan\u00eb pohuar publikisht se ai nuk kishte asnj\u00eb familjar q\u00eb t\u00eb kujdesej p\u00ebr t\u00eb dhe as nj\u00eb banes\u00eb ku t\u00eb strehohej. Ndaj, n\u00eb k\u00ebt\u00eb rast hetimi nuk mund t\u00eb kufizohet vet\u00ebm tek ndjekja e procedurave dhe protokolleve mjek\u00ebsore. Hetimit duhet t\u2019i n\u00ebnshtrohen t\u00eb gjitha hallkat e mekanizmave mbrojt\u00ebs, p\u00ebrfshi ato sociale.\r\n\r\nRasti i pacientit nga Durr\u00ebsi rikthen n\u00eb v\u00ebmendje nj\u00eb problem q\u00eb Together for Life e ka ngritur prej vitesh: qasjen e pabarabart\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore p\u00ebr pacient\u00ebt m\u00eb vulnerab\u00ebl. N\u00ebse do t\u2019i referohemi dokumentave strategjike, legjislacionit dhe deklaratave publike t\u00eb drejtuesve t\u00eb sh\u00ebndet\u00ebsis\u00eb sistemi publik garanton kujdes sh\u00ebndet\u00ebsor t\u00eb barabart\u00eb dhe t\u00eb aksesuesh\u00ebm p\u00ebr t\u00eb gjith\u00eb. Megjithat\u00eb, n\u00eb shum\u00eb raste, p\u00ebrfshi edhe k\u00ebt\u00eb t\u00eb fundit, pacient\u00ebt q\u00eb klasifikohet tek grupet me t\u00eb c\u00ebnueshme si ata nga familje t\u00eb varfra, t\u00eb braktisurit, personat me probleme t\u00eb sh\u00ebndetit mendor apo q\u00eb jetojn\u00eb n\u00eb kushte t\u00eb r\u00ebnda social-ekonomike p\u00ebrballen shpesh me barriera t\u00eb m\u00ebdha q\u00eb ua b\u00ebjn\u00eb t\u00eb v\u00ebshtir\u00eb, madje t\u00eb pamundur marrjen e trajtimit sh\u00ebndet\u00ebsor p\u00ebr t\u00eb cilin kan\u00eb nevoj\u00eb.\r\n\r\nN\u00ebse statusi social i nj\u00eb pacienti ndikon n\u00eb m\u00ebnyr\u00ebn se si ai trajtohet nga institucionet, at\u00ebher\u00eb nuk kemi t\u00eb b\u00ebjm\u00eb vet\u00ebm me nj\u00eb problem administrativ. Kemi t\u00eb b\u00ebjm\u00eb me c\u00ebnimin e parimit t\u00eb barazis\u00eb n\u00eb aksesin ndaj sh\u00ebrbimeve publike.\r\n\r\nFakti q\u00eb Ministria e Sh\u00ebndet\u00ebsis\u00eb ka urdh\u00ebruar nj\u00eb hetim administrativ dhe se Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi ka nisur nj\u00eb procedur\u00eb hetimore kryesisht, \u00ebsht\u00eb p\u00ebr t\u2019u vler\u00ebsuar, por ende jo i mjaftuesh\u00ebm. P\u00ebrtej hetimit administrativ t\u00eb nisur nga dy institucionet e m\u00ebsip\u00ebrme, ky rast ngre edhe nj\u00eb tjet\u00ebr \u00e7\u00ebshtje me r\u00ebnd\u00ebsi publike: mbrojtjen e t\u00eb dh\u00ebnave personale t\u00eb pacientit. Publikimi nga institucioni spitalor i identitetit, diagnoz\u00ebs, historis\u00eb klinike dhe informacioneve tep\u00ebr sensitive, si statusi HIV dhe p\u00ebrdorimi i substancave narkotike, shtrojn\u00eb pyetjen n\u00ebse jan\u00eb respektuar detyrimet ligjore p\u00ebr konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore. Edhe n\u00ebse synimi ishte mbrojtja e institucionit nga akuzat publike, kjo nuk mund t\u00eb justifikoj\u00eb ekspozimin e t\u00eb dh\u00ebnave q\u00eb mbrohen nga legjislacioni shqiptar, Konventa Evropiane p\u00ebr t\u00eb Drejtat e Njeriut, Rregullorja Evropiane p\u00ebr Mbrojtjen e t\u00eb Dh\u00ebnave (GDPR) dhe parimet universale t\u00eb etik\u00ebs mjek\u00ebsore. Konfidencialiteti nuk \u00ebsht\u00eb nj\u00eb formalitet administrativ, \u00ebsht\u00eb element shum\u00eb i r\u00ebnd\u00ebsish\u00ebm p\u00ebr t\u00eb garantuar dinjitetin e pacientit.\r\n\r\nNdaj kjo ngjarje nuk duhet t\u00eb reduktohet vet\u00ebm n\u00eb debatin n\u00ebse pacienti u \"braktis\" apo jo. Kjo \u00ebsht\u00eb vet\u00ebm nj\u00eb pjes\u00eb e historis\u00eb. Pyetja m\u00eb e r\u00ebnd\u00ebsishme n\u00eb k\u00ebt\u00eb rast \u00ebsht\u00eb n\u00ebse sistemi funksionoi ashtu si\u00e7 duhet p\u00ebr nj\u00eb qytetar n\u00eb nevoj\u00eb. N\u00ebse u respektuan standardet profesionale. N\u00ebse institucionet bashk\u00ebpunuan si\u00e7 duhet. N\u00ebse t\u00eb drejtat e pacientit u mbrojt\u00ebn. Dhe n\u00ebse, p\u00ebrtej p\u00ebrgjegj\u00ebsive individuale, ky rast nxjerr n\u00eb pah mang\u00ebsi strukturore q\u00eb k\u00ebrkojn\u00eb reagim t\u00eb menj\u00ebher\u00ebsh.\r\n\r\nSepse nj\u00eb sistem sh\u00ebndet\u00ebsor nuk matet vet\u00ebm me buxhetin e alokuar nga fondet publike, q\u00eb p\u00ebr hir t\u00eb s\u00eb v\u00ebrtet\u00ebs vazhdojn\u00eb t\u00eb jen\u00eb m\u00eb t\u00eb ultat n\u00eb Rajon, por, mbi t\u00eb gjitha, matet me m\u00ebnyr\u00ebn si i trajton pacient\u00ebt, ve\u00e7an\u00ebrisht m\u00eb t\u00eb pambrojturit dhe t\u00eb rrezikuarit.\r\n\r\n \r\n\r\nREAGIMET E INSTITUCIONEVE \r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebq\u00ebnies Sociale - Lidhur me trajtimin e rastit t\u00eb pacientit 52-vje\u00e7ar A.A., nga qyteti i Durr\u00ebsit, Ministria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale ka urdh\u00ebruar nisjen e nj\u00eb hetimi t\u00eb thelluar administrativ, i cili do t\u00eb shqyrtoj\u00eb n\u00eb m\u00ebnyr\u00eb t\u00eb plot\u00eb jo vet\u00ebm procedurat dhe masat e marra nga struktura spitalore, por edhe veprimet dhe p\u00ebrgjegj\u00ebsit\u00eb e strukturave t\u00eb sh\u00ebrbimit social t\u00eb p\u00ebrfshira n\u00eb k\u00ebt\u00eb rast.\r\n\r\nN\u00eb kuad\u00ebr t\u00eb k\u00ebtij procesi, drejtuesit e Operatorit t\u00eb Sh\u00ebrbimeve t\u00eb Kujdesit Sh\u00ebndet\u00ebsor dhe t\u00eb Sh\u00ebrbimit Social Shtet\u00ebror jan\u00eb n\u00eb terren p\u00ebr t\u00eb kryer verifikime t\u00eb drejtp\u00ebrdrejta dhe p\u00ebr t\u00eb mbik\u00ebqyrur procesin e hetimit administrativ t\u00eb strukturave n\u00eb qytetin e Durr\u00ebsit.\r\n\r\nNd\u00ebrkoh\u00eb, pacienti ndodhet n\u00ebn kujdesin e strukturave sh\u00ebndet\u00ebsore n\u00eb spitalin rajonal t\u00eb Durr\u00ebsit.\r\n\r\nGjithashtu, po verifikohet i gjith\u00eb dokumentacioni sh\u00ebndet\u00ebsor dhe administrativ, si edhe p\u00ebrgjegj\u00ebsia e personave t\u00eb p\u00ebrfshir\u00eb n\u00eb menaxhimin dhe transportimin e pacientit.\r\n\r\nMinistria e Sh\u00ebndet\u00ebsis\u00eb dhe Mir\u00ebqenies Sociale mbetet e angazhuar p\u00ebr t\u00eb garantuar transparenc\u00eb t\u00eb plot\u00eb, zbardhjen e t\u00eb gjitha rrethanave t\u00eb k\u00ebtij rasti dhe marrjen e \u00e7do mase administrative apo ligjore q\u00eb do t\u00eb rezultoj\u00eb e nevojshme.\r\n\r\n\u00a0\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi - Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin kryesisht p\u00ebr rastin e b\u00ebr\u00eb publik n\u00eb Spitalin Rajonal t\u00eb Durr\u00ebsit\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi nis hetimin \u201cex-officio\u201d t\u00eb \u00e7\u00ebshtjes n\u00eb lidhje me trajtimin dhe ofrimin e sh\u00ebrbimeve t\u00eb kujdesit sh\u00ebndet\u00ebsor dhe shoq\u00ebror ndaj shtetasit t\u00eb identifikuar si A.A, 52 vje\u00e7, nga qyteti i Durr\u00ebsit.\r\n\r\nPas informacioneve t\u00eb b\u00ebra publike n\u00eb media, Komisioneri ka vendosur fillimin e procedur\u00ebs administrative kryesisht, n\u00eb zbatim t\u00eb Ligjit nr. 10221, dat\u00eb 04.02.2010, \u201cP\u00ebr Mbrojtjen nga Diskriminimi\u201d si dhe dispozitat e Kodit t\u00eb Procedurave Administrative, p\u00ebr t\u00eb verifikuar n\u00ebse n\u00eb rastin konkret jan\u00eb respektuar parimet e trajtimit t\u00eb barabart\u00eb dhe mosdiskriminimit n\u00eb ofrimin e sh\u00ebrbimeve sh\u00ebndet\u00ebsore dhe shoq\u00ebrore.\r\n\r\nKomisioneri p\u00ebr Mbrojtjen nga Diskriminimi mbetet i angazhuar n\u00eb garantimin e s\u00eb drejt\u00ebs s\u00eb \u00e7do individi p\u00ebr trajtim t\u00eb barabart\u00eb dhe akses pa diskriminim n\u00eb sh\u00ebrbimet publike dhe private, duke nd\u00ebrhyr\u00eb n\u00eb \u00e7do rast kur ka indicie se k\u00ebto t\u00eb drejta mund t\u00eb jen\u00eb c\u00ebnuar.\r\n\r\n \r\n\r\nSpitali Rajonal i Durr\u00ebsit - N\u00eb lidhje me lajmin e publikuar n\u00eb media, sipas t\u00eb cilit nj\u00eb pacient i trajtuar m\u00eb par\u00eb n\u00eb Spitalin Rajonal Durr\u00ebs ka nd\u00ebrruar jet\u00eb, sqarojm\u00eb se ky informacion nuk \u00ebsht\u00eb i v\u00ebrtet\u00eb.\r\n\r\nPacienti \u00ebsht\u00eb paraqitur s\u00ebrish dit\u00ebn e djeshme n\u00eb Sh\u00ebrbimin e Urgjenc\u00ebs t\u00eb Spitalit Rajonal Durr\u00ebs, ku vijon t\u00eb q\u00ebndroj\u00eb n\u00ebn kujdesin dhe vler\u00ebsimin e personelit mjek\u00ebsor.\r\n\r\nP\u00ebr informimin e plot\u00eb t\u00eb opinionit publik b\u00ebjm\u00eb me dije se pacienti ishte trajtuar m\u00eb par\u00eb n\u00eb QSUT, ku i ishte kryer nj\u00eb nd\u00ebrhyrje nga mjek\u00ebt kirurg\u00eb vaskular\u00eb n\u00eb en\u00ebt e gjakut t\u00eb k\u00ebmb\u00ebs s\u00eb majt\u00eb. Pas komunikimit nd\u00ebrmjet mjek\u00ebve, ai u shtrua n\u00eb Spitalin Rajonal Durr\u00ebs, ku q\u00ebndroi dhe u trajtua p\u00ebr disa jav\u00eb, duke marr\u00eb kujdesin e nevojsh\u00ebm mjek\u00ebsor n\u00eb p\u00ebrputhje me gjendjen e tij sh\u00ebndet\u00ebsore.\r\n\r\nPas stabilizimit t\u00eb parametrave klinik\u00eb dhe p\u00ebrfundimit t\u00eb trajtimit spitalor, pacientit iu p\u00ebrgatit epikriza dhe iu komunikua dalja nga spitali. Duke qen\u00eb se ai deklaroi se nuk kishte nj\u00eb vend ku t\u00eb q\u00ebndronte, strukturat e spitalit njoftuan sh\u00ebrbimin social dhe organet e Policis\u00eb s\u00eb Shtetit, me q\u00ebllim gjetjen e nj\u00eb zgjidhjeje t\u00eb sigurt sociale dhe familjare.\r\n\r\nPas komunikimeve t\u00eb kryera nga strukturat p\u00ebrkat\u00ebse, nj\u00eb familjar deklaroi se do ta merrte pran\u00eb banes\u00ebs s\u00eb tij. Pacienti u transportua me autoambulanc\u00eb deri n\u00eb destinacion, i shoq\u00ebruar nga punonj\u00ebs t\u00eb Policis\u00eb s\u00eb Shtetit, dhe iu dor\u00ebzua familjarit.\r\n\r\nP\u00ebr rrjedhoj\u00eb, sqarojm\u00eb se pacienti nuk \u00ebsht\u00eb nxjerr\u00eb apo braktisur n\u00eb rrug\u00eb nga Spitali Rajonal Durr\u00ebs, si\u00e7 pretendohet n\u00eb publikim. Dalja e tij nga spitali \u00ebsht\u00eb kryer pas p\u00ebrfundimit t\u00eb trajtimit, me dokumentacionin p\u00ebrkat\u00ebs mjek\u00ebsor dhe pas koordinimit me strukturat sociale, policore dhe familjare.\r\n\r\nSpitali Rajonal Durr\u00ebs u b\u00ebn thirrje mediave q\u00eb, ve\u00e7an\u00ebrisht n\u00eb raste kaq t\u00eb ndjeshme, informacioni t\u00eb verifikohet pran\u00eb institucioneve p\u00ebrkat\u00ebse p\u00ebrpara publikimit.\r\n\r\nInstitucioni yn\u00eb mbetet i angazhuar p\u00ebr ofrimin e kujdesit sh\u00ebndet\u00ebsor dhe p\u00ebr bashk\u00ebpunimin me \u00e7do autoritet kompetent, duke respektuar konfidencialitetin e t\u00eb dh\u00ebnave sh\u00ebndet\u00ebsore dhe dinjitetin e pacientit.<\/div><\/article>TFL, fokus grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje<\/h2><\/div>
TFL, fokus grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje<\/h2><\/div><\/div>Together for Life\u00a0zhvilloi nj\u00eb fokus-grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje, p\u00ebr t\u00eb\u00a0diskutuar ndikimin q\u00eb\u00a0ka pasur zbatimi\u00a0i skem\u00ebs s\u00eb\u00a0re t\u00eb vler\u00ebsimit\u00a0t\u00eb aft\u00ebsis\u00eb s\u00eb\u00a0kufizuar, bazuar n\u00eb\u00a0modelin\u00a0bio-psiko-social, si dhe sfidat\u00a0q\u00eb ata vazhdojn\u00eb\u00a0t\u00eb p\u00ebrballen \u00e7do\u00a0dit\u00eb.\r\n\r\nGjat\u00eb diskutimit u ngrit\u00ebn shqet\u00ebsime serioze mbi:\r\n\u2022 v\u00ebshtir\u00ebsit\u00eb n\u00eb procesin\u00a0e vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe munges\u00ebn e\u00a0njohjes s\u00eb plot\u00eb\u00a0t\u00eb k\u00ebsaj patologjie\u00a0nga komisionet e\u00a0vler\u00ebsimit;\r\n\u2022 munges\u00ebn e mb\u00ebshtetjes\u00a0psikologjike p\u00ebr pacient\u00ebt\u00a0dhe familjet q\u00eb\u00a0nga momenti i\u00a0diagnostikimit;\r\n\u2022 aksesin e kufizuar n\u00eb trajtime\u00a0dhe medikamente t\u00eb\u00a0domosdoshme, shum\u00eb prej\u00a0t\u00eb cilave mbeten\u00a0t\u00eb pap\u00ebrballueshme financiarisht;\r\n\u2022 munges\u00ebn e nj\u00eb\u00a0qasjeje t\u00eb integruar\u00a0p\u00ebr mbulimin e\u00a0nevojave sh\u00ebndet\u00ebsore,\u00a0sociale dhe t\u00eb\u00a0pun\u00ebsimit;\r\n\u2022 nevoj\u00ebn p\u00ebr politika\u00a0publike q\u00eb njohin\u00a0fibroz\u00ebn\u00a0cistike si nj\u00eb\u00a0s\u00ebmundje komplekse, q\u00eb\u00a0k\u00ebrkon trajtim multidisiplinar\u00a0dhe mb\u00ebshtetje t\u00eb\u00a0vazhdueshme.\r\n\r\nKy fokus-grup\u00a0\u00ebsht\u00eb pjes\u00eb\u00a0e monitorimit t\u00eb\u00a0efekteve t\u00eb reform\u00ebs\u00a0s\u00eb vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe synon t\u00eb\u00a0siguroj\u00eb q\u00eb z\u00ebri\u00a0dhe p\u00ebrvoja e\u00a0personave t\u00eb\u00a0prekur t\u00eb reflektohen\u00a0n\u00eb p\u00ebrmir\u00ebsimin e\u00a0politikave publike.\r\nAskush nuk duhet\u00a0t\u00eb mbetet pa\u00a0mb\u00ebshtetje p\u00ebr shkak\u00a0t\u00eb nj\u00eb sistemi\u00a0q\u00eb nuk arrin\u00a0t\u00eb kuptoj\u00eb kompleksitetin\u00a0e nevojave t\u00eb\u00a0tij.\r\n\r\n***\r\nTogether for Life organized a focus group with people living with cystic fibrosis and parents of children affected by the condition to discuss the impact of the implementation of the new disability assessment scheme based on the bio-psycho-social model, as well as the challenges they continue to face in accessing healthcare, social protection, and employment opportunities.\r\n\r\nParticipants highlighted several critical concerns, including:\r\n\u2022 challenges in the disability assessment process and the limited recognition of cystic fibrosis by assessment commissions;\r\n\u2022 the lack of psychological support for patients and their families from the moment of diagnosis;\r\n\u2022 limited access to essential medicines and treatment, many of which remain financially out of reach;\r\n\u2022 the absence of an integrated approach to addressing healthcare, social, and employment needs;\r\n\u2022 the urgent need for public policies that recognize cystic fibrosis as a complex condition requiring multidisciplinary care and long-term support.\r\n\r\nThis focus group forms part of the broader monitoring of the effects of Albania's disability assessment reform and aims to ensure that the experiences and voices of people living with cystic fibrosis are reflected in future policy improvements.<\/div><\/article>Trajnim me gazetar\u00eb\/ Raportimi etik i Dhun\u00ebs me Baz\u00eb Gjinore: Roli i Medias n\u00eb Nd\u00ebrgjegj\u00ebsimin Publik dhe Promovimin e Barazis\u00eb Gjinore<\/h2><\/div><\/div>\ud835\udc0a\ud835\udc2e\ud835\udc2b \ud835\udc20\ud835\udc1a\ud835\udc33\ud835\udc1e\ud835\udc2d\ud835\udc1a\ud835\udc2b\ud835\udc22 \ud835\udc2b\ud835\udc1a\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc28\ud835\udc27 \ud835\udc29\u00eb\ud835\udc2b \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc26\ud835\udc1e \ud835\udc1b\ud835\udc1a\ud835\udc33\u00eb \ud835\udc20\ud835\udc23\ud835\udc22\ud835\udc27\ud835\udc28\ud835\udc2b\ud835\udc1e \ud835\udc1a\ud835\udc29\ud835\udc28 \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc27\u00eb \ud835\udc1f\ud835\udc1a\ud835\udc26\ud835\udc22\ud835\udc25\ud835\udc23\ud835\udc1e, \ud835\udc27\ud835\udc2e\ud835\udc24 \ud835\udc29\ud835\udc28 \ud835\udc2d\ud835\udc2b\ud835\udc1e\ud835\udc20\ud835\udc28\ud835\udc27 \ud835\udc2d\ud835\udc21\ud835\udc23\ud835\udc1e\ud835\udc2c\ud835\udc21\ud835\udc2d \ud835\udc27\ud835\udc23\u00eb \ud835\udc21\ud835\udc22\ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc22. \ud835\udc0f\ud835\udc28 \ud835\udc27\ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc28\ud835\udc27 \ud835\udc27\u00eb \ud835\udc23\ud835\udc1e\ud835\udc2d\u00eb\ud835\udc27 \ud835\udc1e \ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc2e\ud835\udc23\ud835\udc2d.\n\n\n\nGjat\u00eb muajve qershor dhe korrik, gazetar\u00eb nga media t\u00eb ndryshme u b\u00ebn\u00eb pjes\u00eb e nj\u00eb serie trajnimesh kushtuar raportimit etik dhe profesional t\u00eb rasteve t\u00eb dhun\u00ebs me baz\u00eb gjinore dhe dhun\u00ebs n\u00eb familje, t\u00eb organizuara nga Together for Life, n\u00eb kuad\u00ebr t\u00eb \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc24\ud835\udc2d\ud835\udc22\ud835\udc2d \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 \u2013 \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a, i cili zbatohet nga nj\u00eb konsorcium organizatash dhe financohet nga Bashkimi Evropian.\n\n\n\n\nP\u00ebrmes analiz\u00ebs s\u00eb rasteve reale q\u00eb kan\u00eb tronditur opinionin publik pjes\u00ebmarr\u00ebsit diskutuan jo vet\u00ebm \u00e7far\u00eb raportohet, por mbi t\u00eb gjitha si raportohet.\n\n\n\nSepse gazetaria ka fuqin\u00eb:\nt\u00eb informoj\u00eb pa d\u00ebmtuar ask\u00ebnd;\n\u00a0t\u00eb mbroj\u00eb dinjitetin dhe privat\u00ebsin\u00eb e t\u00eb mbijetuarve;\n\u00a0t\u00eb edukoj\u00eb publikun;\nt\u00eb k\u00ebrkoj\u00eb llogari nga institucionet p\u00ebrgjegj\u00ebse \u2013 p\u00ebrfshir\u00eb sistemin sh\u00ebndet\u00ebsor, policin\u00eb, prokurorin\u00eb dhe sh\u00ebrbimet sociale \u2013 p\u00ebr m\u00ebnyr\u00ebn se si identifikojn\u00eb, raportojn\u00eb dhe menaxhojn\u00eb rastet e dhun\u00ebs.\n\n\nNj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e diskutimeve mes kolegeve gazetare iu kushtua sfid\u00ebs s\u00eb medias p\u00ebr t\u00eb mos r\u00ebn\u00eb pre e gar\u00ebs p\u00ebr klikime, duke shmangur gjuh\u00ebn q\u00eb romantizon dhun\u00ebn, faj\u00ebson viktim\u00ebn, cenon privat\u00ebsin\u00eb ose riviktimizon t\u00eb mbijetuarit.\n\n\n\nP\u00ebrmes metodave interaktive, si Mentimeter, gazetar\u00ebt testuan njohurit\u00eb e tyre, sfiduan perceptimet dhe reflektuan mbi p\u00ebrgjegj\u00ebsin\u00eb q\u00eb mbart \u00e7do lajm i publikuar. Sepse nj\u00eb raportim i mir\u00eb nuk matet vet\u00ebm me numrin e klikimeve.\n\n\n\n\nAi matet me ndikimin q\u00eb l\u00eb tek njer\u00ebzit, me besimin q\u00eb nd\u00ebrton dhe me kontributin q\u00eb jep p\u00ebr nj\u00eb shoq\u00ebri q\u00eb nuk e normalizon dhun\u00ebn, por e denon at\u00eb.\n\n\nKy publikim u realizua n\u00eb kuad\u00ebr t\u00eb iniciativ\u00ebs \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, t\u00eb zbatuar nga Gender Alliance for Development Centre (GADC), Together for Life dhe Institute of Romani Culture in Albania (IRCA), mb\u00ebshtetur financiarisht nga Bashkimi Evropian. P\u00ebrmbajtja e k\u00ebtij dokumenti \u00ebsht\u00eb p\u00ebrgjegj\u00ebsi e vetme e Together for Life dhe n\u00eb asnj\u00eb rrethan\u00eb nuk mund t\u00eb konsiderohet se pasqyron pozicionin e Bashkimit Evropian.\n\n\n\n***\n\n\n\n\ud835\udc16\ud835\udc21\ud835\udc1e\ud835\udc27 \ud835\udc1a \ud835\udc23\ud835\udc28\ud835\udc2e\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2c\ud835\udc2d \ud835\udc2b\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc2c \ud835\udc28\ud835\udc27 \ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b-\ud835\udc1b\ud835\udc1a\ud835\udc2c\ud835\udc1e\ud835\udc1d \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e \ud835\udc28\ud835\udc2b \ud835\udc1d\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc2c\ud835\udc2d\ud835\udc22\ud835\udc1c \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc27\ud835\udc28\ud835\udc2d \ud835\udc2c\ud835\udc22\ud835\udc26\ud835\udc29\ud835\udc25\ud835\udc32 \ud835\udc2d\ud835\udc1e\ud835\udc25\ud835\udc25\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc1a \ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc32, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc22\ud835\udc27\ud835\udc1f\ud835\udc25\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc2c\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc28\ud835\udc27\ud835\udc1e'\ud835\udc2c \ud835\udc25\ud835\udc22\ud835\udc1f\ud835\udc1e.\n\n\n\nDuring June and July, journalists from various media outlets participated in a series of training sessions on the ethical and professional reporting of gender-based violence and domestic violence cases.\n\n\nThe trainings were organized by Together for Life as part of the \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 - \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc1c\ud835\udc2d, implemented by GADC, TFL and IRCA organizations and funded by the European Union.\n\n\n\nThrough the analysis of real-life cases that have shocked public opinion, participants explored not only what is reported, but, more importantly, how it is reported.\n\n\nBecause journalism has the power to:\n\u00a0inform without causing harm;\nprotect the dignity and privacy of survivors;\neducate the public;\nhold responsible institutions, including the healthcare system, the police, the prosecution, and social services, accountable for how they identify, report, and respond to cases of violence.\n\n\nAn important part of the discussions among the participating journalists focused on the media's responsibility to resist the race for clicks by avoiding language that romanticizes violence, blames victims, violates their privacy, or re-traumatizes survivors.\n\n\n\n\n\u00a0Through interactive methods such as Mentimeter, journalists tested their knowledge, challenged their assumptions, and reflected on the responsibility that comes with every story they publish.\n\n\nBecause good journalism is not measured solely by the number of clicks. It is measured by the impact it has on people's lives, the trust it builds, and the contribution it makes to a society that does not normalize violence, but exposes and condemns it.\n\n\n\nThis publication was produced as part of the initiative \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, implemented by the Gender Alliance for Development Centre (GADC), Together for Life, and the Institute of Romani Culture in Albania (IRCA), with financial support from the European Union. The contents of this video are the sole responsibility of Together for Life and can under no circumstances be regarded as reflecting the position of the European Union.<\/div><\/article><\/div>
Together for Life\u00a0zhvilloi nj\u00eb fokus-grup me persona\u00a0q\u00eb jetojn\u00eb me\u00a0fibroz\u00eb cistike dhe\u00a0prind\u00ebr t\u00eb f\u00ebmij\u00ebve\u00a0t\u00eb prekur nga\u00a0kjo s\u00ebmundje, p\u00ebr t\u00eb\u00a0diskutuar ndikimin q\u00eb\u00a0ka pasur zbatimi\u00a0i skem\u00ebs s\u00eb\u00a0re t\u00eb vler\u00ebsimit\u00a0t\u00eb aft\u00ebsis\u00eb s\u00eb\u00a0kufizuar, bazuar n\u00eb\u00a0modelin\u00a0bio-psiko-social, si dhe sfidat\u00a0q\u00eb ata vazhdojn\u00eb\u00a0t\u00eb p\u00ebrballen \u00e7do\u00a0dit\u00eb.\r\n\r\nGjat\u00eb diskutimit u ngrit\u00ebn shqet\u00ebsime serioze mbi:\r\n\u2022 v\u00ebshtir\u00ebsit\u00eb n\u00eb procesin\u00a0e vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe munges\u00ebn e\u00a0njohjes s\u00eb plot\u00eb\u00a0t\u00eb k\u00ebsaj patologjie\u00a0nga komisionet e\u00a0vler\u00ebsimit;\r\n\u2022 munges\u00ebn e mb\u00ebshtetjes\u00a0psikologjike p\u00ebr pacient\u00ebt\u00a0dhe familjet q\u00eb\u00a0nga momenti i\u00a0diagnostikimit;\r\n\u2022 aksesin e kufizuar n\u00eb trajtime\u00a0dhe medikamente t\u00eb\u00a0domosdoshme, shum\u00eb prej\u00a0t\u00eb cilave mbeten\u00a0t\u00eb pap\u00ebrballueshme financiarisht;\r\n\u2022 munges\u00ebn e nj\u00eb\u00a0qasjeje t\u00eb integruar\u00a0p\u00ebr mbulimin e\u00a0nevojave sh\u00ebndet\u00ebsore,\u00a0sociale dhe t\u00eb\u00a0pun\u00ebsimit;\r\n\u2022 nevoj\u00ebn p\u00ebr politika\u00a0publike q\u00eb njohin\u00a0fibroz\u00ebn\u00a0cistike si nj\u00eb\u00a0s\u00ebmundje komplekse, q\u00eb\u00a0k\u00ebrkon trajtim multidisiplinar\u00a0dhe mb\u00ebshtetje t\u00eb\u00a0vazhdueshme.\r\n\r\nKy fokus-grup\u00a0\u00ebsht\u00eb pjes\u00eb\u00a0e monitorimit t\u00eb\u00a0efekteve t\u00eb reform\u00ebs\u00a0s\u00eb vler\u00ebsimit t\u00eb\u00a0aft\u00ebsis\u00eb s\u00eb kufizuar\u00a0dhe synon t\u00eb\u00a0siguroj\u00eb q\u00eb z\u00ebri\u00a0dhe p\u00ebrvoja e\u00a0personave t\u00eb\u00a0prekur t\u00eb reflektohen\u00a0n\u00eb p\u00ebrmir\u00ebsimin e\u00a0politikave publike.\r\nAskush nuk duhet\u00a0t\u00eb mbetet pa\u00a0mb\u00ebshtetje p\u00ebr shkak\u00a0t\u00eb nj\u00eb sistemi\u00a0q\u00eb nuk arrin\u00a0t\u00eb kuptoj\u00eb kompleksitetin\u00a0e nevojave t\u00eb\u00a0tij.\r\n\r\n***\r\nTogether for Life organized a focus group with people living with cystic fibrosis and parents of children affected by the condition to discuss the impact of the implementation of the new disability assessment scheme based on the bio-psycho-social model, as well as the challenges they continue to face in accessing healthcare, social protection, and employment opportunities.\r\n\r\nParticipants highlighted several critical concerns, including:\r\n\u2022 challenges in the disability assessment process and the limited recognition of cystic fibrosis by assessment commissions;\r\n\u2022 the lack of psychological support for patients and their families from the moment of diagnosis;\r\n\u2022 limited access to essential medicines and treatment, many of which remain financially out of reach;\r\n\u2022 the absence of an integrated approach to addressing healthcare, social, and employment needs;\r\n\u2022 the urgent need for public policies that recognize cystic fibrosis as a complex condition requiring multidisciplinary care and long-term support.\r\n\r\nThis focus group forms part of the broader monitoring of the effects of Albania's disability assessment reform and aims to ensure that the experiences and voices of people living with cystic fibrosis are reflected in future policy improvements.<\/div><\/article>Trajnim me gazetar\u00eb\/ Raportimi etik i Dhun\u00ebs me Baz\u00eb Gjinore: Roli i Medias n\u00eb Nd\u00ebrgjegj\u00ebsimin Publik dhe Promovimin e Barazis\u00eb Gjinore<\/h2><\/div>
Trajnim me gazetar\u00eb\/ Raportimi etik i Dhun\u00ebs me Baz\u00eb Gjinore: Roli i Medias n\u00eb Nd\u00ebrgjegj\u00ebsimin Publik dhe Promovimin e Barazis\u00eb Gjinore<\/h2><\/div><\/div>\ud835\udc0a\ud835\udc2e\ud835\udc2b \ud835\udc20\ud835\udc1a\ud835\udc33\ud835\udc1e\ud835\udc2d\ud835\udc1a\ud835\udc2b\ud835\udc22 \ud835\udc2b\ud835\udc1a\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc28\ud835\udc27 \ud835\udc29\u00eb\ud835\udc2b \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc26\ud835\udc1e \ud835\udc1b\ud835\udc1a\ud835\udc33\u00eb \ud835\udc20\ud835\udc23\ud835\udc22\ud835\udc27\ud835\udc28\ud835\udc2b\ud835\udc1e \ud835\udc1a\ud835\udc29\ud835\udc28 \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc27\u00eb \ud835\udc1f\ud835\udc1a\ud835\udc26\ud835\udc22\ud835\udc25\ud835\udc23\ud835\udc1e, \ud835\udc27\ud835\udc2e\ud835\udc24 \ud835\udc29\ud835\udc28 \ud835\udc2d\ud835\udc2b\ud835\udc1e\ud835\udc20\ud835\udc28\ud835\udc27 \ud835\udc2d\ud835\udc21\ud835\udc23\ud835\udc1e\ud835\udc2c\ud835\udc21\ud835\udc2d \ud835\udc27\ud835\udc23\u00eb \ud835\udc21\ud835\udc22\ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc22. \ud835\udc0f\ud835\udc28 \ud835\udc27\ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc28\ud835\udc27 \ud835\udc27\u00eb \ud835\udc23\ud835\udc1e\ud835\udc2d\u00eb\ud835\udc27 \ud835\udc1e \ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc2e\ud835\udc23\ud835\udc2d.\n\n\n\nGjat\u00eb muajve qershor dhe korrik, gazetar\u00eb nga media t\u00eb ndryshme u b\u00ebn\u00eb pjes\u00eb e nj\u00eb serie trajnimesh kushtuar raportimit etik dhe profesional t\u00eb rasteve t\u00eb dhun\u00ebs me baz\u00eb gjinore dhe dhun\u00ebs n\u00eb familje, t\u00eb organizuara nga Together for Life, n\u00eb kuad\u00ebr t\u00eb \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc24\ud835\udc2d\ud835\udc22\ud835\udc2d \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 \u2013 \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a, i cili zbatohet nga nj\u00eb konsorcium organizatash dhe financohet nga Bashkimi Evropian.\n\n\n\n\nP\u00ebrmes analiz\u00ebs s\u00eb rasteve reale q\u00eb kan\u00eb tronditur opinionin publik pjes\u00ebmarr\u00ebsit diskutuan jo vet\u00ebm \u00e7far\u00eb raportohet, por mbi t\u00eb gjitha si raportohet.\n\n\n\nSepse gazetaria ka fuqin\u00eb:\nt\u00eb informoj\u00eb pa d\u00ebmtuar ask\u00ebnd;\n\u00a0t\u00eb mbroj\u00eb dinjitetin dhe privat\u00ebsin\u00eb e t\u00eb mbijetuarve;\n\u00a0t\u00eb edukoj\u00eb publikun;\nt\u00eb k\u00ebrkoj\u00eb llogari nga institucionet p\u00ebrgjegj\u00ebse \u2013 p\u00ebrfshir\u00eb sistemin sh\u00ebndet\u00ebsor, policin\u00eb, prokurorin\u00eb dhe sh\u00ebrbimet sociale \u2013 p\u00ebr m\u00ebnyr\u00ebn se si identifikojn\u00eb, raportojn\u00eb dhe menaxhojn\u00eb rastet e dhun\u00ebs.\n\n\nNj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e diskutimeve mes kolegeve gazetare iu kushtua sfid\u00ebs s\u00eb medias p\u00ebr t\u00eb mos r\u00ebn\u00eb pre e gar\u00ebs p\u00ebr klikime, duke shmangur gjuh\u00ebn q\u00eb romantizon dhun\u00ebn, faj\u00ebson viktim\u00ebn, cenon privat\u00ebsin\u00eb ose riviktimizon t\u00eb mbijetuarit.\n\n\n\nP\u00ebrmes metodave interaktive, si Mentimeter, gazetar\u00ebt testuan njohurit\u00eb e tyre, sfiduan perceptimet dhe reflektuan mbi p\u00ebrgjegj\u00ebsin\u00eb q\u00eb mbart \u00e7do lajm i publikuar. Sepse nj\u00eb raportim i mir\u00eb nuk matet vet\u00ebm me numrin e klikimeve.\n\n\n\n\nAi matet me ndikimin q\u00eb l\u00eb tek njer\u00ebzit, me besimin q\u00eb nd\u00ebrton dhe me kontributin q\u00eb jep p\u00ebr nj\u00eb shoq\u00ebri q\u00eb nuk e normalizon dhun\u00ebn, por e denon at\u00eb.\n\n\nKy publikim u realizua n\u00eb kuad\u00ebr t\u00eb iniciativ\u00ebs \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, t\u00eb zbatuar nga Gender Alliance for Development Centre (GADC), Together for Life dhe Institute of Romani Culture in Albania (IRCA), mb\u00ebshtetur financiarisht nga Bashkimi Evropian. P\u00ebrmbajtja e k\u00ebtij dokumenti \u00ebsht\u00eb p\u00ebrgjegj\u00ebsi e vetme e Together for Life dhe n\u00eb asnj\u00eb rrethan\u00eb nuk mund t\u00eb konsiderohet se pasqyron pozicionin e Bashkimit Evropian.\n\n\n\n***\n\n\n\n\ud835\udc16\ud835\udc21\ud835\udc1e\ud835\udc27 \ud835\udc1a \ud835\udc23\ud835\udc28\ud835\udc2e\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2c\ud835\udc2d \ud835\udc2b\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc2c \ud835\udc28\ud835\udc27 \ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b-\ud835\udc1b\ud835\udc1a\ud835\udc2c\ud835\udc1e\ud835\udc1d \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e \ud835\udc28\ud835\udc2b \ud835\udc1d\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc2c\ud835\udc2d\ud835\udc22\ud835\udc1c \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc27\ud835\udc28\ud835\udc2d \ud835\udc2c\ud835\udc22\ud835\udc26\ud835\udc29\ud835\udc25\ud835\udc32 \ud835\udc2d\ud835\udc1e\ud835\udc25\ud835\udc25\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc1a \ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc32, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc22\ud835\udc27\ud835\udc1f\ud835\udc25\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc2c\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc28\ud835\udc27\ud835\udc1e'\ud835\udc2c \ud835\udc25\ud835\udc22\ud835\udc1f\ud835\udc1e.\n\n\n\nDuring June and July, journalists from various media outlets participated in a series of training sessions on the ethical and professional reporting of gender-based violence and domestic violence cases.\n\n\nThe trainings were organized by Together for Life as part of the \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 - \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc1c\ud835\udc2d, implemented by GADC, TFL and IRCA organizations and funded by the European Union.\n\n\n\nThrough the analysis of real-life cases that have shocked public opinion, participants explored not only what is reported, but, more importantly, how it is reported.\n\n\nBecause journalism has the power to:\n\u00a0inform without causing harm;\nprotect the dignity and privacy of survivors;\neducate the public;\nhold responsible institutions, including the healthcare system, the police, the prosecution, and social services, accountable for how they identify, report, and respond to cases of violence.\n\n\nAn important part of the discussions among the participating journalists focused on the media's responsibility to resist the race for clicks by avoiding language that romanticizes violence, blames victims, violates their privacy, or re-traumatizes survivors.\n\n\n\n\n\u00a0Through interactive methods such as Mentimeter, journalists tested their knowledge, challenged their assumptions, and reflected on the responsibility that comes with every story they publish.\n\n\nBecause good journalism is not measured solely by the number of clicks. It is measured by the impact it has on people's lives, the trust it builds, and the contribution it makes to a society that does not normalize violence, but exposes and condemns it.\n\n\n\nThis publication was produced as part of the initiative \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, implemented by the Gender Alliance for Development Centre (GADC), Together for Life, and the Institute of Romani Culture in Albania (IRCA), with financial support from the European Union. The contents of this video are the sole responsibility of Together for Life and can under no circumstances be regarded as reflecting the position of the European Union.<\/div><\/article><\/div>
\ud835\udc0a\ud835\udc2e\ud835\udc2b \ud835\udc20\ud835\udc1a\ud835\udc33\ud835\udc1e\ud835\udc2d\ud835\udc1a\ud835\udc2b\ud835\udc22 \ud835\udc2b\ud835\udc1a\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc28\ud835\udc27 \ud835\udc29\u00eb\ud835\udc2b \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc26\ud835\udc1e \ud835\udc1b\ud835\udc1a\ud835\udc33\u00eb \ud835\udc20\ud835\udc23\ud835\udc22\ud835\udc27\ud835\udc28\ud835\udc2b\ud835\udc1e \ud835\udc1a\ud835\udc29\ud835\udc28 \ud835\udc1d\ud835\udc21\ud835\udc2e\ud835\udc27\u00eb\ud835\udc27 \ud835\udc27\u00eb \ud835\udc1f\ud835\udc1a\ud835\udc26\ud835\udc22\ud835\udc25\ud835\udc23\ud835\udc1e, \ud835\udc27\ud835\udc2e\ud835\udc24 \ud835\udc29\ud835\udc28 \ud835\udc2d\ud835\udc2b\ud835\udc1e\ud835\udc20\ud835\udc28\ud835\udc27 \ud835\udc2d\ud835\udc21\ud835\udc23\ud835\udc1e\ud835\udc2c\ud835\udc21\ud835\udc2d \ud835\udc27\ud835\udc23\u00eb \ud835\udc21\ud835\udc22\ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc22. \ud835\udc0f\ud835\udc28 \ud835\udc27\ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc28\ud835\udc27 \ud835\udc27\u00eb \ud835\udc23\ud835\udc1e\ud835\udc2d\u00eb\ud835\udc27 \ud835\udc1e \ud835\udc1d\ud835\udc22\ud835\udc24\ud835\udc2e\ud835\udc23\ud835\udc2d.\n\n\n\nGjat\u00eb muajve qershor dhe korrik, gazetar\u00eb nga media t\u00eb ndryshme u b\u00ebn\u00eb pjes\u00eb e nj\u00eb serie trajnimesh kushtuar raportimit etik dhe profesional t\u00eb rasteve t\u00eb dhun\u00ebs me baz\u00eb gjinore dhe dhun\u00ebs n\u00eb familje, t\u00eb organizuara nga Together for Life, n\u00eb kuad\u00ebr t\u00eb \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc24\ud835\udc2d\ud835\udc22\ud835\udc2d \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 \u2013 \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a, i cili zbatohet nga nj\u00eb konsorcium organizatash dhe financohet nga Bashkimi Evropian.\n\n\n\n\nP\u00ebrmes analiz\u00ebs s\u00eb rasteve reale q\u00eb kan\u00eb tronditur opinionin publik pjes\u00ebmarr\u00ebsit diskutuan jo vet\u00ebm \u00e7far\u00eb raportohet, por mbi t\u00eb gjitha si raportohet.\n\n\n\nSepse gazetaria ka fuqin\u00eb:\nt\u00eb informoj\u00eb pa d\u00ebmtuar ask\u00ebnd;\n\u00a0t\u00eb mbroj\u00eb dinjitetin dhe privat\u00ebsin\u00eb e t\u00eb mbijetuarve;\n\u00a0t\u00eb edukoj\u00eb publikun;\nt\u00eb k\u00ebrkoj\u00eb llogari nga institucionet p\u00ebrgjegj\u00ebse \u2013 p\u00ebrfshir\u00eb sistemin sh\u00ebndet\u00ebsor, policin\u00eb, prokurorin\u00eb dhe sh\u00ebrbimet sociale \u2013 p\u00ebr m\u00ebnyr\u00ebn se si identifikojn\u00eb, raportojn\u00eb dhe menaxhojn\u00eb rastet e dhun\u00ebs.\n\n\nNj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e diskutimeve mes kolegeve gazetare iu kushtua sfid\u00ebs s\u00eb medias p\u00ebr t\u00eb mos r\u00ebn\u00eb pre e gar\u00ebs p\u00ebr klikime, duke shmangur gjuh\u00ebn q\u00eb romantizon dhun\u00ebn, faj\u00ebson viktim\u00ebn, cenon privat\u00ebsin\u00eb ose riviktimizon t\u00eb mbijetuarit.\n\n\n\nP\u00ebrmes metodave interaktive, si Mentimeter, gazetar\u00ebt testuan njohurit\u00eb e tyre, sfiduan perceptimet dhe reflektuan mbi p\u00ebrgjegj\u00ebsin\u00eb q\u00eb mbart \u00e7do lajm i publikuar. Sepse nj\u00eb raportim i mir\u00eb nuk matet vet\u00ebm me numrin e klikimeve.\n\n\n\n\nAi matet me ndikimin q\u00eb l\u00eb tek njer\u00ebzit, me besimin q\u00eb nd\u00ebrton dhe me kontributin q\u00eb jep p\u00ebr nj\u00eb shoq\u00ebri q\u00eb nuk e normalizon dhun\u00ebn, por e denon at\u00eb.\n\n\nKy publikim u realizua n\u00eb kuad\u00ebr t\u00eb iniciativ\u00ebs \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, t\u00eb zbatuar nga Gender Alliance for Development Centre (GADC), Together for Life dhe Institute of Romani Culture in Albania (IRCA), mb\u00ebshtetur financiarisht nga Bashkimi Evropian. P\u00ebrmbajtja e k\u00ebtij dokumenti \u00ebsht\u00eb p\u00ebrgjegj\u00ebsi e vetme e Together for Life dhe n\u00eb asnj\u00eb rrethan\u00eb nuk mund t\u00eb konsiderohet se pasqyron pozicionin e Bashkimit Evropian.\n\n\n\n***\n\n\n\n\ud835\udc16\ud835\udc21\ud835\udc1e\ud835\udc27 \ud835\udc1a \ud835\udc23\ud835\udc28\ud835\udc2e\ud835\udc2b\ud835\udc27\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2c\ud835\udc2d \ud835\udc2b\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc2c \ud835\udc28\ud835\udc27 \ud835\udc20\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b-\ud835\udc1b\ud835\udc1a\ud835\udc2c\ud835\udc1e\ud835\udc1d \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e \ud835\udc28\ud835\udc2b \ud835\udc1d\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc2c\ud835\udc2d\ud835\udc22\ud835\udc1c \ud835\udc2f\ud835\udc22\ud835\udc28\ud835\udc25\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc1e, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc27\ud835\udc28\ud835\udc2d \ud835\udc2c\ud835\udc22\ud835\udc26\ud835\udc29\ud835\udc25\ud835\udc32 \ud835\udc2d\ud835\udc1e\ud835\udc25\ud835\udc25\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc1a \ud835\udc2c\ud835\udc2d\ud835\udc28\ud835\udc2b\ud835\udc32, \ud835\udc2d\ud835\udc21\ud835\udc1e\ud835\udc32 \ud835\udc1a\ud835\udc2b\ud835\udc1e \ud835\udc22\ud835\udc27\ud835\udc1f\ud835\udc25\ud835\udc2e\ud835\udc1e\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc2c\ud835\udc28\ud835\udc26\ud835\udc1e\ud835\udc28\ud835\udc27\ud835\udc1e'\ud835\udc2c \ud835\udc25\ud835\udc22\ud835\udc1f\ud835\udc1e.\n\n\n\nDuring June and July, journalists from various media outlets participated in a series of training sessions on the ethical and professional reporting of gender-based violence and domestic violence cases.\n\n\nThe trainings were organized by Together for Life as part of the \ud835\udc00\ud835\udc06\ud835\udc0e\ud835\udc11\ud835\udc00 - \ud835\udc00\ud835\udc1d\ud835\udc2f\ud835\udc1a\ud835\udc27\ud835\udc1c\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc06\ud835\udc1e\ud835\udc27\ud835\udc1d\ud835\udc1e\ud835\udc2b \ud835\udc04\ud835\udc2a\ud835\udc2e\ud835\udc1a\ud835\udc25\ud835\udc22\ud835\udc2d\ud835\udc32 \ud835\udc2d\ud835\udc21\ud835\udc2b\ud835\udc28\ud835\udc2e\ud835\udc20\ud835\udc21 \ud835\udc0e\ud835\udc2f\ud835\udc1e\ud835\udc2b\ud835\udc2c\ud835\udc22\ud835\udc20\ud835\udc21\ud835\udc2d \ud835\udc1a\ud835\udc27\ud835\udc1d \ud835\udc11\ud835\udc1e\ud835\udc29\ud835\udc28\ud835\udc2b\ud835\udc2d\ud835\udc22\ud835\udc27\ud835\udc20 \ud835\udc22\ud835\udc27 \ud835\udc00\ud835\udc25\ud835\udc1b\ud835\udc1a\ud835\udc27\ud835\udc22\ud835\udc1a \ud835\udc29\ud835\udc2b\ud835\udc28\ud835\udc23\ud835\udc1e\ud835\udc1c\ud835\udc2d, implemented by GADC, TFL and IRCA organizations and funded by the European Union.\n\n\n\nThrough the analysis of real-life cases that have shocked public opinion, participants explored not only what is reported, but, more importantly, how it is reported.\n\n\nBecause journalism has the power to:\n\u00a0inform without causing harm;\nprotect the dignity and privacy of survivors;\neducate the public;\nhold responsible institutions, including the healthcare system, the police, the prosecution, and social services, accountable for how they identify, report, and respond to cases of violence.\n\n\nAn important part of the discussions among the participating journalists focused on the media's responsibility to resist the race for clicks by avoiding language that romanticizes violence, blames victims, violates their privacy, or re-traumatizes survivors.\n\n\n\n\n\u00a0Through interactive methods such as Mentimeter, journalists tested their knowledge, challenged their assumptions, and reflected on the responsibility that comes with every story they publish.\n\n\nBecause good journalism is not measured solely by the number of clicks. It is measured by the impact it has on people's lives, the trust it builds, and the contribution it makes to a society that does not normalize violence, but exposes and condemns it.\n\n\n\nThis publication was produced as part of the initiative \u201cAdvancing Gender Equality through Oversight and Reporting in Albania (AGORA)\u201d, implemented by the Gender Alliance for Development Centre (GADC), Together for Life, and the Institute of Romani Culture in Albania (IRCA), with financial support from the European Union. The contents of this video are the sole responsibility of Together for Life and can under no circumstances be regarded as reflecting the position of the European Union.<\/div><\/article><\/div>